Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,951 posts

All posts for February 2023

Stomach migraine

If any of you have awful pain in your stomach that nothing helps, you could be having a stomach migraine. My husband suffered greatly from them.. The only...

If any of you have awful pain in your stomach that nothing helps, you could be h...

rhyspeace12

•1 year ago

1 Reply

ovarian cancer chemotherapy

hi everyone!I have a question going on my mind a few days now-cisplatin vs carboplatin in ovarian cancer what are the basic criteria’s in choosing one?it has...

hi everyone!I have a question going on my mind a few days now-cisplatin vs carbo...

Roulasim

•1 year ago

15 Replies

CT results shocking

just get mom CT scan results in 2 month so much things grown, all in abdomen… organs ar clean till now almost all are in lymphs, no ascit but there is some...

just get mom CT scan results in 2 month so much things grown, all in abdomen… or...

Inguc_is

•1 year ago

5 Replies

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Anyone get 'lower abdominal flutters'

- mum is 10 months post debulking and 8 months on niraparib- has started feeling 'butterflies' for no reason

- mum is 10 months post debulking and 8 months on niraparib- has started feeling...

Worrieddaughter95

•1 year ago

7 Replies

taking Niraparib whilst having covid

Hi I thought I read somewhere that if you are diagnosed with covid you should stop taking your PARP treatment? Anybody know if this is true? J x

Hi I thought I read somewhere that if you are diagnosed with covid you should ...

Jingles6

•1 year ago

11 Replies

Symptoms OC after transvaginal ultrasound

Hi, I am 39. My cycle is very regular, and I've started to have heavy bleeding during my periods. I had a first pelvic ultrasound : the report says I...

Hi, I am 39. My cycle is very regular, and I've started to have heavy bleedi...

suricat

•1 year ago

4 Replies

Ascites

The ascites in my abdomen has now reached such volume that I am unable to move around at home and am fighting for breath constantly.I have an appointment on...

The ascites in my abdomen has now reached such volume that I am unable to move a...

27-359

•1 year ago

30 Replies

PRRT Treatment & Incontinence

PRRT (Lutathera) - Lu-177: A loved one is scheduled for the initial PRRT infusion in early March 2023 in the USA. She does have incontinence issues - when...

PRRT (Lutathera) - Lu-177: A loved one is scheduled for the initial PRRT infusi...

m27537

•1 year ago

2 Replies

just got my operation date

well that’s it , been hit by a truck again . It’s finally hit me that it’s going to happen , seen my consultant she was not worried about my CA125 at 40 could...

well that’s it , been hit by a truck again . It’s finally hit me that it’s going...

Cazy1010

•1 year ago

12 Replies

Niraparib side effects

hi everyone, I’ve got grade 3 high grade serous ovarian cancer, I finished 6 rounds of Paclitaxel and carboplatin in Desember. I’ve just started 200mg...

hi everyone, I’ve got grade 3 high grade serous ovarian cancer, I finished 6 ro...

Hannah54

•1 year ago

2 Replies

Re - chemo cocktail, Caelyx and Yondelis.

Good morning , After 5 lines of chemo my doctor has come up with this new regime - 6 x 3 weekly sessions if it proves to be working and if I can cope. I...

Good morning , After 5 lines of chemo my doctor has come up with this new regim...

Erinna72

•1 year ago

2 Replies

Bowel blockage - any hope?

Hi everyone, I was hoping to get some advice for my partner as she is going through a bowel blockage right now and is in hospital. Her stomach is still very...

Hi everyone, I was hoping to get some advice for my partner as she is going thr...

Stuee01

•1 year ago

21 Replies

rubraca

hello im new to the community. Im currently on a parp inhibitor called rubraca, was just wondering if anyone else has had a cough as a side effect. Had mine...

hello im new to the community. Im currently on a parp inhibitor called rubraca, ...

SKpaints1

•1 year ago

4 Replies

Surgery

Hi I was deemed inoperable after 4 rounds of chemotherapy. I had a diagnostic camera, and was sent back to have 2 further chemotherapy treatments. During this...

Hi I was deemed inoperable after 4 rounds of chemotherapy. I had a diagnostic ca...

Walkingwithcancer

•1 year ago

12 Replies

Niraparib

I have just started on Niraparib and just want to ask about side effects. If you get them; Do they kick in quite quickly or are the more cumulative? Katy

I have just started on Niraparib and just want to ask about side effects. If y...

NewtonEmma1900

•1 year ago

10 Replies

KEYNOTE-B96 Clinical trial

Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.

Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus...

Vilinew

•1 year ago

2 Replies

effusion pleural

just shoked CT scan for chest… nothing found and 1.5cm efflusion in right pleural spece is it cancer efflusion correct? Who had such and is ir big or not? 2...

just shoked CT scan for chest… nothing found and 1.5cm efflusion in right pleura...

