Posts - My Ovacome | HealthUnlocked

My Ovacome

18,388 members•20,445 posts

All posts for March 2024

Feeling like Chemo is too Hard

Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurrence ( carbo and caelyx/doxil), 3 years of Olaparib, one year on nothing and now...

Hi. I was diagnosed 3B HG in August 2018, had surgery, frontline, first recurren...

delia2

•10 months ago

31 Replies

Sanazon therapy experiences/ Erfahrungen mit Sanazon

Hello ladies, This post is addressed more towards those living in Germany or nearby. Has anyone tried Sanazon therapy as part of their OC treatment? I have...

Hello ladies, This post is addressed more towards those living in Germany or ne...

Hailun

•10 months ago

5 Replies

Pain Relief that isn’t opiate based. Help!

My stage 4 HGOC with mets on bowel (miliary disease) among other places and has now become painful. I was given morphine but it put me into bowel obstruction...

My stage 4 HGOC with mets on bowel (miliary disease) among other places and has...

Littlefluffycloud

•10 months ago

4 Replies

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Hubby

Is mucinous cancer different to mucinous adenocarcinoma?

Molste

•10 months ago

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Hubby

Hi has anyone got mucinous ovarian cancer and what was the treatment, really worried for my wife it's stage 3

Hi has anyone got mucinous ovarian cancer and what was the treatment, really wor...

Molste

•10 months ago

16 Replies

Thyroid Hormones & OC

Hi everyone, has anyone been taking levothyroxine for hypothyroidism as an OC patient? Does supplemental thyroid hormone to address hypothyroidism have an...

Hi everyone, has anyone been taking levothyroxine for hypothyroidism as an OC pa...

Doggies221

•10 months ago

20 Replies

Niraparib "long term", anecdotal side-effects?

Hi folks, asking this as a relative: So Niraparib has relatively newly been given to non Brca, non Hrd OCs as maintenance. Its quite hard to find data about...

Hi folks, asking this as a relative: So Niraparib has relatively newly been give...

pretzel8

•10 months ago

7 Replies

Easter 2024 opening hours and what's on next week at Ovacome (week commencing 1 April 2024).

Good afternoon everyone This post is to let you know that Ovacome support services will close at 5pm today, Thursday 28 March, and will reopen at 10am on...

Good afternoon everyone This post is to let you know that Ovacome support servi...

OvacomeSupport

Partner•10 months ago

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Niraparib

Hi everyone. I've been on Niraparib since May 2022 but over the last 12 months have developed meniere's. I realise the parp inhibitor might not be related...

Hi everyone. I've been on Niraparib since May 2022 but over the last 12 months...

Jaynii

•10 months ago

2 Replies

Travel insurance webinar - Tuesday 9 April

Dear all, With summer around the corner, we know from conversations with our members that some of you are starting to plan your holidays. We often receive...

Dear all, With summer around the corner, we know from conversations with our me...

OvacomeSupport

Partner•10 months ago

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Niraparib and permanent make up ?

Dear ladies, Any of you have experience whether it is safe to do permanent make up while being on Niraparib ? My blood results are ok. I understood it could...

Dear ladies, Any of you have experience whether it is safe to do permanent make...

Beatyourself

•10 months ago

4 Replies

could olaparib raise LDL cholesterol?

I took my master medical couple weeks back and the only blemish (apart from known blood work readings) is my cholesterol is high. My good cholesterol is in...

I took my master medical couple weeks back and the only blemish (apart from know...

Goodgirl98

•10 months ago

8 Replies

hair loss

Hi I had the same as you chemo the same I lost all my long blonde hair I used to wear hats and bought a fringe to put with my hats When I went out I used...

Hi I had the same as you chemo the same I lost all my long blonde hair I used t...

Curry55

•10 months ago

3 Replies

How active were/are you with Olaparib (Lynparza)?

Hi all, I had my 6th and last dose of chemo (nab-paclitaxel+ carboplatin) 4 weeks ago. I started Olaparib today. I am supposed to start work at 40% 1st of...

Hi all, I had my 6th and last dose of chemo (nab-paclitaxel+ carboplatin) 4 w...

IsaStarr

•10 months ago

9 Replies

How long for hair (lashes/brows) to grow after nab Paclitaxel (Abraxane)?

Hi all, apologies if this question has been asked in the past. It's now 4 weeks from my 6th and last chemo (carboplatin and nab paclitaxel). I used the...

Hi all, apologies if this question has been asked in the past. It's now 4 w...

IsaStarr

•10 months ago

15 Replies

Inflamation of the mucous lining of the mouth - side effect Caelyx

Dears, Hope you are well. Since this weekend I have Inflamation of the mucous lining of the mouth .it start a few aftas and now is every where specially in my...

Dears, Hope you are well. Since this weekend I have Inflamation of the mucous li...

