Posts - My Ovacome | HealthUnlocked

My Ovacome

17,746 members • 19,983 posts

All posts for May 2024

gBRCA WT?

Hi ladies, Just a quick question. This has been added to my diagnosis on my letter but I didn't notice. I was told I didn't have BRCA gene. Is this what that...

Hi ladies, Just a quick question. This has been added to my diagnosis on my let...

candyapplegrey

•6 hours ago

4 Replies

Swimming advice

Hello to all you amazing, strong, determined beautiful ladies 😍 I have always been an avid regular swimmer, the last 5 years I have swam in the sea and lakes...

Hello to all you amazing, strong, determined beautiful ladies 😍 I have always b...

Kazzh

•10 hours ago

1 Reply

Primary Peritoneal Cancer

I was diagnosed with PPC stage III C in April of 2023. After consulting with onocologist and gynecologist/oncologist it was decided to do 3 rounds of...

I was diagnosed with PPC stage III C in April of 2023. After consulting with ono...

Hockeymom52

•1 day ago

8 Replies

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Members day

Hello! I'm going to be attending the members day on Saturday on behalf of my mum and just wondered who else was planning to be there? There's at least a few...

Hello! I'm going to be attending the members day on Saturday on behalf of my mum...

georgiageorgia182

•1 day ago

7 Replies

lapararoscopy

I have a complex cyst probably 7.2-7.4cm and have been told that I will need eventual laparascopy. I am back 23rd of July again for another tvultrasound to...

I have a complex cyst probably 7.2-7.4cm and have been told that I will need eve...

Ova104

•2 days ago

12 Replies

helpful article

Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? Cancers (Basel). 2023 May 30;15(11):2980. doi: 10.3390/cancers15112980. PMID:...

Sznurkowski JJ. To Bev or Not to Bev during Ovarian Cancer Maintenance Therapy? ...

delia2

•3 days ago

9 Replies

Neuropathy worse after covid jab, anyone?

After my recent ninth Covid jab (second time with Moderna), I found I had reactions (have always had none before, lucky me). First I developed the grandly...

After my recent ninth Covid jab (second time with Moderna), I found I had reacti...

Trickysite

•3 days ago

3 Replies

port installation

Hi all, Tomorrow I will have Port implanted because I have my hands inflamed. I am so scared, did someone have a port? If it’s painful? How you feeling with...

Hi all, Tomorrow I will have Port implanted because I have my hands inflamed. ...

Green999

•4 days ago

15 Replies

Elahere

After 4+ years of successful treatment with Carboplatin for metastatic ovarian cancer the carbo has stopped working. This week I will start a brand new drug...

After 4+ years of successful treatment with Carboplatin for metastatic ovarian c...

Why4300

•4 days ago

12 Replies

Caylex not working - Topotecan (Hycamtin) next.

Hi everyone Anyone else been on this? Caylex not working for me What else did you try after Caylex? And - side effects of Topotecan? What should I look...

Hi everyone Anyone else been on this? Caylex not working for me What else did...

Itha

•4 days ago

13 Replies

Worried and looking for reassurance

Is anyone able to share positive stories of having more than two reoccurrences? I’m worried about my friend and would love to hear about others who are still...

Is anyone able to share positive stories of having more than two reoccurrences? ...

Star_22

•5 days ago

8 Replies

Ovacome clinical update day 18 May 2024 London

Hello All You are warmly invited to join us for our annual clinical update day on Saturday 18 May from 9:30am to 4:30pm. This event is for anyone affected by...

Hello All You are warmly invited to join us for our annual clinical update day ...

OvacomeSupport

Partner•5 days ago

2 Replies

Hair, brows and eyelashes!

Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in May of 2023 with ovarian cancer. Not a metastisis but a second primary cancer....

Hi All! I was diagnosed in Nov of 2022 with stage 4b lung cancer and later, in ...

SuziSch

•6 days ago

16 Replies

Hernia from debulking

Greeting all. I had debulking in October. Now on avastin maintenance every 3 weeks. In late February I developed incisional hernia. By march it was huge....

Greeting all. I had debulking in October. Now on avastin maintenance every 3 ...

chocolatemilk44

•6 days ago

12 Replies

What's on at Ovacome next week? (week commencing Monday 13 May 2024)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•6 days ago

Be the first to reply

Primary peritoneal, ovarian

Hi is there many ladies with this diagnosis and how did you go on?thanks in advance

Hi is there many ladies with this diagnosis and how did you go on?thanks in adva...

