Posts - My Ovacome | HealthUnlocked

My Ovacome

18,174 members•20,325 posts

All posts for September 2024

stomach cramps

Hi lovely ladies I’m looking for some immediate advice please. I’ve been having stomach cramps for 48 hours which are becoming more persistent. I’ve tried...

Hi lovely ladies I’m looking for some immediate advice please. I’ve been havin...

Barmycharm

•19 days ago

7 Replies

Good News

Hi lovely ladies, This is just my usual six monthly update to let you know my CA125 is still 8. It's been 11 years now since I was diagnosed stage 3C so as...

Hi lovely ladies, This is just my usual six monthly update to let you know my ...

ZenaJ

•19 days ago

62 Replies

Relieve Symptoms of Ascities

Hi all, so I'm now terminal but so far no major symptoms affecting me. However, for the last week or so I've been feeling bloated and uncomfortable, kind of...

Hi all, so I'm now terminal but so far no major symptoms affecting me. However, ...

Kouyate

•19 days ago

10 Replies

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I'm confused. Does being diagnosed with an endometrioma mean you also have endometriosis??

I've read different things on different forums. Some say you can't have an endo without having endometriosis and others have said their doctor said even though...

I've read different things on different forums. Some say you can't have an endo ...

starrynight5626

•19 days ago

8 Replies

Covid jab - when to have it

I’m wondering when in their chemo cycle people have had their Covid jab? The oncology nurse said to have it as close as possible to my next chemo (before...

I’m wondering when in their chemo cycle people have had their Covid jab? The onc...

Florrie2

•19 days ago

8 Replies

Diagnosed with 3.5 cm ovarian endo, CEA and CA125 normal. Should I get a laparoscopy or watch and wait?

I have a 3 month follow up U/S in 2 days since I opted for the watch and wait scenario rather than surgery since the OBGYN I dealt with told me she thinks the...

I have a 3 month follow up U/S in 2 days since I opted for the watch and wait sc...

starrynight5626

•20 days ago

19 Replies

Support through treatment.

Hi everyone, I have been very lucky in that after being diagnosed with stage 3C OC, I had surgery, 6 rounds of Carboplatin/ Paclitaxol and 2 years of...

Hi everyone, I have been very lucky in that after being diagnosed with stage 3C...

Frenchhouse3

•21 days ago

25 Replies

Brain mets

Good morning ladies My wife was was diagnosed with HGOC in 2020. She received the usual treatment Chemo including debunking she's never been NED. Earlier...

Good morning ladies My wife was was diagnosed with HGOC in 2020. She received th...

Cardiff05

•21 days ago

3 Replies

Any reassurance/hope please

Hi, This is my first time posting. I’m 34 and at the beginning of July I was diagnosed with 3C clear cell. There was a large mass at my ovary and a couple of...

Hi, This is my first time posting. I’m 34 and at the beginning of July I was d...

Autumn222

•22 days ago

36 Replies

I keep getting denied the CA-125 test!

52 y/o post-menopausal and was diagnosed with a 3.5 cm endo on my ovary. They were unsure what it was after the CT scan, unsure after the ultrasound. I then...

52 y/o post-menopausal and was diagnosed with a 3.5 cm endo on my ovary. They we...

starrynight5626

•23 days ago

3 Replies

Struggling mentally

I was diagnosed stage 4 in April was told I was inoperable but after 4 chemos the surgery went ahead in August, which they tell me was successful but I had so...

I was diagnosed stage 4 in April was told I was inoperable but after 4 chemos th...

Ronmum20

•23 days ago

29 Replies

What's on at Ovacome next week? (week beginning Monday 30 September 2024)

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Hello everyone, This is our weekly post to let you know about the different s...

OvacomeSupport

Partner•23 days ago

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Are they for real?

I actually had seen a couple of stories during Gynae Cancer Awareness Month, whether for it or not, I don't know. What made me see red was that they both used...

I actually had seen a couple of stories during Gynae Cancer Awareness Month, whe...

candyapplegrey

•24 days ago

13 Replies

cancer book club today.

how do I log on this to join the book club today please?

RoseMS

•24 days ago

4 Replies

Ovacome Health and Wellbeing Days in Bristol, Southampton, Bournemouth and Bath

Good morning everyone, This is just a reminder that we are holding Health and Wellbeing Days in Bristol, Southampton, Bournemouth and Bath this autumn....

Good morning everyone, This is just a reminder that we are holding Health an...

OvacomeSupport

Partner•24 days ago

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New here

Hi everyone I've just undergone a few tests and ultrasound as I had bloating,bleeding and constipation.I was concerned as My mum had stage 4 primary peritoneal...

Hi everyone I've just undergone a few tests and ultrasound as I had bloating,ble...

Whatisforteamum

•24 days ago

13 Replies

TRIALS

Hello I am posting in the hope that it might help some of you…. I live in the UK and was diagnosed with HGSOC grade 4 in Jan 22. I have never been NED. I...

Hello I am posting in the hope that it might help some of you…. I live in the ...

