Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for August 2022

Your Role in Managing Your Care

Thriving with CLL: Your Role in Managing Your Care Free Webinar Presented by the Patient Empowerment Network Tuesday, August 30th 1:00 pm - 1:30 pm...

Thriving with CLL: Your Role in Managing Your Care Free Webinar Presented by th...

lankisterguy

Volunteer•2 years ago

3 Replies

Personalized Treatment Options From 5 Experts for People With CLL

The following seems to be directed to doctors, but if appropriate you may want to suggest it to your Hem/Onc or GP. The CLL experts listed are all USA, but...

The following seems to be directed to doctors, but if appropriate you may want...

lankisterguy

Volunteer•2 years ago

10 Replies

metformin

I asked my doctor if she could put me on metformin I I believe is what it's called I have got no response yet this is a type 2 diabetes drug etc can anybody...

I asked my doctor if she could put me on metformin I I believe is what it's cal...

Hidden

•2 years ago

17 Replies

Want to take advantage of all our features? Just log in!

yet the next thing...

Hello all you smart people on this site! I am 14 months in remission via a 3-drug trial cocktail --O+V+Z. Hooray! I am noticing a blossoming of warts. Yes,...

Hello all you smart people on this site! I am 14 months in remission via a 3-dr...

mouseandchair

•2 years ago

8 Replies

10 years but still feeli cant move on

I had Stemcell BMT for CLL in 2013 next year is 10 years but i dont seem to be able to move on with my life, I have several conditions that are not helping...

I had Stemcell BMT for CLL in 2013 next year is 10 years but i dont seem to be a...

pendragon

•2 years ago

7 Replies

Restoration of the immune function as a complementary strategy to treat Chronic Lymphocytic Leukemia effectively

This publication is very interesting and describes the latest approaches to the treatment of CLL, relating them to the action of the immune system. There are...

This publication is very interesting and describes the latest approaches to the ...

Yalokin

•2 years ago

12 Replies

help with drinking 2 to 3 litres of water a day.

post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water...

post allogeneic stem cell transplant I have been told I need to drink at least ...

Kraskie1915

•2 years ago

7 Replies

Imbruvica Journey Starts Next Week

Just introducing myself … I have been Watch/Wait for 6.5 years. CLL was a nothing-burger, until now. Suddenly my numbers jumped/dropped/scared the heck out of...

Just introducing myself … I have been Watch/Wait for 6.5 years. CLL was a nothi...

DogmomLM

•2 years ago

4 Replies

polymyalgia rheumatica (pmr) and CLL?

Just seeing if anyone here has got polymyalgia rheumatica (pmr) with CLL and wondering if CLL or the covid vaccines have anything to do with it? I’m really...

Just seeing if anyone here has got polymyalgia rheumatica (pmr) with CLL and won...

Heidiypi1

•2 years ago

9 Replies

Side effectsof treatment

I have been told today that I will be starting treatment after my next blood test in 3 weeks time. I have been given a booklet to read first,Welcome to...

I have been told today that I will be starting treatment after my next blood te...

Westie11-

•2 years ago

12 Replies

WBC doubling

Hi there, just had annual blood tests while on W and W for 3 years. Increase was generally slow with the WBC , but now gone from 28 a year ago to 50 WBC...

Hi there, just had annual blood tests while on W and W for 3 years. Increase w...

puppy43

•2 years ago

5 Replies

An uncertain diagnosis

When I posted a few days ago, I mentioned that my haematologist thought I may be nearing treatment. Just received a copy of her letter to my GP which feels...

When I posted a few days ago, I mentioned that my haematologist thought I may be...

JEEA

•2 years ago

13 Replies

Obinutuzumab, Venetoclax and Vaccines

Hello, I’m just starting month 3 of O+V treatment and I asked my consultant about this years Flu and Covid boosters. He replied that whilst I was on...

Hello, I’m just starting month 3 of O+V treatment and I asked my consultant abou...

carolly

•2 years ago

13 Replies

Do you like Samosas?

We love Indian food and very much like Samosas. I have put my Samosa recipe below, it's really traditional and not greasy. My Samosa I was given this recipe...

We love Indian food and very much like Samosas. I have put my Samosa recipe bel...

kitchengardener2

•2 years ago

6 Replies

Consulting a CLL Specialist

For those who live in countries which don’t have access CLL experts, are there any options of on-line consulting (paid or otherwise) CLL specialists/experts?...

For those who live in countries which don’t have access CLL experts, are there a...

nuji

•2 years ago

8 Replies

A rapid, scalable method of assessing SARS-CoV-2 cellular immunity

Following my recent musings...

bennevisplace

•2 years ago

16 Replies

Are alcohol, cigarettes and food related to CLL?

Almost no such connection was proven, but I present to you a curious site with statistics on the consumption of alcohol, meat, rice, coffee, cigarettes and...

Almost no such connection was proven, but I present to you a curious site with s...

Yalokin

•2 years ago

10 Replies

Monocytes and therapy, or not.

Has anyone had their monocytes go up (above normal range) while on therapy, specifically acalabrutinib or venetoclax or both? (Mine has creeped up over the...

Has anyone had their monocytes go up (above normal range) while on therapy, spec...

Lavinia-Blue

•2 years ago

6 Replies

osteo arthritis

Is Tylenol contraindicated when taking Ibrutinib?

Kjag

•2 years ago

2 Replies

Spot Leukaemia Early campaign

Have been updating my story for Leukaemia Care's Spot Leukaemia Early campaign, they want to feature it again this year. Hopefully they will get local and some...

