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CLL Support

22,532 members • 38,709 posts

All posts for October 2018

Fmla...cll and ft work

Going on week 5 trying to heal from bronchitis and sinusitis combo. I haven't been able to rest enough because of work demands. I'm thinking about signing...

Going on week 5 trying to heal from bronchitis and sinusitis combo. I haven't b...

ANTIQUEHUNTER

•6 years ago

13 Replies

Magnesium

How much Magnesium is recommended for muscle spasms?

grndmthr1

•6 years ago

9 Replies

CAR-T

http://www.ascopost.com/issues/september-25-2018/car-t-cell-therapy-for-cll/ We treat so many patients with this therapy, and as we discussed about the...

http://www.ascopost.com/issues/september-25-2018/car-t-cell-therapy-for-cll/ We...

Hidden

•6 years ago

6 Replies

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High EOSINOPHILIA labs

Has anyone with CLL had problems with an extremely High EOSINOPHILIA labs? Mind is at a major high of (15). Had been going way up over the past year! We have...

Has anyone with CLL had problems with an extremely High EOSINOPHILIA labs? Mind...

Mimi4times

•6 years ago

18 Replies

Anemia on Ibrutinib

Posting for a friend who started ibrutinib very recently. This is her first treatment. "After two weeks on ibrutinib, my hemoglobin level is 7.6 so I need a...

Posting for a friend who started ibrutinib very recently. This is her first tre...

Eagle5327

•6 years ago

9 Replies

Bottled Water... something to be aware of...

I drink only bottled water, and I mention this because something startled me a couple of time in the past few months. This has happen on 3 occasions. I open a...

I drink only bottled water, and I mention this because something startled me a c...

Cllcanada

WHAT IS NK CELL THERAPY?

In a talk in india, NK Cell therapy was mentioned as effective for blood cancers. Do we have CLL case stories? vinnet

In a talk in india, NK Cell therapy was mentioned as effective for blood cancer...

vinnet

•6 years ago

8 Replies

Great article about Nobel winner Jim Allison also gives some theory

https://www.wired.com/story/meet-jim-allison-the-texan-who-just-won-a-nobel-cancer-breakthrough/ The article has some surprisingly good explanations of parts...

https://www.wired.com/story/meet-jim-allison-the-texan-who-just-won-a-nobel-canc...

SeymourB

•6 years ago

3 Replies

Eating Organic food has less risk to cancer

You can cut your cancer risk by eating organic, a new study says. ou can protect yourself from cancer by eating organic, a new study suggests. Those who...

You can cut your cancer risk by eating organic, a new study says. ou can protect...

naddude

•6 years ago

19 Replies

SLEEP ... SLEEP ... SLEEP

Stage 0 CLL on W&W - no anemia, do not feel depressed. Make list of things to do etc, but JUST WANT TO SLEEP! About 3 long naps/day. Onc says see internist...

Stage 0 CLL on W&W - no anemia, do not feel depressed. Make list of things to do...

CLLmoxie

•6 years ago

62 Replies

CLL Society Alert - October 23, 2018

http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=27a5c5e8-da36-47c0-8638-d063a29a0bd1 This newsletter is issued by email several times per...

http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=27a5c5e8-da36-...

lankisterguy

Volunteer•6 years ago

2 Replies

very-high-risk level alcohol use = a 22-year reduction in life expectancy, all cancers together only resulted in 10 years reduction.

https://www.mdedge.com/internalmedicinenews/article/177481/addiction-medicine/big-drinkers-face-newly-appreciated-massive?utm_source=News_Power_eNL_102218_F&utm

https://www.mdedge.com/internalmedicinenews/article/177481/addiction-medicine/bi...

lankisterguy

Volunteer•6 years ago

2 Replies

Light Therapy

Has anyone stopped light therapy for dermatology because of CLL? Or continued? Or started after diagnosis? Dermatologists at NIH suggest I do not take any...

Has anyone stopped light therapy for dermatology because of CLL? Or continued? O...

DriedSeaweed

•6 years ago

4 Replies

Which popular diets are fads?

Found this recommended check list for assessing whether a diet was a fad and considered it could equally apply to diets promoted to help fight or cure cancer:...

Found this recommended check list for assessing whether a diet was a fad and con...

AussieNeil

Administrator•6 years ago

6 Replies

Neulasta side effects

I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my...

I am going through FCR and I had a rough time after the 4th round. I am thinkin...

gfreiman

•6 years ago

8 Replies

Safety Analysis of Four Randomized Controlled Studies of Ibrutinib in Patients With Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma

https://www.clinical-lymphoma-myeloma-leukemia.com/article/S2152-2650(18)30265-9/fulltext Results The median treatment duration was 13.3 months (maximum, 28.2...

https://www.clinical-lymphoma-myeloma-leukemia.com/article/S2152-2650(18)30265-9...

lankisterguy

Volunteer•6 years ago

Be the first to reply

Strategies for caring for the well cancer survivor

Surveillance of existing cancer, management of treatment-related adverse effects, and screening for second cancers are key to the care the Family physician...

