Posts - My Ovacome | HealthUnlocked

My Ovacome

17,701 members • 19,960 posts

All posts for April 2012

London Marathon

I posted on here a couple of weeks ago about my plans to celebrate the 10 year anniversary of being diagnosed with oc by running the London Marathon. I had the...

I posted on here a couple of weeks ago about my plans to celebrate the 10 year a...

cathw

•12 years ago

23 Replies

Fibroid Size increased & cyst on ovary...

I had a Mirena fitted in July 2011 as I had been experiencing heavy periods and had a grapefruit sized fibroid [I am 55 and still having periods]. This has...

I had a Mirena fitted in July 2011 as I had been experiencing heavy periods and ...

Betsy2

•12 years ago

4 Replies

Strange but true

I'm having my 4th round of chemo since being diagnosed. Each round has consisted of 2 drugs.Platinum + taxol or caelyx. But this round, I am having platinum...

I'm having my 4th round of chemo since being diagnosed. Each round has consiste...

julie93

•12 years ago

8 Replies

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ca125 raised

The CA 125 is a good tool, and once again it has proved that the body can tell you it is not well. My suspicions have been confirmed and my count is up to 226...

The CA 125 is a good tool, and once again it has proved that the body can tell y...

Hidden

•12 years ago

10 Replies

Under what circumstances should one consider a drugs trial?

Following on from Nikki’s question about how to get on a drugs trial, I wonder when is the best time to go on a drugs trial. I realise that each trial has...

Following on from Nikki’s question about how to get on a drugs trial, I wonder w...

VickyEm

•12 years ago

15 Replies

Does anyone else suffer with pain when hair starts falling out?

The first time I lost my hair I suffered with a very painful, tender scalp, I thought this might be because my hair was quite long at the time and maybe the...

The first time I lost my hair I suffered with a very painful, tender scalp, I th...

GeorgeSuffolk

•12 years ago

11 Replies

Anyone had a "frozen section" laparoscopy?

I started treatment for endometriosis end of last year and had a laparoscopy in January to remove a 10cm cystic matter from my left ovary. The histology came...

I started treatment for endometriosis end of last year and had a laparoscopy in ...

Rufio

•12 years ago

4 Replies

No sunshine substitute needed in Northern Ireland!

For once, while people in England are complaining about the rain, we have wall to wall sunshine here in NI, even if it's still pretty cold. So today I...

For once, while people in England are complaining about the rain, we have wall t...

Hidden

•12 years ago

22 Replies

Hi Suzieque,

Just thought - every cloud has a silver lining. Your tale about the intrusive man made me think how lucky we are to have My Ovacome. That poor chap obviously...

Just thought - every cloud has a silver lining. Your tale about the intrusive ma...

Solange

•12 years ago

3 Replies

What do gigantic CA125 numbers mean in stage 3 OC?

I'm a mere bloke, trying desperately to support my long-suffering wife through this traumatic experience. Up to now she has had blood tests, a CT scan and now...

I'm a mere bloke, trying desperately to support my long-suffering wife through t...

hersupport

•12 years ago

8 Replies

need some advice guys..

most of you will remember my story i hope.. having got the all clear from my scan on the 27th march i should be the happiest girl ever and to an extent i am.....

most of you will remember my story i hope.. having got the all clear from my sc...

suzannehadenough

•12 years ago

22 Replies

Letrozole-experiences please

Im going to be put on this because my low grade cancer 'probably' wonbt respond to chemo at the mo so they are going to try this. For those of you that have...

Im going to be put on this because my low grade cancer 'probably' wonbt respond ...

sunny1

•12 years ago

5 Replies

Ovacome younger women's ovarian cancer support group May 2nd Maggies Centre, London

Hi This is just a reminder of this months upcoming Ovacome younger women's ovarian cancer support group. This is the general info on the group.......

Hi This is just a reminder of this months upcoming Ovacome younger women's ov...

sammyH

•12 years ago

5 Replies

Does anyone know...

roughly how many women have a 'complete response' to their first line treatment? My mum has been told that they won't operate but will continue with chemo...

roughly how many women have a 'complete response' to their first line treatment?...

MarionL

•12 years ago

11 Replies

Sunshine substitutes

I don't know about you but I am struggling to keep cheerful. A few of our gang have had disappointing news this week and I am struggling to think of reasons...

I don't know about you but I am struggling to keep cheerful. A few of our gang ...

sarah1963

•12 years ago

56 Replies

New Horizons in Ovarian Cancer

This is the title of a conference that's taking place at the minute in the States and the presentations are online at...

This is the title of a conference that's taking place at the minute in the State...

Hidden

•12 years ago

7 Replies

A great spin off

One of the things I love about this site and I guess it's part of the support is how one persons blog helps another one to express a feeling/thought that they...

One of the things I love about this site and I guess it's part of the support is...

Hidden

•12 years ago

34 Replies

How to get on a trial

I have read of ladies being accepted for a trial, can I ask how you go about it my onc isn't very helpful and I don't like to ask him . I did ask about avastin...

