Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for September 2015

Lost tests

Hi I havent posted for a while, though I still check in as to whats happening to everyone. I had to do a 24hr urine collection (not sure if this is the CA125...

Hi I havent posted for a while, though I still check in as to whats happening to...

Aemi

•9 years ago

11 Replies

Swollen tummy

Hi everyone I have had abdominal distension for a number of months now getting worse. At times I feel like I can't breathe though my tummy feels soft enough. I...

Hi everyone I have had abdominal distension for a number of months now getting w...

Smith123

•9 years ago

6 Replies

Clear Cell Survivor 3 yrs

Looking for long term clear cell carcinoma ovarian survivors.

gancman1

•9 years ago

20 Replies

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Borderline Tumours. How do I explain it?

Hi I had a borderline tumour on one ovary removed at the start of the year along with the ovary and tube (unilateral salpingo oopherectomy). I then had a...

Hi I had a borderline tumour on one ovary removed at the start of the year alon...

Uniqueone

•9 years ago

12 Replies

Stage 4 OC

I know it doesn't tend to happen very often, however is there anyone who knows if someone has ever had stage 4 OC where treatment has been done and it never...

I know it doesn't tend to happen very often, however is there anyone who knows i...

Be-Positive

•9 years ago

25 Replies

Primary Peritoneal cancer

This is actually my first post because it has finally dawned on me that although I have been replying to people since I joined in May my own worries and...

This is actually my first post because it has finally dawned on me that although...

IrishMollyO

•9 years ago

36 Replies

Mri

Mri scan wasn't as bad as some say, I just closed my eyes listen to the music and dozed off...was in it nearly an hour. All they said to me afterwards was,...

Mri scan wasn't as bad as some say, I just closed my eyes listen to the music an...

Hidden

•9 years ago

1 Reply

Results tomorrow

Hi, I should get my CA125 results tomorrow and I'm struggling to cope with the idea of operations and treatment. My Mum died of breast cancer that spread to...

Hi, I should get my CA125 results tomorrow and I'm struggling to cope with the i...

Clarity2002

•9 years ago

6 Replies

Ca125 level has risen

Went for my 3 month check and my ca125 has risen from 15 to 64, am now having a CT scan to see what's going on, I must admit I was hoping for a bit longer...

Went for my 3 month check and my ca125 has risen from 15 to 64, am now having a ...

Hidden

•9 years ago

11 Replies

Carboplatin and weekly Paclitaxol

Anyone know if a cold cap is likely to work on this regime??? I have been on the three weekly before without the cold cap treatment and I lost all my hair. Not...

Anyone know if a cold cap is likely to work on this regime??? I have been on the...

HopeP

•9 years ago

8 Replies

Seeing consultant 7 months after CT scan re hernia

I'm having a I'm fed up with this all few days and feeling very sorry for myself, I'm not having chemo but have had problems after my tah and am just fed up...

I'm having a I'm fed up with this all few days and feeling very sorry for myself...

Langstonelady

•9 years ago

6 Replies

Limping to the finish line!!!

into my last cycle of chemo now - 2 weeks of plaxitaxel left and I feel rubbish for being so miserable!!! Had my last carboplatin last Tuesday and this is the...

into my last cycle of chemo now - 2 weeks of plaxitaxel left and I feel rubbish ...

Beckyjh

•9 years ago

13 Replies

The waiting game

Hello ladies. Hope you are all having a good day. Cold and misty here in Leeds which is not helping my mood. I've had 3 carbo/taxol now, ca125 was 2662 before...

Hello ladies. Hope you are all having a good day. Cold and misty here in Leeds w...

Leeds2015

•9 years ago

3 Replies

Suspected OC very frightened

Hi 2 weeks ago on holiday masseur discovered abdominal mass. Have been to GP who said suspected OC am being sent for tests am very frightened. Have been unwell...

Hi 2 weeks ago on holiday masseur discovered abdominal mass. Have been to GP who...

Catspelle

•9 years ago

28 Replies

C C

OV diagnosed Jan 2014, too late. Had big op with minor stroke. Then 6 sessions of. Carboplatin with hardly any side effects. Left with a small cyst in groin...

OV diagnosed Jan 2014, too late. Had big op with minor stroke. Then 6 sessions o...

Gillian80

•9 years ago

7 Replies

MRI SCAN

Hi, Hope all you ladies are well today? Ended up going to the docs last week for anti sickness pills, i'm glad I did, they make the day a bit better plus they...

Hi, Hope all you ladies are well today? Ended up going to the docs last week fo...

Hidden

•9 years ago

5 Replies

Treatment plan confirmed Carbo/Caleyx combo

I met with Professor Jayson yesterday and went through results of my scan and thankfully the disease progression is slow. There are a couple of new spots but...

