Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for March 2022

Update post - let your forum friends know how you are

Hello All It's that time of year again in the UK when the clocks change, which means it's time for an update post which we will pin to the sidebar. This was...

Hello All It's that time of year again in the UK when the clocks change, which m...

OvacomeSupport

Partner•3 years ago

9 Replies

Waiting for surgery

Hi ladies. I had my 1st gynae oncology outpatient appointment this week & they have said I will be sent an appointment for surgery in 4-6 weeks. My Ca125 was...

Hi ladies. I had my 1st gynae oncology outpatient appointment this week & they h...

Newstart22

•3 years ago

14 Replies

Saw Oncologist yesterday

They said I've responded well to carbo caelyx but CA125 is still 448 and it looks like it will recur. They are lining me up for the Mirasol Trial if I'm...

They said I've responded well to carbo caelyx but CA125 is still 448 and it look...

ritabon

•3 years ago

22 Replies

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Not suitable for surgery

Hi very helpful and knowledgeable ladies, I’m stage 1V ovarian cancer diagnosed in April 2021. My cancer is metastatic, in my abdomen , neck and chest and my...

Hi very helpful and knowledgeable ladies, I’m stage 1V ovarian cancer diagnosed ...

Guilane

•3 years ago

18 Replies

Doxorubicin

I was just notified today that I will need to start monthly infusions of doxil as my ovarian cancer which I was diagnosed with in December of 2017 is now...

I was just notified today that I will need to start monthly infusions of doxil a...

Cancerfree57

•3 years ago

8 Replies

Newbie

Hello everyone, You all inspire hope in me . Thank you for being here. was diagnosed 3 weeks ago stage 4. Started chemo last week not many side effects...

Hello everyone, You all inspire hope in me . Thank you for being here. was diagn...

Goldelox

•3 years ago

18 Replies

Bad news :(

Today we get moms CT scan results.. cancer is back a lot of mts over abdomen and a lot of lymph are bigger as normal:( and ca in 2 month go up from 110 to 250...

Today we get moms CT scan results.. cancer is back a lot of mts over abdomen and...

Inguc_is

•3 years ago

12 Replies

Non-alcoholic drinks

Since being diagnosed with endometrioid epithelial ovarian cancer in November 2021 and then being told my cancer was oestrogen receptor positive I have taken...

Since being diagnosed with endometrioid epithelial ovarian cancer in November 20...

SarahBa

•3 years ago

18 Replies

Raising awareness :)

Good morning all you lovely ladies Thank you for your support when I felt at my lowest when my Daughter was unwell in December. I am so proud of her now as she...

Good morning all you lovely ladies Thank you for your support when I felt at my ...

Mellucy

•3 years ago

3 Replies

Puncture Wound

Anybody ever had a puncture wound? Want to know how long it took to heal? Thanks

Anybody ever had a puncture wound? Want to know how long it took to heal? Thanks...

Bruisegirl69

•3 years ago

1 Reply

A big thank you

After a three year battle with OC, my Mum sadly passed away two weeks ago. Without the support of this group, who helped me see this from a different...

After a three year battle with OC, my Mum sadly passed away two weeks ago. Witho...

LittleMissMerit

•3 years ago

26 Replies

Weekly Carbol/Taxol experiences?

Hi everyone! Unfortunately my partner has recurred after approximately 1 year of remission. Originally diagnosed in August 2020 with Stage 3C HGS ovarian...

Hi everyone! Unfortunately my partner has recurred after approximately 1 year of...

Stuee01

•3 years ago

27 Replies

Gemcitabine vs Topotecan

Hi all Was wondering if anyone had opinions or experience of whether Gemcitabine or Topotecan have advantages/disadvantages over each other? Either would be...

Hi all Was wondering if anyone had opinions or experience of whether Gemcitabin...

Lamets

•3 years ago

11 Replies

Run for mum

Hi all just home from Run for Mum In Hyde Park , I’ve run Race for life many times but this was special, I feel amazing 🤩 even though I look absolutely...

Hi all just home from Run for Mum In Hyde Park , I’ve run Race for life many tim...

March2017

•3 years ago

6 Replies

3B Survivors

Would love to hear from any long term survivors that haven’t had reoccurrences after debulking and frontline. . I’m 3B low grade endometroid finished...

Would love to hear from any long term survivors that haven’t had reoccurrences a...

Saintgermain

•3 years ago

33 Replies

Gall bladder polyps...what to do?

Hi all...I'm 4 years from my 1a IC diagnosis, full debulking etc. My ca125 has stayed between 10 and 14. I asked my consultant if I would ever be given another...

Hi all...I'm 4 years from my 1a IC diagnosis, full debulking etc. My ca125 has s...

