Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,953 posts

All posts for July 2019

DICE

Hi everyone, My third line chemo has just come to a stop, think they must have been injecting me with fertiliser, as it grown a bit instead of shrinking. They...

Hi everyone, My third line chemo has just come to a stop, think they must have ...

Elfed

•5 years ago

10 Replies

CA125 continues to rise...........

My CA125 continues to rise at an alarming rate, currently 850! My first recurrence is confirmed. My treatment starts tomorrow, carbo/caelyx. My breathlessness...

My CA125 continues to rise at an alarming rate, currently 850! My first recurren...

Hidden

•5 years ago

73 Replies

Kendal calling.. again

Hi all , Yes just come back from muddy kendal calling .. 2nd year how lucky was I ?thought last year was my first and last .. one off bucket list although...

Hi all , Yes just come back from muddy kendal calling .. 2nd year how lucky was ...

SuziTench1

•5 years ago

6 Replies

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Thank you

Thank you to everyone who replied to my post last week I will reply to everyone individually but I just wanted you to know that you have all helped me hugely...

Thank you to everyone who replied to my post last week I will reply to everyone ...

Welshandproud

•5 years ago

36 Replies

Crummy news at MD Anderson

I’m low grade primary Peritoneal 3C. Been coasting on Letrozole for 22 months (a long run) but now cancer is progressing rapidly. Doxil (different name in...

I’m low grade primary Peritoneal 3C. Been coasting on Letrozole for 22 months (...

SuzanneKau

•5 years ago

13 Replies

UPDATE on my Mom - 9 Months Post Diagnosis

I just want to thank you ladies once again for your continued support. Today marks 9 months since that awful day we got the horrible news that my mom had...

I just want to thank you ladies once again for your continued support. Today mar...

Lind58

•5 years ago

3 Replies

Good news at last!

Fantastic news from oncology. The operation has removed all of the cancer and chemo is just to prevent reoccurrence. Not starting until the end of August so I...

Fantastic news from oncology. The operation has removed all of the cancer and ch...

Lockygill

•5 years ago

20 Replies

Hereditary cancer awareness - your help needed

Dear All We’ve teamed up with Ovarian Cancer Action, The Eve Appeal and BRCA Umbrella to create an awareness poster, which is to be displayed in GP surgery...

Dear All We’ve teamed up with Ovarian Cancer Action, The Eve Appeal and BRCA Umb...

OvacomeSupport

Partner•5 years ago

1 Reply

Post chemo appointment and scan.

Hi All, I’ve joined this community because my beautiful mum was diagnosed with stage 3A ovarian cancer in Jan 2019. Completion surgery to remove all visible...

Hi All, I’ve joined this community because my beautiful mum was diagnosed with s...

N-A-58

•5 years ago

28 Replies

Niraparib or Olaparib Question about progression

Hi Ladies, I hope you are in fighting good health! So: for those of you who have either been in the trials, or simply been prescribed either of these two...

Hi Ladies, I hope you are in fighting good health! So: for those of you who have...

Lindaura

•5 years ago

12 Replies

Life after such surviving

My whole life has changed after I was diagnosed/going through treatments. I'm not with the man I was with anymore. I live in apartment by myself. I'm happy I'm...

My whole life has changed after I was diagnosed/going through treatments. I'm no...

Cynthia18

•5 years ago

16 Replies

New Choir in Huddersfield

Hi everyone, Huge apologies, I wrote in my previous post that the new choir meets at Huddersfield Royal Infirmary every 2nd Wednesday, but it should be...

Hi everyone, Huge apologies, I wrote in my previous post that the new choir me...

Humbug12

•5 years ago

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Exercise research volunteers needed - Northern Ireland & Eire

Hello All We've been contacted by Deirdre McGrath, who is currently undertaking PhD research at the School of Nursing and Midwifery at Queen's University...

Hello All We've been contacted by Deirdre McGrath, who is currently undertaking ...

OvacomeSupport

Partner•5 years ago

Be the first to reply

Post chemo abdominal discomfort - adhesions

I am about two months post chemo for stage 4 ovarian cancer recurrence. I am told I am in remission. But now I have quite a lot of abdominal discomfort, sort...

I am about two months post chemo for stage 4 ovarian cancer recurrence. I am to...

Judek2177

•5 years ago

6 Replies

Letrozole

Would appreciate any advice about Letrozole side effects and the best time of day to take the dose. Am due to start next week and would be glad to hear of...

Would appreciate any advice about Letrozole side effects and the best time of da...

Jackie0

•5 years ago

6 Replies

My Recovery Dog .....

Today I went to our local walking group’s annual dog show. They held a special award for dog/owners who have dealt with challenging times. I nominated Lottie...

Today I went to our local walking group’s annual dog show. They held a special a...

Eriksendi

•5 years ago

23 Replies

New choir in West Yorkshire

Hi, I hope this post is allowed. I wanted to tell you about a new choir being set up by Macmillan. It is for any cancer patient and their carer or family. We...

