Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,950 posts

All posts for December 2021

Ideas for coping with self isolation please.

How did you cope with self isolation before surgery? I had my PCR test on 29 December to go in on 3 January for my debulking op on 4 January. It's day 3 and I...

How did you cope with self isolation before surgery? I had my PCR test on 29 Dec...

Morini

•2 years ago

25 Replies

Hi everyone

I have had a appointment with my oncologist today who has said the scan has shown the disease is stable and ca 125 has dropped. This is a stupid question but...

I have had a appointment with my oncologist today who has said the scan has show...

SEckett

•2 years ago

16 Replies

Can I manage the last cycle of Carboplatin

Hello to you all, hoping you have had some happy times over Christmas My tumour burst during my surgery so I agreed to 6 rounds of carboplatin, I was...

Hello to you all, hoping you have had some happy times over Christmas My tumour...

Catfeeder

•2 years ago

38 Replies

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Chemo ports

Morning! It took 5 attempts to get a cannula into me yesterday - I’m only on week 3 of 18 + chemo rounds. Should I get a port? No one has mentioned it until...

Morning! It took 5 attempts to get a cannula into me yesterday - I’m only on we...

Horsesrock

•2 years ago

25 Replies

Fasting, chemo and cancer

Hi everyone, I would like to know if any of you have seriously tried fasting and if it was beneficial at all for you? I regularly do intermittent fasting...

Hi everyone, I would like to know if any of you have seriously tried fasting and...

Itha

•2 years ago

15 Replies

Blood disorder with Niraparib

Has anyone developed myelodysplasia due to long term Niraparib and if so what was your treatment? I have Nucleated red blood cells and a high MCV and have...

Has anyone developed myelodysplasia due to long term Niraparib and if so what wa...

K95m

•2 years ago

9 Replies

HGSOC, BRCA -ve, Platinum Resistant Stage 4

Hi all Best wishes and thoughts to everyone going through this festive season managing OC. Looking for some direction as my wife and I just seem to be hitting...

Hi all Best wishes and thoughts to everyone going through this festive season ma...

Lamets

•2 years ago

34 Replies

Antibiotics

Anyone know if it’s ok to take antibiotics whilst taking niraparib

polo2014

•2 years ago

6 Replies

Reclaiming Christmas (sorry, long post)

I spent almost all of November and December 2020 in hospital. A couple of acute admissions (extreme unmanageable pain), a biopsy (took 5 days, rather than 4...

I spent almost all of November and December 2020 in hospital. A couple of acute ...

testarossa71

•2 years ago

45 Replies

A little Hope for Christmas Day

Hello all; Just a brief note to encourage all those newly positive for Ovarian Cancer. My wife discovered she was ill 7 years ago. While to me it seems like...

Hello all; Just a brief note to encourage all those newly positive for Ovarian C...

banjoman

•2 years ago

13 Replies

Fluid drained from lung

Does anybody know how long you can carry on having the fluid drained from the lung due to ovarian cancer. Thank you wishing you all a lovely day tomorrow xx

Does anybody know how long you can carry on having the fluid drained from the lu...

Aliollie

•2 years ago

2 Replies

Christmas greetings!!

Just like to send one and all Christmas 🎄greetings to to all of you . My one son has tested positive for covid and has put off his visit to the New year .my...

Just like to send one and all Christmas 🎄greetings to to all of you . My one s...

MOOKIE-FOX1234

•2 years ago

8 Replies

Merry Christmas and thank you for sharing your ovarian cancer journeys

Just to say I have been reading all the posts since I was diagnosed in September and really appreciate all the sharing honesty and support. I have had 5 first...

Just to say I have been reading all the posts since I was diagnosed in September...

Purplepansies54

•2 years ago

11 Replies

Hi everyone

This is a photo of my pride and joy. My son who has been incredible throughout this journey and my mad spaniel Daisy who I wouldn’t be without either. Merry...

This is a photo of my pride and joy. My son who has been incredible throughout t...

SEckett

•2 years ago

13 Replies

Hi everyone,

I started olaparib 13 days ago also avastin every 3 weeks and it seems my hair is not growing back that quickly. Does your hair grow back on this stuff?...

I started olaparib 13 days ago also avastin every 3 weeks and it seems my hair i...

SEckett

•2 years ago

7 Replies

CA125 increased after chemo

Hi all, this is the first time I'm writing here and hoping I can get some advice. My mum has been diagnosed with ovarian cancer stage 4 back in June 2021 and...

Hi all, this is the first time I'm writing here and hoping I can get some advice...

Danad25

•2 years ago

2 Replies

Scan

Just had phone call with results of scan I had yesterday not good news masses have grown does this mean that niraparib isn’t working waiting for oncologist to...

Just had phone call with results of scan I had yesterday not good news masses ha...

polo2014

•2 years ago

6 Replies

Ca-125 and antibiotics

I had to take antibiotics because I had the flu- runny nose-fever and cough…the last day of my antibiotics I had my blood test and day I got the results and...