Molste

•7 days ago

8 Replies

No woman left behind

Sorry I meant to add this to my previous post Https://worldovariancancercoalition.org

Sorry I meant to add this to my previous post Https://worldovariancancercoalitio...

Tulips66

•7 days ago

Be the first to reply

No woman Left Behind

Hi ladies, today 8th May is "World Ovarian cancer day "so I am thinking of you all today . We all show remarkable courage & strength as we deal with this...

Hi ladies, today 8th May is "World Ovarian cancer day "so I am thinking of you a...

Tulips66

•7 days ago

13 Replies

Carbo/Gem

Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/avastin, carbo/caelyx, Niraparib. I have just had treatment 2 of cycle 1 of...

Stage 3 primary peritoneal diagnosed October 2021. Previously: Carbo/taxol/...

NewtonEmma1900

•7 days ago

10 Replies

blue lips side effect olaparib

I’ve just started olaparib maintenance therapy following debunking and chemo that finished in January. I have started to get blue lips. My only other side...

I’ve just started olaparib maintenance therapy following debunking and chemo tha...

Beatbigc

•8 days ago

1 Reply

immunotherapy for OVCA

just wanted to provide an update on using immunotherapy, in my case Opdivo and Yervoy. Some background: 6 years after my initial diagnosis of OVCA, it was...

just wanted to provide an update on using immunotherapy, in my case Opdivo and ...

Leniko

•8 days ago

8 Replies

Duloxetine and/or Pyridoxine

Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll be 9 years this year. I think I know the answer and I’m going to seek advice...

Hello Everyone, I’m on 5th line chemo , so well experienced at this game. It’ll...

Irisisme

•8 days ago

20 Replies

Looking for good news please

Hello lovely ladies, I have a scan on Wednesday, 7 months since last chemo session. I'm feeling good only worry is lymph node under my arm is swollen & I look...

Hello lovely ladies, I have a scan on Wednesday, 7 months since last chemo sessi...

Pixiepurple

•9 days ago

14 Replies

Avastin + Taxol + Carbo & eye problems

Hello ladies I am on the above drug combination for stage 4 clear cell cancer, & have been getting eye floaters whilst on treatment. Atm, I have just 1 huge...

Hello ladies I am on the above drug combination for stage 4 clear cell cancer, &...

Kazzh

•10 days ago

20 Replies

Thank you!

Hi everyone, Just wanted to say a huge thank to everyone who responded to my various messages over the last couple of days about my mums surgery. Not to...

Hi everyone, Just wanted to say a huge thank to everyone who responded to my...

georgiageorgia182

•13 days ago

5 Replies

Bloods and Test Results - Patient Knowledge

Hi ladies Do you get copies of your blood test results and if so how are they given to you and from/ at what stage in your treatment? I am mid front line...

Hi ladies Do you get copies of your blood test results and if so how are they g...

Emcee71

•13 days ago

23 Replies

What's on at Ovacome next week? (week commencing Monday 6 May 2024)

Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone, This is our weekly post to let you know about the differ...

OvacomeSupport

Partner•13 days ago

Be the first to reply

Raising CA 125; at what point should one be concerned?

CA 125 raising gradually from 3.5 to 4 to 6 to 7 to 8.5 and now 11. Is it indicative of a recurrence?

CA 125 raising gradually from 3.5 to 4 to 6 to 7 to 8.5 and now 11. Is it indic...

Rosalita20

•14 days ago

8 Replies

What next? re maintenance for HGS recurrence

Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of...

Would love to know if any ladies who has also been unsuccessful with Olaparib, w...

Towergirl

•14 days ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2024

gBRCA WT?

Swimming advice

Primary Peritoneal Cancer

Members day

lapararoscopy

helpful article

Neuropathy worse after covid jab, anyone?

port installation

Elahere

Caylex not working - Topotecan (Hycamtin) next.

Worried and looking for reassurance

Ovacome clinical update day 18 May 2024 London

Hair, brows and eyelashes!

Hernia from debulking

What's on at Ovacome next week? (week commencing Monday 13 May 2024)

Primary peritoneal, ovarian

No woman left behind

No woman Left Behind

Carbo/Gem

blue lips side effect olaparib

immunotherapy for OVCA

Duloxetine and/or Pyridoxine

Looking for good news please

Avastin + Taxol + Carbo & eye problems

Thank you!

Bloods and Test Results - Patient Knowledge

What's on at Ovacome next week? (week commencing Monday 6 May 2024)

Raising CA 125; at what point should one be concerned?

What next? re maintenance for HGS recurrence

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