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My Ovacome

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First Gynaecology Appointment

Hi everyone. I'm here seeking some advice about what to expect from my first gynaecology appointment. I went to my GP a few months ago after my periods decided...

Hi everyone. I'm here seeking some advice about what to expect from my first gyn...

TrueBlue10

•1 year ago

11 Replies

Further trials immunotherapy North America

Not sure if anyone's seen this ( it's in North America) but further trials on immunotherapy specific to OC From the CRI website First Patients Dosed in Phase...

Not sure if anyone's seen this ( it's in North America) but further trials on im...

Cardiff05

•3 years ago

2 Replies

Compression garment

I'm not sure what type of compression garment to buy, having. Full hysterectomy and removal of the momentum, they are cutting me from Belly button down to my...

I'm not sure what type of compression garment to buy, having. Full hysterectomy ...

Angela200969

•3 years ago

32 Replies

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Ovarian Cancer clinical trial - ACTOv

Hi all, I am a patient representative with UCL and Cancer Research UK, and I am currently involved in the ACTOv trial. They recently received a funding grant...

Hi all, I am a patient representative with UCL and Cancer Research UK, and I am...

Krobbo278

•3 years ago

7 Replies

Olarapabib

Hi Are any ladies being prescribed Olarapabib on its own or is it only prescribed alongside Avastin? Many thanks

Hi Are any ladies being prescribed Olarapabib on its own or is it only prescrib...

Cardiff05

•3 years ago

13 Replies

Phase 1 trials

Hi, I have advanced ovarian cancer and have became platinum resistant. I was given Niraparib but it didn’t work. I am now facing Paclitaxel and dread the...

Hi, I have advanced ovarian cancer and have became platinum resistant. I was giv...

Pippasandy

•3 years ago

23 Replies

Olaparib side effects?

Hi there ladies, I’ve been on Olaparib for around five - six weeks. I find I seem to get diarrhoea around every four days and my appetite has dropped right off...

Hi there ladies, I’ve been on Olaparib for around five - six weeks. I find I see...

Frenchhouse3

•5 years ago

28 Replies

Denise

Hi there, I’ve been on Olaparib for three weeks now and so far have only experienced mild nausea. However, I do have a very watery mouth some days which is...

Hi there, I’ve been on Olaparib for three weeks now and so far have only experie...

Frenchhouse3

•5 years ago

6 Replies

Laura Update on the Dice Trial - Cycle 5

Hello everyone, Sorry to be so late with an update. I was waiting for the end of the 4th cycle to get my CT scan results. Also, since they lowered my dosage, I...

Hello everyone, Sorry to be so late with an update. I was waiting for the end of...

Lindaura

•5 years ago

23 Replies

PlasmaJet surgery

Hi is anybody out there familiar with the PlasmaJet surgery available at the Royal Marsden Hospital (and others)?

Hi is anybody out there familiar with the PlasmaJet surgery available at the Ro...

mienvee

•5 years ago

3 Replies

Laura and the DICE Trial - Week 2

Hello everyone, Hope you all are as well as can be. So: Yesterday was my early morning train ride to London. A good friend came with me and let me lean on her...

Hello everyone, Hope you all are as well as can be. So: Yesterday was my early m...

Lindaura

•5 years ago

71 Replies

Laura and the DICE Trial - I’m In!!!

I just hope this is a good thing. The melodious voice of Melody, my research nurse, caught me in Sainsbury’s to let me know that I qualified and would be in...

I just hope this is a good thing. The melodious voice of Melody, my research nur...

Lindaura

•5 years ago

88 Replies

Rolling the Dice After All

Hi everyone, Here is my update after a really thorough appointment with my Oncologist in Bath, with lots of input from my husband and daughter. We all...

Hi everyone, Here is my update after a really thorough appointment with my Oncol...

Lindaura

•5 years ago

72 Replies

Fighting for better Options

Hello everyone, This is my update from my disappointing realisation that even though I am BRCA 1 positive, Niraparib was not the saviour I had hoped it would...

Hello everyone, This is my update from my disappointing realisation that even th...

Lindaura

•5 years ago

74 Replies

Info request on Non Brca - Parp inhibitors Olaparib, Niraparib etc trials?

Hello, As I seem to be coming up to a recurrence I wondered if any of you any info on non BRCA use of PARP INHIBITORS: Olaparib, Niraparib etc. Which...

Hello, As I seem to be coming up to a recurrence I wondered if any of you any i...

Hidden

•6 years ago

14 Replies

Ovarian cancer going to the brain

Hello ladies, I jointed the group and have been following your ups and downs for about a year now but never posted my own story as I have pathological dislike...

Hello ladies, I jointed the group and have been following your ups and downs for...

