Posts - My Ovacome | HealthUnlocked

My Ovacome

17,701 members • 19,960 posts

All posts for March 2014

Awareness Raising through Poetry

http://www.burytimes.co.uk/news/11112901.Ovarian_cancer_survivor_urges_women_to_be_aware_of_symptoms_by_releasing_poem/?action=success Janet managed to get...

http://www.burytimes.co.uk/news/11112901.Ovarian_cancer_survivor_urges_women_to_...

ScardyCat40

•10 years ago

5 Replies

Back on track with chemo. Yepee

I have gad my 2nd set of chemo today. Carbo. Gem. Avistan. Had a little set back for s week due to low white bloods cells. They told me there was nothing i...

I have gad my 2nd set of chemo today. Carbo. Gem. Avistan. Had a little set back...

maz65

•10 years ago

7 Replies

Hi there- does anyone know if it safe to use natural progesterone cream? I saw a private doctor who told me it has an anti-cancer effect

However, she said my onc would not approve, and I am concerned about taking anything hormone-related. The cream is called ProJuven.

However, she said my onc would not approve, and I am concerned about taking anyt...

Hectoria

•10 years ago

6 Replies

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Back pain

I've been starting to get back pain in my liver area for a while but since having my gem, carbo and avastin (last Tuesday) it's getting really bad. I have got...

I've been starting to get back pain in my liver area for a while but since havin...

Lovis

•10 years ago

11 Replies

draining ascetic fluid. can I ask what is the procedure, I am filling up and it's becoming very uncomfortable, due for more chemo soon

I have apt at Christie's on wed(2/4) for GFR test pre chemo. I don't know if I am supposed to contact my local hospital to get drained and if so is it just a...

I have apt at Christie's on wed(2/4) for GFR test pre chemo. I don't know if I a...

spikey62

•10 years ago

8 Replies

Todays Blog: The Controversy of Avastin

http://tealrunner.blogspot.co.uk/2014/03/the-controversy-of-avastin.html

ScardyCat40

•10 years ago

25 Replies

About Letrazole

My Dr. when doing my prescription for letrazole did double dose that hospital gave me I have been week tired feeling sick just because they did not check...

My Dr. when doing my prescription for letrazole did double dose that hospital ga...

jennybutler

•10 years ago

7 Replies

Health and Wellbeing Event in Cardiff - Friday 4 April 2014

Hi everyone - this is a message for anyone in the Cardiff area on Friday 4 April. The CNS at Llandough Hopsital is organising an event for all women with gynae...

Hi everyone - this is a message for anyone in the Cardiff area on Friday 4 April...

Whippit

•10 years ago

15 Replies

I have PCOS since almost 10 years. I have gradually put on 20 kgs because of this. What is the best way to control such weight gain?

I am on OC pills since many years. Is it safe to continue them forever?

benaifer

•10 years ago

3 Replies

No surgery

Seen consultant surgery not an option too complicated bit gutted but on a positive note 125 dropped from 1500 to 800 and there still giving me carbo/taxol and...

Seen consultant surgery not an option too complicated bit gutted but on a posit...

clunn

•10 years ago

8 Replies

Help needed with a survey for younger ovarian cancer women

Are you between the age of 18-45 and would you be interested in taking part in a survey about the fertility issues and fears of recurrence in young ovarian...

Are you between the age of 18-45 and would you be interested in taking part in a...

RuthPOvacome

•10 years ago

3 Replies

Had Gem, Carbo and Avastin Tuesday

Not feeling too bad at all, not taking the anti-sickness tablets as they make me sooo constipated but not feeling sick at all. Energy much better today so back...

Not feeling too bad at all, not taking the anti-sickness tablets as they make me...

Lovis

•10 years ago

24 Replies

Any advice for the newly diagnosed ovarian carcinosarcoma (stage 3C MMT)? Vitamins? Nutrition? Ostomy bags? Exercise?

My mother has recently been diagnosed stage IIIc MMT ovarian cancer. She had already previously had a hysterectomy so this won't be part of the treatment. They...

My mother has recently been diagnosed stage IIIc MMT ovarian cancer. She had alr...

Drusan

•10 years ago

10 Replies

Need some help please ! Does anyone know after all chemo has been exhausted ,is there any other treatment available ?

Got very bad news on Monday that there will be no more chemo for my mum and that she's platinum resistant .took 2 reactions to carbo and oxilaplatin .ca125 is...

Got very bad news on Monday that there will be no more chemo for my mum and that...

Daughter123

•10 years ago

41 Replies

Vitamin D deficiency

Hi All, sorry to post again.. just a quick question, has anyone been diagnosed with a Vitamin D deficiency post op? having some tests at mo, and doctor left a...

Hi All, sorry to post again.. just a quick question, has anyone been diagnosed w...

janette47

•10 years ago

28 Replies

CA125 twice as high as it should be

I recently found out that my CA125 levels were high after I had blood tests due to feeling of bloating became more frequent and intense and having problems in...

I recently found out that my CA125 levels were high after I had blood tests due ...

Huma

•10 years ago

7 Replies

At the Velindre Hospital in Cardiff telling Patients about Us!

Hi ladies I'm at the Velindre Hospital in Cardiff to tell them about the Ovacome Community. Please tell the ladies visiting my stand how great this site is!

Hi ladies I'm at the Velindre Hospital in Cardiff to tell them about the Ovacom...