I have read of ladies being accepted for a trial, can I ask how you go about it ...

nikki9

•12 years ago

7 Replies

Brilliant news has knobs on!

Gynae confirmed the GP' view, next review in 3 months, no obvious signs of disease! Of course it will be back, it is not if but when it returns and I hope that...

Gynae confirmed the GP' view, next review in 3 months, no obvious signs of disea...

MargaretJ

•12 years ago

16 Replies

The jam jar is getting fuller!

Like so many of us my news today was not brilliant. My ca 125 was raised from 380 to just over 1000. I was expecting it as over this last 5 years I have come...

Like so many of us my news today was not brilliant. My ca 125 was raised from 38...

Hidden

•12 years ago

15 Replies

Oncologists: Love them or loathe them?

I have been for my check-up this morning to once again confront (what seems to me) an oncologist who does not accept that chemo has long-term effects on the...

I have been for my check-up this morning to once again confront (what seems to m...

SaraL

•12 years ago

4 Replies

Royal Marsden referral

Hi all, following my debulking 6 weeks ago Im now going to the Marsden (Surry branch) on Friday. Im going to the 'drug development unit' which I looked up and...

Hi all, following my debulking 6 weeks ago Im now going to the Marsden (Surry br...

sunny1

•12 years ago

12 Replies

How the f ###????

Hi All, Hope everyone is having a better day than me . Got results of latest C.T to see if radiotherapy has done any good. News is it has done Sweet F A...

Hi All, Hope everyone is having a better day than me . Got results of lat...

suzieque

•12 years ago

13 Replies

Results (not the best)

Hi all, as expected, after the rise in my CA 125, the scan showed issues in what they think is my peritoneum, a couple of nodules near the liver which are at...

Hi all, as expected, after the rise in my CA 125, the scan showed issues in what...

Tess

•12 years ago

6 Replies

Brilliant news

Hi All! Brilliant news! Just have to share! I went to meet my new GP today and he gave me the results of the blood test that I had done last week. My...

Hi All! Brilliant news! Just have to share! I went to meet my new GP today...

MargaretJ

•12 years ago

31 Replies

Does anyone else who has an ileostomy have to take Magnaspartate sachets for low magensium?

Because of the ileostomy which I've had for 18 months I suffer from low magnesium. I take 1-2 magnaspartate sachets per day but because they cause diahorrea I...

Because of the ileostomy which I've had for 18 months I suffer from low magnesiu...

cathysal

•12 years ago

5 Replies

can anyone advise me cause im driving myself mad!!

was diagnosed with oc in 2008 after being assured for a year there was nothing wrong!!underwent full hysterectomy,removal of omentum and appendix.had 6...

was diagnosed with oc in 2008 after being assured for a year there was nothing w...

Hidden

•12 years ago

16 Replies

Summer clothing

Been having a wardrobe clear out. Concerned about the imminent warmer weather. My stomach is very swollen. I know I have gained some weight, but my stomach has...

Been having a wardrobe clear out. Concerned about the imminent warmer weather. M...

Bloomin

•12 years ago

27 Replies

Everyone is telling me not to worry but I just am ...

I'm not sure if I really belong on this blog but you all sound so supportive. I am awaiting results of CA125 test after MRI scan for spine problem showed...

I'm not sure if I really belong on this blog but you all sound so supportive. ...

Carrieph2

•12 years ago

22 Replies

Large Cystic Mass??I have been experiencing heavy bleeding, back ache and the most evil abdominal pains for three months

Large Cystic Mass?? I have been experiencing heavy bleeding, back ache and the most evil abdominal pains for three months (doctors fobbed me off telling me it...

Large Cystic Mass?? I have been experiencing heavy bleeding, back ache and the ...

Crackers

•12 years ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2012

London Marathon

Fibroid Size increased & cyst on ovary...

Strange but true

ca125 raised

Under what circumstances should one consider a drugs trial?

Does anyone else suffer with pain when hair starts falling out?

Anyone had a "frozen section" laparoscopy?

No sunshine substitute needed in Northern Ireland!

Hi Suzieque,

What do gigantic CA125 numbers mean in stage 3 OC?

need some advice guys..

Letrozole-experiences please

Ovacome younger women's ovarian cancer support group May 2nd Maggies Centre, London

Does anyone know...

Sunshine substitutes

New Horizons in Ovarian Cancer

A great spin off

How to get on a trial

Brilliant news has knobs on!

The jam jar is getting fuller!

Oncologists: Love them or loathe them?

Royal Marsden referral

How the f ###????

Results (not the best)

Brilliant news

Does anyone else who has an ileostomy have to take Magnaspartate sachets for low magensium?

can anyone advise me cause im driving myself mad!!

Summer clothing

Everyone is telling me not to worry but I just am ...

Large Cystic Mass??I have been experiencing heavy bleeding, back ache and the most evil abdominal pains for three months

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