Posts - My Ovacome | HealthUnlocked

My Ovacome

17,722 members • 19,969 posts

All posts for January 2023

Tooth pulled yesterday afternoon.

I called my regular dentist yesterday morning and he got me in that afternoon. Tooth pulled using Novocain and nitrous. Tooth came out easily and in plenty of...

I called my regular dentist yesterday morning and he got me in that afternoon. T...

Sashay2020

•1 year ago

14 Replies

Preparing for carbo/caelyx

I am experiencing my 1st recurrence and am getting ready to start carboplatin/caelyx in a few weeks time. I want to make sure I'm prepped and ready for the...

I am experiencing my 1st recurrence and am getting ready to start carboplatin/ca...

Loorunner

•1 year ago

28 Replies

Does each remission get shorter?

My first recurrence has been confirmed after one year of remission. I think I'll be given more chemo. I know some women have had many recurrences, each one...

My first recurrence has been confirmed after one year of remission. I think I'll...

Frags4

•1 year ago

7 Replies

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save my tooth update

I was so worried about getting in to get the tooth pulled. But my regular dentist will pull it this afternoon, so I will be able to have chemo next week. I...

I was so worried about getting in to get the tooth pulled. But my regular dentis...

Sashay2020

•1 year ago

8 Replies

Johnson & Johnson uk action

hi everyone Is anyone considering joining the uk action re use of Johnson & Johnson talcum powder and the link to certain ovarian cancers? I’m in my sixties...

hi everyone Is anyone considering joining the uk action re use of Johnson & Joh...

Owenmeany

•1 year ago

21 Replies

Low Grade: Update from the US from one of the world leading experts, tentively positive research findings

Hi everyone as someone in the rarer cancers cohort i find it really helpful to keep up to date with what is going on worldwide. Knowledge is power and all...

Hi everyone as someone in the rarer cancers cohort i find it really helpful to k...

Notage

•1 year ago

5 Replies

carbo/caelyx

I have just completed round 6 of 6 carbo/caelyx (2nd line for peritoneal stage 3) and waiting result of the latest scan but my CA125 has gone down to 7. I...

I have just completed round 6 of 6 carbo/caelyx (2nd line for peritoneal stage 3...

NewtonEmma1900

•1 year ago

3 Replies

Instagram account support

Hi ladies, I hope your all as well as can be. I am stuck at home after surgery on Monday to remove a nodule from my abdomin. So to pass the time I’ve made a...

Hi ladies, I hope your all as well as can be. I am stuck at home after surgery ...

Mrs_Thomas

•1 year ago

4 Replies

Impact of stopping and starting Niraparib

Hello everyone I am stage 4 ovarian cancer. 8 rounds of Carbo taxol and full debulking surgery Feb 2022. Just wondered what the impact was of interrupting...

Hello everyone I am stage 4 ovarian cancer. 8 rounds of Carbo taxol and full d...

Purplepansies54

•1 year ago

16 Replies

Is anyone taking niraparib

Has anyone been taking niraparib long-term

Tealgirl7

•1 year ago

14 Replies

One year down the line….

I want to thank you lovely ladies and all at Ovacome for the support you have given. My Daughter aged 31 was told a year ago that she had a very rare form of...

I want to thank you lovely ladies and all at Ovacome for the support you have gi...

Mellucy

•1 year ago

8 Replies

save my tooth or stick to treatment schedule?

I’m in a bit of a quandary. My January 27th chemo has been postponed until February 10th. My rear molar has infection and needs root canal retreatment....

I’m in a bit of a quandary. My January 27th chemo has been postponed until Febru...

Sashay2020

•1 year ago

35 Replies

Responding to a progressively increasing CA125

Hi all, Mum completed first line treatment for HGSOC last year (6 cycles carbo/taxol followed by optimal debulking) and was NED as of last July. She is BRIP1...

Hi all, Mum completed first line treatment for HGSOC last year (6 cycles carbo...

Donnie21

•1 year ago

6 Replies

Gemzar nausea help

Gemzar really kills my appetite. The Thought of most food nauseates me. Here are a few ideas that have helped: Good n Plenty coated licorice candy settles my...

Gemzar really kills my appetite. The Thought of most food nauseates me. Here are...

Leniko

•1 year ago

5 Replies

What's on at Ovacome next week (week commencing 30 January 2023)?

Good afternoon everyone This is a post to let you all know about what's taking place through Ovacome's Staying Connected programme next week - and to remind...

Good afternoon everyone This is a post to let you all know about what's taking ...

OvacomeSupport

Partner•1 year ago

Be the first to reply

High Creatinine

Hi Ladies, From two months now I have my level of creatinine going up (130). It's probabely due to toxicity of all my previous treatments. Despite of drinking...

Hi Ladies, From two months now I have my level of creatinine going up (130). It...

Reksio77

•1 year ago

3 Replies

Macmillan and BUPA

Just a head's up that you can ring Macmillan and get free counselling from BUPA. Just in case you need someone to talk to. xx

Just a head's up that you can ring Macmillan and get free counselling from BUPA....

candyapplegrey

•1 year ago

5 Replies

what benefits would I get giving up work?

