Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for October 2022

Zejula

ZEJULA EFFECTSOVERCOMING SIDE EFFECTS ZEJULA

quillette

•2 years ago

2 Replies

Update post - let your forum friends know how you are doing (Autumn 2022)

Hello All It's that time of year again in the UK when the clocks change, which means it's time for an update post which we will pin to the sidebar. This was...

Hello All It's that time of year again in the UK when the clocks change, which ...

OvacomeSupport

Partner•2 years ago

20 Replies

Niraparib and hair colouring

Hello All We've had a query through the supportline that we would really value your expertise on please? Someone who finished chemotherapy in April and is now...

Hello All We've had a query through the supportline that we would really value ...

OvacomeSupport

Partner•2 years ago

15 Replies

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chemo brain

Saturday or Sunday I had a lovely uplifting post from a lovely lady it , mentioned havi a video call with her family and reiki among other things , I answered...

Saturday or Sunday I had a lovely uplifting post from a lovely lady it , mentio...

fendweller

•2 years ago

4 Replies

Waiting for scans

At the end of March I had oophorectomy etc. to remove a suspicious 2.2kg ovarian cyst. Stage 1A clear cell cancer was found in my right ovary and I had 6...

At the end of March I had oophorectomy etc. to remove a suspicious 2.2kg ovaria...

Rexrescue

•2 years ago

10 Replies

Vacs and Flu Jag

In middle of chemo and got email to arrange for Appointment for my jab and flu.Should I wait until treatment finishes before I get them? Thanks in advance.

In middle of chemo and got email to arrange for Appointment for my jab and flu....

Beoony

•2 years ago

11 Replies

Quick update

hi, so had my spleen and tail of pancreas removed 21/09, 2 weeks in hospital, 3 days at home, 14 hours in A&E, followed by another week in hospital 😥 wow,...

hi, so had my spleen and tail of pancreas removed 21/09, 2 weeks in hospital, 3 ...

Doglover1410

•2 years ago

35 Replies

clothes for ascites!!

Ladies and Ovacome TeamI recently completed a Q of L questionnaire as part of research. It made me have a bit of a think about self image and I realised what...

Ladies and Ovacome TeamI recently completed a Q of L questionnaire as part of re...

Smileeveryday2021

•2 years ago

18 Replies

Gem/ Carbo

Morning ladies , some of you who have been following my posts will know what a shite time I've been having , you're replies and kindness had kept me sane ....

Morning ladies , some of you who have been following my posts will know what a ...

fendweller

•2 years ago

31 Replies

Surprising Realization

Hi everyone, I just wanted to share a little mental journey I went on recently and a little surprising conclusion. I've been feeling very out of sorts...

Hi everyone, I just wanted to share a little mental journey I went on recen...

FlowerRose

•2 years ago

8 Replies

Just wondered if anyone is on the AXLerate trial?

if you are just wondering how you are getting on? Xx

Smileeveryday2021

•2 years ago

1 Reply

parp inhibitor

just wondering if anyone on this drug is experiencing side effects that are significant. Does it keep the ca-125 in check

just wondering if anyone on this drug is experiencing side effects that are s...

Tealgirl7

•2 years ago

7 Replies

Am I being irresponsible asking this question

I'm currently 4 months into a clinical trial and have chemo 3 weeks on, 1 week off, plus the the trial drug. I've really struggled with the regime as I was...

I'm currently 4 months into a clinical trial and have chemo 3 weeks on, 1 week ...

doodoolatrice

•2 years ago

33 Replies

parp inhibitors

is anyone taking a parp inhibitor I'm just wondering about side effects and levels of CA 125 that people are experiencing

is anyone taking a parp inhibitor I'm just wondering about side effects and ...

Tealgirl7

•2 years ago

10 Replies

CA125

I am just finished my 3rd chemo session, when I spoke to Nurse last week before my 3rd session. I asked what my CA125 was sitting at 2 weeks after my full...

I am just finished my 3rd chemo session, when I spoke to Nurse last week befor...

Beoony

•2 years ago

9 Replies

weekly taxol

hi all, Firstly just want to say to everyone — good luck in your treatments and I hope you are all doing well and keeping positive ! is anyone on weekly...

hi all, Firstly just want to say to everyone — good luck in your treatments and...

Lookingahead

•2 years ago

9 Replies

Dysgeusia (taste alteration)

Hi. Is there anyone out there suffering from taste alteration. This is not not fancying food or feeling sick or not being able to eat. This is a side effect...

Hi. Is there anyone out there suffering from taste alteration. This is not not f...

Guilane

•2 years ago

11 Replies

CA125

I know you've all been sitting on the edge of your seats and having sleepless nights wondering when I would ever get my CA125 results. Well, you can relax at...

I know you've all been sitting on the edge of your seats and having sleepless ni...

ZenaJ

•2 years ago

56 Replies

Thank you Dear Friends.

Dear Friends, firstly I want to apologise for not replying individually to all wonderful people on this forum who responded to my last post. The after...

Dear Friends, firstly I want to apologise for not replying individually to all...

