Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for December 2024

stage 4 now in lungs and breathless.

hi all. , I was first diagnosed in 2020 and have managed to get here with various chemotherapy’s . Unfortunately , Avastin and Olaparib didn’t work for me. As...

hi all. , I was first diagnosed in 2020 and have managed to get here with variou...

Lookingahead

•2 days ago

7 Replies

Christmas wishes 🌲 a good news post of hope X

Firstly, "Merry Christmas" 🥰. My storyso far: I was diagnosed after a blood test in April 22 for minimal symptoms just needing to wee alot! With a CA 125 of...

Firstly, "Merry Christmas" 🥰. My storyso far: I was diagnosed after a blood tes...

Newbery3

•2 days ago

12 Replies

What to believe

Hello dear ladies I’m Lone from Denmark and I’m so thankful for being af part of this community. I have just finished my calyx and carboplatin treatment after...

Hello dear ladies I’m Lone from Denmark and I’m so thankful for being af part o...

nunnilove

•3 days ago

3 Replies

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Best Wishes

Merry Christmas for all of us, rest, hope and power for New Year. See You all next Christmas 🎄🎁

Merry Christmas for all of us, rest, hope and power for New Year. See You all ne...

nordic5

•3 days ago

1 Reply

Ovacome support service festive opening hours

Hello All This is to let you know that Ovacome support services will close at 1pm on Tuesday 24 December 2024 and will reopen at 10am on Thursday 2 January...

Hello All This is to let you know that Ovacome support services will close at 1...

OvacomeSupport

Partner•3 days ago

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Chemotherapy didn’t work and my oncology team gave up on me, anyone advice where I could turn outside Netherlands ?

Dear ladies, last Thursday I was taking 8th weekly carbo/taxol chemo when I got severe reaction to carboplatine (red skin and feeling nauseas, in pain)....

Dear ladies, last Thursday I was taking 8th weekly carbo/taxol chemo when I got...

Beatyourself

•3 days ago

20 Replies

Bowel obstruction.

HGSOC stage 3C. Debulking surgery September 2023 followed by 6 platinum based chemotherapy sessions. Negative for BrCa 1/2 and HRD. Started on maintenance...

HGSOC stage 3C. Debulking surgery September 2023 followed by 6 platinum based c...

MrsCoole

•3 days ago

8 Replies

Any relief for acid reflux

just curious to hear what’s worked for anyone that has had painful acidity and reflux after and during chemo

just curious to hear what’s worked for anyone that has had painful acidity and r...

Lita5

•4 days ago

4 Replies

OC and Polycystic Kidney Disease and potential reoccurrence

Hi all, Wondering if anyone here has a kidney condition/impairment of kidney function as a pre-existing condition to OC. My lovely mum has managed her kidney...

Hi all, Wondering if anyone here has a kidney condition/impairment of kidney fu...

Fourbytwo93

•6 days ago

1 Reply

Carboplatin and liposomal doxorubicin

I had a ct scan three weeks after my CA125 keep increasing last six month as soon as finshed 18th IV of Avastin. Upset and nurvouse not knowing what will be...

I had a ct scan three weeks after my CA125 keep increasing last six month as soo...

Gonewith

•6 days ago

10 Replies

2nd remission

I finished my 2nd line chemo for my first recurrence a couple of weeks ago. 6 x Carbo + Caelyx. Had my end-of-treatment MRI on 13th December (a Friday for...

I finished my 2nd line chemo for my first recurrence a couple of weeks ago. 6 x...

DianaPrince_

•7 days ago

29 Replies

Frenchhouse3

I’m on my second line of chemo after a four. 5 year remission. I originally had Paclitaxol/ Carboplatin followed by two years on Olaparib. I’m extremely...

I’m on my second line of chemo after a four. 5 year remission. I originally had ...

Frenchhouse3

•10 days ago

12 Replies

11 years clear

Hi would also lkike to say I am 11 years clear .. I had Clear cell 1c.. Wishing you all hope and strength xxx

Hi would also lkike to say I am 11 years clear .. I had Clear cell 1c.. Wishing ...

janeroe

•13 days ago

12 Replies

Tomorrow is the Day - Expecting Bad Results

After all the worry, I have started getting appointments scheduled related to my treatment. My most shocking one is that I have been referred to a Colorectal...

After all the worry, I have started getting appointments scheduled related to my...

coop1969

•14 days ago

20 Replies

Length of time to be on niraparib

Has anyone been on niraparib for more than 3 years? I have been on it for 2 years 8 months but have been told I will have to come off it after 3 years as the...

Has anyone been on niraparib for more than 3 years? I have been on it for 2 year...

Tabby13

•15 days ago

9 Replies

Opportunity to be involved with research looking at supporting health and wellbeing

Hello All We have been asked by researchers at Oxford Brookes University to share the following request with you: "We are applying for funding for a...