I met with Professor Jayson yesterday and went through results of my scan and th...

Julie40

•9 years ago

39 Replies

Gemcarbo

Ye guys Annie here this is the next chemotherapy, I won't loose my hair big plus , I'm usually o k , I forgot to ask about steroids , usually don't take them...

Ye guys Annie here this is the next chemotherapy, I won't loose my hair big plus...

Celtic6648

•9 years ago

10 Replies

feeling shocked

Hi folks, i've not posted for a while as been having 6th line chemo of carboplatin and caelyx since March and been fairly well on it. It seemed to be working...

Hi folks, i've not posted for a while as been having 6th line chemo of carboplat...

francescahannah

•9 years ago

20 Replies

Flipped out - sorta

We had a Macmillan Coffee morning here at work, I didn't arrange it and was fine with it, fully supported it but the oddest thing happened.... I walked into...

We had a Macmillan Coffee morning here at work, I didn't arrange it and was fine...

Katmal-UK

•9 years ago

11 Replies

First Patient-Led Government Lobby to improve Cancer Services in Wales

I'm currently involved in organising what I have been told is the first-ever patient-led event where patients, rather than their representatives, will be...

I'm currently involved in organising what I have been told is the first-ever pat...

Whippit

•9 years ago

12 Replies

Still here ....

Time for a positive post having been off site for many months ( give or take comments when I felt I had something to say ) . Early April , I had so many...

Time for a positive post having been off site for many months ( give or take com...

angeladale

•9 years ago

4 Replies

Carol

I am 53 and have been told I have acomplex cyst on my left ovary and need surgery imminently to remove ovaries. And Fallopian tube had one Fallopian tube...

I am 53 and have been told I have acomplex cyst on my left ovary and need surger...

Bobbysgirl5

•9 years ago

8 Replies

thanks

thanks so much to all those who responded to my first post. My scan was clear as far as they can see, still waiting for the official report. I now go in for my...

thanks so much to all those who responded to my first post. My scan was clear as...

Deesales

•9 years ago

5 Replies

Insomnia

Hi every one it's been over a year since my chemo for OC was on 20mg MST but have stopped taking it as pain is much better, however I'm faced with a new...

Hi every one it's been over a year since my chemo for OC was on 20mg MST but hav...

Sharzudiva786

•9 years ago

8 Replies

Thank you!

Thanks for the advice and comments in relation to my post about cramping and nausea after surgery - it's so reassuring. This site is a wonderful support!...

Thanks for the advice and comments in relation to my post about cramping and nau...

Hidden

•9 years ago

1 Reply

Low grade Stage 3b serous carcinoma

Hi all I haven't posted in a while, I'm 43 and am on my 1st recurrence after 2.5 years clear and having my third chemo of carboplatin tomorrow. I read a recent...

Hi all I haven't posted in a while, I'm 43 and am on my 1st recurrence after 2.5...

Jo2305

•9 years ago

16 Replies

Ovarian cancer??

Hi, I'm 47, had a subtotal hysterectomy 4 years ago, due to constant bleeding for nearly 5 years previous. Started getting what felt like period pains and some...

Hi, I'm 47, had a subtotal hysterectomy 4 years ago, due to constant bleeding fo...

Hidden

•9 years ago

16 Replies

Complete Hysterectomy and debulking

Hi everybody After 4 rounds of chemo for stage 3/4 OC, I had uterus, ovaries, fallopian tubes and part of omentum removed last Monday - I was told that the...

Hi everybody After 4 rounds of chemo for stage 3/4 OC, I had uterus, ovaries, fa...

Hidden

•9 years ago

14 Replies

Night sweats

Hi, I have had these before when I went through menopause . I am on Avastin and weekly taxol and have been for several months and have had an occasional night...

Hi, I have had these before when I went through menopause . I am on Avastin and ...

Fuffyfrost

•9 years ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2015

Lost tests

Swollen tummy

Clear Cell Survivor 3 yrs

Borderline Tumours. How do I explain it?

Stage 4 OC

Primary Peritoneal cancer

Mri

Results tomorrow

Ca125 level has risen

Carboplatin and weekly Paclitaxol

Seeing consultant 7 months after CT scan re hernia

Limping to the finish line!!!

The waiting game

Suspected OC very frightened

C C

MRI SCAN

Treatment plan confirmed Carbo/Caleyx combo

Gemcarbo

feeling shocked

Flipped out - sorta

First Patient-Led Government Lobby to improve Cancer Services in Wales

Still here ....

Carol

thanks

Insomnia

Thank you!

Low grade Stage 3b serous carcinoma

Ovarian cancer??

Complete Hysterectomy and debulking

Night sweats

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