Pumpkininja

•10 months ago

8 Replies

borderline tumor

Hi, my consultant can see a 2.2cm cyst on my ovary that he said might be a borderline tumor. Needless to say I am worried, what are the chances of the tumor...

Hi, my consultant can see a 2.2cm cyst on my ovary that he said might be a borde...

Scared-88

•10 months ago

32 Replies

Sorry for delayed response

Just a quick note to say thank you for your advice and kindness. I cannot access Ovacome on the computer I normally use but am now on another and will reply...

Just a quick note to say thank you for your advice and kindness. I cannot access...

candyapplegrey

•10 months ago

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Acronyms

Can someone please explain what NED stands for and does debaulking mean a hysterectomy? Thanks.

Can someone please explain what NED stands for and does debaulking mean a hyster...

Swimbuddy

•10 months ago

9 Replies

Post surgery recovery

Hello all I am 2 weeks post interval debulking surgery and physically & emotionally up & down. Physically I feel extremely bloated much of the time, like I...

Hello all I am 2 weeks post interval debulking surgery and physically & emotiona...

Kazzh

•10 months ago

19 Replies

Liverpool Health and Wellbeing Day - 27th April

Good morning everyone, We would like to warmly invite you to Ovacome’s upcoming Health and Wellbeing Day in Liverpool, taking place on Saturday 27th April...

Good morning everyone, We would like to warmly invite you to Ovacome’s upcoming...

OvacomeSupport

Partner•10 months ago

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What's on at Ovacome next week? (week commencing 25 March 2024)

Good morning everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone This is our weekly post to let you know about the differe...

OvacomeSupport

Partner•10 months ago

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Opportunity for people with lived experiences of stomas to take part in NICE committee assessment on colostomy bags for people with a stoma

Good morning everyone We have been asked by NICE (National Institute for Health and Care Excellence) to share an opportunity for people with lived experiences...

Good morning everyone We have been asked by NICE (National Institute for Health...

OvacomeSupport

Partner•10 months ago

2 Replies

UTI symptoms

Hi I am currently NED after finishing chemo in September (stage 3 ovarian cancer). Before diagnosis I was constantly complaining of UTI symptoms (needing to...

Hi I am currently NED after finishing chemo in September (stage 3 ovarian cance...

Mintybiscuit

•10 months ago

15 Replies

Carboplatin and gemcitabine

hi , has anyone had the combination of Carboplatin and gemcitabine . This may be my next course of treatment with Carboplatin plus gemcitabine one week, then...

hi , has anyone had the combination of Carboplatin and gemcitabine . This may b...

Lookingahead

•10 months ago

12 Replies

urinary symptoms

hi,Im 45, and noticed that lately I pee more often than usual, also at night. I dont have any other symptom. I was checked 6 months ago and everything was...

hi,Im 45, and noticed that lately I pee more often than usual, also at night. I ...

maya78

•10 months ago

4 Replies

Radiotherapy

I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete...

I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve bee...

Hota

•10 months ago

8 Replies

HIPEC

Hello everyone, I was diagnosed with stage 3 ovarian cancer in December, I’ve since had 3 cycles of chemo (to which I’ve had a good response) and will be...

Hello everyone, I was diagnosed with stage 3 ovarian cancer in December, I’ve ...

Oaklake

•10 months ago

11 Replies

Recurrent ovarian cancer

Can someone pls share positive stories about recurrence

Survivor-thank

•10 months ago

21 Replies

I’m still here!

It is 8 years today since I was told I had Epithelial Ovarian Cancer 2C. I had a full Hysterectomy and 6 Carbo/Taxol chemos. I do have some numbness and...

It is 8 years today since I was told I had Epithelial Ovarian Cancer 2C. I had a...

Joanne59

•10 months ago

23 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2024

Feeling like Chemo is too Hard

Sanazon therapy experiences/ Erfahrungen mit Sanazon

Pain Relief that isn’t opiate based. Help!

Hubby

Hubby

Thyroid Hormones & OC

Niraparib "long term", anecdotal side-effects?

Easter 2024 opening hours and what's on next week at Ovacome (week commencing 1 April 2024).

Niraparib

Travel insurance webinar - Tuesday 9 April

Niraparib and permanent make up ?

could olaparib raise LDL cholesterol?

hair loss

How active were/are you with Olaparib (Lynparza)?

How long for hair (lashes/brows) to grow after nab Paclitaxel (Abraxane)?

Inflamation of the mucous lining of the mouth - side effect Caelyx

borderline tumor

Sorry for delayed response

Acronyms

Post surgery recovery

Liverpool Health and Wellbeing Day - 27th April

What's on at Ovacome next week? (week commencing 25 March 2024)

Opportunity for people with lived experiences of stomas to take part in NICE committee assessment on colostomy bags for people with a stoma

UTI symptoms

Carboplatin and gemcitabine

urinary symptoms

Radiotherapy

HIPEC

Recurrent ovarian cancer

I’m still here!

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