Posts - My Ovacome | HealthUnlocked

My Ovacome

17,725 members • 19,971 posts

All posts for May 2022

Hair regrowth

Hello ladies. Could i have your input about hair regrowth following chemo. Ive had five chemos, debulking and then a further 3 chemos, the last one on the 22nd...

Hello ladies. Could i have your input about hair regrowth following chemo. Ive h...

Jayniiee

•2 years ago

27 Replies

Touch of Teal fashion show

Hello All Our Touch of Teal fashion show is back! 🎉 For the first time in three years, on 10 September 2022 our marvellous models – all of whom have had, or...

Hello All Our Touch of Teal fashion show is back! 🎉 For the first time in three...

TheOvacomeTeam

Partner•2 years ago

2 Replies

Immunotherapy with Avastin

Good afternoon beautifull ladies.Hope you are all staying strong and enjoying your life.I need your advise please.Did anyone of you had Keytruda immunotherapy...

Good afternoon beautifull ladies.Hope you are all staying strong and enjoying yo...

GSML

•2 years ago

16 Replies

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HRD negative- Homologous Recombination deficiency

What maintenance drugs are best if I am HRD negative? I am under the impression that the PARP inhibitors are best if you have tested positive for HRD. I had a...

What maintenance drugs are best if I am HRD negative? I am under the impression ...

Narna1

•2 years ago

17 Replies

Rollercoaster 🎢 again!

Had my 1st meeting about starting chemo today so was happy to get a step closer! The oncologist told me that I'm still stage 3a hgs but they had read in 1...

Had my 1st meeting about starting chemo today so was happy to get a step closer!...

Newbery3

•2 years ago

24 Replies

Secondary liver cancer

Hi haven't been on here for a while. Been on a parp inhibitor for 15 months. Just found out I've got secondary liver cancer. Feeling really scared. Has anyone...

Hi haven't been on here for a while. Been on a parp inhibitor for 15 months. Jus...

Cazbird

•2 years ago

3 Replies

New lump at base of my neck

Morning All, I was diagnosed with ovarian cancer 4 years ago and have just finished a long course of Paciltaxol only to discover a lump at the base of my neck...

Morning All, I was diagnosed with ovarian cancer 4 years ago and have just finis...

Pippasandy

•2 years ago

10 Replies

Metastatic ovarian to 2 lymph nodes

Hi Ladies-- I haven't written in a while but it's been hectic. I am on cancer #6 now starting in 2007. My last scan in January showed my ovarian cancer is now...

Hi Ladies-- I haven't written in a while but it's been hectic. I am on cancer #6...

Rlenesue

•2 years ago

7 Replies

1 chemo down

Results of first blood test since recurrance are good need magnesium infusion which I needed right through last time but my CA125 has come down from just under...

Results of first blood test since recurrance are good need magnesium infusion wh...

Tezzaa66

•2 years ago

5 Replies

Options

Hi All, I am stage IV serous ovarian cancer with spread to lymph nodes in my neck and chest, diagnosed in April 2021. I am 75. My onc said neck and chest were...

Hi All, I am stage IV serous ovarian cancer with spread to lymph nodes in my nec...

Guilane

•2 years ago

17 Replies

Niraparib - peeling skin

I have been on Niraparib for three months and have been ok so far apart from this week I have found my skin on my hands peeling. Has anyone else experience...

I have been on Niraparib for three months and have been ok so far apart from thi...

Jingles6

•2 years ago

6 Replies

Mucinous oc stage 1c1

Hi everyone, I’m hoping I may find someone on here in/been in a similar situation as me as I am unsure what to do because the type of cancer I have is rare and...

Hi everyone, I’m hoping I may find someone on here in/been in a similar situatio...

Sclare

•2 years ago

21 Replies

Is it possible to have full debulking op privately but still use nhs for chemotherapy? I'm looking into different options.

Private total hysterectomy

Newbery3

•2 years ago

25 Replies

Treatment types and survival

What is the post treatment survival stats (recurrence free or otherwise) for 1) surgery first and chemo later vs 2) chemo first followed by surgery followed...

What is the post treatment survival stats (recurrence free or otherwise) for 1)...

anjr1

•2 years ago

8 Replies

Understanding people's thoughts

Just recently we have opened up our ladies group which I have missed since COVID . We have a lot of new members it's a group where if you want to offload you...

Just recently we have opened up our ladies group which I have missed since COVID...

Bobbyo1

•2 years ago

9 Replies

Port being inserted tomorrow

Hi everyone, Just wondered if anyone had any advice about this - I have been reading online and it seems i might have a choice of where it is put, chest or...

Hi everyone, Just wondered if anyone had any advice about this - I have been rea...

Lochawe

•2 years ago

18 Replies

Does Anyone Ever Feel This Way?

I find myself as a fairly new survivor trying to find the new normal kind of like "Humpty Dumpty" that fell off the wall I'm rather proud of myself finding...

I find myself as a fairly new survivor trying to find the new normal kind of li...

