Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for December 2023

Another year.

Wishing everyone the very best for 2024, and hoping that it brings us all improved health and happiness. Whatever the New Year has in store for us, we are in...

Wishing everyone the very best for 2024, and hoping that it brings us all improv...

Beaver54

•1 year ago

7 Replies

How do you get past the what ifs?

Hey Everyone, Best wishes for 2024. Apologies this is a negative post I'm only 7 months into this awful journey and I keep thinking of the what ifs. What if...

Hey Everyone, Best wishes for 2024. Apologies this is a negative post I'm only...

Pixiepurple

•1 year ago

32 Replies

reaction to carboplatin

I’m on my second recurrence and currently on carbo/gemcitabine.. ive had a reaction on last three cycles each one being harder than the last.. my question...

I’m on my second recurrence and currently on carbo/gemcitabine.. ive had a rea...

SKpaints1

•1 year ago

21 Replies

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Platinum resistant - paclitaxel planned

Hi everyone,I am on my 3rd recurrence since treatment started in 2021. I'm stage 4 and now platinum resistant. Dr is starting me o n Paclitaxel 1xweek for 3...

Hi everyone,I am on my 3rd recurrence since treatment started in 2021. I'm stage...

COHEN123

•1 year ago

10 Replies

Enlarged para aortic node

Hi lovely ladies I’ve just had a call from my CNS with the results of a CT scan I had earlier in the week. It showed everything was clear apart from an para...

Hi lovely ladies I’ve just had a call from my CNS with the results of a CT scan ...

Hota

•1 year ago

9 Replies

Janet

My mother aged 73, has been suffering with extreme fatigue, weakness in legs together with extreme breathlessness and loss of appetite for a short number of...

My mother aged 73, has been suffering with extreme fatigue, weakness in legs tog...

JanetKaur

•1 year ago

8 Replies

Clear Cell - Endometrial vs Genetic

Hello Me again. Sorry I will probably post quite a bit as I'm still so new to all this. I am told that they believe my CCOC was caused by endemetriosis so I...

Hello Me again. Sorry I will probably post quite a bit as I'm still so new to al...

Emcee71

•1 year ago

24 Replies

Run out of big pants

Hello ladies,long time since I posted, diagnosed 2014 high grade serous, chemo and surgery, more chemo after recurrence, 2ndry surgery London ( ended up with...

Hello ladies,long time since I posted, diagnosed 2014 high grade serous, chemo a...

BigBern23

•1 year ago

13 Replies

PVE and liver resection

Hello, I'm due to have a PVE then liver resection in a few weeks. Has anyone got any practical tips please? Surgeon just says carry on as normal but he's not...

Hello, I'm due to have a PVE then liver resection in a few weeks. Has anyone go...

Kaitlinsmum

•1 year ago

3 Replies

Allergy to heparin

I have had a port for over three years now. I have had no issues at all with it until yesterday. I had bloods done and it was accessed as usual , but when the...

I have had a port for over three years now. I have had no issues at all with it ...

Seedlings

•1 year ago

7 Replies

first gynaecologist appointment today

following raised cancer warning in blood tests and symptoms since February ( I don’t know all the terminology yet) I have my first gyne appointment today. I’m...

following raised cancer warning in blood tests and symptoms since February ( I d...

Stills

•1 year ago

4 Replies

Carbo/caelyx 2nd line

Hi all, I am about to start my 2nd line of chemo, carbo/caelyx, having done carbo/taxol/avastin first time round. I was hoping to just get to immunotherapy...

Hi all, I am about to start my 2nd line of chemo, carbo/caelyx, having done car...

Lochawe

•1 year ago

10 Replies

I feel helpless

Hi everyone, I read the posts on here every day, and feel helpless that I can’t offer words of advice to those of you reaching out. I am staggering my way...

Hi everyone, I read the posts on here every day, and feel helpless that I can’t...

Beaver54

•1 year ago

10 Replies

niraparib

I just wondered on this group how people get on with Niraparib

Curry55

•1 year ago

6 Replies

Ovarian cancer recurrence

Firstly, hi to anyone who may stumble across my post. Long story short, I was diagnosed with stage 4 ovarian cancer back in 2020. I had an ultra radical...

Firstly, hi to anyone who may stumble across my post. Long story short, I was di...

Guitarplayinghobbit

•1 year ago

21 Replies

ca 125 went down

my mom due to covid and DVT didnt have chemo.. 2 month… yday she did blood test, 1 month ago her ca 125 was 902, and yday it was 360, how it is possible?...

my mom due to covid and DVT didnt have chemo.. 2 month… yday she did blood test,...

Inguc_is

•1 year ago

4 Replies

Any ladies had cytoreductive surgery for recurrence?

lovely ladies, Can anyone help me with decision between radical 10 hour surgery to remove Spleen and near by tumour also Liver scrap or just put my faith in...

lovely ladies, Can anyone help me with decision between radical 10 hour surgery...

