Posts - My Ovacome | HealthUnlocked

My Ovacome

17,716 members • 19,966 posts

All posts for January 2022

How do you get NHS notifications for people with a severely weakened immune system?

Hi I don't get any NHS notifications relating to people with a severely weakened immune system although I am sure that I fall into that category being mid...

Hi I don't get any NHS notifications relating to people with a severely weakened...

Morini

•2 years ago

17 Replies

What are the signs?

i do everywhere that there must be signs if it is reccurance but if there is no changes like with my mom? no pain? she never had ascite and i am very affraid...

i do everywhere that there must be signs if it is reccurance but if there is no ...

Inguc_is

•2 years ago

4 Replies

Eating/Drinking problem

After my third cycle on Carbo/caelyx, my side effects worsened to include pain in stomach, sometimes debilitating. They got even worse after 4th cycle. Now I...

After my third cycle on Carbo/caelyx, my side effects worsened to include pain i...

AuntyOrange

•2 years ago

9 Replies

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Covid jab

Thank you to all the ladies who responded to my post, l really appreciate your input. Pam

Thank you to all the ladies who responded to my post, l really appreciate your i...

Lewisriley47

•2 years ago

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Advice pls, it’s back!

Hi Ladies. I hope you’re all as well as can be. You will see from my previous posts that my mums ca125 has been slowly rising since March 2021. It’s now 118...

Hi Ladies. I hope you’re all as well as can be. You will see from my previous p...

N-A-58

•2 years ago

11 Replies

Experience on Carbo/ Gemzar

Hi everyone, I'm started chemo combination of Csrboplayin and Gemzar tomorrow. Has anyone done thus combo and any advice ? Thanks

Hi everyone, I'm started chemo combination of Csrboplayin and Gemzar tomorrow. H...

win_56

•2 years ago

18 Replies

Question about Niraparib

I was diagnosed with 3C O.C and almost at the end of carbo taxol. My tumour is HRD negative and I am Braca negative. My Oncologist said that I can go on...

I was diagnosed with 3C O.C and almost at the end of carbo taxol. My tumour is H...

Helvelyn

•2 years ago

77 Replies

Tablets not working

Ca125 back up to 900, Tamaxofen stopped not working. Not sure what's going to happen next. Another scan booked see how the brute is growing then see what...

Ca125 back up to 900, Tamaxofen stopped not working. Not sure what's going to ha...

Sueithy

•2 years ago

6 Replies

Antiviral infusion

Hi ladies I had my 4th covid booster on Monday 24th Jan, and had a slight temp next day, then on Wednesday developed a cough, I did a LFT at home and found I...

Hi ladies I had my 4th covid booster on Monday 24th Jan, and had a slight temp n...

Dubai18

•2 years ago

9 Replies

A Very Angry Daughter!!

Firstly I apologise for putting another negative post, as I know how helpful and reassuring positive posts can be but I am so upset and need to tell someone!!...

Firstly I apologise for putting another negative post, as I know how helpful and...

Cobweb2

•2 years ago

17 Replies

High ca125

In nov found a lump in belly, having had peritoneal cancer in 2020 was obviously concerned Ca125 was 121. 3x what it was at diagnosis. Have had scan showing...

In nov found a lump in belly, having had peritoneal cancer in 2020 was obviously...

Tezzaa66

•2 years ago

7 Replies

Taste and chemotherapy

Most of us know the challenges of eating when we are on chemotherapy. I caught a program on the BBC World Service yesterday with three people were discussing...

Most of us know the challenges of eating when we are on chemotherapy. I caught a...

PhillipandBettykid

•2 years ago

3 Replies

Sinus problems

Hi everyone just wondering if/ when my sinus problems will improve. I was given Avastin with 4th and 5th Carbotaxol chemo. Since then I have had a runny nose,...

Hi everyone just wondering if/ when my sinus problems will improve. I was given ...

Purplepansies54

•2 years ago

4 Replies

Can I dye my hair when taking Niraparib

I finished my chemo for ovarian cancer in Nov 2021 and start tomorrow Niraparib for two years. My hair has started to grow back and I was wondering if I can...

I finished my chemo for ovarian cancer in Nov 2021 and start tomorrow Niraparib ...

Jingles6

•2 years ago

20 Replies

The Ovacome Shop

Hello all, This post it to let you know about our Ovacome shop, if you would like to explore our range of lovely items for sale. Our selection of products...

Hello all, This post it to let you know about our Ovacome shop, if you would lik...

TheOvacomeTeam

Partner•2 years ago

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Septic Arthritis

Hi folks. Just wondering if any of you have had experience of Septic Arthritis? My wife has has excruciating pain and swelling in her knee, was unable to walk...

Hi folks. Just wondering if any of you have had experience of Septic Arthritis? ...

Worsuz

•2 years ago

9 Replies

Reoccurrence

Hi Ladies, I received my PET scan results yesterday and it confirmed the beast is back! It is in a lymph node in the pelvis. It’s going to MDT today to discuss...