Saintgermain

•2 years ago

58 Replies

my cancer journey

Hi I m new on hear. I m 37 and was diagnosed with ovarian cancer again just before December 2021. first symptoms I had was fluid build up around my stomach...

Hi I m new on hear. I m 37 and was diagnosed with ovarian cancer again just befo...

dolphin37

•2 years ago

18 Replies

Good news post! 👏

Morning all, good news post I think! Had over the phone appointment with gynaecologist yesterday and after being told the cancer was in my lymph, womb and...

Morning all, good news post I think! Had over the phone appointment with gynaeco...

Newbery3

•2 years ago

30 Replies

Olaparib & private healthcare

Hi. Has anyone managed to get their private healthcare provider to fund Olaparib the PARP inhibitor? (Or any others?) We’ve always had BUPA cover through...

Hi. Has anyone managed to get their private healthcare provider to fund Olapari...

Emsymits

•2 years ago

5 Replies

Happy birthday to my Mom!

I’ve been on this forum for almost 4 years and it truly has been a life saver. Today is my moms bday and after all she has been through I cant help but feel...

I’ve been on this forum for almost 4 years and it truly has been a life saver. T...

Lind58

•2 years ago

12 Replies

When is a recurrence not a recurrence

Just pondering on this. I was diagnosed in 2019, 6 lots of chemo, no surgery. disease stable for 6 months. Progression then 6 more chemos, surgery, NED at the...

Just pondering on this. I was diagnosed in 2019, 6 lots of chemo, no surgery. di...

Rosebine2

•2 years ago

3 Replies

What further treatments?Ovarian Cancer

I finished six months of paclitaxol in Feb. CA125 was 50. Recent bloods show a rise to 250. Oncologist sending me for a scan as I have symptoms. I am allergic...

I finished six months of paclitaxol in Feb. CA125 was 50. Recent bloods show a r...

Clipper15

•2 years ago

9 Replies

Chemotherapy then debaulking

I was diagnosed with OC stage 3C in early 2020. I had my debaulking operation followed by Chemotherapy which was Carboplatin/Paclitaxel and was in remission...

I was diagnosed with OC stage 3C in early 2020. I had my debaulking operation fo...

kadabra12

•2 years ago

4 Replies

A 5 year survivor ……..

I hope this post gives many starting out on this journey hope . I was diagnosed with stage 3b PPC/ovarian cancer in may 2017. I have just had my 5 year check...

I hope this post gives many starting out on this journey hope . I was diagnosed...

Eriksendi

•2 years ago

47 Replies

Elevated CA 125, 3 mths after treatment

My CA125 was 7500+ in Sep, 2021. I had 3 rounds of chemotherapy, followed by a surgery and again 3 rounds of chemotherapy. Last chemo was completed on...

My CA125 was 7500+ in Sep, 2021. I had 3 rounds of chemotherapy, followed by a ...

charag123

•2 years ago

6 Replies

Rib pain & tender tummy/sides

Does anyone have rib pain? my whole tummy seems bit bigger or outy than normal and very sore and tender to touch, not only that when I slouch sit like on a...

Does anyone have rib pain? my whole tummy seems bit bigger or outy than normal a...

Melnie

•2 years ago

23 Replies

PARP inhibitors on NHS

Ok ladies as part of my latest fact finding mission I need clarification about PARP inhibitors. I can’t seem to find out what’s available as standard on the...

Ok ladies as part of my latest fact finding mission I need clarification about P...

Emsymits

•2 years ago

13 Replies

Fistula

Hi ladies, has anyone had a similar experience to me. I started 3rd line chemo carbo/ gemcitabine in mid April. Within 36 hours or so I started to have...

Hi ladies, has anyone had a similar experience to me. I started 3rd line chemo c...

Duskygem

•2 years ago

6 Replies

Survivor Fatigue

Hello Sisters, It's been 7 months since I finished my last Carbo/Taxol currently NED, been 8 weeks since my ventral hernia repair plan on getting back to...

Hello Sisters, It's been 7 months since I finished my last Carbo/Taxol currentl...

Saintgermain

•2 years ago

17 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for May 2022

Hair regrowth

Touch of Teal fashion show

Immunotherapy with Avastin

HRD negative- Homologous Recombination deficiency

Rollercoaster 🎢 again!

Secondary liver cancer

New lump at base of my neck

Metastatic ovarian to 2 lymph nodes

1 chemo down

Options

Niraparib - peeling skin

Mucinous oc stage 1c1

Is it possible to have full debulking op privately but still use nhs for chemotherapy? I'm looking into different options.

Treatment types and survival

Understanding people's thoughts

Port being inserted tomorrow

Does Anyone Ever Feel This Way?

my cancer journey

Good news post! 👏

Olaparib & private healthcare

Happy birthday to my Mom!

When is a recurrence not a recurrence

What further treatments?Ovarian Cancer

Chemotherapy then debaulking

A 5 year survivor ……..

Elevated CA 125, 3 mths after treatment

Rib pain & tender tummy/sides

PARP inhibitors on NHS

Fistula

Survivor Fatigue

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