Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for August 2024

PET scans

Hi ladies I’m wondering if PET scans are the preferred option for post-treatment OC monitoring? Are they funded in the UK? In Aussie? Thank you 😊

Hi ladies I’m wondering if PET scans are the preferred option for post-treatmen...

Sonya49

•4 months ago

8 Replies

CA-125: Never elevated (but diagnosed Stage3A2 in Nov 2022)

I was wondering if there are any other Stage3 ovarian cancer survivors who never had elevated CA125 levels in spite of advanced disease? My tumor markers...

I was wondering if there are any other Stage3 ovarian cancer survivors who never...

ZoeGirl123

•4 months ago

14 Replies

Update on previous post re lung nodules

Good morning So, my gynae team confirmed numerous growing lung lesions and have referred me to UCLH for a second opinion on treatment & possible clear cell...

Good morning So, my gynae team confirmed numerous growing lung lesions and have ...

Kazzh

•4 months ago

23 Replies

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Advice needed please

Hello this is a bit of a long post, so thank you for reading it. On the 13th March 2018 I was diagnosed with Ovarian cancer. I later found out that it was...

Hello this is a bit of a long post, so thank you for reading it. On the 13th ...

Tay100

•4 months ago

18 Replies

Steep Learning Curve

Hi All Four months ago, I was diagnosed with advanced Ovarian Cancer. I have had surgery and am now in the middle of chemotherapy. I did not know anything...

Hi All Four months ago, I was diagnosed with advanced Ovarian Cancer. I have ha...

MountainSeeker

•4 months ago

21 Replies

ovarian stage 4

has anyone gone through a recurrence, with no symptoms but scan showing a few spots around abdomen like liver, bowel (a second line of treatment).. If so was...

has anyone gone through a recurrence, with no symptoms but scan showing a few sp...

Pianoanddisco

•4 months ago

24 Replies

Loculated ascites recurrent HGSOC.

Hi ladies. Just to ask, has anyone been told they have ascites in little pockets? I believe it's called 'loculated ascites'.They are unable to drain it as it...

Hi ladies. Just to ask, has anyone been told they have ascites in little pockets...

Mirrorplace

•4 months ago

5 Replies

CT scan

Dear all, my mum just got the result of her CT scan as her marker rose in the past months to 84. The CT scan showed only several enlardged lymph nodes, but...

Dear all, my mum just got the result of her CT scan as her marker rose in the...

Kkjji

•4 months ago

5 Replies

Small amount of ascites on scan

Hello Ladies My oncologist ordered a CT as my CA125 number has been doubling monthly. I have been on Zejula 100mg since November 2023. I was diagnosed with...

Hello Ladies My oncologist ordered a CT as my CA125 number has been doubling m...

Hockeymom52

•4 months ago

8 Replies

Lung nodules are growing 😩

Hello ladies I am 5 weeks since bowel obstruction surgery and doing well. I ended up in A & E again earlier this week with chest pain on my right side & right...

Hello ladies I am 5 weeks since bowel obstruction surgery and doing well. I ende...

Kazzh

•4 months ago

22 Replies

CT Scan

Just got results from CT scan that oncologist ordered as my CA125 has been rising steadily. I’m so worried because Scan showed a small amount of ascites in...

Just got results from CT scan that oncologist ordered as my CA125 has been risin...

Hockeymom52

•4 months ago

1 Reply

CA125 and HPV

Hi I’m a 49 year old mum to 4 kids 19 and under. I have suffered from stomach pains for years and recently it’s been getting a lot worse especially the...

Hi I’m a 49 year old mum to 4 kids 19 and under. I have suffered from stomach p...

lilysocks

•4 months ago

36 Replies

Words of Encouragement

Dear friends at Ovacome, I recently received the challenging news that my mother has stage 3c/4 HGSC. We have had our first chemo session last week, and for...

Dear friends at Ovacome, I recently received the challenging news that my mothe...

kcha237

•4 months ago

31 Replies

Doxil plus Avastin

Mom (71 yrs) is put on Doxil and Avastin as other treatment failed to response in last one year. Do anybody have any experience to share. I am worried about...

Mom (71 yrs) is put on Doxil and Avastin as other treatment failed to response ...

msuspartan

•4 months ago

6 Replies

Carboplatin and Caelyx chemo combination

Hello everyone. Just wondering if anyone has had the combination of carboplatin and Caelyx for recurrence? I had review following scan this week and was told...

Hello everyone. Just wondering if anyone has had the combination of carboplatin ...

Bluedoor24

•4 months ago

18 Replies

Complex Ovarian Cyst, Positive Pregnancy Test.

My partner and I (both 31) had been trying to conceive for 13 months with no luck. Went to GP a couple of months ago to start investigations into fertility. I...

My partner and I (both 31) had been trying to conceive for 13 months with no luc...

PurpleHedgehogs

•4 months ago

2 Replies

Taxol vs docetaxel

Hello ladies, I tried to have my first chemo session yesterday with no luck - had pretty bad allergic reaction to taxol immediately after starting...

