Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for August 2019

Ovacome day

Who’s going to the Ovacome day in September, looking forward to meeting some of you 😊

Who’s going to the Ovacome day in September, looking forward to meeting some of ...

March2017

•5 years ago

5 Replies

Roll the DICE Trial, anyone

Here I am again. Disappointingly struggling to find a suitable option for taking up arms to defeat this thing. This week I met Susanna Banerjee of the Royal...

Here I am again. Disappointingly struggling to find a suitable option for taking...

Lindaura

•5 years ago

35 Replies

UPDATE

HI ALL... You may remember me posting on and off.. docs done a routine CA125 1st August due to symptoms I presented with... called day later as this was in...

HI ALL... You may remember me posting on and off.. docs done a routine CA125 1...

linzilou78

•5 years ago

14 Replies

Want to take advantage of all our features? Just log in!

Here we go....

Hi ladies. I have finally recovered from my operation and am feeling good. Just got to get through chemo, which starts today. Feeling s bit nervous, but hey!...

Hi ladies. I have finally recovered from my operation and am feeling good. Just ...

Lockygill

•5 years ago

21 Replies

Update again

Hello lovely people, well after six failed attempts to pop a cannula in for the contrast dye for my CT Scan today, they gave up. My veins just kept collapsing....

Hello lovely people, well after six failed attempts to pop a cannula in for the ...

Tay100

•5 years ago

4 Replies

Anyone out there having rise in CA 125 but CAT scans are stable?

I was diagnosed in 2015 with stage 4 PPC. I had surgery in between chemotherapy with good results was in remission for 16 months. My CA 125 started to rise so...

I was diagnosed in 2015 with stage 4 PPC. I had surgery in between chemotherapy ...

Dbslp1985

•5 years ago

1 Reply

NICE Guidance - your feedback needed

Hello All NICE are looking at developing guidance for 'Cytoreduction surgery followed by hyperthermic intraoperative peritoneal chemotherapy for peritoneal...

Hello All NICE are looking at developing guidance for 'Cytoreduction surgery fol...

OvacomeSupport

Partner•5 years ago

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Newly diagnosed

Hi ladies Diagnosed last Tuesday with 2b cancerous mass had debulking surgery 2 weeks ago - 51. Feeling very alone and scared about what the future holds -...

Hi ladies Diagnosed last Tuesday with 2b cancerous mass had debulking surgery ...

Lavender2016

•5 years ago

37 Replies

Weird Pain in my abdomen and ribs

It's been 18 months since my complete hysterectomy. Since then, lying down for an extended period of time ( like for a long nap, or especially a nights sleep)...

It's been 18 months since my complete hysterectomy. Since then, lying down for ...

Natsmb

•5 years ago

2 Replies

30 year survivor!!

Wow 30 years how amazing!...

Hidden

•5 years ago

15 Replies

Days 2 & 3 of first cycle - experiencing increased shooting pains.... anyone experienced the same?

Hello ladies, I am on my 3rd day after my very first infusion. One down five to go. I had de-bulking, removal of main mass which included my appendix,...

Hello ladies, I am on my 3rd day after my very first infusion. One down five t...

Meridian14

•5 years ago

7 Replies

First dose of taxol

Hello all of you. I have found this blog so helpful in past 2 months supporting my Mum with ovarain cancer. She had her debulking surgery 4 weeks ago and...

Hello all of you. I have found this blog so helpful in past 2 months supporting ...

Sazzaroon

•5 years ago

9 Replies

Update

Hello again lovely people, I’ve just had the results of my recent blood test, is gone up again to 59. So over four weeks my CA125 has gone from being stable...

Hello again lovely people, I’ve just had the results of my recent blood test, ...

Tay100

•5 years ago

9 Replies

PEACOCC Trial for recurrent clear cell ovarian cancer

As patient rep. for this trial, this is just to let you know that another centre has opened - The Churchill Hospital in Oxford. This joins UCL, London and...

As patient rep. for this trial, this is just to let you know that another centre...

lesleysage

•5 years ago

6 Replies

Anyone on the octova trial?

I’m dealing with my 3rd recurrence now and am considered platinum resistant and BRCA negative. I’ve been for some initial talks with the lovely Dr Susannah...

I’m dealing with my 3rd recurrence now and am considered platinum resistant and...

MrsRound

•5 years ago

17 Replies

Support Group in South Essex

For anyone who would like to come along to a support group, to get support, advice, chat, free massage and other therapies, no matter where or when you were...

For anyone who would like to come along to a support group, to get support, advi...

wendydee

•5 years ago

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Swimming ?

Does anyone know if you can swim in the sea when having anticoagulant injections, going to Yorkshire for a few days ,yes I know the sea will be freezing ,but...

