Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for September 2022

Introduction/Hot Flashes

Hi All, I just joined this CLL community after reading various posts about hot flashes. Thanks for everyone's comments and it is comforting to know I am not...

Hi All, I just joined this CLL community after reading various posts about hot f...

FiddleMD

•2 years ago

18 Replies

The Bad Side Of UK National Healthcare

I believe in National Healthcare. People don't choose to get sick, but when they do become ill, healthcare should be available without sending a family into...

I believe in National Healthcare. People don't choose to get sick, but when the...

DanBro1

•2 years ago

14 Replies

IVIG recommended

I’m currently in remission after my one year Obinutuzumab and Venetoclax treatment. It’s been one year since finishing the Obinutuzumab infusions and my IGG...

I’m currently in remission after my one year Obinutuzumab and Venetoclax treatme...

Cllinmaryland

•2 years ago

13 Replies

Want to take advantage of all our features? Just log in!

kefir

Has anybody taken Kefir , as I have been told it can cause issues with those of us with immune system problems?

Has anybody taken Kefir , as I have been told it can cause issues with those of ...

dandelup

•2 years ago

9 Replies

Prostate Cancer Diagnosis

At the end of August my husband received a Ca prostate diagnosis. Fortunately he's been told it's fully treatable as its contained & a less aggressive form....

At the end of August my husband received a Ca prostate diagnosis. Fortunately he...

Wifey21

•2 years ago

4 Replies

Not only do I have CLL, but my daughter was told she had colorectal cancer right after she was told she was pregnant

Please don't misunderstand

Hidden

•2 years ago

6 Replies

Motorhoming in Spain

I would like to take my motorhome to Spain for two and a half months next winter and wondered where I can get information regarding risks associated with CLL...

I would like to take my motorhome to Spain for two and a half months next winter...

Thurlestone

•2 years ago

5 Replies

LLS.ORG (USA) Registry Study Provides New Insights about COVID-19 Vaccine and Blood Cancer Patients Ciitizen LLS National Patient Registry

https://www.lls.org/news/study-leukemia-lymphoma-society-provides-new-information-how-blood-cancer-patients-respond As always, thanks to everyone who joined...

https://www.lls.org/news/study-leukemia-lymphoma-society-provides-new-informatio...

lankisterguy

Volunteer•2 years ago

4 Replies

Anyone received platelets as a treatment? - UPDATE

Well, having been tested I received a letter last weekend to say I'd passed! Apparently, only 50% of applicants are passed to donate platelets. Rang the Blood...

Well, having been tested I received a letter last weekend to say I'd passed! App...

Wifey21

•2 years ago

16 Replies

Does Covid boost ALS?

I'm W&W for 2 years. Abs lymphs (ALS) were 82K in July. Got 1st Evusheld 8/23. Got Covid 8/31 and started Paxlovid same day. 5 days later, 9/5, felt great then...

I'm W&W for 2 years. Abs lymphs (ALS) were 82K in July. Got 1st Evusheld 8/23. G...

JDG45

•2 years ago

5 Replies

Ever wondered what difference achieving better than uMRD4 means to your likely overall survival? German CLL SG are finding out - CLL11 trial

From Detecting measurable residual disease beyond 10-4 through an IGHV leader-based NGS approach improves prognostic stratification in CLL...

From Detecting measurable residual disease beyond 10-4 through an IGHV leader-ba...

AussieNeil

Administrator•2 years ago

4 Replies

VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)

This pinned post replaces our earlier reference post about vaccinations for those with CLL/SLL. It has been divided into four sections, presented as a pinned...

This pinned post replaces our earlier reference post about vaccinations for thos...

CLLerinOz

Administrator•2 years ago

45 Replies

US vs Canadian COVID boosters

As I understand it, the new US bivalent booster vaccines are designed to defend against the BA.4 and BA.5 0micron variants whereas the Canadian booster only...

As I understand it, the new US bivalent booster vaccines are designed to defend ...