Hello ladies, I tried to have my first chemo session yesterday with no luck - ...

Lara1

•4 months ago

17 Replies

What's your experience been with CTC tests?

Hi everyone I'm Sunitha, was diagnosed with 3b epithelial high grade ovarian cancer in Nov last; been through debulking and six rounds of chemo; on follow up...

Hi everyone I'm Sunitha, was diagnosed with 3b epithelial high grade ovarian ca...

Sk72

•4 months ago

21 Replies

Disturbing dormant OC cells

Hi everyone I have a hernia (or maybe a couple) and I am waiting for a CT scan to get a better idea and then options (leave well alone, go in with mesh, maybe...

Hi everyone I have a hernia (or maybe a couple) and I am waiting for a CT scan ...

Catfeeder

•4 months ago

12 Replies

Good news on recurrence

Hi Ladies I’ve had good news from my July scan report. All new growth from recurrence is NED, good partial remission 😊 I had 6 cycles of Caelyx/Carbo...

Hi Ladies I’ve had good news from my July scan report. All new growth from r...

Towergirl

•4 months ago

13 Replies

What's on at Ovacome next week? (week beginning Monday 19 August 2024)

Hello everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Hello everyone, This is our weekly post to let you know about the different s...

OvacomeSupport

Partner•4 months ago

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Elective bilateral ovary and tube removal

Hi, due to a malfunctioning PALB2 gene and family history of ovarian cancer, I'm having keyhole on Friday. Obviously, my nerves were on high alert, but are...

Hi, due to a malfunctioning PALB2 gene and family history of ovarian cancer, I'm...

Sukiling

•4 months ago

2 Replies

Incontinence

Hi lovely ladies. Just a quick question. Have any of you had trouble with incontinence and is it part of things we have to put up with after having surgery?...

Hi lovely ladies. Just a quick question. Have any of you had trouble with incont...

ZenaJ

•4 months ago

39 Replies

Ten years later….

Never quite sure whether this kind of post is cheering or just annoying, but, hey, it might cheer someone up and the rest can move swiftly on. In March 2014 I...

Never quite sure whether this kind of post is cheering or just annoying, but, he...

Boot1947

•4 months ago

71 Replies

Restore - Scar Therapy

Hi Ladies I've received this today from Restore via an email, I am assuming it's genuine, but please comment, feedback or follow up if you feel like it, in...

Hi Ladies I've received this today from Restore via an email, I am assuming it'...

Catfeeder

•4 months ago

5 Replies

Hello

I’m Sonya from NZ and I was diagnosed with Stage 3B Endometrioid Ovarian Cancer in Jan this year. I’m in my 40s. I’ve had full debulking surgery and have just...

I’m Sonya from NZ and I was diagnosed with Stage 3B Endometrioid Ovarian Cancer ...

Sonya49

•5 months ago

9 Replies

Mucinous Borderline Tumour upstaged

Hi all I hope someone can supply some information for me. I recently had a large cyst removed along with both ovaries. I was told it was a mucinous borderline...

Hi all I hope someone can supply some information for me. I recently had a larg...

Montpell234

•5 months ago

12 Replies

Treatment plan questions

Dear ladies, I have received my final biopsy results. I am stage 3b as they found oc in omentum and small bowel mesentery. Quite shocking since they had...

Dear ladies, I have received my final biopsy results. I am stage 3b as they fou...

Lara1

•5 months ago

56 Replies

Ascites

I was wondering how many chemo sessions it took to clear up people’s ascites? I’ve had 3 rounds so far and it is still there. I don’t need it drained cos it...

I was wondering how many chemo sessions it took to clear up people’s ascites? I...

Florrie2

•5 months ago

5 Replies

LGSOC clinical trials

I’ve got LGSOC and am wondering whether anyone with the same is currently involved in any clinical trials ? And what is being trialled and how you are finding...

I’ve got LGSOC and am wondering whether anyone with the same is currently involv...

Phoebe1962

•5 months ago

3 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2024

PET scans

CA-125: Never elevated (but diagnosed Stage3A2 in Nov 2022)

Update on previous post re lung nodules

Advice needed please

Steep Learning Curve

ovarian stage 4

Loculated ascites recurrent HGSOC.

CT scan

Small amount of ascites on scan

Lung nodules are growing 😩

CT Scan

CA125 and HPV

Words of Encouragement

Doxil plus Avastin

Carboplatin and Caelyx chemo combination

Complex Ovarian Cyst, Positive Pregnancy Test.

Taxol vs docetaxel

What's your experience been with CTC tests?

Disturbing dormant OC cells

Good news on recurrence

What's on at Ovacome next week? (week beginning Monday 19 August 2024)

Elective bilateral ovary and tube removal

Incontinence

Ten years later….

Restore - Scar Therapy

Hello

Mucinous Borderline Tumour upstaged

Treatment plan questions

Ascites

LGSOC clinical trials

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