Inguc_is

•1 year ago

8 Replies

Ca125 Levels - Low?? Normal??

Hi all I posted a few days back (as I am on eggshells - it’s such an awful feeling) that I have a 4.2cm thing on my left ovary and have been put on the...

Hi all I posted a few days back (as I am on eggshells - it’s such an awful feel...

Sparkleshimmer

•1 year ago

16 Replies

Haematoma after chest drain

I've developed a lump on the left side of my back on my ribs, under the skin, which is exactly the same place I had 2 chest drains put in when I developed a...

I've developed a lump on the left side of my back on my ribs, under the skin, wh...

doodoolatrice

•1 year ago

3 Replies

Recurrence update

Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and update of first recurrence. The scan showed another area of growth this time...

Hi lovely ladies I saw my oncologist on Friday to get results of PET scan and ...

Barmycharm

•1 year ago

12 Replies

Does anyone still feel fatigued or nauseated after being in remission? I'm 2 years NED and still don't feel back to my normal self.

Has anyone been in remission a while but still don't feel the way you did before diagnosis? I'm 2 years NED but still don't have the energy I did before, oh,...

Has anyone been in remission a while but still don't feel the way you did before...

my5and13

•1 year ago

6 Replies

hernia

what kind of problems you have with hernia? If u are in recurrance when they can make operation?

what kind of problems you have with hernia? If u are in recurrance when they can...

Inguc_is

•1 year ago

16 Replies

cancer returned a 5th time

hello teal sisters, this time my cancer has returned to inside my bladder. My last bout with cancer was 2018. Has anyone ever had OVC go to bladder or would...

hello teal sisters, this time my cancer has returned to inside my bladder. My l...

Tabor

•1 year ago

30 Replies

new diagnosis - probable mucinous ovarian cancer

I've just been diagnosed with probable mucinous ovarian cancer. I had post menopausal bleeding and was sent for an US scan which showed a probable endometrioma...

I've just been diagnosed with probable mucinous ovarian cancer. I had post menop...

cavebaby

•1 year ago

13 Replies

over thinking again

here I am again, it’s 3 weeks since I was in A &E with tummy pains , CT scan , ultrasound and MRI tomorrow, Christie’s on Tuesday with cyst on overy , it’s all...

here I am again, it’s 3 weeks since I was in A &E with tummy pains , CT scan , u...

Cazy1010

•1 year ago

7 Replies

CT scan Results

Hi I’ve had 4 round of Caeylx / carbo for first recurrence my Ca125 is now 29 and results of scan show only one spot in stomach left that hasn’t changed...

Hi I’ve had 4 round of Caeylx / carbo for first recurrence my Ca125 is now 29 ...

Purplerose12

•1 year ago

7 Replies

Gemzar not working

Sadly, I couldn’t tolerate more Carbo, and the Gemzar/Avastin infusions have not helped. My CA125 is rising. Has anyone has this happen? Any suggestions?...

Sadly, I couldn’t tolerate more Carbo, and the Gemzar/Avastin infusions have not...

Leniko

•1 year ago

7 Replies

6 rounds of chemo before surgery HGSC

Hi everyone, has anyone had 6 rounds of chemo prior to surgery? My mum has high grade serous, not sure which stage, I think she is stage 3 at least, but now...

Hi everyone, has anyone had 6 rounds of chemo prior to surgery? My mum has hig...

Shorty18

•1 year ago

21 Replies

CA 125… waitting CT

the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments ca 125 was down from 350 to 40, some lymph was "suriver"after that but doctor...

the story, my mom has 2nd recurrance may-sept she get carbo+taxol 8 treatments c...

Inguc_is

•1 year ago

2 Replies

Rise in CA125

Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back after being told of a rise in her CA125 levels. It was 16, then 22, and now shot...

Hi ladies, Hope you're all well! My Mum has really had a bit of a knock back af...

georgialocksss

•1 year ago

9 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2023

Stomach migraine

ovarian cancer chemotherapy

CT results shocking

Anyone get 'lower abdominal flutters'

taking Niraparib whilst having covid

Symptoms OC after transvaginal ultrasound

Ascites

PRRT Treatment & Incontinence

just got my operation date

Niraparib side effects

Re - chemo cocktail, Caelyx and Yondelis.

Bowel blockage - any hope?

rubraca

Surgery

Niraparib

KEYNOTE-B96 Clinical trial

effusion pleural

Ca125 Levels - Low?? Normal??

Haematoma after chest drain

Recurrence update

Does anyone still feel fatigued or nauseated after being in remission? I'm 2 years NED and still don't feel back to my normal self.

hernia

cancer returned a 5th time

new diagnosis - probable mucinous ovarian cancer

over thinking again

CT scan Results

Gemzar not working

6 rounds of chemo before surgery HGSC

CA 125… waitting CT

Rise in CA125

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