Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for February 2020

Post op

My chemo following up my ophas been delayed to give me another week of healing. Had bath today instead od shower and felt good then later for no apparent...

My chemo following up my ophas been delayed to give me another week of healing. ...

Madmolly

•5 years ago

12 Replies

Carboplatin/Caelyx for first reoccurrence - any experiences to share please?

Any advice or tips on Carboplatin/Caelyx for first reoccurrence? Sadly just found out I’ve had reoccurrence after 8 months NED after initial treatment for 3C...

Any advice or tips on Carboplatin/Caelyx for first reoccurrence? Sadly just fou...

DouglasPouch

•5 years ago

31 Replies

CT scan

It turns out, the CT scan I had on Thursday 27th February 2020, was different, in the respect that I had to drink barium meal, whereas before, it was more of a...

It turns out, the CT scan I had on Thursday 27th February 2020, was different, i...

Terrileeloughlin

•5 years ago

8 Replies

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My journey to date.

I was diagnosed with OC in july 2018. My ca125 was 6800. After 3 rounds of carbo/paxl I had debulking surgery & a total colon removal in Nov 2018. I received 3...

I was diagnosed with OC in july 2018. My ca125 was 6800. After 3 rounds of carbo...

Maltida61

•5 years ago

22 Replies

Bi-lateral kidney stents

Hi ladies, I needed to have stents put in prior to my last surgery in London last October in order for the surgeon to disect or peel a growth of my right...

Hi ladies, I needed to have stents put in prior to my last surgery in London l...

thomas62

•5 years ago

21 Replies

In focus: lymphoedema - exercise, skincare and lifestyle

Hello As well as the specific treatment techniques we’ve talked about in previous posts, there are also things you can do day to day to manage the symptoms of...

Hello As well as the specific treatment techniques we’ve talked about in previou...

OvacomeSupport

Partner•5 years ago

Be the first to reply

Interesting PARP summary with info about genetic tests beyond BRCA

Hello ladies This is a helpful summary of the PARP inhibitors available currently and some interesting studies and trials of combination therapies. It also...

Hello ladies This is a helpful summary of the PARP inhibitors available currentl...

Meridian14

•5 years ago

3 Replies

Ovacome Health and Wellbeing Day 21 March

Hello All This is to let you know about the next Ovacome Health and Wellbeing Day, which is taking place on 21 March 2020 11am-5pm at NCVO, 8 All Saints...

Hello All This is to let you know about the next Ovacome Health and Wellbeing D...

OvacomeSupport

Partner•5 years ago

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Ovacome in Coventry 5 March 2020

Hello All Just a reminder that we are in Coventry this Ovarian Cancer Awareness Month on 5 March 2020 at Welcome Centre, 47 Parkside, Coventry, CV1 2HG. It...

Hello All Just a reminder that we are in Coventry this Ovarian Cancer Awareness...

OvacomeSupport

Partner•5 years ago

Be the first to reply

New to Forum

Hi Everyone I'm new to the grouip. i was diagnosed in Sept 18 with grade 3C serous OC. Following my diagnosis I had three months of chemo - taxol/Carbo and...

Hi Everyone I'm new to the grouip. i was diagnosed in Sept 18 with grade 3C sero...

win_56

•5 years ago

10 Replies

Research

I am really grateful for all replies. Thank you so much. I have been scrolling through people’s posts... I wondered if anyone knows of any research happening...

I am really grateful for all replies. Thank you so much. I have been scrolling t...

Lilymay9

•5 years ago

8 Replies

IS OLAPARIB 300 MG. DAILY EFFECTIVE?

ANYONE ON 300MG. OLAPARIB DAILY? WAS WONDERING IF ANYONE HAS BEEN TAKING 150 MG. OLAPARIB TWICE A DAY AND IF IT IS EFFECTIVE AT THE REDUCED DOSE? THANK YOU,...

ANYONE ON 300MG. OLAPARIB DAILY? WAS WONDERING IF ANYONE HAS BEEN TAKING 150 MG....

mupash

•5 years ago

5 Replies

New diagnosis

Hello I’ve just joined this forum today. Had surgery 2 weeks ago with everything removed. Today saw consultant and had diagnosis of stage 2 clear cell cancer....

Hello I’ve just joined this forum today. Had surgery 2 weeks ago with everything...

Lilymay9

•5 years ago

3 Replies

Any thoughts on flying to Tenerife

I’m due to fly to Tenerife on Friday and my hotel is about 300yds away from the Coronavirus affected hotel, what would you do???

I’m due to fly to Tenerife on Friday and my hotel is about 300yds away from the ...

Flower2011

•5 years ago

13 Replies

NICE submission - your comments on olaparib and bevacizumab (Avastin) needed

Hello All You may remember I posted a while back about a submission we're making to NICE about making olaparib and bevacizumab (Avastin) available in...

Hello All You may remember I posted a while back about a submission we're making...

OvacomeSupport

Partner•5 years ago

22 Replies

Great news!

Had clinic today and was expecting my haemoglobin to have gone down again and to be told I needed another blood transfusion. But no its gone up all on its own,...

Had clinic today and was expecting my haemoglobin to have gone down again and to...

