Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,947 posts

All posts for June 2021

Ovarian cancer

Hello all, does anybody know if there is anything new coming out for non brca people for ovarian cancer. Niraparib stopped working the carbo has kept the...

Hello all, does anybody know if there is anything new coming out for non brca pe...

Aliollie

•3 years ago

14 Replies

POST Debaulking swollen stomach

I had my debaulking surgery plus a stoma reversal 5 wks ago. I dont have ascietes. My stomach is still very swollen. Any advice on how long it takes to go back...

I had my debaulking surgery plus a stoma reversal 5 wks ago. I dont have asciete...

suzannebirch

•3 years ago

2 Replies

How to tell if it's ascites

I was diagnosed with 3 c carsinosarcoma in Aug 2017, didn't have surgery, had 18 weekly chemo taxol/carbol. Chemo finished may 2018. Since then I have...

I was diagnosed with 3 c carsinosarcoma in Aug 2017, didn't have surgery, had ...

Amerthist

•3 years ago

24 Replies

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joint pain and olaparib

hi all, I have been on olaparib for 1 year now and have been getting really bad pains in my joints, mainly hands and knees. I have been tested for rhuematoid...

hi all, I have been on olaparib for 1 year now and have been getting really bad ...

ayrtonhenry

•3 years ago

4 Replies

Update on my surgery

Morning everyone I had my surgery on 10th June so just over 2 weeks ago. I am emotionally struggling along with the pain I am in. I am finding it very...

Morning everyone I had my surgery on 10th June so just over 2 weeks ago. I am em...

Deanna39

•3 years ago

17 Replies

My face to face appointment Friday

Hi Ladies, I’m going to try posting this again. I had a disastrous appointment with the oncologist yesterday. I went through the whole treatment menu to no...

Hi Ladies, I’m going to try posting this again. I had a disastrous appointment w...

Gemimablackvelvet

•3 years ago

73 Replies

Can’t post on Healthunlocked or Overcome

Still saying I don’t have permission to post so cannot let the ladies know anything Angela (Gemimablackvelvet)

Still saying I don’t have permission to post so cannot let the ladies know anyth...

Gemimablackvelvet

•3 years ago

33 Replies

Post op weight lifting

I am 14 weeks post op now and have been very careful about lifting things. Ihave just changed my car and the boot is higher than the last one, consequently dog...

I am 14 weeks post op now and have been very careful about lifting things. Ihave...

rosebine

•3 years ago

11 Replies

Good news😀 and not-so-good news😗

Well ladies; had my USS of a do and pelvis and internal and no sign of OC. CA125 blood-test also clear. I was so relieved Not-so-good-news is that my FIT...

Well ladies; had my USS of a do and pelvis and internal and no sign of OC. CA125...

MurdochsMum

•3 years ago

10 Replies

Upcoming Online Groups and Workshops with Ovacome

Hello All, This is a quick message to let you know about some upcoming online groups and workshops that are being held over the next couple of weeks. If you...

Hello All, This is a quick message to let you know about some upcoming online gr...

OvacomeSupport

Partner•3 years ago

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Disappointing result from Niraparib

I started taking Niraparib in September 2020 I was taking them for five months, I had no side effects at all and the tablet did not work for me, my CA125...

I started taking Niraparib in September 2020 I was taking them for five months,...

Wasginger090658

•3 years ago

16 Replies

Inguinal hernia

Has any one had an inguinal hernia following de-bulking surgery? What are the symptoms? Thank you for any information xx

Has any one had an inguinal hernia following de-bulking surgery? What are the sy...

Artyrose

•3 years ago

15 Replies

Watch and wait vs treatment

My mom went to see her oncologist and they offered her surgery, doxil/carbo and avastin. They said since she responded well the first time - they think she...

My mom went to see her oncologist and they offered her surgery, doxil/carbo and ...

Lind58

•3 years ago

11 Replies

Ca125 increase

Hi ladies. Just had my mums ca125 reading and it’s gone from 19 in March to 27 in May and now 35. So it wasn’t the Covid jab. The CNS has suggested an...

Hi ladies. Just had my mums ca125 reading and it’s gone from 19 in March to 27 i...

N-A-58

•3 years ago

21 Replies

Taking PARPs at home - your experiences

Hello All As you know we write submissions for NICE and SMC about the patient experience of treatment, and we ask for your experiences so we can include your...

Hello All As you know we write submissions for NICE and SMC about the patient ex...

OvacomeSupport

Partner•3 years ago

17 Replies

Ovacome Writing Competition

Hello All This is to let you know about the Ovacome Writing Competition. We're inviting you to enter a short story with a maximum word count of 2,000 words on...

Hello All This is to let you know about the Ovacome Writing Competition. We're i...