Hi, I hope this post is allowed. I wanted to tell you about a new choir being s...

Humbug12

•5 years ago

2 Replies

The journey is nearly over

Hi lovelies, Just a quick check in, my special person is nearly at the end of her journey, she was meant to be going from hospital to a nursing home but has...

Hi lovelies, Just a quick check in, my special person is nearly at the end of h...

CallmeMum

•5 years ago

53 Replies

Olaparib or not?

Good morning ladies, I am hoping someone will have some sage advice for me. I was diagnosed in October 2017 following what turned out to be a huge debulking...

Good morning ladies, I am hoping someone will have some sage advice for me. I wa...

JayGeeCee

•5 years ago

29 Replies

New Chemo Regime

Hi everyone. I have seen a lot of stuff in the media about Olaparib in the last couple of days, but nothing further about an article that I read in The Daily...

Hi everyone. I have seen a lot of stuff in the media about Olaparib in the last ...

27-359

•5 years ago

3 Replies

Is Lynparza only for our ladies caring the BRACA gene

Hi ladies is anybody on Lynparza that don’t have the BRACA gene? Or is it just for people with the gene.

Hi ladies is anybody on Lynparza that don’t have the BRACA gene? Or is it just ...

Annr5h

•5 years ago

6 Replies

Still so tired 6 weeks after op

I am recovering from my op but I’m feeling so tired all of the time and everyday life is exhausting and I have to keep sitting down. My appetite is not good...

I am recovering from my op but I’m feeling so tired all of the time and everyday...

Lockygill

•5 years ago

10 Replies

Update and ideas!

I thought I’d update you on my Weekly Taxol treatment and ask for some ideas to shift a problem I have! This may be long, please bear with! I’m about to have...

I thought I’d update you on my Weekly Taxol treatment and ask for some ideas to ...

Alifit

•5 years ago

21 Replies

Olaparib in newly diagnosed

Hi Ladies Just seen this on BBC news. https://www.bbc.co.uk/news/health-49111427 This doesn't apply to me as low grader and for BRAC1 positive OC only. (In...

Hi Ladies Just seen this on BBC news. https://www.bbc.co.uk/news/health-49111427...

Spirit22

•5 years ago

16 Replies

Damned neutrophils

Hi everyone I just want to vent a bit. This morning I've found out that for the third week running my neutrophils are too low for chemo. This should have been...

Hi everyone I just want to vent a bit. This morning I've found out that for the ...

Welshandproud

•5 years ago

34 Replies

Reports of abuse

Dear All Thank you to everyone who took time to report inappropriate content on My Ovacome early this morning. The post has been removed and the user...

Dear All Thank you to everyone who took time to report inappropriate content on ...

TheOvacomeTeam

Partner•5 years ago

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Avastin?

I read that a lot of you lovely ladies are on Avastin. What exactly is it? It's never been mentioned to me by my health professionals. Also, does it work?

I read that a lot of you lovely ladies are on Avastin. What exactly is it? It's ...

ZenaJ

•5 years ago

10 Replies

The Alien has left the building!!

Thanks to each and every one of you for your kind thoughts and prayers.Its amazing how good it makes me feel to know that someone is thinking of you. My Alien...

Thanks to each and every one of you for your kind thoughts and prayers.Its amazi...

annieH1

•5 years ago

16 Replies

Cancer Returns

Hello everyone. Yesterday I went for my usual once every 3 weeks Avastin treatment at the Macmillan Cancer Centre UCLH. I met with my lovely oncologist Dr...

Hello everyone. Yesterday I went for my usual once every 3 weeks Avastin treatme...

TudorPurr68

•5 years ago

42 Replies

Manchester Airport Assistance

I’ve learnt something that I would like to share with you all. I asked my husband to check at Manchester Airport to see if head scarfs are an issue, he was...

I’ve learnt something that I would like to share with you all. I asked my husban...

Flower2011

•5 years ago

25 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for July 2019

DICE

CA125 continues to rise...........

Kendal calling.. again

Thank you

Crummy news at MD Anderson

UPDATE on my Mom - 9 Months Post Diagnosis

Good news at last!

Hereditary cancer awareness - your help needed

Post chemo appointment and scan.

Niraparib or Olaparib Question about progression

Life after such surviving

New Choir in Huddersfield

Exercise research volunteers needed - Northern Ireland & Eire

Post chemo abdominal discomfort - adhesions

Letrozole

My Recovery Dog .....

New choir in West Yorkshire

The journey is nearly over

Olaparib or not?

New Chemo Regime

Is Lynparza only for our ladies caring the BRACA gene

Still so tired 6 weeks after op

Update and ideas!

Olaparib in newly diagnosed

Damned neutrophils

Reports of abuse

Avastin?

The Alien has left the building!!

Cancer Returns

Manchester Airport Assistance

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