Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for September 2020

PARP as maintenance

Hi all - I am so thankful for this forum and the sharing. A recap - I was dx OC Stage 3 - May 2018 - CA125 was 2600 - had surgery followed by 18 consecutive...

Hi all - I am so thankful for this forum and the sharing. A recap - I was dx OC...

ElayneZ

•4 years ago

29 Replies

Back to reality.

After three wonderful weeks on Dartmoor ,walking more miles than I ever thought I'd be able to ,scrambling through rocky streams and climbing tors its back to...

After three wonderful weeks on Dartmoor ,walking more miles than I ever thought ...

fendweller

•4 years ago

27 Replies

In focus: targeted therapies - immunotherapy

This month in our Health in Focus series, we’re looking at targeted therapies. Cancer cells behave differently from healthy cells in a number of ways. These...

This month in our Health in Focus series, we’re looking at targeted therapies. C...

OvacomeSupport

Partner•4 years ago

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CA125 increasing, no symptoms, 7 years remission

My mother was diagnosed with stage 3C endometrial cancer. She underwent TAHBSO, had 6 cycles of chemo and 25 sessions of radiotherapy. Then we had monitoring....

My mother was diagnosed with stage 3C endometrial cancer. She underwent TAHBSO, ...

Kwiskwos

•4 years ago

14 Replies

Virtual support from Ovacome and Ovarian Cancer Action this week

Hello This is to let you know about the online events on our programme this week. Hereditary Cancer Awareness Week: Hereditary Pancreatic Cancer - Monday 28...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•4 years ago

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Nil residual ...

Ok, I received a letter as a courtesy from my oncologist, dated 20 August, received 11 September saying this: From surgeon: 'TAH-BSO OMENTECTOMY BPLND PALND...

Ok, I received a letter as a courtesy from my oncologist, dated 20 August, recei...

candyapplegrey

•4 years ago

5 Replies

Smile at Amazon.

Hi all, I'm sure most of you are aware of this but just in case, if you log onto Amazon Smile instead of just Amazon you can select a charity that they will...

Hi all, I'm sure most of you are aware of this but just in case, if you log onto...

ZenaJ

•4 years ago

17 Replies

Ovarian cancer

Hello did anyone get edema as a symptom. ie feeling of fluid retention around waist and in legs?

Hello did anyone get edema as a symptom. ie feeling of fluid retention around w...

Tibbsthebear

•4 years ago

17 Replies

Strands

Anyone ever told the CA shrink down and only strands left. Even after surgery strands are still there in the omentum ?

Anyone ever told the CA shrink down and only strands left. Even after surgery st...

Harp-1

•4 years ago

3 Replies

Treatment for platinum resistant mucinous ovarian cancer?

Hello everyone! I hope you are having a great day. I need your help. I am dealing with platinum resistant mucinous/endometrioid ovarian cancer. I am amid my...

Hello everyone! I hope you are having a great day. I need your help. I am dealin...

mk66

•4 years ago

13 Replies

Waiting for dr appt to ask for ultrasound

I have been bloated for two weeks. Bloods show a reading of 10. Any tips on any other symptoms?

I have been bloated for two weeks. Bloods show a reading of 10. Any tips on an...

Tibbsthebear

•4 years ago

2 Replies

The alien inside me

Ovarian cancer (survivor/carrier/sufferer?) just never seems to leave me, even when I am 'winning' I feel like I am 'waiting'. I'm interested to see if anyone...

Ovarian cancer (survivor/carrier/sufferer?) just never seems to leave me, even w...

my-abdominal-alien

•4 years ago

8 Replies

Ca125 Rising on Olaparib

Hello All, First post . Diagnosed Nov 19 Stage 3c primary peritoneal, great 50th birthday year, was fantastic for the weight loss program though! Full...

Hello All, First post . Diagnosed Nov 19 Stage 3c primary peritoneal, great 50th...

Esmerelda101

•4 years ago

5 Replies

The Touch of Teal Tea raffle is open!

Hello everyone Join our virtual raffle - you could win some amazing prizes for just a few pounds!...

Hello everyone Join our virtual raffle - you could win some amazing prizes for j...

OvacomeSupport

Partner•4 years ago

2 Replies

1st chemo hurdle completed

Thank you all for replying to my 1st chemo and side effects, I am in a much better place than a few days ago...got through the 1st hurdle with all you guys on...

Thank you all for replying to my 1st chemo and side effects, I am in a much bett...

Dubai18

•4 years ago

3 Replies

Small Bruises

Hi all you lovely ladies. Just a quick question. Have any of you noticed small bruises appearing on your fingers after you finished chemo? I haven't had chemo...

Hi all you lovely ladies. Just a quick question. Have any of you noticed small b...

ZenaJ

•4 years ago

14 Replies

Ca125

My ca125 has risen again. Currently 1889. Has gone up 220 since 3rd september. Currently taking oral meds. Rest of my blood results are ok..Will have another...

