Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for August 2020

New here looking for help

Hello all, New to this community. Had a devastating news of being diagnosed with Ovarian Cancer in its advanced stages. Have done the debulking surgery and now...

Hello all, New to this community. Had a devastating news of being diagnosed with...

Shinebright2020

•4 years ago

22 Replies

Alcohol with maintenance therapy drugs.

Hi there any advice please. I am taking Rucaparib and the leaflet says « avoid alcohol ». Does anyone know why? Is it because it stops the drug working or...

Hi there any advice please. I am taking Rucaparib and the leaflet says « avoid a...

JustKBO

•4 years ago

24 Replies

oral mucositis prevention

had first chemo yesterday. did not realise that after cool cap, i would be sent home with soaking wet hair (with shampoo/conditioner in) to travel home in...

had first chemo yesterday. did not realise that after cool cap, i would be sent ...

candyapplegrey

•4 years ago

12 Replies

Want to take advantage of all our features? Just log in!

Feeling very disappointed

Had yet another phone consultation with my fourth consultant on this journey. Once again it was obvious he hadnt read my notes, as have none of the two...

Had yet another phone consultation with my fourth consultant on this journey. On...

rosebine

•4 years ago

7 Replies

Maybe a random question....Chemo & EHS?

Hi everyone It’s been a while since I’ve visited the site. I’m four years post diagnosis/surgery and luckily have been enjoying life to the full since being...

Hi everyone It’s been a while since I’ve visited the site. I’m four years post ...

Carole666

•4 years ago

15 Replies

Unconditional Love of Mandy and Emi

We have 5 Shelties (all Recues) at our house. The last 6 months have been very rough for me. Mandy and Emi (15 yrs old) have sensed my feelings and have been...

We have 5 Shelties (all Recues) at our house. The last 6 months have been very ...

Kissmeonce1939

•4 years ago

10 Replies

Help please with swollen legs and feet

Hi I’m new here and recently been diagnosed with ovarian cancer. I’m having terrible trouble with swollen legs and feet and brick hard muscles. Has anyone else...

Hi I’m new here and recently been diagnosed with ovarian cancer. I’m having terr...

Stepdancer

•4 years ago

19 Replies

Ongoing nausea and vomiting

I could use a little feedback. It's been 7 weeks since I took myself off all chemotherapy and since then I'm still dealing with nausea and vomiting. It's...

I could use a little feedback. It's been 7 weeks since I took myself off all che...

Natsmb

•4 years ago

12 Replies

More worrying nodules

Hi everyone I posted about 6 weeks ago in July following a routine scan that showed up a new (6mm) nodule in my right lung. I have now had a follow up scan...

Hi everyone I posted about 6 weeks ago in July following a routine scan that sho...

Fred22

•4 years ago

10 Replies

Virtual Touch of Teal gala on 3 October 2020

Hello The Touch of Teal team are a group of amazing women who volunteer their time to organise the annual Touch of Teal annual event (since 2010) to raise...

Hello The Touch of Teal team are a group of amazing women who volunteer their ti...

OvacomeSupport

Partner•4 years ago

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PICC line fear [picture of bruise]

hi, sorry to bother everyone again. this is what my nurse sent me re compulsory picc lines: 'This is an internal guidelines [edited by moderators]. All the...

hi, sorry to bother everyone again. this is what my nurse sent me re compulsory ...

candyapplegrey

•4 years ago

21 Replies

Laura UpdatE No 3 - CT Scan & Referrals

First of all, Thank you ladies for your continued support, encouragement and suggestions. Meanwhile, The nice, frank and gentle registrar called me last...

First of all, Thank you ladies for your continued support, encouragement and su...

Lindaura

•4 years ago

43 Replies

Virtual support events from Ovacome this week

Hello This is to let you know about the online events on our programme this week. Gentle Home Exercise Class with Cancer Exercise Specialist Lizzy Davis -...

Hello This is to let you know about the online events on our programme this we...

OvacomeSupport

Partner•4 years ago

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Serous Ca

Anyone has serous ovarian stage 3 cancer? How fast is reoccurrence.

Harp-1

•4 years ago

14 Replies

Here we go again

In June 2019, I was diagnosed with stage 4 OC. And, on Tuesday, 8/25, I will start my third line of treatment. Will be taking weekly taxol and Avastin. I’m...

In June 2019, I was diagnosed with stage 4 OC. And, on Tuesday, 8/25, I will sta...

Tenacious66

•4 years ago

3 Replies

Just finished 5th Round

Well Hello... Just wanted to give an update and just finished my 5th treatment and one more to go..woot woot. Did another CA 125 and went from a 14 to a 5, so...

Well Hello... Just wanted to give an update and just finished my 5th treatment ...