I was diagnosed with ovarian cancer stage 3 in may 2021 I underwent a hysterectomy followed my chemo and in nov 2021 was told I was in remission. I am on PARPS...

I was diagnosed with ovarian cancer stage 3 in may 2021 I underwent a hysterecto...

Jingles6

•1 year ago

8 Replies

Update

Hi ladies l hope you are all as well as you can be. I said back in July l would give you a update after finishing 6th recurrence. Thankfully the chemo has done...

Hi ladies l hope you are all as well as you can be. I said back in July l would ...

Lewisriley47

•1 year ago

22 Replies

Update

Hey All,Have,t been on the forum for ages.Thought I would just ost an update,diagnose 15 years ago.Surgery and chemo very successfully reoccurred 2015 just...

Hey All,Have,t been on the forum for ages.Thought I would just ost an update,dia...

dryden1

•1 year ago

19 Replies

Unexpected news

Well I want to say goodbye to the forum and thank you all for your support over the past few years. My OC has spread to the brain and basically I have to...

Well I want to say goodbye to the forum and thank you all for your support over...

Rosebine2

•1 year ago

55 Replies

Ovarian Cancer Awareness Month 2023

Hi All What have you got planned for Ovarian Cancer Awareness Month 2023? This will be the first March since the pandemic that we have all been able get...

Hi All What have you got planned for Ovarian Cancer Awareness Month 2023? ...

TheOvacomeTeam

Partner•1 year ago

Be the first to reply

antibiotics while on chemo?

Hello, ladies. I am on cisplatin and Gemcitabine (Gemzar) and have developed an infection near an ancient root canal that I believe has finally failed. Has...

Hello, ladies. I am on cisplatin and Gemcitabine (Gemzar) and have developed an ...

Sashay2020

•1 year ago

15 Replies

PICC line insertion

I am having a PICC line inserted before my next chemotherapy but have received no information about it. Can I ask ladies here a few questions?Will I be able to...

I am having a PICC line inserted before my next chemotherapy but have received n...

Kaitlinsmum

•1 year ago

7 Replies

Chemo for recurrence easier?

I'll be having carbo/taxol chemo for my first recurrence, which is the same chemo I had initially. I was wondering if those of you who have been through it...

I'll be having carbo/taxol chemo for my first recurrence, which is the same chem...

Frags4

•1 year ago

3 Replies

hernia problems

good morning! My mom have big hernia near epigastric, on CT nobody wrote anything, sometimes they worte , sometimes not. That mean for than that is not...

good morning! My mom have big hernia near epigastric, on CT nobody wrote anythin...

Inguc_is

•1 year ago

1 Reply

PIPAC

Hello ladies. Do you have any experience with so called "PIPAC" procedure (pressurized intraperitoneal aerosol chemotherapy)?

Hello ladies. Do you have any experience with so called "PIPAC" procedure (press...

Reksio77

•1 year ago

6 Replies

can I have micro blading whilst on Avastin and Olaparib?

dear ladies, I have stage 4 OC and having completed 7 cycles chemo in November and debulking surgery in September am now on Avastin and Olaparib since...

dear ladies, I have stage 4 OC and having completed 7 cycles chemo in November a...

Belindajw

•1 year ago

10 Replies

B96 Trial and will I get there?

hello everyone I was diagnosed 3C HGSOC in Nov 2021. After 6 rounds Carbo:taxol and debulking surgery I was NED in June 2022. By end Oct I had recurred only...

hello everyone I was diagnosed 3C HGSOC in Nov 2021. After 6 rounds Carbo:taxo...

Narna1

•1 year ago

13 Replies

Taking Niraparib but getting aching thighs in muscles is this normal

I had ovarian cancer in 2002 I had surgery and Chemo but it returned after 19 years in 2021 in the Peritoneum high grade 3c. After 6 sessions of Chemo I am now...

I had ovarian cancer in 2002 I had surgery and Chemo but it returned after 19 ye...

babs1120

•1 year ago

8 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2023

Tooth pulled yesterday afternoon.

Preparing for carbo/caelyx

Does each remission get shorter?

save my tooth update

Johnson & Johnson uk action

Low Grade: Update from the US from one of the world leading experts, tentively positive research findings

carbo/caelyx

Instagram account support

Impact of stopping and starting Niraparib

Is anyone taking niraparib

One year down the line….

save my tooth or stick to treatment schedule?

Responding to a progressively increasing CA125

Gemzar nausea help

What's on at Ovacome next week (week commencing 30 January 2023)?

High Creatinine

Macmillan and BUPA

what benefits would I get giving up work?

Update

Update

Unexpected news

Ovarian Cancer Awareness Month 2023

antibiotics while on chemo?

PICC line insertion

Chemo for recurrence easier?

hernia problems

PIPAC

can I have micro blading whilst on Avastin and Olaparib?

B96 Trial and will I get there?

Taking Niraparib but getting aching thighs in muscles is this normal

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