Posts - My Ovacome | HealthUnlocked

My Ovacome

18,532 members•20,484 posts

All posts for February 2025

Clear Cell Carcinoma

Hey All, I'm a newbie here posting on behalf of my mum, who has just been diagnosed with stage 1A ovarian clear cell carcinoma (OCCC). She had her debulking...

Hey All, I'm a newbie here posting on behalf of my mum, who has just been diagn...

•1 hour ago

Trials for first recurrence

Hi all, Does anyone have experience of any of the following currently running in the UK: DDriver Trial Gloriosa Soprano Piccos Any thoughts or feedback...

Hi all, Does anyone have experience of any of the following currently running i...

•7 hours ago

Be the first to reply

gynaecology cancer study, get paid for a 60 minute “interview”

hi everyone, I have in the past completed an IQVIA survey for an ovarian cancer based study and have now been told of another research study that they are...

hi everyone, I have in the past completed an IQVIA survey for an ovarian canc...

•2 days ago

Be the first to reply

Want to take advantage of all our features? Just log in!

or

ÇA 125 : 115

Hello again , I posted previously about my CA125 level rising ; I have just received my latest blood test results and it is at 115 . I am due to finish...

Hello again , I posted previously about my CA125 level rising ; I have just re...

•4 days ago

Research at the University of Liverpool with partners of those having cancer treatment

Hello All We've been contacted by researchers at the University of Liverpool who are looking for participants to take part in research. This is the...

Hello All We've been contacted by researchers at the University of Liverpool w...

Partner•7 days ago

Be the first to reply

Topotecan

Hi, I am so wondering if someone received Topotecan as a treatment 3x 21 days.I have ovarian cancer plus pleural effusion and lymph nodes metastasis .

Hi, I am so wondering if someone received Topotecan as a treatment 3x 21 days.I ...

•7 days ago

pericardial effusion

Hi Ladies I am currently being treated for first recurrence and are getting Carbo/Doxil and Keytruda. I recently had an echocardiogram and it showed a lot of...

Hi Ladies I am currently being treated for first recurrence and are getting Ca...

•8 days ago

Hair loss

Hi to all you brave and resilient ladies I finished 6 treatments of carboplatin/paclitaxel in the summer of 2024. I had almost total scalp and body hair loss....

Hi to all you brave and resilient ladies I finished 6 treatments of carboplatin...

•8 days ago

Lymphoedema: Is it a risk after pelvic cancer treatment? - British Lymphoedema Society webinar

Dear all, Our friends at the British Lymphoedema Society have contacted us regarding an upcoming webinar that they are hosting as part of Lymphoedema...

Dear all, Our friends at the British Lymphoedema Society have contacted us reg...

Partner•10 days ago

Laparoscopy for large possibly borderline cyst, frozen section

I’ve been diagnosed with a large (now 17cm) mucinous cyst - most likely benign or borderline. Has anyone had a similar or larger cyst (plus ovary) removed via...

I’ve been diagnosed with a large (now 17cm) mucinous cyst - most likely benign o...

•10 days ago

Vagifem Pessaries and borderline ovarian tumours

I cannot find a definitive answer in any research. I have used Vagifem for 5 years for vaginal/bladder atrophy. I’m post menopausal by 16 years. I recently had...

I cannot find a definitive answer in any research. I have used Vagifem for 5 yea...

•11 days ago

CA125 FLUCTUATING

My mother was on 18 weekly cycle treatment for 3c ca ovary. It's her third time recurrence in last 9 years. Her ca125 had come down to 43 on 16th cycle and...

My mother was on 18 weekly cycle treatment for 3c ca ovary. It's her third time ...

•11 days ago

Recurrence 5 months after initial treatment finished

Hi everyone, I am hoping to hear reassuring accounts from others who have experienced a recurrence within a short period after initial chemo and surgery for...

Hi everyone, I am hoping to hear reassuring accounts from others who have exper...

•11 days ago

CA125 question

I have stage 1c clear cell cancer. My CA125 marker has been falling. Was 15.4 before third chemo, however it increased 2.5 points before 4th chemo. Now...

I have stage 1c clear cell cancer. My CA125 marker has been falling. Was 15.4...

•12 days ago

Ascites advice

I am currently waiting to have my abdomen drained but it is taking sometime to get the appointment. In the meantime I am in a lot of discomfort and my legs and...

I am currently waiting to have my abdomen drained but it is taking sometime to g...

•13 days ago

Can you help us to #TalkTeal and raise £75,000 this Ovarian Cancer Awareness Month?

📢 Let’s Talk Teal this March! 📢 This Ovarian Cancer Awareness Month, Ovacome is on a mission to push for earlier detection and better outcomes by raising...

📢 Let’s Talk Teal this March! 📢 This Ovarian Cancer Awareness Month, Ovacome ...

Partner•14 days ago

hello

I am currently coming to the end of preliminary investigations and have been told I have ovarian cancer. 6 days ago I had radiological drainage of 5.7 litres...

I am currently coming to the end of preliminary investigations and have been tol...

•15 days ago

Treatment

I am stage 1a high serous ovarian cancer and I was put in the position to choose between adjuvant chemo or only observation.Feeling confused

I am stage 1a high serous ovarian cancer and I was put in the position to choos...

•15 days ago

CA125 rise

Hi. My mum was diagnosed end 2013. 3cHGS. She had Carbo/Taxol which looked promising until a recurrence. Caelyx. Then Carbo/Taxol again. In June 2017 she...

Hi. My mum was diagnosed end 2013. 3cHGS. She had Carbo/Taxol which looked pro...

•16 days ago

Ovarian

Hi beautiful ladies, I have a general question, after your diagnosis has anyone changed their diet to …for example vegan, keto diet, etc. or just stuck to...

Hi beautiful ladies, I have a general question, after your diagnosis has anyon...

•18 days ago