Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for November 2022

Podcast episode about Christmas and living with cancer.

Christmas and New Year can be so very difficult to navigate for some people; especially those living with Cancer or other serious life threatening illness. In...

Christmas and New Year can be so very difficult to navigate for some people; esp...

Levanah

•2 years ago

14 Replies

specimen?

hi sorry rookie question 🙋🏽‍♀️ My letter from Gynae says bring a specimen in a clean bottle. Do they mean a wee sample and do I need to buy a special...

hi sorry rookie question 🙋🏽‍♀️ My letter from Gynae says bring a specimen in...

Regenallotment

•2 years ago

19 Replies

Abdominal Pain

Hello, I completed treatment in October 2021, had umbilical hernia repair this past April, 7 inches of absorbable mesh have been having a nagging vague pain...

Hello, I completed treatment in October 2021, had umbilical hernia repair this...

Saintgermain

•2 years ago

12 Replies

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Anastrozole for maintenance of OC

Hi everyone. Hope everyone is doing as well as they can. Quick question I have just finished my 2nd line chemotherapy after my 2nd debaulking surgery. I was...

Hi everyone. Hope everyone is doing as well as they can. Quick question I have j...

kadabra12

•2 years ago

6 Replies

Latest Consult

Ive been agonising over blood results and CT scan. Just had phone consult, there is a change in that my adrenal gland is enlarged. Nothing else showing at the...

Ive been agonising over blood results and CT scan. Just had phone consult, there...

Rosebine2

•2 years ago

2 Replies

Recurring headaches

Hi there ladies I am having my last chemo. nxt Monday which is great. I was just wondering if any of you have experienced headaches in between cycles. I seem...

Hi there ladies I am having my last chemo. nxt Monday which is great. I was ju...

Hota

•2 years ago

4 Replies

Amazon

Hello lovely ladies. I just wanted to remind you all that, if you're buying goodies on Amazon Smile, you can choose Ovacome as your donation charity. Thanks to...

Hello lovely ladies. I just wanted to remind you all that, if you're buying good...

ZenaJ

•2 years ago

9 Replies

Petscan Question

I’m currently in treatment for my first recurrence. I finished 4 cycles of Carbo and Doxil and just had a petscan to see how chemo is working. My CA125 is...

I’m currently in treatment for my first recurrence. I finished 4 cycles of Car...

Cristinpaige

•2 years ago

14 Replies

Abdominal pain mostly after eating

Hello friends! For a longer time I have been suffering from sharp abdominal pain after eating, which sometimes extends to the rib area. It's very annoying...

Hello friends! For a longer time I have been suffering from sharp abdominal pain...

NikoletaSauren

•2 years ago

3 Replies

Update on Mum, bowel blockage and TPN advice.

Good morning all. I just wanted to say hi after quite a while of no post, and give a little update on mum. Some of you will remember mum had OC stage 3c in feb...

Good morning all. I just wanted to say hi after quite a while of no post, and gi...

LouieB123

•2 years ago

10 Replies

Obstructed bowel.

Thank you everyone who responded to my post, sadly the outcome is not good ,after discussion with surgeon and the team my husband and I have decided on...

Thank you everyone who responded to my post, sadly the outcome is not good ,afte...

fendweller

•2 years ago

68 Replies

Feeling unsteady

Wondering if Niraparib is causing me to feel slightly unsteady when out walking. This has been happening over the past fortnight. Been on Niraparib for 15...

Wondering if Niraparib is causing me to feel slightly unsteady when out walking....

Rosebine2

•2 years ago

13 Replies

Call for models

We are now looking for the next group of models to take part in the annual Touch of Teal Tea with Ovacome, an event organised by one of our members and a...

We are now looking for the next group of models to take part in the annual Touch...

TheOvacomeTeam

Partner•2 years ago

2 Replies

Milestone reached!

Just wanted to share a milestone reached (not quite as relieved as I was hoping because I got some unexpected news this week about ongoing treatment but I’m...

Just wanted to share a milestone reached (not quite as relieved as I was hoping ...

OrdinarySoul

•2 years ago

13 Replies

Parp partially working?

I've been on Avastin with Olaporib after 1st line treatment since April 2022, with my ca125 rising since August from 15 progressively up to 750 4 weeks ago,...

I've been on Avastin with Olaporib after 1st line treatment since April 2022, wi...

Loorunner

•2 years ago

2 Replies

c125 of 72 could it be anything else?

Blood test results just back, c125 is 72 I’m 48 years hypothyroid with autoimmune Hashimoto’s have 2 fibroids <1cm from transvaginal ultrasound. Also had MRI...

Blood test results just back, c125 is 72 I’m 48 years hypothyroid with autoimmun...

Regenallotment

•2 years ago

9 Replies

Obstructed bowel.

Admitted to hospital last Sunday , vomiting and abdominal pain ,not getting resolved, had a couple of painful procedures but made no difference ,talk of...

