Posts - My Ovacome | HealthUnlocked

My Ovacome

17,716 members • 19,967 posts

All posts for February 2015

NHS England National Cancer Patient Conference

Sunfleury posted briefly about this conference and I've just noticed the blog didn't get any responses so thought it might be helpful to repost, add a pic and...

Sunfleury posted briefly about this conference and I've just noticed the blog di...

Whippit

•9 years ago

11 Replies

BIG U TURN

HI LADIES BIG news from being told by old oncologist that I will never have surgery .went to see new oncologist end of January 2015 she so please to see how...

HI LADIES BIG news from being told by old oncologist that I will never have surg...

cancer48

•9 years ago

44 Replies

Done!

Thank you for your replies to my previous posts. Back at home post surgery minus one cyst and one Fallopian tube . Surgeon is happy that the other cyst is...

Thank you for your replies to my previous posts. Back at home post surgery minu...

Samsperson

•9 years ago

4 Replies

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Rising CA125

Hello, Just wondered if anyone on here had ever experienced a rise in their CA125 that wasnt linked to a recurrence of their cancer. Been in remission 2 1/2...

Hello, Just wondered if anyone on here had ever experienced a rise in their CA1...

lisarm5

•9 years ago

8 Replies

Platinum resistant

After six long months of second line chemo with cisplatin I have been told that it did absolutely nothing and that I am platinum resistant. Was on Gemzar...

After six long months of second line chemo with cisplatin I have been told tha...

marn

•9 years ago

5 Replies

Symptoms Of OC/PPI

Before my diagnosis my first symptoms were put down to IBS by myself and my GP. I was eventually diagnosed in A&E with stage 4. The BEAT strapline does not...

Before my diagnosis my first symptoms were put down to IBS by myself and my GP. ...

kazrazmataz

•9 years ago

48 Replies

The Eve Appeal Research Project

I recently took part in a telephone research project commissioned by The Eve Appeal. They have now developed an online survey and I received the following...

I recently took part in a telephone research project commissioned by The Eve App...

Whippit

•9 years ago

13 Replies

Article in Fife Today: For Christmas I got Cancer

My brave friend Elaine Drysdale has kicked off Ovarian Cancer Month with a fantastic article raising awareness of Ovarian Cancer and a mention of Sharon...

My brave friend Elaine Drysdale has kicked off Ovarian Cancer Month with a fanta...

Whippit

•9 years ago

5 Replies

Bracca testing

Following pe's, dvt's, drug induced hepatitus, pneumonia, hysterectomy, bilateral salpingo oophrectory, 6 unit transfusion,septicaemia, pouch of Douglas...

Following pe's, dvt's, drug induced hepatitus, pneumonia, hysterectomy, bilatera...

Kayp

•9 years ago

17 Replies

Need advise

I am always tired,my neck,back,and arms ache constantly and I can't put my finger on put I just don't feel right,also getting night sweats but I have all ready...

I am always tired,my neck,back,and arms ache constantly and I can't put my finge...

honiton

•9 years ago

8 Replies

Aching joints

Can anyone help. I was diagnosed with stage 4 ovarian cancer in February 2014. I have had chemo and surgery and more chemo and now have three months before I...

Can anyone help. I was diagnosed with stage 4 ovarian cancer in February 2014. I...

Woody64

•9 years ago

20 Replies

Preop and surgery this week.

Came back from holiday Monday to a letter saying I'm having preop today and laproscopic ovarian cyst removal Friday. I'm now nervous as anything and have so...

Came back from holiday Monday to a letter saying I'm having preop today and lapr...

Samsperson

•9 years ago

3 Replies

Bloating during chemo? Carbo+Taxol

Hello ladies, My mum is currently recovering from her 4th cycle of Carboplatin and Taxol, she is currently experiencing lots of bloating in abdomen mostly but...

Hello ladies, My mum is currently recovering from her 4th cycle of Carboplatin a...

LivK90

•9 years ago

2 Replies

Caelyx rash

Started day 17. Now 2 days. How long does it last? This is cycle 1. Lovis x

Lovis

•9 years ago

9 Replies

Granulosa Cell Tumours

There is a Facebook page for survivors of Granulosa Cell Tumours. It's very active and awash with support and information. If you are interested in joining...

There is a Facebook page for survivors of Granulosa Cell Tumours. It's very act...

Hidden

•9 years ago

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Turning teal for OC awareness month.

Hi everyone I just wanted to show you all that since Angie's tragic death at Christmas, i have not deserted the cause of raising OC's profile. March is OC...

Hi everyone I just wanted to show you all that since Angie's tragic death at Chr...

HerThing

•9 years ago

7 Replies

Can you help? NICE are recruiting two new lay members for the Indicators Advisory Committee.