Does anyone know if you can swim in the sea when having anticoagulant injections...

fendweller

•5 years ago

3 Replies

CA 125 increase to 42.8. Recurrence??

Hello Dear All, My wife's CA 125 has increased first from 10 in Jan-2019 to 18 in May 2019. Now it is 42.8. She was ill in last week due to cough, fever and...

Hello Dear All, My wife's CA 125 has increased first from 10 in Jan-2019 to 18 i...

amolngp

•5 years ago

22 Replies

Neuts are up and I'm off to Turkey

I can hardly believe it but my neutrophils have bounced up to just over 13 from 1.3. It means that our holiday to Turkey is on for Friday. I cannot thank you...

I can hardly believe it but my neutrophils have bounced up to just over 13 from ...

Welshandproud

•5 years ago

92 Replies

About bloods

Hi what is classed as high for blood count on ovories? Been sent for ultrasound and to meet a gynocolagist

Hi what is classed as high for blood count on ovories? Been sent for ultrasound ...

Ciara26

•5 years ago

4 Replies

Madame Ovary at the Edinburgh fringe

Dear All You may have seen the Madame Ovary column in our magazine. Rosa Hesmondhalgh is our columnist and she is also performing her brand new show Madame...

Dear All You may have seen the Madame Ovary column in our magazine. Rosa Hesmond...

OvacomeSupport

Partner•5 years ago

2 Replies

Thanks and update

First of all thank you so much for all the support and helpful answers to my recent post. It really made a difference. I had the meeting last week with the...

First of all thank you so much for all the support and helpful answers to my rec...

CarolynA

•5 years ago

18 Replies

Feeling Alone

Hello all. I was told, gently, on July 23rd, that the ovarian cancer has returned despite carbo and pacliltaxol and debulking surgery with total hysterectomy...

Hello all. I was told, gently, on July 23rd, that the ovarian cancer has returne...

TudorPurr68

•5 years ago

56 Replies

Research request

Dear All We have been contacted by an Australian researcher who would like your help by completing an online questionnaire. The information is as follows:...

Dear All We have been contacted by an Australian researcher who would like your ...

OvacomeSupport

Partner•5 years ago

5 Replies

Neutrophils update

Good afternoon lovely teal ladies. I hope you are managing to make the most of the pleasant weather. I have just returned from my onc appointment and am...

Good afternoon lovely teal ladies. I hope you are managing to make the most of t...

Welshandproud

•5 years ago

46 Replies

Update - End of treatment Scan. Any advise regarding thrombus?

Hi ladies, A few weeks back you all helped and advised me re my mums end of treatment scan etc. Thank you again! We managed to get that booked in today. Saw...

Hi ladies, A few weeks back you all helped and advised me re my mums end of trea...

N-A-58

•5 years ago

5 Replies

Has anyone participated in a Phase 1 trial?

I Am considering participating in a phase 1 trial and am wondering if any of you lovely people on here have experience of these? I do have a couple of other...

I Am considering participating in a phase 1 trial and am wondering if any of yo...

Lucidalil

•5 years ago

18 Replies

Thank you

A big thank you to you all for your kind words of sympathy and condolences. Cancer is evil and brutal and shows no mercy. Hopefully a cure will be found to...

A big thank you to you all for your kind words of sympathy and condolences. Canc...

Klorakas

•5 years ago

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Third Line Chemo.

Hi Ladies After meeting with oncologist today for Scan results it was decided to begin third line chemo, (Carboplatin). Lymph nodes show a small increase yet...

Hi Ladies After meeting with oncologist today for Scan results it was decided to...

Hidden

•5 years ago

11 Replies

First post - my story so far.

Hello everyone :) I've been on the forum for a few months, quietly finding out what I need to know from all you knowledgable people. You have helped me a lot,...

Hello everyone :) I've been on the forum for a few months, quietly finding out w...

JackyYorke

•5 years ago

7 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2019

Ovacome day

Roll the DICE Trial, anyone

UPDATE

Here we go....

Update again

Anyone out there having rise in CA 125 but CAT scans are stable?

NICE Guidance - your feedback needed

Newly diagnosed

Weird Pain in my abdomen and ribs

30 year survivor!!

Days 2 & 3 of first cycle - experiencing increased shooting pains.... anyone experienced the same?

First dose of taxol

Update

PEACOCC Trial for recurrent clear cell ovarian cancer

Anyone on the octova trial?

Support Group in South Essex

Swimming ?

CA 125 increase to 42.8. Recurrence??

Neuts are up and I'm off to Turkey

About bloods

Madame Ovary at the Edinburgh fringe

Thanks and update

Feeling Alone

Research request

Neutrophils update

Update - End of treatment Scan. Any advise regarding thrombus?

Has anyone participated in a Phase 1 trial?

Thank you

Third Line Chemo.

First post - my story so far.

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