My ca125 has risen again. Currently 1889. Has gone up 220 since 3rd september. C...

Maltida61

•4 years ago

11 Replies

Baaaad hair day

Morning lovely ladies 💗 I just thought ewe might need a lift today. I found this sheepish tea cosy in a box and just had to try it on. I hasten to add that I...

Morning lovely ladies 💗 I just thought ewe might need a lift today. I found thi...

Welshandproud

•4 years ago

45 Replies

PARP

Anyone got PARP? Is it effective? How long need to be taken for an ovarian cancer stage 3 and how expensive?

Anyone got PARP? Is it effective? How long need to be taken for an ovarian cance...

Harp-1

•4 years ago

14 Replies

Reaction to ct contrast dye?

Hi I’m wondering if anyone out there had any experiences with reactions to contrast dye? I had it 6 weeks ago and have been left with neuropathy and all over...

Hi I’m wondering if anyone out there had any experiences with reactions to contr...

Bec659

•4 years ago

7 Replies

Out of breath - symptoms

Hi Ladies, was wondering if anyone has had out of breath symptoms as a side effect from chemo?

Hi Ladies, was wondering if anyone has had out of breath symptoms as a side eff...

Dubai18

•4 years ago

21 Replies

In focus: targeted therapies - hormone therapies

Hello This month in our Health in Focus series, we’re looking at targeted therapies. Cancer cells behave differently from healthy cells in a number of ways....

Hello This month in our Health in Focus series, we’re looking at targeted therap...

OvacomeSupport

Partner•4 years ago

2 Replies

1st Chemo update - pain

Hi I've had my 1st chemo on 16 Sept, coming out of it the other end, had body pains, all my body felt like it was being pulled and stretched from all sides,...

Hi I've had my 1st chemo on 16 Sept, coming out of it the other end, had body p...

Dubai18

•4 years ago

24 Replies

Virtual Wine Tasting with Three Chords & the Vine on Thursday

Hello everyone We're having a virtual wine tasting on Thursday evening, in partnership with friendly hosts and wine experts Amira & Julie of Three Chords & the...

Hello everyone We're having a virtual wine tasting on Thursday evening, in partn...

OvacomeSupport

Partner•4 years ago

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Prognosis

Thanks for your all of your responses regarding hearing a prognosis. I decided after all treatment, I will ask what my prognosis is, and then I will live life...

Thanks for your all of your responses regarding hearing a prognosis. I decided a...

Teamteal2020

•4 years ago

9 Replies

Urgently needed info on Private immunotherapy in the UK

Good morning, ladies Does anybody know or heard of a private clinic in the UK that provides imminutherapy treatments for OC. Thank you very much for your...

Good morning, ladies Does anybody know or heard of a private clinic in the UK ...

NGRoman50

•4 years ago

7 Replies

Virtual support from Ovacome and Ovarian Cancer Action this week

Hello This is to let you know about the online events on our programme this week. Gentle Home Exercise Class with Cancer Exercise Specialist Lizzy Davis -...

Hello This is to let you know about the online events on our programme this week...

OvacomeSupport

Partner•4 years ago

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Back Ache?

I hope everyone enjoyed their weekend! I was diagnosed a year ago June with OC, stage 4 that spread to a few lymph nodes, stomach lining, liver and colon....

I hope everyone enjoyed their weekend! I was diagnosed a year ago June with OC...

Tenacious66

•4 years ago

3 Replies

Issues down below!

Hi. I have had two Carbo/Caelyx infusions, and along with some expected side effects I have developed a lot of irritation at the entrance of my vagina....

Hi. I have had two Carbo/Caelyx infusions, and along with some expected side eff...

27-359

•4 years ago

8 Replies

Laura’s Latest Update: Reprieve!

Reprieve! Today, the Italian Liver specialist from the Wellington Hospital and Royal Free Hospital in London, has given me a telephone consultation today,...

Reprieve! Today, the Italian Liver specialist from the Wellington Hospital and R...

Lindaura

•4 years ago

79 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2020

PARP as maintenance

Back to reality.

In focus: targeted therapies - immunotherapy

CA125 increasing, no symptoms, 7 years remission

Virtual support from Ovacome and Ovarian Cancer Action this week

Nil residual ...

Smile at Amazon.

Ovarian cancer

Strands

Treatment for platinum resistant mucinous ovarian cancer?

Waiting for dr appt to ask for ultrasound

The alien inside me

Ca125 Rising on Olaparib

The Touch of Teal Tea raffle is open!

1st chemo hurdle completed

Small Bruises

Ca125

Baaaad hair day

PARP

Reaction to ct contrast dye?

Out of breath - symptoms

In focus: targeted therapies - hormone therapies

1st Chemo update - pain

Virtual Wine Tasting with Three Chords & the Vine on Thursday

Prognosis

Urgently needed info on Private immunotherapy in the UK

Virtual support from Ovacome and Ovarian Cancer Action this week

Back Ache?

Issues down below!

Laura’s Latest Update: Reprieve!

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