Twink333

•3 years ago

5 Replies

Chemo and Abdominal issues. Weekly Taxol/Abraxane

Morning precious people, I just wondered if anybody has had the same abdominal trouble with weekly Taxol/Abraxane. Im currently 9 down, 9 to go but ever since...

Morning precious people, I just wondered if anybody has had the same abdominal t...

Esmerelda101

•3 years ago

4 Replies

BRCA +ve with OC. The options for breast cancer prevention.

Hello ladies. I am about to complete my frontline chemo for stage 3 OC and I have just been told I am BRCA1+ and so will need breast cancer screening every 6...

Hello ladies. I am about to complete my frontline chemo for stage 3 OC and I ha...

Carpediem68

•3 years ago

36 Replies

Recurrence

Could I ask how you know when you have a recurrence ? Are symptoms similar to when first diagnosed ?

Could I ask how you know when you have a recurrence ? Are symptoms similar to wh...

Hidden

•3 years ago

7 Replies

Good news x2

I saw my oncologist Tuesday for results after my sixth cycle of Carboplatin and caeleyx , some of you will have seen my previous posts and will know I've found...

I saw my oncologist Tuesday for results after my sixth cycle of Carboplatin and ...

fendweller

•3 years ago

102 Replies

Quick check in x

Hello lovelies, Been ages since I've been on just wanted to check in quickly to see how everyone is x

Hello lovelies, Been ages since I've been on just wanted to check in quickly t...

CallmeMum

•3 years ago

18 Replies

ATARI trial

Hi all. Today I had my results from my 2 month scan. It’s showing my lesions had either halved or unmeasurable. These are in my omentum. I do have some others...

Hi all. Today I had my results from my 2 month scan. It’s showing my lesions ha...

Starbarn

•3 years ago

20 Replies

Ovarian Cancer clinical trial - ACTOv

Hi all, I am a patient representative with UCL and Cancer Research UK, and I am currently involved in the ACTOv trial. They recently received a funding grant...

Hi all, I am a patient representative with UCL and Cancer Research UK, and I am...

Krobbo278

•3 years ago

7 Replies

Ovacome Raffle

Hi all We would like to invite you to enter our wonderful Ovacome Raffle to win some fantastic prizes. In doing so, you will be helping us to continue...

Hi all We would like to invite you to enter our wonderful Ovacome Raffle to win ...

TheOvacomeTeam

Partner•3 years ago

Be the first to reply

5 years on

Hi everyone, it’s been 5 years since my diagnosis of stage 3a ovarian cancer. I really didn’t expect to be posting this, but here I am , one of the lucky ones!...

Hi everyone, it’s been 5 years since my diagnosis of stage 3a ovarian cancer. I ...

March2017

•3 years ago

38 Replies

Scared of diagnosis

Hi, I’m looking for some positive stories. 6 weeks ago I started feeling constipated and bloated, dr prescribed some laxatives and also arranged a blood test...

Hi, I’m looking for some positive stories. 6 weeks ago I started feeling constip...

Acw123

•3 years ago

12 Replies

Is this level of exhaustion to be expected?

I am in 2nd recurrence primary peritoneal. With each chemo I have I am increasingly fatigued. Chemo this time is Carbo/gemticibine on day one and day 8 just...

I am in 2nd recurrence primary peritoneal. With each chemo I have I am increasin...

Sandy-Hants

•3 years ago

5 Replies

Avastin and Parps

How are people doing who take Avastin?

Blily314

•3 years ago

7 Replies

CA125 rise with diverticulitis

Anybody here have a scan and was told you have diverticulitis? Did your CA125 rise?

Anybody here have a scan and was told you have diverticulitis? Did your CA125 ri...

Cristinpaige

•3 years ago

2 Replies

Debulking surgery advice

Hi :) My mum has been approved for surgery today in and MDT and we are heading to meet the surgeon Christina Fotopoulou on Monday. We are based in North...

Hi :) My mum has been approved for surgery today in and MDT and we are heading t...

Worrieddaughter95

•3 years ago

37 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2022

Update post - let your forum friends know how you are

Waiting for surgery

Saw Oncologist yesterday

Not suitable for surgery

Doxorubicin

Newbie

Bad news :(

Non-alcoholic drinks

Raising awareness :)

Puncture Wound

A big thank you

Weekly Carbol/Taxol experiences?

Gemcitabine vs Topotecan

Run for mum

3B Survivors

Gall bladder polyps...what to do?

Chemo and Abdominal issues. Weekly Taxol/Abraxane

BRCA +ve with OC. The options for breast cancer prevention.

Recurrence

Good news x2

Quick check in x

ATARI trial

Ovarian Cancer clinical trial - ACTOv

Ovacome Raffle

5 years on

Scared of diagnosis

Is this level of exhaustion to be expected?

Avastin and Parps

CA125 rise with diverticulitis

Debulking surgery advice

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