Towergirl

•1 year ago

9 Replies

Good news

Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her story is in my bio.) After a debulking surgery, pleural infusion drainage, and...

Hello ladies, My mother was diagnosed with OC stage 4a in December 2019 ( her st...

Uniquem

•1 year ago

4 Replies

Feeling a bit nervous. What next?

Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo. Took Niraparib for a year but it stopped working and I had spread to my...

Dear ladies, advice sought Am stage 4a and have had debulking surgery and chemo...

Skyeplus

•1 year ago

6 Replies

Elevated CA125 from 11 8 months ago to 93.

Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ago and was in remission until two years ago. It came back a swollen lymph node...

Has anyone experience their CA, 125 elevated to 93? I was diagnosed five years ...

marmay88o

•1 year ago

10 Replies

What's on at Ovacome next week (week commencing 18 December)? & Ovacome support service festive opening hours ❄️

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week, as...

Good morning everyone This is our weekly post to let you know about the differe...

OvacomeSupport

Partner•1 year ago

Be the first to reply

Surrey and Sussex Cancer Alliance - patient forum

Hello All Surrey and Sussex Cancer Alliance are looking for any patients who would be interested in joining their forum. They said: England has 21 cancer...

Hello All Surrey and Sussex Cancer Alliance are looking for any patients who ...

OvacomeSupport

Partner•1 year ago

Be the first to reply

2nd opinion gemzar /cisplatin

is there anyone who were on gemzar/cisplatin? 1st day cisplatin/ 8day gemzar than 2 weeks off. How did it work? How do you feel?

is there anyone who were on gemzar/cisplatin? 1st day cisplatin/ 8day gemzar tha...

Inguc_is

•1 year ago

5 Replies

Advice for operation

Hi All,I'm scheduled for my debulking surgery next week, I've been told to expect to be in hospital for 7-10 and will almost certainly have a stoma. Does...

Hi All,I'm scheduled for my debulking surgery next week, I've been told to expec...

LovemyJackRussell

•1 year ago

29 Replies

Avastin

Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for it and I don't understand why I have to pay I was diagnosed with peritoneal...

Hi Has anyone been prescribed Avastin on the NHS? I'm paying 30000 a year for ...

Rosehannah7

•1 year ago

15 Replies

Germ cell ovarian cancer - Question on behalf of Ovacome member

Good morning everyone An Ovacome member has approached the Ovacome support team as they are hoping to speak with someone in a similar circumstance to them....

Good morning everyone An Ovacome member has approached the Ovacome support team...

OvacomeSupport

Partner•1 year ago

2 Replies

Brain metastasis on Ovarian Cancer

Hello everyone, I'm writing this post on behalf of my mother. My mother, aged 48, was diagnosed with OC back in Feb '21. Since then, she has undergone...

Hello everyone, I'm writing this post on behalf of my mother. My mother, aged...

selosh16

•1 year ago

6 Replies

a amazing news!!

Well today I was back in the Oncology Department after my last treatment 6 years ago. I had been having some concerning symptoms so contacted the Oncology...

Well today I was back in the Oncology Department after my last treatment 6 years...

Eriksendi

•1 year ago

26 Replies

what does a reoccurrence feel like

hey guys. Been Ned since may and have started getting abit of stomach pain randomly again not all the time just every now and then. Something doesn’t feel...

hey guys. Been Ned since may and have started getting abit of stomach pain ra...

Mrs_Thomas

•1 year ago

5 Replies

Post treatment controls

Hello, I would be keen to hear whether you've had follow up CA125 blood tests and CT scans to monitor whether your ovarian cancer is kept under control...

Hello, I would be keen to hear whether you've had follow up CA125 blood tests a...

Alentejo

•1 year ago

15 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for December 2023

Another year.

How do you get past the what ifs?

reaction to carboplatin

Platinum resistant - paclitaxel planned

Enlarged para aortic node

Janet

Clear Cell - Endometrial vs Genetic

Run out of big pants

PVE and liver resection

Allergy to heparin

first gynaecologist appointment today

Carbo/caelyx 2nd line

I feel helpless

niraparib

Ovarian cancer recurrence

ca 125 went down

Any ladies had cytoreductive surgery for recurrence?

Good news

Feeling a bit nervous. What next?

Elevated CA125 from 11 8 months ago to 93.

What's on at Ovacome next week (week commencing 18 December)? & Ovacome support service festive opening hours ❄️

Surrey and Sussex Cancer Alliance - patient forum

2nd opinion gemzar /cisplatin

Advice for operation

Avastin

Germ cell ovarian cancer - Question on behalf of Ovacome member

Brain metastasis on Ovarian Cancer

a amazing news!!

what does a reoccurrence feel like

Post treatment controls

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