Surveillance of existing cancer, management of treatment-related adverse effects...

lankisterguy

Volunteer•6 years ago

1 Reply

Fatigue

I was just reading some messages and decided to join the group... I was stunned to be diagnosed with CLL 3 years ago. I have always been healthy and active.......

I was just reading some messages and decided to join the group... I was stunned ...

DFM2018

•6 years ago

19 Replies

beginning with Ibrutinib

Next week i will begin with Ibrutinib , as told i am igvh and p53 mutated .RC , platelels are good . Inmunoglobulins down the normal , but no infections. Some...

Next week i will begin with Ibrutinib , as told i am igvh and p53 mutated .RC ,...

antonb

•6 years ago

13 Replies

Imbruvica after Dilantin

I've been on imbruvica for 2 years and was also taking Dilantin for seizures. I was told Dilantin kept the Imbruvica from working properly so I went off...

I've been on imbruvica for 2 years and was also taking Dilantin for seizures. I ...

Jamstev71

•6 years ago

2 Replies

High or not

New member Hi just been told my wbc are 15 need more tests. Been going up since 2015. Just a little bit worried.

New member Hi just been told my wbc are 15 need more tests. Been going up since ...

Walledgarden

•6 years ago

8 Replies

From peaceful coexistence to potential peril: the bacteria that live in and on us

"Bacteria are everywhere, including in and on our bodies. : Bacteria can be good. Our gut is full of bacteria, which help digest food....

"Bacteria are everywhere, including in and on our bodies. : Bacteria can be go...

AussieNeil

Administrator•6 years ago

Be the first to reply

Colonoscopy

I had a colonoscopy five years. Recently I had my annual and my primary physician who also specializes in colonoscopy scheduled me for a colonoscopy for next...

I had a colonoscopy five years. Recently I had my annual and my primary physici...

Angie4now

•6 years ago

46 Replies

Dr. I. Flinn...Recognizing the Side Effects of Newly Approved CLL Therapies

Today we are discussing the management of patients with chronic lymphocytic leukemia (CLL), including incorporating the newest approved therapies for CLL:...

Today we are discussing the management of patients with chronic lymphocytic leuk...

Cllcanada

Iraq connection

I am a retired soldier that served in Iraq in 2003-2004. I was exposed to burn pits, oil well fires, and dust storms. I got diagnosed with CLL April of 2018....

I am a retired soldier that served in Iraq in 2003-2004. I was exposed to burn p...

Baghdad

•6 years ago

6 Replies

Progressing cll

So my husband had a biopsy yesterday and the doctor called to say that it isn’t a transformation but CLL progressing. I don’t know much about the different...

So my husband had a biopsy yesterday and the doctor called to say that it isn’t ...

Kokobean

•6 years ago

16 Replies

What can I expect from my appointment with hematologist

My primary doctor says I have cll... I'm going to the appointment with the expectation that I do I don't have any real symptoms with the exception of...

My primary doctor says I have cll... I'm going to the appointment with the expec...

Nick2121

•6 years ago

14 Replies

Newbie

Hello! I just received my second ivig treatment. The first resulted in a trip to the ER because of Charlie horse muscle spasms and migraines. In was getting...

Hello! I just received my second ivig treatment. The first resulted in a trip t...

musicteach85

•6 years ago

9 Replies

High CLL IN BONE MARROW

I read some where that having a high CLL reading in your bone marrow doesn’t matter, can anyone explain this please?

I read some where that having a high CLL reading in your bone marrow doesn’t mat...

BasTel

•6 years ago

14 Replies

Update: No FCR, we will start Ibrutinib

Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and...

Just got back from the CLL specialist to who we went for the second opinion. B...

paula_dae

•6 years ago

7 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for October 2018

Fmla...cll and ft work

Magnesium

CAR-T

High EOSINOPHILIA labs

Anemia on Ibrutinib

Bottled Water... something to be aware of...

WHAT IS NK CELL THERAPY?

Great article about Nobel winner Jim Allison also gives some theory

Eating Organic food has less risk to cancer

SLEEP ... SLEEP ... SLEEP

CLL Society Alert - October 23, 2018

very-high-risk level alcohol use = a 22-year reduction in life expectancy, all cancers together only resulted in 10 years reduction.

Light Therapy

Which popular diets are fads?

Neulasta side effects

Safety Analysis of Four Randomized Controlled Studies of Ibrutinib in Patients With Chronic Lymphocytic Leukemia/Small Lymphocytic Lymphoma

Strategies for caring for the well cancer survivor

Fatigue

beginning with Ibrutinib

Imbruvica after Dilantin

High or not

From peaceful coexistence to potential peril: the bacteria that live in and on us

Colonoscopy

Dr. I. Flinn...Recognizing the Side Effects of Newly Approved CLL Therapies

Iraq connection

Progressing cll

What can I expect from my appointment with hematologist

Newbie

High CLL IN BONE MARROW

Update: No FCR, we will start Ibrutinib

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