TheOvacomeTeam

Partner•3 years ago

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Olaparib

Hi everyone, I’ve been on olaparib now 2 years and I did have an anaphylactic reaction to Taxol. Has anyone who is on olaparib had the Covid Vaccine and if so...

Hi everyone, I’ve been on olaparib now 2 years and I did have an anaphylactic re...

CShotz

•3 years ago

15 Replies

Back pain ever not a symptom of recurrence?

Hi all, how is everybody? Has anybody had back pain and it turned out just to be good old back pain? (Rather than a recurrence). I finished chemo in April...

Hi all, how is everybody? Has anybody had back pain and it turned out just to be...

londoner0

•3 years ago

5 Replies

Ca 125 after first chemo recidive

Hi, we just get mom ca 125, on 24.05 it was 220, and when we understand that it is recidive on 6.06 she get firet chemo today she made ca 125 and it is 235...

Hi, we just get mom ca 125, on 24.05 it was 220, and when we understand that it ...

Inguc_is

•3 years ago

6 Replies

Radiation

I was diagnosed oc 4c had op chemo finished trial ICOn 8b march. This year. was told I had two nodules inside lymph nodes at back of Right kidney. after pet...

I was diagnosed oc 4c had op chemo finished trial ICOn 8b march. This year. w...

Madmolly

•3 years ago

13 Replies

Hormone pill

does this pill stop the nodules growing. Do you have experience of this mizpurple

does this pill stop the nodules growing. Do you have experience of this mizpurpl...

Madmolly

•3 years ago

5 Replies

Can you survive a reoccurance?

My mom was diagnosed October 2018 with Stage 4 and recently learned she is having her first reoccurance in her stomach lining. Two small spots- They offered...

My mom was diagnosed October 2018 with Stage 4 and recently learned she is havin...

Lind58

•3 years ago

42 Replies

Awaiting Diagnosis

This is my first posting on this forum Completely out of the blue, on June 9th this year my GP spoke the words Ovarian Cancer and a plan for tests. I have been...

This is my first posting on this forum Completely out of the blue, on June 9th t...

MurdochsMum

•3 years ago

11 Replies

Radiotherapy

Other active modules were found after pet scan. Have been offered radiotherapy instead of surgery as near blood vessels behind my right kidney. After speaking...

Other active modules were found after pet scan. Have been offered radiotherapy i...

Madmolly

•3 years ago

8 Replies

Mouth ulcers.

Thankyou very much to you all for the helpful advice you've given me. 😀 xx

kimbo57

•3 years ago

1 Reply

Research at Cardiff University

Hello All We have been asked by researchers at Cardiff University for your help with the following study, this is what they have said: "Ovarian cancer can...

Hello All We have been asked by researchers at Cardiff University for your help ...

OvacomeSupport

Partner•3 years ago

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Mouth ulcers.

Hi everyone. Can anyone give me some advice on mouth ulcers? I've had 5 Caelyx and been not too bad so far. A week after my last session, my mouth is now so...

Hi everyone. Can anyone give me some advice on mouth ulcers? I've had 5 Caelyx...

kimbo57

•3 years ago

18 Replies

Update on previous post.

Update on previous post: so after comparing scans from April to recent it has grown quickly. Taken all by surprise and whether it was the Avastin that had been...

Update on previous post: so after comparing scans from April to recent it has gr...

Davonian

•3 years ago

9 Replies

Potential future targeted therapy for BRCA mutations.

Hi Ladies, my friend has sent me this article from the Institute of Cancer Research. I hope I've attached the link correctly! Promising new targeted therapy...

Hi Ladies, my friend has sent me this article from the Institute of Cancer Resea...

sticky3006

•3 years ago

19 Replies

meningitis vaccine ca125

Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.

Good Afternoon Ladies - I just wanted to check in if anyone has had the meningit...

Lind58

•3 years ago

1 Reply

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2021

Ovarian cancer

POST Debaulking swollen stomach

How to tell if it's ascites

joint pain and olaparib

Update on my surgery

My face to face appointment Friday

Can’t post on Healthunlocked or Overcome

Post op weight lifting

Good news😀 and not-so-good news😗

Upcoming Online Groups and Workshops with Ovacome

Disappointing result from Niraparib

Inguinal hernia

Watch and wait vs treatment

Ca125 increase

Taking PARPs at home - your experiences

Ovacome Writing Competition

Olaparib

Back pain ever not a symptom of recurrence?

Ca 125 after first chemo recidive

Radiation

Hormone pill

Can you survive a reoccurance?

Awaiting Diagnosis

Radiotherapy

Mouth ulcers.

Research at Cardiff University

Mouth ulcers.

Update on previous post.

Potential future targeted therapy for BRCA mutations.

meningitis vaccine ca125

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