Posts - CLL Support | HealthUnlocked

CLL Support

22,723 members38,984 posts

All posts for June 2020

Atypical lymphoid proliferation - colon, and neck?

Hi, I haven't posted here yet. I was diagnosed with CLL at age 43 in 2012 (13Q,...
CoCoLuna11 profile image

Lymphocyte count

I thought by virtue of the name that the lymphocyte count was important! My prev...
JanChas profile image

Worried!!

Has anyone been on Venetoclax and Rituximab? I am starting treatment in a few w...
Abc123qaz profile image
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Covid19 recovery

Posted this reply to another post, just to give some hope. I didn’t feel that go...
Alex830 profile image

Rottie 1934

Have purple spots on my arm & thigh. Does anyone had anything like this on their...
Rottie1934 profile image

Plummeting leukocytes

Greetings from Paris, I've been on Venetoclax for a year and a half just 2 pills...

Treatment options in Germany?

My first post here! Male, diagnosed with CLL ~9 months ago. Ultrasound check con...
mantana profile image

CLL and the Keto diet

I went on strict Keto starting in January. My labs in March came back showing ev...
DAN1980 profile image

Cutis

Hi everyone, on watch and wait for 11mnths now, this has started happening, shou...
Shiresboy profile image

Rottie

Can someone explain the following comments on my report after seeing my oncolog...
Rottie1934 profile image

Ibrutinib - Joint Pain

I have had CLL for 20 years and have been on Ibrutinib for 3 years. In recent m...
RobertCLL profile image

Acalabrutinib treatment yes or no

So my haematologist has been able to get me access to Acalabrutinib. I’m excited...

Co-vid 19 vaccine targets espied with cancer immunotherapy eyes

Developers of COVID-19 vaccines need inspiration, and it may come from cancer re...
cllady01 profile image
Former Volunteer

Fatigue and Lethargy

What a joy to listen to someone so on top of his game, thank you Adrian and inde...
smithyboy profile image

Corona- now home from hospital!

I write this to let you know that there can be a way out of Covid. I consider my...
Accordion profile image

Newbie, Acalabrutinib for CLL as initial treatment

I was diagnosed with CLL in 2017 was due to start Chemotherapy this April but th...
Hippalus99 profile image

Any tips on moving house safely?

I am new here but have been taking Ibrutinib and Venetoclax for 18 months on the...
Jds7 profile image

No test undertaken yet

I’ve had plenty of antibiotics & antivirals & blood tests but none of the big bo...
Sepsur profile image

Forearm Pain from Imbruvica

How do I relieve the pain in my forearms? I take 140mg of Imbruvica. Thanks
brooklyn7672 profile image

Imbruvica and low Hemoglobin

I started on Imbruvica April 13. After some weeks needed blood transfusion 3 bag...
Kmegood profile image

Bone marrow biopsy results

Hi everyone, we just had a phone call from my husband hematologist/ oncologist. ...
FM1116 profile image

How does NHS treatment compare with elsewhere?

I'm on watch and wait and was looking at the CLL support website, according to w...
Research123 profile image

CLL Society Support Group VIRTUAL Meetings Coming Up!

CLL Society Support Group Meetings Coming Up! location map: https://cllsociet...
lankisterguy profile image
Volunteer

Is this cancer?!

Hello. I'm scheduled for full abdomen ultrasound this saturday. I felt a pain on...

Poikilocytosis and Burr cells

I have CLL, the slow moving type since 2013; am 68 yrs old. My blood work is no...
markjeep51 profile image

Painful flesh

Does any one experience pain when touching your flesh Is this a side effect of ...
Altindal22 profile image

How to Hug During a Pandemic

Hugging is such an essential expression of love and affection for many of us. As...
Jm954 profile image
Administrator

Hiccups?

My husband's SLL did not respond adequately to Ibrutinib and he is being transit...

New to this site

Hi, diagnosed with CLL in 2013, no symptoms, surveillance (aka W&W) until Aug 20...
26thCI profile image

My Ibrutinib/venetoclax journey

Hi all, I hope, despite the current situation in general you are all coping. I...