Hi Ladies, I received my PET scan results yesterday and it confirmed the beast i...

Robbo16

•2 years ago

9 Replies

Ca 125 is up again :(((

I am so stressed about my mom who have ovarian cancer stage 2b sice 2017, in 2020 may first recurrence:( with ca 125 220. Till october 7 cycles chemo...

I am so stressed about my mom who have ovarian cancer stage 2b sice 2017, in 202...

Inguc_is

•2 years ago

6 Replies

Thank you ladies for your advice regarding PIP

Thank you so much for your responses to my question - should I apply for PIP. Your advice and recommendation has been so helpful. I have contacted DWP to start...

Thank you so much for your responses to my question - should I apply for PIP. Yo...

Duskygem

•2 years ago

3 Replies

Living with Ovarian Cancer Podcast

Hello everyone. My latest podcast is now available so please do have a listen! “Living with Ovarian Cancer” is the only podcast where women with ovarian...

Hello everyone. My latest podcast is now available so please do have a listen! ...

Levanah

•2 years ago

11 Replies

Swollen lymph nodes

Hi ladies, Gosh, I haven't been on this site fir quite some time. I have been on niraparib for PPC for 3 yrs with no issues until recently. I moved to another...

Hi ladies, Gosh, I haven't been on this site fir quite some time. I have been on...

Rlenesue

•2 years ago

10 Replies

Results waitting

I am on upper stress level with waiting my moms result … because she has OC 2b recurrence in may 2021 after 4 years remission… there was a lot ot mts and...

I am on upper stress level with waiting my moms result … because she has OC 2b r...

Inguc_is

•2 years ago

4 Replies

A question about PIP.

Hi ladies, At the time of 1st line chemo and debulking surgery I was on sick leave from work and the HR dept ( among others) encouraged me to apply for PIP. I...

Hi ladies, At the time of 1st line chemo and debulking surgery I was on sick lea...

Duskygem

•2 years ago

11 Replies

Abdominal pain

Had abdominal pain all night which was also a stabbing pain on and off. Taken oxycodone but still in pain. I am on Niraparib stage 4b anyone else had pain...

Had abdominal pain all night which was also a stabbing pain on and off. Taken ox...

Iwillbeatit

•2 years ago

21 Replies

Symptoms of Overran cancer

Hi I am sorry to hear your diagnosis but hats off to all of you for your courage. If it is not too sensitive to ask, can you please tell me what are the...

Hi I am sorry to hear your diagnosis but hats off to all of you for your courage...

monikaguptauk

•2 years ago

5 Replies

while since I posted

Quite a while since I posted.Had to have a break from site at time a few beautiful brave younger women lost their fight with this bloody disease and I found it...

Quite a while since I posted.Had to have a break from site at time a few beautif...

dryden1

•2 years ago

8 Replies

Newly diagnosed with ovarian carcinosarcoma

Just got diagnosed with stage 3c Ovarian Carcinosarcoma. I had surgery last week where the doctor feels he got 99% of cancer. I start chemo in 2 weeks. Cancer...

Just got diagnosed with stage 3c Ovarian Carcinosarcoma. I had surgery last week...

Pinky-g

•2 years ago

15 Replies

Advice on second opinion!

My Mum finished 1st line chemo ( carbo only ) last April, scan showing still small tumours but had shrunk well. No surgery because of other health issues. Scan...

My Mum finished 1st line chemo ( carbo only ) last April, scan showing still sma...

Cobweb2

•2 years ago

6 Replies

Advice 1st reccurrence

Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, had radical hysterectomy, etc, and 6 cycles of carbo\\taxol from march to july...

Hi, I was diagnosed on Dec 2019, high grade fallopian tube cancer in stage 1, ha...

Marylight

•2 years ago

8 Replies

Rucaparib and a "normal" life!

Hi all, I've just finished 6 rnds of chemo for my first recurrence and was glad it was all over and scan results looking positive. I was also really positive...

Hi all, I've just finished 6 rnds of chemo for my first recurrence and was glad ...

Kouyate

•2 years ago

23 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2022

How do you get NHS notifications for people with a severely weakened immune system?

What are the signs?

Eating/Drinking problem

Covid jab

Advice pls, it’s back!

Experience on Carbo/ Gemzar

Question about Niraparib

Tablets not working

Antiviral infusion

A Very Angry Daughter!!

High ca125

Taste and chemotherapy

Sinus problems

Can I dye my hair when taking Niraparib

The Ovacome Shop

Septic Arthritis

Reoccurrence

Ca 125 is up again :(((

Thank you ladies for your advice regarding PIP

Living with Ovarian Cancer Podcast

Swollen lymph nodes

Results waitting

A question about PIP.

Abdominal pain

Symptoms of Overran cancer

while since I posted

Newly diagnosed with ovarian carcinosarcoma

Advice on second opinion!

Advice 1st reccurrence

Rucaparib and a "normal" life!

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