I had to take antibiotics because I had the flu- runny nose-fever and cough…the ...

Roulasim

•2 years ago

17 Replies

Plural enfusion ovarian cancer

Can anybody help please, mums had a plural enfusion she has ovarian cancer, since then when she swallows she has an excruciating pain in bottom of oesophagus,...

Can anybody help please, mums had a plural enfusion she has ovarian cancer, sinc...

Aliollie

•2 years ago

8 Replies

Re sister

So sad. Sister back in hospital. Scan shows spread to bowel and stomach. Only had one Chemo session. Was so hoping chemo would help shrink tumours in ovaries...

So sad. Sister back in hospital. Scan shows spread to bowel and stomach. Only ha...

Skyp

•2 years ago

8 Replies

erythrocyte sedimentation rate (ESR)

we get 1st results all other results is back after 2 month from chemo finished in normal numbers, but ESR is up to 59 ( in june due to chemo it was 57) that...

we get 1st results all other results is back after 2 month from chemo finished i...

Inguc_is

•2 years ago

5 Replies

Hyperthermia

Anyone tried hyperthermia while in chemo? Was it effective?

Harp-1

•2 years ago

2 Replies

Control after chemo stress again :(

My mother had ovarian cancer in stage 2B in 2017.2021 may recurrence, now she has completed 7 courses of chemotherapy. her CA 125 from 230 dropped to 22.5...

My mother had ovarian cancer in stage 2B in 2017.2021 may recurrence, now she ha...

Inguc_is

•2 years ago

18 Replies

Acupuncture

Hi all Just wanted to write a brief post about my recent experience with acupuncture. My OH booked me an appt to see if we could sort out my CIPN (thighs,...

Hi all Just wanted to write a brief post about my recent experience with acupun...

testarossa71

•2 years ago

4 Replies

Rare birds.....not of the seasonal kind....

Hello all Hopefully the title hasn’t put you off.... I (zoom) dialled into a Rarer Cancer support group discussion last week, Thankyou Ovacome for organising...

Hello all Hopefully the title hasn’t put you off.... I (zoom) dialled into a Rar...

Catfeeder

•2 years ago

9 Replies

Taxol

Hello, Has anyone had taxol 3 weeks on and 1 week off for 12 treatments have good remarks with MBC in the liver. Helena

Hello, Has anyone had taxol 3 weeks on and 1 week off for 12 treatments have goo...

Iwouldlike2knowmore

•2 years ago

6 Replies

Ovarian cancer and shopping for healthcare products: using transactional data to investigate the pathway to diagnosis of ovarian cancer

Hi all This is a post to let you know that PhD student Elizabeth Dolan, at the University of Nottingham’s N/LAB research centre, has launched the second stage...

Hi all This is a post to let you know that PhD student Elizabeth Dolan, at the U...

TheOvacomeTeam

Partner•2 years ago

2 Replies

Hi everyone,

I am having avastin at the moment. My appointment was at 11 o’clock and the avastin is only half an hour . But there was confusion as to how much avastin I was...

I am having avastin at the moment. My appointment was at 11 o’clock and the avas...

SEckett

•2 years ago

17 Replies

Delay in chemo

Morning everyone. I am 2nd line treatment. Have had number 4 of 6 chemos. Had chemo 5 delayed due to low neutrifils. Have been offered chemo 5 next Friday...

Morning everyone. I am 2nd line treatment. Have had number 4 of 6 chemos. Had ch...

Smileeveryday2021

•2 years ago

24 Replies

Nominate Ovacome to win £1000

Hello All This is to ask for your help by nominating us in Ecclesiastical insurances '12 Days of Giving' campaign, for us to have the chance of winning......

Hello All This is to ask for your help by nominating us in Ecclesiastical insura...

TheOvacomeTeam

Partner•2 years ago

11 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for December 2021

Ideas for coping with self isolation please.

Hi everyone

Can I manage the last cycle of Carboplatin

Chemo ports

Fasting, chemo and cancer

Blood disorder with Niraparib

HGSOC, BRCA -ve, Platinum Resistant Stage 4

Antibiotics

Reclaiming Christmas (sorry, long post)

A little Hope for Christmas Day

Fluid drained from lung

Christmas greetings!!

Merry Christmas and thank you for sharing your ovarian cancer journeys

Hi everyone

Hi everyone,

CA125 increased after chemo

Scan

Ca-125 and antibiotics

Plural enfusion ovarian cancer

Re sister

erythrocyte sedimentation rate (ESR)

Hyperthermia

Control after chemo stress again :(

Acupuncture

Rare birds.....not of the seasonal kind....

Taxol

Ovarian cancer and shopping for healthcare products: using transactional data to investigate the pathway to diagnosis of ovarian cancer

Hi everyone,

Delay in chemo

Nominate Ovacome to win £1000

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