Alfiepop

•26 days ago

8 Replies

anaemia and chemo

hi everyone :) my mums completed 5 of 6 chemos (carbo / taxol) for frontline treatment and is really struggling with fatigue and breathlessness. Her red...

hi everyone :) my mums completed 5 of 6 chemos (carbo / taxol) for frontline t...

georgiageorgia182

•27 days ago

6 Replies

Picc line vs. port

Dear ladies, I am looking at these two options as my veins have started to take a hit only after 5 infusions (I’m doing weekly carbo, still waiting for a...

Dear ladies, I am looking at these two options as my veins have started to take...

Lara1

•29 days ago

26 Replies

It’s come back…feeling like rubbish

After being on Olaparib for 2 years it’s back. I have had very low CA125 and a clear scan in June. Last week bloods went crazy and was asked in for a scan....

After being on Olaparib for 2 years it’s back. I have had very low CA125 and a c...

KelOC38

•30 days ago

13 Replies

It’s come back…feeling like rubbish

After being on Olaparib for 2 years it’s back. I have had very low CA125 and a clear scan in June. Last week bloods went crazy and was asked in for a scan....

After being on Olaparib for 2 years it’s back. I have had very low CA125 and a c...

KelOC38

•30 days ago

7 Replies

What's on at Ovacome next week? (week beginning Monday 23 September 2024)

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Hello everyone, This is our weekly post to let you know about the different s...

OvacomeSupport

Partner•1 month ago

Be the first to reply

Self funding Avastin

Hello, my mum has been having Avastin self funded for approx 21 months now. It does seem to be working as everything has remained stable throughout this...

Hello, my mum has been having Avastin self funded for approx 21 months now. It d...

Suziejasp

•1 month ago

3 Replies

Would like to meet some friends who also have ovarian cancer, living in London and having treatment at Royal Marsden Chelsea.

Hi I am an ovarian cancer 3B patient, I am Chinese, living in London Fulham, having my treatment at Royal Marsden in Chelsea. Are there any other patients also...

Hi I am an ovarian cancer 3B patient, I am Chinese, living in London Fulham, hav...

JingJingLove

•1 month ago

5 Replies

stage 4b ovarian

Hi everyone, I'll be starting carbo/caelyx next month 6 cycles for 1st recurrence. Does anyone know if this combo doesn't work, what will they offer to me...

Hi everyone, I'll be starting carbo/caelyx next month 6 cycles for 1st recurren...

Pianoanddisco

•1 month ago

3 Replies

Stage 4b Ovarian

Hi everyone, Just curious, did anyone take vitamins such D or B12 or even Omega 3 fish oil while doing the conventional chemo treatments? thanks

Hi everyone, Just curious, did anyone take vitamins such D or B12 or even Omega...

Pianoanddisco

•1 month ago

30 Replies

Ovacome Walk with Us - Birmingham - 28 September 2024

Hello All 📢 Just under two weeks left to sign up for Ovacome's annual community walk, “Walk With Us”, taking place in Cannon Hill Park, Birmingham on 28...

Hello All 📢 Just under two weeks left to sign up for Ovacome's annual commu...

TheOvacomeTeam

Partner•1 month ago

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tomato

hi I am back having chemo, red devil two days not feeling good. My sister has bought me local honey, but the seller said not for babies, we asked about chemo...

hi I am back having chemo, red devil two days not feeling good. My sister has b...

Balliol15

•1 month ago

7 Replies

Serous Borderine tumor

I have Serous Borderline tumor . Has anyone else got this diagnosis ? Should I be worried

I have Serous Borderline tumor . Has anyone else got this diagnosis ? Should I...

Kyles21

•1 month ago

4 Replies

Avastin

Hello I’ve read on here about self funding for Avastin. Can I ask how you go about this? Is it through your NHS Consultant? Thanks for any help xx

Hello I’ve read on here about self funding for Avastin. Can I ask how you go ab...

Kamloops

•1 month ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2024

stomach cramps

Good News

Relieve Symptoms of Ascities

I'm confused. Does being diagnosed with an endometrioma mean you also have endometriosis??

Covid jab - when to have it

Diagnosed with 3.5 cm ovarian endo, CEA and CA125 normal. Should I get a laparoscopy or watch and wait?

Support through treatment.

Brain mets

Any reassurance/hope please

I keep getting denied the CA-125 test!

Struggling mentally

What's on at Ovacome next week? (week beginning Monday 30 September 2024)

Are they for real?

cancer book club today.

Ovacome Health and Wellbeing Days in Bristol, Southampton, Bournemouth and Bath

New here

TRIALS

anaemia and chemo

Picc line vs. port

It’s come back…feeling like rubbish

It’s come back…feeling like rubbish

What's on at Ovacome next week? (week beginning Monday 23 September 2024)

Self funding Avastin

Would like to meet some friends who also have ovarian cancer, living in London and having treatment at Royal Marsden Chelsea.

stage 4b ovarian

Stage 4b Ovarian

Ovacome Walk with Us - Birmingham - 28 September 2024

tomato

Serous Borderine tumor

Avastin

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