Hello All We have been asked by researchers at Oxford Brookes University to sha...

OvacomeSupport

Partner•15 days ago

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Liverpool Health and Wellbeing Day - Tuesday 28th January

Dear all, I'm here with a 'save the date' for our first Health and Wellbeing Day of 2025, taking place in Liverpool on Tuesday 28th January. Full agenda to...

Dear all, I'm here with a 'save the date' for our first Health and Wellbeing Da...

OvacomeSupport

Partner•15 days ago

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LGSOC

So i was diagnosed with lgsoc in oct and told its stage 4 . I have been told its quite rare and chemo wont work. Ive had cytroreductive surgery last week and...

So i was diagnosed with lgsoc in oct and told its stage 4 . I have been told its...

Ingybabe71

•16 days ago

14 Replies

pulmonary Function Test?

Hi there, Have not had my post surgery meeting with my gyne onc yet but got a call scheduling me for a Pulmonary Function Test that she requested. Anyone...

Hi there, Have not had my post surgery meeting with my gyne onc yet but got a ...

coop1969

•16 days ago

5 Replies

Tamoxifen experiences

Hello All We have been contacted by someone who is not on the forum so we are posting on her behalf. She has been offered tamoxifen after her last...

Hello All We have been contacted by someone who is not on the forum so we are p...

OvacomeSupport

Partner•16 days ago

2 Replies

Positive News Elahere approved in Europe

All I just wanted to bring some positive news and hope to all Ovarisan Canver Patients whom are residing in the U.K I saw my oncologist last week and she...

All I just wanted to bring some positive news and hope to all Ovarisan Canver P...

win_56

•16 days ago

3 Replies

Weekly Paclitaxel side effects

Hello ladies I've started weekly Paclitaxel and haven't felt well atall on it this last week, tummy pains, nausea, tiredness and generally feeling rubbish. I...

Hello ladies I've started weekly Paclitaxel and haven't felt well atall on it th...

Kazzh

•17 days ago

17 Replies

Is it back?

l finished my maintenance in July 2024. Oncology said they’ll see me every 3 months just to keep an eye on it, they said to let them know if I have any...

l finished my maintenance in July 2024. Oncology said they’ll see me every 3 mon...

Wahe

•18 days ago

6 Replies

overwhelmed drug addiction in the past tired

feel so stuck have no help can’t finish getting my home cleaned up can’t find a job feel trap kids are not listening to me I feel like am getting old my body...

feel so stuck have no help can’t finish getting my home cleaned up can’t find a ...

Blackngray

•19 days ago

2 Replies

Planning a holiday? You can support Ovacome at the same time!

Plan your dream holiday with Not Just Travel to support Ovacome! 💙✈️ We’re so excited to partner with Amy at Not Just Travel. She's a personal travel...

Plan your dream holiday with Not Just Travel to support Ovacome! 💙✈️ We’re so ...

OvacomeSupport

Partner•23 days ago

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Niraparib

Hi everyone, started on Niraparib in September. My Ca125 levels were 15, now they have gone up to 25. Does that mean it isn’t working? My oncologist said it’s...

Hi everyone, started on Niraparib in September. My Ca125 levels were 15, now th...

Angeldust123

•24 days ago

6 Replies

Advice please on Anastrozone v Letrozole

I have to decide on which Aromatase Inhibitor My Oncologis suggested I try hormone blockers mentioning Anastrozone. I’m interested to know which works best...

I have to decide on which Aromatase Inhibitor My Oncologis suggested I try hor...

Towergirl

•25 days ago

5 Replies

reoccurrence.

I was diagnosed in August with a reoccurrence of my breast cancer (2004) and an abdominal tumour in August after have OC in 2017/18. I’m pleased to say the...

I was diagnosed in August with a reoccurrence of my breast cancer (2004) and an ...

Sheena13

•25 days ago

15 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for December 2024

stage 4 now in lungs and breathless.

Christmas wishes 🌲 a good news post of hope X

What to believe

Best Wishes

Ovacome support service festive opening hours

Chemotherapy didn’t work and my oncology team gave up on me, anyone advice where I could turn outside Netherlands ?

Bowel obstruction.

Any relief for acid reflux

OC and Polycystic Kidney Disease and potential reoccurrence

Carboplatin and liposomal doxorubicin

2nd remission

Frenchhouse3

11 years clear

Tomorrow is the Day - Expecting Bad Results

Length of time to be on niraparib

Opportunity to be involved with research looking at supporting health and wellbeing

Liverpool Health and Wellbeing Day - Tuesday 28th January

LGSOC

pulmonary Function Test?

Tamoxifen experiences

Positive News Elahere approved in Europe

Weekly Paclitaxel side effects

Is it back?

overwhelmed drug addiction in the past tired

Planning a holiday? You can support Ovacome at the same time!

Niraparib

Advice please on Anastrozone v Letrozole

reoccurrence.

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