Whippit

•10 years ago

26 Replies

Ask the experts day in Manchester

Firstly thank you everyone who sent me lovely message congratulating me on becoming a grandma. I had my first cuddle of lily Francesca yesterday and shed a few...

Firstly thank you everyone who sent me lovely message congratulating me on becom...

francescahannah

•10 years ago

12 Replies

Good news for a change!

I just want to share my joy at becoming a grandma for the first time today. My daughter in law had a baby girl called lily early this morning by emergency...

I just want to share my joy at becoming a grandma for the first time today. My d...

francescahannah

•10 years ago

31 Replies

Has anyone experienced fatigue as a first early symptom of OC?

Dear Ladies - quite a while before any other symptoms developed, I began to experience occasional bouts of overwhelming fatigue, and am interested in finding...

Dear Ladies - quite a while before any other symptoms developed, I began to expe...

Aurelie

•10 years ago

28 Replies

Welsh Cancer patients Flock to England for Treatment

At long last I no longer feel alone. I realise I am just one of 15,450 patients in Wales who obtained treatment from the English NHS due to being denied...

At long last I no longer feel alone. I realise I am just one of 15,450 patients ...

Whippit

•10 years ago

94 Replies

alcohol

hi everyone,does anyone know the rules around alcohol its my birthday next week but having a family party sunday and really fancy a malibu and lemonade,my next...

hi everyone,does anyone know the rules around alcohol its my birthday next week ...

honiton

•10 years ago

25 Replies

third time lucky? trial on trabectedine or standard 3rd line chemo

After hysterectomy (2011), 6 cycles of taxol/carbo, remission for about 8 months then recurrence. another 6 cycles of carbo/taxol which I finished July 2013....

After hysterectomy (2011), 6 cycles of taxol/carbo, remission for about 8 months...

spikey62

•10 years ago

8 Replies

Why am I worrying?

3 weeks ago I had to have a light heated 'chat' with my daughters about the BRCA test's I was about to have and the implications that could possibly follow on...

3 weeks ago I had to have a light heated 'chat' with my daughters about the BRCA...

janette47

•10 years ago

31 Replies

Chemo imminent - Ocean Trial

Has anyone else been on the Ocean regime? I'm going to have gem, carbo and avastin on day 1 and then gem again on day 8 then rest for the rest of the 3 week...

Has anyone else been on the Ocean regime? I'm going to have gem, carbo and avast...

Lovis

•10 years ago

8 Replies

Oncology Appointment

Next week (28th) is my next onoclogy appointment, they have moved it twice so haven't see the gynae since October, this is the longest gap for me my original...

Next week (28th) is my next onoclogy appointment, they have moved it twice so ha...

Lily-Anne

•10 years ago

8 Replies

Awareness Raising

Yesterday I spent the morning at The Christie doing some awareness raising. I found it very rewarding and would really like to encourage people if they get the...

Yesterday I spent the morning at The Christie doing some awareness raising. I fo...

ScardyCat40

•10 years ago

25 Replies

LITTLE SNOWDROP

Little Snowdrop The world may never notice If a Snowdrop doesn't bloom, Or even pause to wonder If the petals fall too soon. But every life that ever...

Little Snowdrop The world may never notice If a Snowdrop doesn't bloom, Or ev...

punnoose619

•10 years ago

12 Replies

My Ultrasound results are in!

Hi I'm pretty new to this site, but I've found a lot of support since I have started coming on here. Just a bit of background info, my name is Emma, I'm 36, i...

Hi I'm pretty new to this site, but I've found a lot of support since I have sta...

EJ0203

•10 years ago

19 Replies

What should I look for in a recurrance. Diagnosed with Left Fallopain Tube (carcinosarcoma) in 2011.

Grip

•10 years ago

7 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2014

Awareness Raising through Poetry

Back on track with chemo. Yepee

Hi there- does anyone know if it safe to use natural progesterone cream? I saw a private doctor who told me it has an anti-cancer effect

Back pain

draining ascetic fluid. can I ask what is the procedure, I am filling up and it's becoming very uncomfortable, due for more chemo soon

Todays Blog: The Controversy of Avastin

About Letrazole

Health and Wellbeing Event in Cardiff - Friday 4 April 2014

I have PCOS since almost 10 years. I have gradually put on 20 kgs because of this. What is the best way to control such weight gain?

No surgery

Help needed with a survey for younger ovarian cancer women

Had Gem, Carbo and Avastin Tuesday

Any advice for the newly diagnosed ovarian carcinosarcoma (stage 3C MMT)? Vitamins? Nutrition? Ostomy bags? Exercise?

Need some help please ! Does anyone know after all chemo has been exhausted ,is there any other treatment available ?

Vitamin D deficiency

CA125 twice as high as it should be

At the Velindre Hospital in Cardiff telling Patients about Us!

Ask the experts day in Manchester

Good news for a change!

Has anyone experienced fatigue as a first early symptom of OC?

Welsh Cancer patients Flock to England for Treatment

alcohol

third time lucky? trial on trabectedine or standard 3rd line chemo

Why am I worrying?

Chemo imminent - Ocean Trial

Oncology Appointment

Awareness Raising

LITTLE SNOWDROP

My Ultrasound results are in!

What should I look for in a recurrance. Diagnosed with Left Fallopain Tube (carcinosarcoma) in 2011.

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