Brain MRI

[BIDELVIE]

Has anybody had a brain MRI due to CLL?

[hanskloss]

Yes, I had it done. I experienced Bell's facial palsy in the middle of the FCR treatment and the brain fluid sample taken from spine showed some inflammation so the docs wanted to double check there is no accumulation of CLL in any part of the brain ...

[Elizabetha]

Yes. My daughter's were concerned at my forgetfulness and felt that I was more clumsy than normal so told my consultant who ordered MRI. Pleased to note that I have an "unremarkable brain!"

[Hidden in reply to Elizabetha]

I fear having a brain MRI and having the scan show nothing, confirming what many have suspected for years.

[greygirl in reply to Elizabetha]

I had a whole body mri it was painless no fear of radiation my brain only showed some white matter due they guess to lyme or vasculitis this was before any cll treatment had no need have another

[june65]

"that's interesting" I have had a brain scan, but mine was because I suffer from very bad pains in my head the scan showed I have an arachnoid cyst, which the neurologist reckons has nothing to do with my what he called "new daily persistent headache". I also have CLL but didn't connect the two, maybe I should.

June

[Christian057]

I was given one after a bout of severe dizziness during chemotherapy. It turned out there was a slight anomaly on the brain but that it was 'nothing specific' and is the sort of wear and tear that is very common after 50. In most cases there is nothing to worry about. Are you waiting for some results, BIDELVIE?

[Cllcanada Top Poster CURE Hero]

I had a brain and spine MRI during RCHOP for a Richter's transformation, which came back negative... no central nervous system lymphoma CNL... no brain 😜... but it did find the source of my Richter's in my L2 vertabrae, which was treated post chemo with 30Gy of radiation...

Mine scan was done due to palsy, and a loss of fine motor control... the palsy it turned out was shingles and the lack of neuro function extreme complication of vincristine, the 'O' , Oncovin...in RCHOP...

~chris

[Hidden in reply to Cllcanada]

Chris, I hope you have mostly recovered from the nasty RCHOP side effects

[Cllcanada Top Poster CURE Hero in reply to Hidden]

No regrettably, I have perminent nerve damage... can no longer type for example so use an iPad with a stylus... Pencil 53...

I have no nerve feedback loop on my right side and experience permanent foot drop...

Peripheral neuropathy 4 years later and the list goes on and on...

en.m.wikipedia.org/wiki/Foo...

I view it as bent, but not broken... 🤓

[Hidden in reply to Cllcanada]

So sorry for that. With all you have been through, including your other cancers, your spirit and courage are inspiring.

[Jill4]

Wow. What a coincidence. My internist just recommended I get one. I have had odd neurological issues since just before diagnosis. In my research about it the percentage of CNS involvement with CLL is pretty rare.

[Elliot43]

I had a brain Mir just after finishing 6 lots of chemo. As I suffered persistent unrelenting headache. Nothing was found and as they say the usual wear and tear of 70 years! These headaches lasted daily for 2 mths.

[MsLockYourPosts Passed Volunteer]

I had one after an extreme episode of double vision. The neurologist concluded that I might have had an ocular migraine. As the MRI showed that my sinuses were completely full and blocked I suspect that pressure from that was at least part of the issue, especially since it was a one time occurance.