Have been updating my story for Leukaemia Care's Spot Leukaemia Early campaign, ...

kitchengardener2

•2 years ago

9 Replies

EVUSHIELD and wounds

hi dear friends, any of you took the Evushield (Covid vaccination) for patients with suppressed immune system and experienced a few weeks later ugly skin...

hi dear friends, any of you took the Evushield (Covid vaccination) for patients ...

veranaish

•2 years ago

13 Replies

venetoclax

I was hoping to go on the Flair trial last year but failed at the last hurdle, my bone marrow biopsy showed I did not have the TP53 deletion which in itself is...

I was hoping to go on the Flair trial last year but failed at the last hurdle, m...

Singist

•2 years ago

20 Replies

EVUSHELD for covid pos

I have had Covid now for 5 weeks - and got admitted to hostipal 3 days ago HAving all sorts of tests My. blood show no sign of infection and my...

I have had Covid now for 5 weeks - and got admitted to hostipal 3 days ago H...

Brucex100

•2 years ago

16 Replies

'There's no safe spot on train from Covid - it can spread across carriage'

Cambridge and Imperial College London researchers have shown airborne diseases, such as Covid, spread along the whole length of a train carriage...

Cambridge and Imperial College London researchers have shown airborne diseas...

JIDD

•2 years ago

4 Replies

right eye vision very poor

I was diagnosed will CLL and has been in wait and watch. My WBC is above 1 Lakh and platlets around 1 Lakh. RBC and haemoglobin normal. No symptoms expect...

I was diagnosed will CLL and has been in wait and watch. My WBC is above 1 Lakh...

Ashwas

•2 years ago

4 Replies

ALCALABRUTINIB FAILING

Why are clinical trials our only option for the most part, why does our treatments cause more mutations and a cancer that is harder to treat, at some point,...

Why are clinical trials our only option for the most part, why does our treatmen...

CAM729

•2 years ago

41 Replies

What a journey

THANKS FOR THE ADD....Back in 2010 I was sent to a local oncologist, and he was my doctor for 3 years, he pushed for FCR straight out of the gate, I had done...

THANKS FOR THE ADD....Back in 2010 I was sent to a local oncologist, and he was ...

CAM729

•2 years ago

2 Replies

skin infections and CLL

Hi, have been on W&W for nearly 3 years and just recently have contracted Ringworm Has anyone had any experience of fungal skin infections with CLL and is...

Hi, have been on W&W for nearly 3 years and just recently have contracted Ringw...

puppy43

•2 years ago

10 Replies

Husband's First week of obinutuzumab done!

Our Doctor and nurses took every precaution to prevent tumor lysis syndrome and it worked. After a week of Allopurinol to reduce Uric Acid and a ton of premeds...

Our Doctor and nurses took every precaution to prevent tumor lysis syndrome and ...

lisakc1

•2 years ago

21 Replies

Why not - I'm asking for advice (non-CLL question) Тhank you all, we have already made a decision with your help

Today, my wife and I were invited to my neighbor's 100-year anniversary (I repeat - my neighbor's, not my wife's). We are extremely at a loss as to what gift...

Today, my wife and I were invited to my neighbor's 100-year anniversary (I repea...

Yalokin

•2 years ago

61 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

Your Role in Managing Your Care

Personalized Treatment Options From 5 Experts for People With CLL

metformin

yet the next thing...

10 years but still feeli cant move on

Restoration of the immune function as a complementary strategy to treat Chronic Lymphocytic Leukemia effectively

help with drinking 2 to 3 litres of water a day.

Imbruvica Journey Starts Next Week

polymyalgia rheumatica (pmr) and CLL?

Side effectsof treatment

WBC doubling

An uncertain diagnosis

Obinutuzumab, Venetoclax and Vaccines

Do you like Samosas?

Consulting a CLL Specialist

A rapid, scalable method of assessing SARS-CoV-2 cellular immunity

Are alcohol, cigarettes and food related to CLL?

Monocytes and therapy, or not.

osteo arthritis

Spot Leukaemia Early campaign

EVUSHIELD and wounds

venetoclax

EVUSHELD for covid pos

'There's no safe spot on train from Covid - it can spread across carriage'

right eye vision very poor

ALCALABRUTINIB FAILING

What a journey

skin infections and CLL

Husband's First week of obinutuzumab done!

Why not - I'm asking for advice (non-CLL question) Тhank you all, we have already made a decision with your help

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Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

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Posts - CLL Support | HealthUnlocked

CLL Support

All posts for August 2022

Your Role in Managing Your Care

Personalized Treatment Options From 5 Experts for People With CLL

﻿metformin

yet the next thing...

10 years but still feeli cant move on

Restoration of the immune function as a complementary strategy to treat Chronic Lymphocytic Leukemia effectively

﻿help with drinking 2 to 3 litres of water a day.

Imbruvica Journey Starts Next Week

polymyalgia rheumatica (pmr) and CLL?

﻿Side effectsof treatment

WBC doubling

An uncertain diagnosis

Obinutuzumab, Venetoclax and Vaccines

﻿Do you like Samosas?

Consulting a CLL Specialist

** A rapid, scalable method of assessing SARS-CoV-2 cellular immunity **

Are alcohol, cigarettes and food related to CLL?

Monocytes and therapy, or not.

osteo arthritis

﻿Spot Leukaemia Early campaign

EVUSHIELD and wounds

venetoclax

EVUSHELD for covid pos

'There's no safe spot on train from Covid - it can spread across carriage'

right eye vision very poor

ALCALABRUTINIB FAILING

What a journey

skin infections and CLL

Husband's First week of obinutuzumab done!

Why not - I'm asking for advice (non-CLL question) Тhank you all, we have already made a decision with your help

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive

metformin

help with drinking 2 to 3 litres of water a day.

Side effectsof treatment

Do you like Samosas?

A rapid, scalable method of assessing SARS-CoV-2 cellular immunity

Spot Leukaemia Early campaign