PCCDaisy

•4 years ago

17 Replies

Out of the Loop

Good morning all, I hope you are all as well as you can possible be. It's been 7 years since I had my op and chemo and there are new things talked about that...

Good morning all, I hope you are all as well as you can possible be. It's been 7...

ZenaJ

•4 years ago

16 Replies

First reoccurrence

Hi all, I saw my consultant last Wednesday and she said that she was going to be taking my scan with her to a MDT meeting this Monday. She said that they will...

Hi all, I saw my consultant last Wednesday and she said that she was going to be...

Tay100

•4 years ago

22 Replies

Pimples

Did anyone get little pimples on their body during chemo?

Lockygill

•4 years ago

10 Replies

Avastin discontinuing

Hello everyone. I’m coming to the end of my avastin treatment. Have another 2 to go.. oncologist says he will arrange a ct scan And then leave me without...

Hello everyone. I’m coming to the end of my avastin treatment. Have another 2 ...

carolesuz

•4 years ago

7 Replies

Olaparib question - temperature and feeling rubbish.

Hello ladies. Hope you're all having a good weekend. Looking for a bit of advice. I've been on Olaparib now for five months. For the last two weeks I've felt...

Hello ladies. Hope you're all having a good weekend. Looking for a bit of advic...

sticky3006

•4 years ago

38 Replies

Online support for mum

Hello all! I've been recommended this forum through a friend who works in oncology. I'm looking for ways to support my mum who has stage 4 ovarian cancer. In...

Hello all! I've been recommended this forum through a friend who works in oncolo...

doja-cat-uk

•4 years ago

7 Replies

Recurrence

Hi everyone, Up until about a year ago i used to post regular and read all of your inspiring posts, unfortunately I had a bad year not only with this big C...

Hi everyone, Up until about a year ago i used to post regular and read all of yo...

ellseybellsey

•4 years ago

23 Replies

Request for participants in the SOLO1 trial for video project

Dear All Ovacome is working in partnership with a health media agency to develop some new resources on genetic testing. For a different piece of work (a...

Dear All Ovacome is working in partnership with a health media agency to develo...

OvacomeSupport

Partner•4 years ago

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Reports of abuse

Hello Thank you to the people who made the reports of abuse today. The replies have been removed and the poster has been reported. Best wishes The...

Hello Thank you to the people who made the reports of abuse today. The replies...

TheOvacomeTeam

Partner•4 years ago

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Extraversation, PICC lines, booster injections ...

Hi everyone, Had a video consult with a chemo nurse yesterday. I was supposed to log into a site. Worked out that I would end up paying for my own consultation...

Hi everyone, Had a video consult with a chemo nurse yesterday. I was supposed to...

candyapplegrey

•4 years ago

18 Replies

Hat Trick

Hi lovely ladies. I am 11 weeks in to my weekly Taxol treatment and my hair is now getting very thin. My friend turned up yesterday with this amazing hat. I...

Hi lovely ladies. I am 11 weeks in to my weekly Taxol treatment and my hair is n...

Welshandproud

•4 years ago

73 Replies

Symptoms

Hi all just wondering what was everyone's symptoms? Getting closer now to my date of my scan to see if there is anything wrong with my ovaries and I feel sick...

Hi all just wondering what was everyone's symptoms? Getting closer now to my dat...

Hidden

•4 years ago

9 Replies

More sickness

I just can’t get this sickness under control. It’s getting me down....

Lockygill

•4 years ago

14 Replies

Old memories and fabulous families!

Hi all, Just like everyone, I’ve not had the best year, thanks to cancer and COVID. I may post later about my troubles, but right now I want to share how I...

Hi all, Just like everyone, I’ve not had the best year, thanks to cancer and CO...

Alifit

•4 years ago

43 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2020

New here looking for help

Alcohol with maintenance therapy drugs.

oral mucositis prevention

Feeling very disappointed

Maybe a random question....Chemo & EHS?

Unconditional Love of Mandy and Emi

Help please with swollen legs and feet

Ongoing nausea and vomiting

More worrying nodules

Virtual Touch of Teal gala on 3 October 2020

PICC line fear [picture of bruise]

Laura UpdatE No 3 - CT Scan & Referrals

Virtual support events from Ovacome this week

Serous Ca

Here we go again

Just finished 5th Round

Out of the Loop

First reoccurrence

Pimples

Avastin discontinuing

Olaparib question - temperature and feeling rubbish.

Online support for mum

Recurrence

Request for participants in the SOLO1 trial for video project

Reports of abuse

Extraversation, PICC lines, booster injections ...

Hat Trick

Symptoms

More sickness

Old memories and fabulous families!

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Pinned Posts

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Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

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