Painful flesh

[Altindal22]

Does any one experience pain when touching your flesh

Is this a side effect of CLL When I try to massage my legs it is so painful to touch

I asked the doctor on my phone appointment and she just asked if I was diabetic, which I am not

So if anyone else is experiencing these and you have an answer please share with me

Thank you

[Hidden]

I occasionally get areas on the surface of my skin, that are tender to the touch..... It's like the nerve endings have become super sensitive..... It comes and goes..... Although it's a bit annoying, I wouldn't call it painful... Yours may be different from mine...

[Ginajetta]

I have been on imbruvica since September 2018 and at times I experience sore sensitive skin on my legs . Comes and goes. Not sure if this helps.

[Shedman]

I had something similar on my back in the 2 years pre-treatment..

..if I went to scratch an itch, sometimes/some places would see a sharp pain.

Allodynia - pain from a stimulus that does not normally cause pain..

en.wikipedia.org/wiki/Allod...

Worth a read.

Since treatment I no longer get those pains - it was thus clearly related to my b-cell clogged lymphatic system, due to SLL/CLL.

[NoClew]

Think I probably had painful trigger spots on my legs like you describe that started before my CLL diagnosis. My doctors call it fibromyalgia, but never tied it to cll. You might look into it and see if it fits. The condition often comes with headaches, fatigue, an odd combination of annoying symptoms you might not think related. Hope you find something that helps.

[Ginajetta in reply to NoClew]

Interesting i was diagnosed with fibromyalgia decades ago. Cll in 2007. Something to think about.

[Psmithuk]

Your post and the replies are really interesting, though I have no explanation. Every night when my pyjamas go on, the hem on the legs just touches the skin on the top of my feet, and it Is exquisitely painful till I move them. Very strange, though it’s never occurred to me it was CLL. I just assumed I’m a bit strange!

Cx

[Peggy4]

I have sore skin frequently but have no idea whether it’s connected to the CLL.

Peggy 😀

[GMa27]

Sometimes when I get a pedicure the massaging is painful. Couldn't figure why. Just thought it was the person doing it Wasn't until a year before treatment that it happened. Has happened a few times after chemo.

I had a pedicure few weeks ago and it felt great.

Very interesting idea. Never associated it with CLL cuz I have friends who said sometimes it bothers them. 💕

[Horatio2]

I know exactly what you are talking about. It is also my legs. My legs hurt/ache quite a bit and my legs feel tender to the touch at times. I have my next dr. appointment for blood work, etc. in July, and I plan to discuss this with my doctor.

[Altindal22 in reply to Horatio2]

It’ll be interesting to know what they would say

[Cindi73]

I have fibromyalgia. When I'm having a flair up my skin feels like it's bruised. Maybe you should see a rheumatologist. Wishing you the best. Cindi