Posts - CLL Support | HealthUnlocked

CLL Support

22,532 members • 38,709 posts

All posts for June 2016

What's the connection between deaths caused entanglement in bed sheets and revenue from skiing facilities?

There's a famous saying 'Correlation isn’t causation'. The accompanying plot of 10 year's data from the USA, showing the number of people who died by becoming...

There's a famous saying 'Correlation isn’t causation'. The accompanying plot of...

AussieNeil

Administrator•8 years ago

4 Replies

Science or snake oil: is Garcinia cambogia the magic weight-loss pill it’s hyped up to be?

'Some complementary medicines have been found to contribute to improved health outcomes, through increased efficacy and cost-effectiveness. However, if...

'Some complementary medicines have been found to contribute to improved health o...

AussieNeil

Administrator•8 years ago

Be the first to reply

Dr. Wierda on the Importance of Clinical Trials

I’m home from the European Hematology Association Congress in Copenhagen. I received very positive feedback on my lecture and the preliminary data from our...

I’m home from the European Hematology Association Congress in Copenhagen. I rec...

bkoffman

CLL CURE Hero•8 years ago

5 Replies

Want to take advantage of all our features? Just log in!

Maca Powder for Energy?

My acupuncturist recommended I talk to my doc about maca powder to relieve fatigue. Has anyone here tried it? Good? Bad? Indifferent?

My acupuncturist recommended I talk to my doc about maca powder to relieve fatig...

Ducksoup

•8 years ago

4 Replies

ITCHY EYES SORES ON MY FACE.

has anybody out there taking imbruvica 140mg getting soars on there face they get itchy also itchy eyes cant stop scratching my eyes been too dermatologist was...

has anybody out there taking imbruvica 140mg getting soars on there face they ge...

piere1

•8 years ago

6 Replies

Facebook Live with Andrew and Esther Schorr

Recently, we asked the Patient Power Community to weigh in on how cancer drug costs affect their lives. Now, Patient Power founders, Andrew and Esther Schorr,...

Recently, we asked the Patient Power Community to weigh in on how cancer drug co...

tclementi

•8 years ago

Be the first to reply

Personalised medicine has obvious benefits but has anyone thought about the issues?

As we gradually understand more of the complex genetics driving the development of CLL and use that information to better determine what specific treatment...

As we gradually understand more of the complex genetics driving the development ...

AussieNeil

Administrator•8 years ago

3 Replies

Personal Message Makeover

Anyone using the PM feature will notice a significant change in appearance and function. Joel from HU has advised: "I just wanted to let you know about a...

Anyone using the PM feature will notice a significant change in appearance and f...

AussieNeil

Administrator•8 years ago

3 Replies

Brain MRI

Has anybody had a brain MRI due to CLL?

BIDELVIE

•8 years ago

13 Replies

Anxious, worried, and sad

I am the mother of 3 and 48 years old. I was just diagnosed on 5/27/16 and am sick with worry and anxiety. Just wondering how long it takes to finally accept...

I am the mother of 3 and 48 years old. I was just diagnosed on 5/27/16 and am s...

Hidden

•8 years ago

40 Replies

Thanks for the OSU/Dr. Byrd recommendations.

My initial visit with Dr. Byrd was Tuesday, and I am very pleased with how they do things there.

My initial visit with Dr. Byrd was Tuesday, and I am very pleased with how they ...

KHuff

•8 years ago

2 Replies

CLL & Essential Thrombocytosis

17 yrs w&w,now treating ET with Hydra (Hydroxyurea).Platelets had gone up to 1000 (400 is considered pretty high) One interesting goody that I have had happen...

17 yrs w&w,now treating ET with Hydra (Hydroxyurea).Platelets had gone up to 100...

kitcat49

•8 years ago

1 Reply

Allogeneic Transplantation for Chronic Lymphocytic Leukemia in the Age of Novel Treatment Strategies

Given we currently have a few members going through bone marrow transplants, this review article in CancerNetwork by Mark-Alexander Schwarzbich, MD, Fabienne...

Given we currently have a few members going through bone marrow transplants, thi...

AussieNeil

Administrator•8 years ago

3 Replies

Day 2 of Obin, Ibutinib, Venetoclax Clinical Trial

Hi everyone, I completed the second day of the trial, and I couldn’t be happier about my decision. Day 2 was “Groundhog Day,” i.e. a repeat of day 1 in all...

Hi everyone, I completed the second day of the trial, and I couldn’t be happier ...

thompsonellen

•8 years ago

41 Replies

17080.00

Together we will beat Blood Cancer - I believe this with all my Heart Jules - TheFlyer

Together we will beat Blood Cancer - I believe this with all my Heart Jules -...

TheFlyer

•8 years ago

2 Replies

Watch And Wait

Has anyone had CLL for a few years without any treatments. Anne

annabelle63

•8 years ago

28 Replies

What to do?

Hi all, I have a decision to make and would like your feedback. I read the posts regularly but don't post much. So, I was diagnosed with CLL last year 6/15 at...

Hi all, I have a decision to make and would like your feedback. I read the posts...

SandiC

•8 years ago

29 Replies

First Day of Obin, Ibrutinib, Venetoclax Trial at OSU

Hi, I respond several times a week to other posts, but having written one. I am participating at the OSU trial and since I've benefited from hearing about...