Admitted to hospital last Sunday , vomiting and abdominal pain ,not getting reso...

fendweller

•2 years ago

31 Replies

sharing my latest ca125 result

I am scheduled to test CA125 every 2 months. Took the test this morning and had a completely crazy anxious day waiting for the results. It came back an hour...

I am scheduled to test CA125 every 2 months. Took the test this morning and had ...

Goodgirl98

•2 years ago

19 Replies

carboplatin and Gemzar infusion 2 weeks on, 2 weeks off

I would appreciate hearing from anyone who is on this compound currently. My cancer has come out of remission and I’d like to hear what these drugs did for...

I would appreciate hearing from anyone who is on this compound currently. My ca...

Leniko

•2 years ago

4 Replies

Anxious about radiotherapy

Hello everyone. I’ve just come back from seeing my oncologist and am feeling flat and anxious. I was thinking that I might need a couple of sessions of...

Hello everyone. I’ve just come back from seeing my oncologist and am feeling fla...

OrdinarySoul

•2 years ago

15 Replies

Really down

Just had my nurse review and CA125 is up again. Its gone up 2 points each of the last two mon ths, I know this is not much but it had been steady at 14 for...

Just had my nurse review and CA125 is up again. Its gone up 2 points each of th...

Rosebine2

•2 years ago

8 Replies

Quality of life?

Hi ladies, I have been on Carboplatin /Gemcitabine for first recurrence & then on Gemcitabine on its own for a year which was been used as maintenance. This...

Hi ladies, I have been on Carboplatin /Gemcitabine for first recurrence & then...

Tulips66

•2 years ago

31 Replies

Lyndy 1 and Lyndy 2.

I see posts from Lyndy 2 lately. Was that name chosen because there already was a Lyndy on the forum? If this is the case I’m asking after Lyndy 1. I haven’t...

I see posts from Lyndy 2 lately. Was that name chosen because there already was ...

JustKBO

•2 years ago

2 Replies

Fourth line chemo

Just wondering if anyone has had success with carboplatin fourth time around? It has worked well for me for three lines now, over six years, in various...

Just wondering if anyone has had success with carboplatin fourth time around? ...

bluepeterella

•2 years ago

8 Replies

Abdominal Hysterectomy

HelloI was diagnosed with peritoneal cancer stage 3c in June 2022 just before my 30th birthday. I had six cycles of chemotherapy with carboplatin only as I had...

HelloI was diagnosed with peritoneal cancer stage 3c in June 2022 just before my...

Rgrg

•2 years ago

18 Replies

Mirvetuximab Soravtansine Gets Approved for FRα+ Ovarian Cancer

Hi all, Hope everyone is doing as well as they can. Just wanted to share the news that Mirvetuximab has been approved for platinum resistant ovarian cancer....

Hi all, Hope everyone is doing as well as they can. Just wanted to share the ...

RomanZ

•2 years ago

8 Replies

Preventative ovary removal hereditary link

Just wondered if people on this site may have experience of family members deciding to have elective surgery for removal of their ovaries based on possible...

Just wondered if people on this site may have experience of family members decid...

Mirrorplace

•2 years ago

31 Replies

3rd line treatments

I have a scan and then an oncology appointment coming up as I am starting to get symptoms again only 4 months after finishing 2nd line Carbo/ Caelyx . Can...

I have a scan and then an oncology appointment coming up as I am starting to get...

Bray

•2 years ago

21 Replies

Good morning from Lapland

Its cold and snowy in my home town Lapland but this little creature warms up my heart every time. Rudolf sends you all lots of love 🥰🥰

Its cold and snowy in my home town Lapland but this little creature warms up my ...

Annie2021

•2 years ago

22 Replies

keeping an eye on food/diet

I hope discussions on diet is ok in this form as I did not find any discussions in my news feed. just curious about your belief on whether dietary...

I hope discussions on diet is ok in this form as I did not find any discussions ...

Goodgirl98

•2 years ago

40 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for November 2022

Podcast episode about Christmas and living with cancer.

specimen?

Abdominal Pain

Anastrozole for maintenance of OC

Latest Consult

Recurring headaches

Amazon

Petscan Question

Abdominal pain mostly after eating

Update on Mum, bowel blockage and TPN advice.

Obstructed bowel.

Feeling unsteady

Call for models

Milestone reached!

Parp partially working?

c125 of 72 could it be anything else?

Obstructed bowel.

sharing my latest ca125 result

carboplatin and Gemzar infusion 2 weeks on, 2 weeks off

Anxious about radiotherapy

Really down

Quality of life?

Lyndy 1 and Lyndy 2.

Fourth line chemo

Abdominal Hysterectomy

Mirvetuximab Soravtansine Gets Approved for FRα+ Ovarian Cancer

Preventative ovary removal hereditary link

3rd line treatments

Good morning from Lapland

keeping an eye on food/diet

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