Posts - My Ovacome | HealthUnlocked

My Ovacome

17,727 members • 19,971 posts

All posts for February 2022

Tell us what you would like to see from Ovacome

Hello All We need your help! Ovacome provides support for anyone affected by ovarian cancer. To make sure that we are providing the services that you need we...

Hello All We need your help! Ovacome provides support for anyone affected by ova...

TheOvacomeTeam

Partner•2 years ago

Be the first to reply

Lolotango

Hello All I'm very sorry to have to pass on the sad news that forum member Lolotango has died. We were asked to pass on the message that she was "at her home...

Hello All I'm very sorry to have to pass on the sad news that forum member Lolot...

OvacomeSupport

Partner•2 years ago

12 Replies

LIVE LIFE YOUR WAY

I finally got the ok from my Onc to travel. She wasn't too thrilled but hey whose life is it? I am on Olaparib and as of Jan NED lets hope that continues....

I finally got the ok from my Onc to travel. She wasn't too thrilled but hey who...

Summergold2

•2 years ago

17 Replies

Want to take advantage of all our features? Just log in!

A good thing about today was ...

My candle burns at both ends; it will not last the night; but ah, my foes; and oh,my friends - it gives a lovely light! Edna St Vincent Millay Since I've...

My candle burns at both ends; it will not last the night; but ah, my foes; and o...

Missionspace

•2 years ago

31 Replies

Debulking Surgery

Can anyone tell me what are the best briefs following debulking surgery? I know with a c section you need ‘big pants’ but what is best for a vertical...

Can anyone tell me what are the best briefs following debulking surgery? I know...

NewtonEmma1900

•2 years ago

52 Replies

CA125 rising following first chemo

Hi. My Ca125 has gone up from 1200 to 1600 after my first session of chemo of Carboplatin and Taxol. I’ve just had my second session yesterday and my...

Hi. My Ca125 has gone up from 1200 to 1600 after my first session of chemo of Ca...

Ghazala1

•2 years ago

15 Replies

Rare ovarian cancer

Just wondered if anyone has been diagnosed with a low grade steroid tumour of the ovary? It is very difficult to find any information as it is rare. I was...

Just wondered if anyone has been diagnosed with a low grade steroid tumour of th...

Green128

•2 years ago

6 Replies

Hernias

Hi all Noti long after debunking had an incisional hernia also known as an eventration. The surgeon repaired it with mesh. The first time I sneezed hard it...

Hi all Noti long after debunking had an incisional hernia also known as an event...

Ruebacelle

•2 years ago

42 Replies

New treatment for 1rst reccurrence, any advice

Hi! Send you all a big hug, hoping only good news for your health. Finally my doctor told me my treatment: Carbo platin + gemzar + Avastin, 6 cicles,...

Hi! Send you all a big hug, hoping only good news for your health. Finally my d...

Marylight

•2 years ago

22 Replies

Sorry

Really sorry if my recent post caused worry and distress. That's how I was feeling when I posted and living as I do on my own, wanted to discuss the issue....

Really sorry if my recent post caused worry and distress. That's how I was feeli...

27-359

•2 years ago

9 Replies

Hernia Surgery

Have been putting off incisional hernia surgery a result from my hysterectomy but it’s gotten larger over the past few months a little scared but I feel now...

Have been putting off incisional hernia surgery a result from my hysterectomy bu...

Saintgermain

•2 years ago

16 Replies

Gum and dental trouble anyone?

I've just finished 6 treatments of carbo-caelyx. I am suffering from ulcers that never seem to heal and inflamed gums. I keep thinking I have an abcess!...

I've just finished 6 treatments of carbo-caelyx. I am suffering from ulcers tha...

ritabon

•2 years ago

6 Replies

Any positive posts 're Covid vax please.

To reassure me, are there any ladies who have not seen their cancer markers go up, or seen growth in other areas of their body? Jenny

To reassure me, are there any ladies who have not seen their cancer markers go u...

27-359

•2 years ago

28 Replies

Olaparib people

On Olaparib for2 years now . It’s been amazing at holding the cancer as I’ve never been disease free and I have managed the side effects well . But I’m finding...

On Olaparib for2 years now . It’s been amazing at holding the cancer as I’ve nev...

Rankij11

•2 years ago

31 Replies

High CA125 but nothing on scan

Hi All, Seeing some insight again. Mom had stage 3/4 back in october 2019. Ca125 was over 110000. After 6 cycle of chemo,, had cytoreductive and HIPEC in July...

Hi All, Seeing some insight again. Mom had stage 3/4 back in october 2019. Ca125...

msuspartan

•2 years ago

10 Replies

What's next?

Hi all you wonderful women/lovely ladies. Have any of you ever had a chemo called Topotican (sp?) or Gemzar? The Avastin and cytoxan doesn't seem to be...

Hi all you wonderful women/lovely ladies. Have any of you ever had a chemo calle...

Cher96

•2 years ago

5 Replies

Caelyx treatment after platinum based chemo my cancer resisted.