Vizilo

•2 years ago

2 Replies

Updated bloods

So we've had our second consultation, 5months after first and lymphocytes are up to 19 from 11 and wbc is at 25 from 14. Consultant didn't seem overly worried...

So we've had our second consultation, 5months after first and lymphocytes are up...

NewCll

•2 years ago

1 Reply

Pycnogenol is proven to start apotosis

I'm trying to get the link but pycnogenol is effective on leukemia

Hidden

•2 years ago

27 Replies

Evusheld not foolproof...be cautious still

I contracted Covid a few days ago after getting Evusheld twice... the last 300mg just about 2 weeks ago. I think one should not get complacent with Evusheld....

I contracted Covid a few days ago after getting Evusheld twice... the last 300mg...

newyork8

•2 years ago

13 Replies

Bone Marrow results #2

What has been your experience with O&V treatment and your Abnormal B cell population percent of WBC? Is it best to look at this as all or none? Cancer cells...

What has been your experience with O&V treatment and your Abnormal B cell popula...

Gardengirl44

•2 years ago

4 Replies

Paxlovid Effectiveness

Has anyone seen any data on the effectiveness of Paxlovid against the newest Covid variants ? john

Has anyone seen any data on the effectiveness of Paxlovid against the newest Cov...

johnliston

•2 years ago

8 Replies

CAR T-cell therapy

Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( with previous R-CHOP), the drug start to make a side effects after I got...

Hello I have been diagnosed with CLL/SLL previously I treated with Imbruvica( w...

htam

•2 years ago

9 Replies

Probiotics? Good or bad for us. Anyone know the answer?

Hi Everyone, Well I'm 6 months post treatment with O&V and all going well. I recently had a review with my consultant and she has taken me off the...

Hi Everyone, Well I'm 6 months post treatment with O&V and all going well. I r...

prbs2707

•2 years ago

21 Replies

Aussies and Kiwis with CLL - Your invitation to help researchers investigate what you value with respect to your care and management

Community and Patient Preference Research (CAPPRE), on behalf of a pharmaceutical company, is conducting research with people living with CLL in...

Community and Patient Preference Research (CAPPRE), on behalf of a pharmaceutica...

AussieNeil

Administrator•2 years ago

11 Replies

Reduced DOSE of Acalabrutinib/Calquence

HAs anyone been offered a reduced dose of Calquence - other than the 100mg that it comes as standard? thanks

HAs anyone been offered a reduced dose of Calquence - other than the 100mg that ...

Brucex100

•2 years ago

7 Replies

Had 5 vaccines, what abt 6th?

I had my last vaccine in March, the 5th - anyone getting extra boosters now? Can we do that in uk and if so, how?

I had my last vaccine in March, the 5th - anyone getting extra boosters now? Ca...

Research123

•2 years ago

38 Replies

Labcorp SARS Spike Ab Results

My search capability stinks, so I thought that maybe someone can help. I was trying to find some of the posts discussing the Labcorp limits on the SARS Spike...

My search capability stinks, so I thought that maybe someone can help. I was try...

hhk50

•2 years ago

13 Replies

Calquence Question

I’ve been on Calquence for 2 weeks. Do the lymph nodes just go down to nubs or do they go away to where you can’t feel them? The bulky lymph tissue in my...

I’ve been on Calquence for 2 weeks. Do the lymph nodes just go down to nubs or d...

schmooth97

•2 years ago

18 Replies

A brief update post Venetoclax+Rituximab - treatment number 4

Many of you have been kind enough to ask about my current situation. For those not aware, briefly - I relapsed within days of stopping Ibrutinib (due to...

Many of you have been kind enough to ask about my current situation. For thos...

Jm954

Administrator•2 years ago

59 Replies

CA125

Has anyone else had raised CA125 levels with either MGUS or CLL? Ovarian cancer has been eliminated but levels still slowly rising. Gynaecologist advice...

