Posts - My Ovacome | HealthUnlocked

My Ovacome

17,716 members • 19,966 posts

All posts for August 2022

update on complete cock up by nhs!

Well its been a long drawn out battle from the word go with my whole diagnosis and treatment and as good as the chemotherapy nurses are I have been...

Well its been a long drawn out battle from the word go with my whole diagnosis...

Newbery3

•2 years ago

31 Replies

Hi everyone - meeting my oncologist today

Hello, I’ve read a lot of posts on here since the doctors first mentioned that my cyst might be cancer. In February I had lots of pain which was first seen as...

Hello, I’ve read a lot of posts on here since the doctors first mentioned that m...

OrdinarySoul

•2 years ago

24 Replies

Six months post op

hi guys, I just wanted to post a little happy post, I was diagnosed in February with stage 3c low grade serous, after a successful operation I had all ascitis...

hi guys, I just wanted to post a little happy post, I was diagnosed in February...

Mrs_Thomas

•2 years ago

29 Replies

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Niraparib and skin changes

Id noticed a few small darker patches on my face but just been to the dentist and she has noticed pigmentation on my gums, could this be due to Niraparib too....

Id noticed a few small darker patches on my face but just been to the dentist an...

Rosebine2

•2 years ago

3 Replies

Carboplatin

hi, not posted on here for a while. I ve got a 3rd re occurence and its in my liver. I'm having carboplatin every 3 weeks. I get breathless on exertion. Is...

hi, not posted on here for a while. I ve got a 3rd re occurence and its in my ...

Cazbird

•2 years ago

8 Replies

incontinence

I am currently on third line chemo, weekly taxel. Chemo always affects my bladder to a certain extent,but this time itis driving me mad! I can be fine one...

I am currently on third line chemo, weekly taxel. Chemo always affects my bla...

27-359

•2 years ago

11 Replies

pelvic lymph node tumour

after 10 years after Brachytherapy a petscan has indicated a 1cm sq tumour in a lymph node in the pelvic region.what a bugger. I saw the image on the...

after 10 years after Brachytherapy a petscan has indicated a 1cm sq tumour in...

m1946

•2 years ago

1 Reply

zejula back pain?

My mum has been on zejula now for around 7 weeks. She is working and works out for around 12 hours a week. Her blood pressure and complete blood counts are...

My mum has been on zejula now for around 7 weeks. She is working and works out f...

Worrieddaughter95

•2 years ago

5 Replies

Question about partial response chemo/trial

Hello, Been a while since I've visited. My longtime partner was originally Stage 3c high grade Ovarian in late 2017. Since then, it has been major debulking...

Hello, Been a while since I've visited. My longtime partner was originally Sta...

jontaejones

•2 years ago

8 Replies

So had results of scan afater 3rd chemo and mdt meeting today!!

had results of scan afater 3rd chemo and mdt meeting today, they say I have partial response to treatment so far and a happy with that but decided no...

had results of scan afater 3rd chemo and mdt meeting today, they say I have par...

Newbery3

•2 years ago

11 Replies

scans

I finished chemotherapy on 24th June for first recurrence and had a scan in July, all came back good NED. I have been put on Niraparib. I had an appointment...

I finished chemotherapy on 24th June for first recurrence and had a scan in July...

Teazles

•2 years ago

6 Replies

My beautiful mum passed.

My beautiful mum passed away on the 27th of July peacefully. She battled for 5 and a half years, never complained and got on with life the best she could. She...

My beautiful mum passed away on the 27th of July peacefully. She battled for 5 a...

Aliollie

•2 years ago

51 Replies

Anyone BRCA opted for an elective mastectomy?

I have the dreaded appointment to discuss a potential double mastectomy on Thursday. (I'm BRCA2 and just reached 5 years with no recurrence so far.) I'm...

I have the dreaded appointment to discuss a potential double mastectomy on Thurs...

Emsymits

•2 years ago

7 Replies

Feeling nervous

Hi I'm Kate, I have recently been diagnosed with OC following non urgent hysterectomy for ovarian cyst and endometriosis which was thought to be non...

Hi I'm Kate, I have recently been diagnosed with OC following non urgent hyste...

verityann

•2 years ago

11 Replies

Low Grade Adenocarcinoma Ovarian + Liver + lung + vertebrae Mets

Hi all, my wife has recently been diagnosed with low grade ovarian cancer. it has spread everywhere including up her vertebrae. We are only 39 years old with...

Hi all, my wife has recently been diagnosed with low grade ovarian cancer. it h...

Anhlover

•2 years ago

27 Replies

update after stopping Carboplatin

Quick update due to ct scan after deciding to stop Carboplatin after so many reactions .discussion at MDT meeting today with surgeons . Surgery will be in 2-3...

Quick update due to ct scan after deciding to stop Carboplatin after so many re...

kadabra12

•2 years ago

4 Replies

Update on Mum- recurrence is appendix cancer not OC, olaparib and avastin stopped.

Good morning everyone. Hope you’re keeping as well as can be.. So after Mums CT and recurrence (as some of you may remember) she has had a biopsy and they...

Good morning everyone. Hope you’re keeping as well as can be.. So after Mums C...

LouieB123

•2 years ago

4 Replies

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 22 August 2021 - 22 June 2022

Good afternoon everyone Have you been diagnosed with stage 3 or 4 ovarian, primary peritoneal or fallopian tube cancer and did you have your last dose of...

Good afternoon everyone Have you been diagnosed with stage 3 or 4 ovarian, pr...

OvacomeSupport

Partner•2 years ago

2 Replies

rucaparib side effects

I started rucaparib (600mg twice daily) on Thursday, and have been absolutely wiped out since then. I was warned that fatigue was likely, so that’s not a...