Marycha

•6 years ago

5 Replies

Use Savoo.co.uk and donate free pennies to Ovacome!

Hi ladies, By chance whilst on a UK Ovarian Cancer research site (Admin - have I missed an announcement about this?) I came across a site that you use and it...

Hi ladies, By chance whilst on a UK Ovarian Cancer research site (Admin - have ...

Emsymits

•6 years ago

1 Reply

New Clinical trial

News | headlines Clinical trial tests customized treatment for ovarian cancer and peritoneal mesothelioma Email Twitter LinkedIn Google+ Share on Facebook...

News | headlines Clinical trial tests customized treatment for ovarian cancer a...

DanL2017

•6 years ago

1 Reply

question about PALB2 mutation

Hi. I thought I posted this last night, but don't see it anywhere. Yesterday I had my genetic results and am told I have this mutation which gives me a 58%...

Hi. I thought I posted this last night, but don't see it anywhere. Yesterday I h...

delia2

•6 years ago

8 Replies

new to oc..

Hi, My name is Dani and am new to the community and to ovarian cancer. I'm currently in the 'waiting for a definitive diagnosis' stage but was told I should...

Hi, My name is Dani and am new to the community and to ovarian cancer. I'm curr...

LadyAmalthea

•7 years ago

2 Replies

Update on fasting mimicking diet

Hello All. Few months back as posted on here I have started on Longo's fasting mimicking diet. I am on my 4th cycle of Carbo Taxol today. First 2 were...

Hello All. Few months back as posted on here I have started on Longo's fasting m...

MartaCiom

•7 years ago

12 Replies

Careoncologyclinic

HI everyone. I have asked before about the above named clinic but would love to hear from anyone who has been involved in the research and treatment that they...

HI everyone. I have asked before about the above named clinic but would love to...

Annasp

•7 years ago

19 Replies

Genome Project

Yesterday I was at Hammersmith Hospital to see the oncologist. I'd been contacted by Imperial Health (Charing Cross, Hammersmith hospital) and asked if I would...

Yesterday I was at Hammersmith Hospital to see the oncologist. I'd been contacte...

bamboo89

•7 years ago

8 Replies

NuCana PRO-105 trials

Anyone participating in the NuCana Pro-105 clinical trials? My oncologist just signed me up.

Anyone participating in the NuCana Pro-105 clinical trials? My oncologist just s...

SmileySig

•7 years ago

2 Replies

How did you know?

How did you first discover you had OC? Did you have any symptoms?

Boymom5

•7 years ago

36 Replies

Niraparib

Have just returned from the Marsden where for the first time recently, everything seems to be good.(!) Including CA125 Didn't want to tell you too much...

Have just returned from the Marsden where for the first time recently, everythin...

chrissapam

•7 years ago

20 Replies

Cancer Commons

Just want to recommend a great website called Cancer Commons:...

yiunam

•8 years ago

3 Replies

CA 125 tests

Hi I was diagnosed in 2015 with stage 1c grade 3 ovarian cancer.Surgery to remove them,followed by another surgery to remove my omentum.Five months of...

Hi I was diagnosed in 2015 with stage 1c grade 3 ovarian cancer.Surgery to remov...

Chickysha

•8 years ago

6 Replies

CA125 test - how effective is it?

I'm not really new here although I haven't posted before. However I've got a question that is really important to me. It could well have answered a dozen or...

I'm not really new here although I haven't posted before. However I've got a qu...

Riches

•8 years ago

9 Replies

HUMAX-TF-ADC clinical trial

I am looking for anyone else in this trial, know there are not a lot of us. I have metastatic endometrial cancer. Disease is "stable" after 6 sessions but no...

I am looking for anyone else in this trial, know there are not a lot of us. I h...

staciekidwell

•8 years ago

1 Reply

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Posts - My Ovacome | HealthUnlocked

My Ovacome

Research posts

First Gynaecology Appointment

Further trials immunotherapy North America

Compression garment

Ovarian Cancer clinical trial - ACTOv

Olarapabib

Phase 1 trials

Olaparib side effects?

Denise

Laura Update on the Dice Trial - Cycle 5

PlasmaJet surgery

Laura and the DICE Trial - Week 2

Laura and the DICE Trial - I’m In!!!

Rolling the Dice After All

Fighting for better Options

Info request on Non Brca - Parp inhibitors Olaparib, Niraparib etc trials?

Ovarian cancer going to the brain

Use Savoo.co.uk and donate free pennies to Ovacome!

New Clinical trial

question about PALB2 mutation

new to oc..

Update on fasting mimicking diet

Careoncologyclinic

Genome Project

NuCana PRO-105 trials

How did you know?

Niraparib

Cancer Commons

CA 125 tests

CA125 test - how effective is it?

HUMAX-TF-ADC clinical trial

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