Hi, I respond several times a week to other posts, but having written one. I am...

thompsonellen

•8 years ago

26 Replies

Risk of chromosomal aberration induced by EGCG

Everyone ; I found many valuable information and discussion on effects of EGCG, surprised to hear that a large amount of EGCG uptake may have a risk of DNA...

Everyone ; I found many valuable information and discussion on effects of EGCG,...

Miee

•8 years ago

10 Replies

Fancy tackling the London 10K at short notice? Places have just come available. See the sights and raise funds for CLLSA on July 10th

We need your help, we have had half a dozen team CLLSA places come available.. Are you a little crazy and fancy a challenge with friends at short notice? ?...

We need your help, we have had half a dozen team CLLSA places come available....

HAIRBEAR_UK

Founder Admin•8 years ago

Be the first to reply

Cancer Lottery - campaign asking for fair consideration of new drugs required to treat rarer cancer patients in the UK

Many will have been following the unsatisfactory way in which new drugs for CLL are being assessed and Ibrutinib not gaining a favourable preliminary...

Many will have been following the unsatisfactory way in which new drugs for CLL ...

HAIRBEAR_UK

Founder Admin•8 years ago

7 Replies

We know why bacteria become resistant to antibiotics, but how does this actually happen?

Here's an easy to follow article explaining how bacteria develop resistance to antibiotics by Laura Christine McCaughey, Research Fellow in...

Here's an easy to follow article explaining how bacteria develop resistance to a...

AussieNeil

Administrator•8 years ago

1 Reply

Should we still be choosing fat-free over full-fat products?

AussieNeil

Administrator•8 years ago

5 Replies

How to pick the good from the bad health apps

'With an estimated 100,000 health and fitness apps available on the two leading smartphone platforms, iOS and Android, it seems there is an app for...

'With an estimated 100,000 health and fitness apps available on the two leading ...

AussieNeil

Administrator•8 years ago

6 Replies

Manuka Honey. The good The bad and The ugly

So much hype about honey especially Raw Manuka from New Zealand. Any idea how it inpacks CLL?

So much hype about honey especially Raw Manuka from New Zealand. Any idea how i...

Ajkeli73

•8 years ago

7 Replies

Understanding cbc

I am struggling to interpret my CBC. Which is the number that I monitor for doubling time? Is it the lymph# or lymph%. What about the beta 2. My lymph % is...

I am struggling to interpret my CBC. Which is the number that I monitor for dou...

Jemisavs5

•8 years ago

26 Replies

Frustrated

Hi everyone, I'm really frustrated. I was diagnosed with CLL almost a year ago and am on W&W. I see my Oncologist every three months. My numbers have looked...

Hi everyone, I'm really frustrated. I was diagnosed with CLL almost a year ago...

BCTexas

•8 years ago

25 Replies

A little help with results

Back from the doctor with what I am supposing is good news. My doctor has a very thick accent and though I believe him to be very good, I sometimes have a...

Back from the doctor with what I am supposing is good news. My doctor has a very...

Clsmith

•8 years ago

2 Replies

Flair Trial Phase 3

Hello Everyone, Just found out that i have been Randamised for the IR arm of the Trial Thats starts on Monday! Very pleased! Have a good weekend everyone!...

Hello Everyone, Just found out that i have been Randamised for the IR arm of the...

Carpenters52

•8 years ago

19 Replies

Failed Bone Marrow Biopsy

Well it's just typical... after having an allergic reaction to contrast from the body scan, I then had a bone marrow biopsy on Tuesday. The doctors was fab,...

Well it's just typical... after having an allergic reaction to contrast from th...

Bethan49

•8 years ago

24 Replies

Posts - CLL Support | HealthUnlocked

CLL Support

All posts for June 2016

What's the connection between deaths caused entanglement in bed sheets and revenue from skiing facilities?

Science or snake oil: is Garcinia cambogia the magic weight-loss pill it’s hyped up to be?

Dr. Wierda on the Importance of Clinical Trials

Maca Powder for Energy?

ITCHY EYES SORES ON MY FACE.

Facebook Live with Andrew and Esther Schorr

Personalised medicine has obvious benefits but has anyone thought about the issues?

Personal Message Makeover

Brain MRI

Anxious, worried, and sad

Thanks for the OSU/Dr. Byrd recommendations.

CLL & Essential Thrombocytosis

Allogeneic Transplantation for Chronic Lymphocytic Leukemia in the Age of Novel Treatment Strategies

Day 2 of Obin, Ibutinib, Venetoclax Clinical Trial

17080.00

Watch And Wait

What to do?

First Day of Obin, Ibrutinib, Venetoclax Trial at OSU

Risk of chromosomal aberration induced by EGCG

Fancy tackling the London 10K at short notice? Places have just come available. See the sights and raise funds for CLLSA on July 10th

Cancer Lottery - campaign asking for fair consideration of new drugs required to treat rarer cancer patients in the UK

We know why bacteria become resistant to antibiotics, but how does this actually happen?

Should we still be choosing fat-free over full-fat products?

How to pick the good from the bad health apps

Manuka Honey. The good The bad and The ugly

Understanding cbc

Frustrated

A little help with results

Flair Trial Phase 3

Failed Bone Marrow Biopsy

Search posts

Pinned Posts

Latest poll

Part 2 of How well do you know HealthUnlocked's features? Rate yourself on this multichoice poll. Answers later or you can check Help!

Topics

Archive