The Indicators Advisory Committee is a new committee that will look at indicators for both the Quality and Outcomes Framework (QOF) and the Clinical...

The Indicators Advisory Committee is a new committee that will look at indicator...

TheOvacomeTeam

Partner•9 years ago

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Sinus from Avastin treatment

I have just finished my 10th treatment of Avastin. I have had a few side effects along the way , aches and pains especially in my hands and feet. I now have...

I have just finished my 10th treatment of Avastin. I have had a few side effects...

Bobalu

•9 years ago

4 Replies

Second line treatment on the way

I guess the results of my consultants appointment was expected today. My ca125 was 750 after finishing treatment in nov and has risen further. Took a leaf out...

I guess the results of my consultants appointment was expected today. My ca125 w...

Taichipat

•9 years ago

11 Replies

Can't be seen at RM

Hello, a few weeks ago I asked a question about my friend whose current regime appeared not to have been working. Thank you for all your replies on that and...

Hello, a few weeks ago I asked a question about my friend whose current regime ...

sammyH

•9 years ago

11 Replies

What would you like to say to MPs?

Hello, I'm continuing to do more exhibit A patient work for the Eve Appeal. Thank you so much to everyone who volunteered to speak to Eve about their...

Hello, I'm continuing to do more exhibit A patient work for the Eve Appeal. Than...

TornacLiz

•9 years ago

27 Replies

Avastin

Hi everyone, haven't posted before , was diagnosed with adnexal/primary peritoneal cancer in January 2014 had three Carboplatin/Paclitaxil then surgery then...

Hi everyone, haven't posted before , was diagnosed with adnexal/primary periton...

Louburch

•9 years ago

8 Replies

Good News :)

Hi everyone :) hope you guys r doing ok :) well i just want to say i am grateful for all the advice/support i get from here and think this is a great site for...

Hi everyone :) hope you guys r doing ok :) well i just want to say i am grateful...

Jasmine_Rose

•9 years ago

10 Replies

Caelyx started twelve days ago ...

Thank you to all of you who responded about caeyx Thanks to everyone who got involved with my caelyx fears and why no platinum debates ! No problem yet with...

Thank you to all of you who responded about caeyx Thanks to everyone who got i...

angeladale

•9 years ago

11 Replies

Ascites preventing debulking surgery?

My oncologist has again put off my surgery and now says he's not sure when we will be able to do it at all. He says unless we find a chemo that will take the...

My oncologist has again put off my surgery and now says he's not sure when we wi...

LovingNana

•9 years ago

4 Replies

Referral to Royal Marsden

Has anybody on the site had a second opinion from the Royal Marsden. I don't like the uncertainty of 'wait and see' following a 'successful' round of chemo....

Has anybody on the site had a second opinion from the Royal Marsden. I don't li...

giovannabett

•9 years ago

6 Replies

Chemo reaction

Hi everyone,don't often write a post.but had a bad experimce yesterday while having chemo.after 5 mins after having carbo platin i had a severe...

Hi everyone,don't often write a post.but had a bad experimce yesterday while hav...

Hollie123

•9 years ago

11 Replies

Hello !

Ovarian Cancer Awareness Month is days away this March and as Ovacome's PR person I'm looking for women who have been treated for ovarian cancer and would be...

Ovarian Cancer Awareness Month is days away this March and as Ovacome's PR perso...

OvacomeMedia

•9 years ago

7 Replies

congrats

Thriiled for you Claire; and it really helps the rest of us to stay positive.All the best Mo

Thriiled for you Claire; and it really helps the rest of us to stay positive.All...

brinseamo

•9 years ago

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Sharing Good News

Hi all, I just wanted to share my good news with you. I was first diagnosed in October 2012 and have had various treatments since, with no significant breaks...

Hi all, I just wanted to share my good news with you. I was first diagnosed in...

Hidden

•9 years ago

25 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2015

NHS England National Cancer Patient Conference

BIG U TURN

Done!

Rising CA125

Platinum resistant

Symptoms Of OC/PPI

The Eve Appeal Research Project

Article in Fife Today: For Christmas I got Cancer

Bracca testing

Need advise

Aching joints

Preop and surgery this week.

Bloating during chemo? Carbo+Taxol

Caelyx rash

Granulosa Cell Tumours

Turning teal for OC awareness month.

Can you help? NICE are recruiting two new lay members for the Indicators Advisory Committee.

Sinus from Avastin treatment

Second line treatment on the way

Can't be seen at RM

What would you like to say to MPs?

Avastin

Good News :)

Caelyx started twelve days ago ...

Ascites preventing debulking surgery?

Referral to Royal Marsden

Chemo reaction

Hello !

congrats

Sharing Good News

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