Hi is anyone on Caelyx? I've suffered just about every side effect and my appetite is non existent. I'm 3 weeks in first treatment. Any coping advice would be...

Hi is anyone on Caelyx? I've suffered just about every side effect and my appet...

steff4nie

•2 years ago

20 Replies

Fatigued 9 days post first chemo treatment

I’m 9 days past first chemo treatment. I’m still struggling to get any energy back. To go to bathroom and back to couch is exhausting. Has anyone else...

I’m 9 days past first chemo treatment. I’m still struggling to get any energy ba...

Pinky-g

•2 years ago

13 Replies

Encouraging news from Cambridge

I still read this blog three years now since Carol died and follow the stories of so many of you treading this unwanted pathway. But things change, and new...

I still read this blog three years now since Carol died and follow the stories o...

barleykeeper

•2 years ago

20 Replies

1st recurrence

Well I have had my drs letter and it says all tumours have shrunk! Wahoo, but I had a new lymph node! 22mm x10mm Para aortic something.I’m just thinking I...

Well I have had my drs letter and it says all tumours have shrunk! Wahoo, but I ...

Duvin1

•2 years ago

8 Replies

Yesterday’s CT scan

Hello ladies. I had my mid course CT scan yesterday afternoon (two weeks after my 3rd infusion of Carbo Doxil ( Caelyx). An hour later, I received the usual...

Hello ladies. I had my mid course CT scan yesterday afternoon (two weeks after m...

Sashay2020

•2 years ago

48 Replies

Help

I need to be able to log on to join you . Help please

Audrey25a

•2 years ago

1 Reply

Sore mouth

I'm on Carboplatin and caeleyx, I've had five of six cycles so far, after the fourth and fifth I've had a very bad mouth ,sore and ulcers, making me so...

I'm on Carboplatin and caeleyx, I've had five of six cycles so far, after the fo...

fendweller

•2 years ago

48 Replies

Travel insurance

Can anyone give me advice on travel insurance with previously grade 3 low grade serious borderline Tumour (not cancer) I am still attending 3 month check ups...

Can anyone give me advice on travel insurance with previously grade 3 low grade ...

Gakaxy57

•2 years ago

8 Replies

New here

Hi, I was diagnosed with Primary Peritoneal Cancer stage 4b Sept 2020 my Ca125 was 1640. I also had 2 drains for fluid in the abdomen. After 3 rounds of...

Hi, I was diagnosed with Primary Peritoneal Cancer stage 4b Sept 2020 my Ca125 w...

Ab59

•2 years ago

30 Replies

Advice please all you wonderful ladies !

Hello to all on this forum, I hope you don't think I am an outsider but I would really appreciate any advice My Daughter (31) felt really bloated, heavy and a...

Hello to all on this forum, I hope you don't think I am an outsider but I would ...

Mellucy

•2 years ago

28 Replies

Sorry for the longish post

Hello, I haven’t posted for quite a long time but I do read through your posts when I can. I really could do with some advice. I found out that I had High...

Hello, I haven’t posted for quite a long time but I do read through your posts...

Tay100

•2 years ago

11 Replies

Ovacome online support group meeting this Monday

Hi everyone We wanted to let you know about an upcoming support group meeting taking place on Monday 14 February between 3:30-5pm. This is our London support...

Hi everyone We wanted to let you know about an upcoming support group meeting ta...

OvacomeSupport

Partner•2 years ago

Be the first to reply

Research on chemotherapy-induced peripheral neuropathy

Hi all Have you experienced numbness, tingling or pain to your hands and feet after chemotherapy? The Multinational Association of Supportive Care (MASCC)...

Hi all Have you experienced numbness, tingling or pain to your hands and feet af...

TheOvacomeTeam

Partner•2 years ago

Be the first to reply

Good news

Hi everyone….after 5 years and 8 months I was discharged from the surgeon/oncologist yesterday. My CA125 was 7, all examinations fine. Still hasn’t sunk in, I...

Hi everyone….after 5 years and 8 months I was discharged from the surgeon/oncolo...

triplets

•2 years ago

32 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2022

Tell us what you would like to see from Ovacome

Lolotango

LIVE LIFE YOUR WAY

A good thing about today was ...

Debulking Surgery

CA125 rising following first chemo

Rare ovarian cancer

Hernias

New treatment for 1rst reccurrence, any advice

Sorry

Hernia Surgery

Gum and dental trouble anyone?

Any positive posts 're Covid vax please.

Olaparib people

High CA125 but nothing on scan

What's next?

Caelyx treatment after platinum based chemo my cancer resisted.

Fatigued 9 days post first chemo treatment

Encouraging news from Cambridge

1st recurrence

Yesterday’s CT scan

Help

Sore mouth

Travel insurance

New here

Advice please all you wonderful ladies !

Sorry for the longish post

Ovacome online support group meeting this Monday

Research on chemotherapy-induced peripheral neuropathy

Good news

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