Has anyone else had raised CA125 levels with either MGUS or CLL? Ovarian can...

GinaRamsey

•2 years ago

13 Replies

Covid boosters

So here I am,sat feeling ‘off’ yet again from Covid booster number 4…asking myself is it all worth it? I’ve had Covid twice,first time put me in hospital twice...

So here I am,sat feeling ‘off’ yet again from Covid booster number 4…asking myse...

Nickos66

•2 years ago

39 Replies

Infection and sore throat with swollen neck lymph nodes

Hi ,please share your experience with sore throat and swelling of neck lymph nodes during treatment with ibrutinib, and in case of throat infection, what...

Hi ,please share your experience with sore throat and swelling of neck lymph nod...

ava1967ir

•2 years ago

4 Replies

MRD negative today

It’s been a long seven year journey. Started O&V last year, and was told I was MRD negative today. Thank you to this forum for the amazing information I...

It’s been a long seven year journey. Started O&V last year, and was told I was M...

Onmytime

•2 years ago

41 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

Introduction/Hot Flashes

The Bad Side Of UK National Healthcare

IVIG recommended

kefir

Prostate Cancer Diagnosis

Not only do I have CLL, but my daughter was told she had colorectal cancer right after she was told she was pregnant

Motorhoming in Spain

LLS.ORG (USA) Registry Study Provides New Insights about COVID-19 Vaccine and Blood Cancer Patients Ciitizen LLS National Patient Registry

Anyone received platelets as a treatment? - UPDATE

Does Covid boost ALS?

Ever wondered what difference achieving better than uMRD4 means to your likely overall survival? German CLL SG are finding out - CLL11 trial

VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)

US vs Canadian COVID boosters

Updated bloods

Pycnogenol is proven to start apotosis

Evusheld not foolproof...be cautious still

Bone Marrow results #2

Paxlovid Effectiveness

CAR T-cell therapy

Probiotics? Good or bad for us. Anyone know the answer?

Aussies and Kiwis with CLL - Your invitation to help researchers investigate what you value with respect to your care and management

Reduced DOSE of Acalabrutinib/Calquence

Had 5 vaccines, what abt 6th?

Labcorp SARS Spike Ab Results

Calquence Question

A brief update post Venetoclax+Rituximab - treatment number 4

CA125

Covid boosters

Infection and sore throat with swollen neck lymph nodes

MRD negative today

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for September 2022

Introduction/Hot Flashes

The Bad Side Of UK National Healthcare

IVIG recommended

kefir

Prostate Cancer Diagnosis

Not only do I have CLL, but my daughter was told she had colorectal cancer right after she was told she was pregnant

Motorhoming in Spain

LLS.ORG (USA) Registry Study Provides New Insights about COVID-19 Vaccine and Blood Cancer Patients Ciitizen LLS National Patient Registry

﻿Anyone received platelets as a treatment? - UPDATE

Does Covid boost ALS?

Ever wondered what difference achieving better than uMRD4 means to your likely overall survival? German CLL SG are finding out - CLL11 trial

VACCINATIONS FOR PEOPLE WITH CHRONIC LYMPHOCYTIC LEUKEMIA (CLL/SLL)

US vs Canadian COVID boosters

Updated bloods

Pycnogenol is proven to start apotosis

Evusheld not foolproof...be cautious still

Bone Marrow results #2

Paxlovid Effectiveness

CAR T-cell therapy

Probiotics? Good or bad for us. Anyone know the answer?

Aussies and Kiwis with CLL - Your invitation to help researchers investigate what you value with respect to your care and management

Reduced DOSE of Acalabrutinib/Calquence

Had 5 vaccines, what abt 6th?

Labcorp SARS Spike Ab Results

Calquence Question

A brief update post Venetoclax+Rituximab - treatment number 4

CA125

Covid boosters

Infection and sore throat with swollen neck lymph nodes

MRD negative today

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

Anyone received platelets as a treatment? - UPDATE