Posts - My Ovacome | HealthUnlocked

My Ovacome

17,716 members • 19,968 posts

All posts for January 2021

Niripairb

Hello, I have just read an article about Niripairb suggesting that if you stage 3 or4 and bc a negative , have had reoccurrence that this parb only gives you...

Hello, I have just read an article about Niripairb suggesting that if you stage ...

megb246

•3 years ago

21 Replies

Rucaparib side effects

Hello ladies, I am wondering has anyone had similar experience on Rucaparib and what happened next. After Niraparib caused serious heart problems I had a 6...

Hello ladies, I am wondering has anyone had similar experience on Rucaparib and ...

Litchick

•3 years ago

19 Replies

Ultra radical surgery, (debulking)

Hello. Thank you for all the support I received when I posted that I was going to have this operation. Your advice and support really helped Update I went in...

Hello. Thank you for all the support I received when I posted that I was going t...

Casamimosa

•3 years ago

6 Replies

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Stoma

Hi, I managed to avoid a stoma cant be much help there.

Casamimosa

•3 years ago

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Vaccines

Hi everyone, I was wondering how many of us on Parps have been vaccinated so far, and if any reactions have occurred . Due to have mine soon,I’m on Olaparib,...

Hi everyone, I was wondering how many of us on Parps have been vaccinated so far...

Rankij11

•3 years ago

18 Replies

Disappointing Consultation

Just had consult after 6 cycles carbo/caelyx (this is second line) not much shrinkage. CA number was 40 before 5th chemo and has gone up to 57! I made the...

Just had consult after 6 cycles carbo/caelyx (this is second line) not much shri...

rosebine

•3 years ago

6 Replies

What exactly is ovarian cancer?

As my bio states, my mum’s partner (my step mum) has just today, about 1 hour ago, been diagnosed with ovarian cancer. She has been vomiting for 3 weeks...

As my bio states, my mum’s partner (my step mum) has just today, about 1 hour ag...

getgrumpedon

•3 years ago

9 Replies

In focus: exercise - mind/body exercise for balance and flexibility

Hello This month in our ‘Health in Focus’ posts we’re looking at exercise for people diagnosed with ovarian cancer. Today we’ll look more closely at mind and...

Hello This month in our ‘Health in Focus’ posts we’re looking at exercise for pe...

OvacomeSupport

Partner•3 years ago

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Survey of Attitudes to Research in Gynaecology

Hello Ovacome is working with Dr Diana Frimpong, a PhD student at St Michael’s Hospital in Bristol, who is asking people who have had ovarian cancer treatment...

Hello Ovacome is working with Dr Diana Frimpong, a PhD student at St Michael’s H...

OvacomeSupport

Partner•3 years ago

4 Replies

It’s going in the right direction

Had a telephone appointment with my consultant and she is pleased with the way my Taxol treatment is going. My CA125 has halved again going from 1164 in...

Had a telephone appointment with my consultant and she is pleased with the way m...

Lockygill

•3 years ago

24 Replies

UPDATE - Im New Here OC Debulking from Dec 2020

Please accept my sincere apologies for not updating earlier than this. On xmas eve i had surgery to remove a large 35cm x 20cm mass plus Hysterectomy ect ....

Please accept my sincere apologies for not updating earlier than this. On xmas e...

Tv01

•3 years ago

9 Replies

Mum 72 just been diagnosed

Hi everyone, I’ve found this forum whilst researching ovarian cancer as my mum 72 has just been diagnosed with it. They say from the scans it doesn’t look like...

Hi everyone, I’ve found this forum whilst researching ovarian cancer as my mum 7...

Beverleyt

•3 years ago

10 Replies

Recordings of previous Ovacome online events

Hello, everyone You can watch the recordings of some of our previous webinars at https://www.ovacome.org.uk/webinar-recordings The available recordings are:...

Hello, everyone You can watch the recordings of some of our previous webinars at...

OvacomeSupport

Partner•3 years ago

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Rucaparib

Hello ladies, My CA125 has gone down another 3 points to 11 so I am happy with that. I am going to try 400mg twice a day from the 3 February.. However the...

Hello ladies, My CA125 has gone down another 3 points to 11 so I am happy with t...

Caleda4

•3 years ago

21 Replies

Chemo Neuropathy on fingers

Hi all, I was due to receive my last chemo on Monday 25th Jan, but I have developed some neuropathy on both hands, on my finger tips. It seems very painful...

Hi all, I was due to receive my last chemo on Monday 25th Jan, but I have develo...

Shinebright2020

•3 years ago

15 Replies

faslodex

Is anyone on Capceitibine and getting fulvestrant shots.

Iwouldlike2knowmore

•3 years ago

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Carbo/caelyx

Had all 6 chemo,, ct scan today,have to wait on phone review,then parp inhibitor, fingers crossed

Had all 6 chemo,, ct scan today,have to wait on phone review,then parp inhibitor...

patricia54053

•3 years ago

17 Replies

Filgrastim

I'm a bit concerned, just watching a documentary on Lance Armstrong. He has implied that he got his cancer after he'd taken human growth hormone. I think...