Litchick

•2 years ago

8 Replies

HRD testing,

can HRD testing be done in the UK?.? If so,how much does it cost?.? I am in Ireland and it isn't available here. ann

can HRD testing be done in the UK?.? If so,how much does it cost?.? I am in I...

Seedlings

•2 years ago

11 Replies

CT SCAN

Hi lovely ladies im just seeking some information from the group. I was diagnosed with Stage2b OC In May I had LAVH and salpingo oophrectomy. There was NED...

Hi lovely ladies im just seeking some information from the group. I was diagnos...

Hota

•2 years ago

7 Replies

Scanxiety Series 3 Episode I (?)

Hello everyone Just had a scan ordered by oncologist because ca125 jumped 10 points in September to 45. Tbh it has edged up every month on Olaparib (I have...

Hello everyone Just had a scan ordered by oncologist because ca125 jumped 10 p...

Lyndy2

•2 years ago

13 Replies

Diabetes ?

Just had phone consult, on my monthly blood results there is a reference to diabetes! As far as I know I dont have diabetes although Ive never been tested for...

Just had phone consult, on my monthly blood results there is a reference to dia...

Rosebine2

•2 years ago

8 Replies

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 24 Oct 2021 and 24 Aug 2022?

Good morning all Have you been diagnosed with stage 3 or 4 ovarian, primary peritoneal or fallopian tube cancer and did you have your last dose of first...

Good morning all Have you been diagnosed with stage 3 or 4 ovarian, primary p...

OvacomeSupport

Partner•2 years ago

1 Reply

Reflection and thanks.

I had my last infusion of Avastin on Wednesday and am continuing with Olaparib tablets. I’m so thankful for the care I’ve received since diagnosis 19 months...

I had my last infusion of Avastin on Wednesday and am continuing with Olaparib t...

MrsSkippy

•2 years ago

11 Replies

Finding it hard to keep positive.

Hi everyone , I do hope you are having the best day you can as you live with this dreadful disease. Wont go into too much detail but at the moment I find I’m...

Hi everyone , I do hope you are having the best day you can as you live with thi...

Litchick

•2 years ago

21 Replies

Struggling a bit

Hi, I was diagnosed in July with 1C Mucinous OC with a few clear cells also found. It was a bit of a shock diagnosis (for consultant as well) as after bloods...

Hi, I was diagnosed in July with 1C Mucinous OC with a few clear cells also foun...

Frankie1405

•2 years ago

30 Replies

thank you

I joined this forum back in March after my mother was told she needed to have chemotherapy for a second time. Everyone was so supportive and I just wanted to...

I joined this forum back in March after my mother was told she needed to have ch...

BadDog53

•2 years ago

13 Replies

Request for help with trial patient information review

Hello All We’ve been approached by researchers at the Institute of Cancer Research, regarding a new clinical trial they are developing in collaboration with...

Hello All We’ve been approached by researchers at the Institute of Cancer Resea...

OvacomeSupport

Partner•2 years ago

Be the first to reply

Experiences of Clatterbridge cancer center, Wirral

Hi all, Mum was diagnosed with stage 3c high grade serous ovarian cancer at the beginning of the year. She has responded well to first line treatment and...

Hi all, Mum was diagnosed with stage 3c high grade serous ovarian cancer at th...

Donnie21

•2 years ago

6 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2022

Zejula

Update post - let your forum friends know how you are doing (Autumn 2022)

Niraparib and hair colouring

chemo brain

Waiting for scans

Vacs and Flu Jag

Quick update

clothes for ascites!!

Gem/ Carbo

Surprising Realization

Just wondered if anyone is on the AXLerate trial?

parp inhibitor

Am I being irresponsible asking this question

parp inhibitors

CA125

weekly taxol

Dysgeusia (taste alteration)

CA125

Thank you Dear Friends.

HRD testing,

CT SCAN

Scanxiety Series 3 Episode I (?)

Diabetes ?

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 24 Oct 2021 and 24 Aug 2022?

Reflection and thanks.

Finding it hard to keep positive.

Struggling a bit

thank you

Request for help with trial patient information review

Experiences of Clatterbridge cancer center, Wirral

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2022

Zejula

Update post - let your forum friends know how you are doing (Autumn 2022)

Niraparib and hair colouring

﻿chemo brain

﻿Waiting for scans

﻿Vacs and Flu Jag

Quick update

clothes for ascites!!

﻿Gem/ Carbo

﻿Surprising Realization

Just wondered if anyone is on the AXLerate trial?

﻿parp inhibitor

﻿Am I being irresponsible asking this question

﻿ parp inhibitors

﻿CA125

weekly taxol

Dysgeusia (taste alteration)

CA125

Thank you Dear Friends.

﻿HRD testing,

CT SCAN

Scanxiety Series 3 Episode I (?)

Diabetes ?

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 24 Oct 2021 and 24 Aug 2022?

Reflection and thanks.

Finding it hard to keep positive.

Struggling a bit

thank you

Request for help with trial patient information review

Experiences of Clatterbridge cancer center, Wirral

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

chemo brain

Waiting for scans

Vacs and Flu Jag

Gem/ Carbo

Surprising Realization

parp inhibitor

Am I being irresponsible asking this question

parp inhibitors

CA125

HRD testing,