I started rucaparib (600mg twice daily) on Thursday, and have been absolutely wi...

RainbowC

•2 years ago

10 Replies

mesh for hernia

I had a small hernia after 1st chemo. It was repaired with mesh and have had no problems.

I had a small hernia after 1st chemo. It was repaired with mesh and have had no...

Ova3

•2 years ago

1 Reply

side effects of olaparib

I am having awful stomach pains and cramps since I started taking olaparib a few weeks ago and would like to know about other people's experience of this . It...

I am having awful stomach pains and cramps since I started taking olaparib a few...

Hidden

•2 years ago

19 Replies

awaiting to confirm if I have cancer

I had a scan which advised that my right ovary is enlarged and contains a heterogeneous lesion and appears to contain droppler flow within. I have free pelvic...

I had a scan which advised that my right ovary is enlarged and contains a hetero...

Nattahlee

•2 years ago

7 Replies

2nd recurrence 😢

Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st recurrence, chemo followed by Niraparib since April 2019 with no side effects...

Nov 17 3c HGSOC, BRACA2, surgery, chemo, immunotherapy trial, failed trial, 1st ...

Doglover1410

•2 years ago

42 Replies

started rucaparib!

I got my tablets today so have taken them for the first time this evening. No anaphylaxis, so that’s a much better start than my experiences with chemo! Here’s...

I got my tablets today so have taken them for the first time this evening. No an...

RainbowC

•2 years ago

6 Replies

First recurrence

Dear Lovely supportive ladies I has a consultation with the oncologist today and she confirmed that my enlarged lymph node is cancerous and is recommending...

Dear Lovely supportive ladies I has a consultation with the oncologist today an...

Bluetilly

•2 years ago

17 Replies

Sepsis

I’ve now had sepsis which got into my blood and caused uririnary sepsis Blood pressure dropped dangerously low so they’ve been try too get me stable in ITU...

I’ve now had sepsis which got into my blood and caused uririnary sepsis Blood pr...

Lockygill

•2 years ago

18 Replies

Finally received financial assistance from hospital

I just wanted to thank all the ladies who offered kind advice a while back regarding financial assistance for chemotherapy co-pays. Even with Medicare, my...

I just wanted to thank all the ladies who offered kind advice a while back regar...

Sashay2020

•2 years ago

11 Replies

Feeling a lot better about my next round of chemo

Hi all, I saw my oncologist yesterday and she is going to lower the dose for me, and is prescribing some anti sickness tablets. I think they’re called Akynezo...

Hi all, I saw my oncologist yesterday and she is going to lower the dose for me...

Tay100

•2 years ago

5 Replies

An eye opener for me.

Hi lovely ladies, Well after all this time I didn't know that Ovacome had leaflets explaining all sorts of things. I sent off for some and they are very...

Hi lovely ladies, Well after all this time I didn't know that Ovacome had leafl...

ZenaJ

•2 years ago

10 Replies

Still swollen tummy 10 months after radical surgery, anyone?

Hi Ladies, I have not really put on any weight. I had a 10 hour, keyhole, OC operation, removing half my stomach, some omentum, appendix, complete...

Hi Ladies, I have not really put on any weight. I had a 10 hour, keyhole, OC ope...

Trickysite

•2 years ago

19 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2022

update on complete cock up by nhs!

Hi everyone - meeting my oncologist today

Six months post op

Niraparib and skin changes

Carboplatin

incontinence

pelvic lymph node tumour

zejula back pain?

Question about partial response chemo/trial

So had results of scan afater 3rd chemo and mdt meeting today!!

scans

My beautiful mum passed.

Anyone BRCA opted for an elective mastectomy?

Feeling nervous

Low Grade Adenocarcinoma Ovarian + Liver + lung + vertebrae Mets

update after stopping Carboplatin

Update on Mum- recurrence is appendix cancer not OC, olaparib and avastin stopped.

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 22 August 2021 - 22 June 2022

rucaparib side effects

mesh for hernia

side effects of olaparib

awaiting to confirm if I have cancer

2nd recurrence 😢

started rucaparib!

First recurrence

Sepsis

Finally received financial assistance from hospital

Feeling a lot better about my next round of chemo

An eye opener for me.

Still swollen tummy 10 months after radical surgery, anyone?

Search posts

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Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2022

﻿update on complete cock up by nhs!

Hi everyone - meeting my oncologist today

Six months post op

Niraparib and skin changes

﻿Carboplatin

﻿incontinence

﻿pelvic lymph node tumour

zejula back pain?

Question about partial response chemo/trial

﻿So had results of scan afater 3rd chemo and mdt meeting today!!

scans

My beautiful mum passed.

Anyone BRCA opted for an elective mastectomy?

Feeling nervous

Low Grade Adenocarcinoma Ovarian + Liver + lung + vertebrae Mets

﻿update after stopping Carboplatin

Update on Mum- recurrence is appendix cancer not OC, olaparib and avastin stopped.

Did you finish first line chemo for stage 3 or 4 ovarian, fallopian tube or primary peritoneal cancer between 22 August 2021 - 22 June 2022

rucaparib side effects

mesh for hernia

side effects of olaparib

awaiting to confirm if I have cancer

2nd recurrence 😢

started rucaparib!

First recurrence

Sepsis

Finally received financial assistance from hospital

Feeling a lot better about my next round of chemo

An eye opener for me.

Still swollen tummy 10 months after radical surgery, anyone?

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive

update on complete cock up by nhs!

Carboplatin

incontinence

pelvic lymph node tumour

So had results of scan afater 3rd chemo and mdt meeting today!!

update after stopping Carboplatin