MRD negative today

[Onmytime]

It’s been a long seven year journey. Started O&V last year, and was told I was MRD negative today. Thank you to this forum for the amazing information I acquired over the years! I had amazing doctors (John Burke in Colorado), and family and friends by my side. So many answered prayers!

We are all so very fortunate for the advancement in treatment options, as well as the compassion flowing from this site! Wishing you all similar healing!

Happy tears all morning!

Cheers,

Donna

[cllady01 Former Volunteer]

Congratulations. Best wishes for a long remission

Would you be willing to tell us about the profile of your CLL? What deletions you have? it is helpful and encouraging to those with similar profiles to know that a V+O treatment for one year might be suitable for them and to have evidence of a good remission from a one who has had the same treatment.

[Onmytime in reply to cllady01]

yes! Let me see if I can get my accurate records before passing on

I was very bulky and the Obin crushed it!

[Sushibruno]

Donna, 🥳🥳🥳🥳🥳 so happy for you!

[SofiaDeo]

I 💖 Dr. Burke. He's worth the drive/hotel stay.

[Onmytime in reply to SofiaDeo]

Where do you come from? Maybe we can put you up one time!

[SofiaDeo in reply to Onmytime]

From either the Springs or NE New Mexico, we stay at a Fairfield Inn suite very close to the Aurora facility. That hotel is an easy, side street AM drive that takes mmm 7-8 minutes. I don't see him at Littleton or Centennial. I do travel with a menagerie of husband and 2 small dogs, so not easy guests! He loves Benihana so we do takeout for dinner, then breakfast the next day at Rosie's Diner.

[jacjar1]

Awesome news I am praying that the same will be true for me as tomorrow I start V/O.

[Onmytime in reply to jacjar1]

Best of luck! Hopefully it will go great and the year will go by quickly!

[Fran57]

That’s great… I am so pleased for you!

Stay safe,

Fran 😷

[Yalokin]

Thank you for this good news.It is raining here this morning and it sucks, but you made my day.

Keep these results coming as long as you can.The vast distance between us does not prevent me from feeling your joy and satisfaction at achieving MRD.It has rubbed off on me.

It is a strange thing in life, isn't it?

Be healthy!

Yalokin🍀🍀🍀

[onu1tadi2]

Glad to hear your good news. Would you mind telling us what test was used to determine MRD?

[Onmytime in reply to onu1tadi2]

It’s not showing up in my profile yet, but I’ll pass it on when I get it! I do know that they test 10,000 cells and all came back negative!!

[onu1tadi2 in reply to Onmytime]

I am wondering if it was a flow cytometry test. They do not have that test in Canada, but they do in US for testing MRD.

[Jm954 Administrator]

The best news ever, so happy for you!

[Hilo13]

congratulations

[Moggn]

congratulations!!!

That’s great news.

[Poodle2]

AMAZING 🎊👏🏻wonderful news. I'm on O+V, hoping to post this👆🏼next year 🙏🏻🙂

[Onmytime in reply to Poodle2]

I’ll be looking for it! 😉 Hang in there!!

[CLLCalifornia-USA]

Your news made so many of us smile today. Thanks for sharing. Sally

[BeckyLUSA]

Congratulations! What great news…Enjoy your new status!

[Fastbike14]

fantastic news. Enjoy your life and stay well

[jerard59]

Welcome to club UMRD! These a great times for some of us lucky enough to get in. I hope your remission is deep and lasting. I joined in December of last year and feel like I turned back the clock 10 years. V&O are a godsend for those who tolerate the treatment.

[Onmytime in reply to jerard59]

Yes, it is a tough treatment. I had neutropenia from the Venaclax. Received injections to boost my neutrophils and was successfully able to continue my treatment! A few bumps in the road, but I made it!!

Congratulations to you as well!

[200185]

Love hearing your positive results! Pray all of us gain those same results in our journey.

[Hidden]

Donna,

Wow, thank you for the awesome news!!! Crying too, tears of joy!

I can't wait to share this with my husband. We love being able to share in your joy. This forum is special to us.

Celebrate, enjoy your weekend and all the great days ahead!!!!

Cookie~

🤗😊💌

[Kam73]

So awesome!!! Dr. John Burke is a wonder man and a fabulous doctor. My husband sees him in Cenntenial. I see his associate Dr DeCarolis in Colorado Springs. I am so happy for you.

[Smakwater]

Such a great feeling!

JM

[studebaker]

CONGRATULATIONS 🎉🌹. Enjoy a very looooong….. remission. That is what I am hoping in February next year 🙏🏻

[Onmytime in reply to studebaker]

I’ll be looking for your good news! Stay strong!!

[Motoli]

Congrats on reaching UMRD. Success stories concerning V+O continue accumulating. My wife reaches UMR in October 2020 at month 11 of the treatment. So far so good! Cheers.

[StayingUpbeat]

Congratulations! What great news! I'm so happy for you!🥰

[Catnap7]

YAY!!!! Congrats 🎉to you May it be a long one !!! Dec will be my 2 yr remission celebration and I am so grateful 🙏🙏🙏 I and V did it for me Catnap7 🐈🐈

[GLB55]

Awesome!! Congratulations and may you be MRD to infinity and beyond!!

[Ghounds]

That's wonderful, wishing you a long and healthy remission.

[garyherm]

fantastic news

[Teddo]

Congratulations. We celebrate with you.

[bayside64]

Excellent news! Do you know what tests were used to determine MRD? I am also on O+V.

[Feldman]

Congratulations! May it last forever. So very happy for you and so inspiring for the rest of us. Stay well.

[Mystic75]

Congratulations, Donna! That is great news. Wishing you a very long and uneventful remission!

D.xo

[Agiledog]

Well, Donna, that is simply supercalifragilisticexpialidocious! Hope this carries you forward many years. I have just ramped to max venetoclax and start rituximab tomorrow. What a great boost to hear your news!! Bud

[helenolton]

Congratulations.