Hidden

•5 years ago

23 Replies

Very good CA125 result, over 5 years since last dose of chemotherapy

Hi everyone. Just to report an update that my CA125 is 6 again, same as 6 months ago. Ibuprofen appears to be still working as an anti-cancer agent for me....

Hi everyone. Just to report an update that my CA125 is 6 again, same as 6 months...

drdu

•5 years ago

62 Replies

Feeling absolutely cream crackers Niraparib advice please

HI All, Hope you are as well as you can be. Need some advice please Originally diagnosed 15 years ago reoccurred in 2015. I ave had surgery 2 reoccurences, 3...

HI All, Hope you are as well as you can be. Need some advice please Originally d...

dryden1

•5 years ago

6 Replies

Olaparib-capsules or tablets

I have just started on olaparib- 16 capsules a day which amounts to 800mg. I was just wondering if those who have been prescribed this are on tablets or...

I have just started on olaparib- 16 capsules a day which amounts to 800mg. I was...

Rosiemd

•5 years ago

19 Replies

No happy

The last CT scan I had said I was clear of cancer!! As it turns out through a routine operation I had low grade serous ovarian cancer, which had spread. I have...

The last CT scan I had said I was clear of cancer!! As it turns out through a ro...

Terrileeloughlin

•5 years ago

15 Replies

Avastin, Metformin and a Pleurodesis-

I have found much worthwhile information from the experiences on this site. I thought it may help someone else in the future to share my treatment changes in...

I have found much worthwhile information from the experiences on this site. I th...

Natsmb

•5 years ago

21 Replies

Not happy with CT scan

Can I pay for a PET scan.

Terrileeloughlin

•5 years ago

2 Replies

Cancer recurrence in breast with BRCA1

Hello lovely ladies, It’s my first post here and wanted to ask if anyone experienced the same like my mum, she’s just had it all clear in November 2019 from...

Hello lovely ladies, It’s my first post here and wanted to ask if anyone experi...

Suzi84

•5 years ago

5 Replies

Bowel blockage

After 12 hours of the most severe pain I have ever experienced, I finally went to A&E. Turns out my bowel was blocked. Lucky for me they have not done the...

After 12 hours of the most severe pain I have ever experienced, I finally went t...

Lockygill

•5 years ago

16 Replies

Rising blood test results

Hello, I’m feeling so nervous as my CNS just called to say my numbers have jumped from 36 two months ago to 91 today. I've been getting some pain for the...

Hello, I’m feeling so nervous as my CNS just called to say my numbers have jum...

Tay100

•5 years ago

4 Replies

Olaparib - long term use

My wife Suzanne (BRCA2) has been on olaparib since Oct 2017 following third line chemo. Her CA125 at the start was 24, fell to 12 after a year, then down to 9...

My wife Suzanne (BRCA2) has been on olaparib since Oct 2017 following third line...

WoodyB

•5 years ago

9 Replies

Symptoms of Recurrence

Hi all, hope you're keeping well. I've been ned since 2017, but everyday I wonder if and when OC might return. So I was just wondering if you've had a...

Hi all, hope you're keeping well. I've been ned since 2017, but everyday I wonde...

Kouyate

•5 years ago

43 Replies

Chris Wark

Hi All. I have been watching the Chris Wark Square One protocol, and wonder if anyone else has seen them or follows the recommendations in his book.(Chris...

Hi All. I have been watching the Chris Wark Square One protocol, and wonder if a...

27-359

•5 years ago

25 Replies

In focus: lymphoedema - massage and manual drainage

Hello In last week’s post we started to look at how lymphoedema is managed. We focused on compression garments and bandaging, which apply pressure to the...

Hello In last week’s post we started to look at how lymphoedema is managed. We f...

OvacomeSupport

Partner•5 years ago

3 Replies

Primary peritoneal/ovarian cancer

Hi I’m looking for some help please my mum has primary peritoneal cancer they treat it as ovarian cancer she has just finished 6 rounds of chemo her c125 count...

Hi I’m looking for some help please my mum has primary peritoneal cancer they tr...

Aliollie

•5 years ago

18 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2020

Post op

Carboplatin/Caelyx for first reoccurrence - any experiences to share please?

CT scan

My journey to date.

Bi-lateral kidney stents

In focus: lymphoedema - exercise, skincare and lifestyle

Interesting PARP summary with info about genetic tests beyond BRCA

Ovacome Health and Wellbeing Day 21 March

Ovacome in Coventry 5 March 2020

New to Forum

Research

IS OLAPARIB 300 MG. DAILY EFFECTIVE?

New diagnosis

Any thoughts on flying to Tenerife

NICE submission - your comments on olaparib and bevacizumab (Avastin) needed

Great news!

Very good CA125 result, over 5 years since last dose of chemotherapy

Feeling absolutely cream crackers Niraparib advice please

Olaparib-capsules or tablets

No happy

Avastin, Metformin and a Pleurodesis-

Not happy with CT scan

Cancer recurrence in breast with BRCA1

Bowel blockage

Rising blood test results

Olaparib - long term use

Symptoms of Recurrence

Chris Wark

In focus: lymphoedema - massage and manual drainage

Primary peritoneal/ovarian cancer

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