I'm a bit concerned, just watching a documentary on Lance Armstrong. He has impl...

candyapplegrey

•3 years ago

5 Replies

Covid Vaccination: implications for cancer patients - any research?

Is anyone aware of research on the affects of Covid vaccines on clinically vulnerable patients, or more specifically, cancer patients? Maybe it's too early for...

Is anyone aware of research on the affects of Covid vaccines on clinically vulne...

Riverflo

•3 years ago

12 Replies

Niraparib and weakness

Hello to everybody and although this is my first time writing a post I have been following for some months as it is a great source of information and empathy....

Hello to everybody and although this is my first time writing a post I have been...

ladybenger

•3 years ago

14 Replies

Online groups, talks and workshops with Ovacome this week

Hello All This is to let you know about the Ovacome online events taking place this week. Early menopause group - Monday 25 January, 7-8pm...

Hello All This is to let you know about the Ovacome online events taking place ...

OvacomeSupport

Partner•3 years ago

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Robotic surgery for Ovarian

Has anyone had the experience of debulking surgery with robotic surgery for Ovarian cancer? I am having a debulking operation next month for ovarian cancer,...

Has anyone had the experience of debulking surgery with robotic surgery for Ov...

Ivebeenthiswaybefore

•3 years ago

16 Replies

letrozle

My oncologist prescribed Letrozle for me instead of faslodex and it says it causes hair loss . I don't need to lose more hair. Is there something else out...

My oncologist prescribed Letrozle for me instead of faslodex and it says it caus...

Iwouldlike2knowmore

•3 years ago

11 Replies

Va ccine

Just had covid vaccine. Relief huge. Chemo monday. 2nd shot 3 wks. Thank you God

Just had covid vaccine. Relief huge. Chemo monday. 2nd shot 3 wks. Thank you God...

Ruebacelle

•3 years ago

11 Replies

Re: Covid Vaccine: (Oxford AstraZenica Vaccine) and treatment with Avastin?

Hello ladies....I was wondering if anyone has had the Covid vaccine? - (Oxford AstraZenica Vaccine) whilst on Avastin / Bevucizumab? I've been asked if I want...

Hello ladies....I was wondering if anyone has had the Covid vaccine? - (Oxford A...

Doughnut21

•3 years ago

24 Replies

Low Neutrophils

I went to A&E yesterday, as I was extremely breathless, even when resting. My CMS wanted to rule out a blood clot. Although my haemoglobin was a bit low, my...

I went to A&E yesterday, as I was extremely breathless, even when resting. My CM...

27-359

•3 years ago

14 Replies

Ovarian cancer

Hi everyone does anybody know if another Parp inhibitor may work as my mums niraparib has stopped working she does not have the brca gene. Has anybody been to...

Hi everyone does anybody know if another Parp inhibitor may work as my mums nira...

Aliollie

•3 years ago

9 Replies

In focus: exercise - strength

Hello This month in our ‘Health in Focus’ posts we’re looking at exercise for people diagnosed with ovarian cancer. Today we’ll look more closely at...

Hello This month in our ‘Health in Focus’ posts we’re looking at exercise for pe...

OvacomeSupport

Partner•3 years ago

1 Reply

Parps success and Stage

I’m seeing many of you are having great success with Parps. Was wondering, what stage you all are? I have the fortune of responding well to chemo and the...

I’m seeing many of you are having great success with Parps. Was wondering, what...

Nadie2018

•3 years ago

9 Replies

Icon 9 trial versus Olaparib

Hi Iam treatment 4 of 6 chemotherapy Carboplatin and caelyx, second line treatment. When I finish I have been offered the Icon 9 trial which is trialling...

Hi Iam treatment 4 of 6 chemotherapy Carboplatin and caelyx, second line treatme...

Mcsquaggle

•3 years ago

3 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2021

Niripairb

Rucaparib side effects

Ultra radical surgery, (debulking)

Stoma

Vaccines

Disappointing Consultation

What exactly is ovarian cancer?

In focus: exercise - mind/body exercise for balance and flexibility

Survey of Attitudes to Research in Gynaecology

It’s going in the right direction

UPDATE - Im New Here OC Debulking from Dec 2020

Mum 72 just been diagnosed

Recordings of previous Ovacome online events

Rucaparib

Chemo Neuropathy on fingers

faslodex

Carbo/caelyx

Filgrastim

Covid Vaccination: implications for cancer patients - any research?

Niraparib and weakness

Online groups, talks and workshops with Ovacome this week

Robotic surgery for Ovarian

letrozle

Va ccine

Re: Covid Vaccine: (Oxford AstraZenica Vaccine) and treatment with Avastin?

Low Neutrophils

Ovarian cancer

In focus: exercise - strength

Parps success and Stage

Icon 9 trial versus Olaparib

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