Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for January 2024

Ovarian cancer metastases to spine, hips and ribs

Hello ladies 🙂 My mother today was diagnosed with ovarian cancer that has metastases to her spine, hips and ribs. I read on the web that five-year survival...

Hello ladies 🙂 My mother today was diagnosed with ovarian cancer that has metas...

Tsioutsiou

•11 months ago

5 Replies

Anyone else?

Hey, just wondering if anyone else is interested in signing up for the 3 day trek in Spain for Ovacome? Info below. I'm going to do it but would be great to...

Hey, just wondering if anyone else is interested in signing up for the 3 day tre...

BookLover75

•11 months ago

3 Replies

Hi, new oncologist says its fine to stop my PARP inhibitor, niraparib. Been on it for over 3 years with no problems. Is it best to stay on ?

Hi, new oncologist says its fine to stop my PARP inhibitor, niraparib. Been on i...

TIDAS

•11 months ago

16 Replies

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Lump in pelvic area & elevated CA125 - but non urgent referral - should I be pushing this?

Hi everyone! I was hoping for some advice or shared experiences. About 3/4 weeks ago I noticed a lump/ mass in my pelvic area on left hand side. It’s...

Hi everyone! I was hoping for some advice or shared experiences. About 3/4 weeks...

VV_1990

•11 months ago

27 Replies

Quick Question re parp

Hi I just got off the phone from my oncologist and she told me I am BRAC negative & parp inhibitors won't help me, have any of you lovely ladies been told...

Hi I just got off the phone from my oncologist and she told me I am BRAC negativ...

Pixiepurple

•11 months ago

44 Replies

any advice bile vomit

is there anyone who have same as my mom she last month after each food and water vomit bile do anyone have such? She is in hospital but they didnt found the...

is there anyone who have same as my mom she last month after each food and water...

Inguc_is

•11 months ago

4 Replies

Bowel Symptoms, Post Surgery 10 weeks, started pre-chemo and continuing/evolving

Hello again lovely ladies. I had my first Carbo/Taxol infusion last Thursday. The day before I had to go to the dentist as I had bad jaw ache and thought it...

Hello again lovely ladies. I had my first Carbo/Taxol infusion last Thursday. ...

Emcee71

•11 months ago

12 Replies

taking collagen

I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyone taking a collagen supplement

I am on a maintenance drug after been diagnosed with hg ovianian cancer Is anyon...

Curry55

•11 months ago

2 Replies

Ovacome consultation

Dear All Every two years, Ovacome asks you for feedback about our services and what you would like to see from us. We do this through a consultation. The...

Dear All Every two years, Ovacome asks you for feedback about our services and ...

TheOvacomeTeam

Partner•11 months ago

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Radiotherapy for OC in lymph nodes

Hello ladies. I wonder if those on here in England, who have had radiotherapy, could please tell me which hospital trust you had the treatment under. My...

Hello ladies. I wonder if those on here in England, who have had radiotherapy, c...

Numi

•11 months ago

10 Replies

Maintenance Chemo

I was diagnosed with stage 2 endometrioid cancer five years ago. I went through chemo treatments: carboplatin and taxol. I even had IP belly washes of taxol....

I was diagnosed with stage 2 endometrioid cancer five years ago. I went through ...

ARamage

•11 months ago

6 Replies

Newly diagnosed

As above 2 days ago. I’m seeing a gynea Dr and the oncology nurses Monday. I’m 46. I feel numb. I can handle what’s coming but I’m so upset about my son, I’ve...

As above 2 days ago. I’m seeing a gynea Dr and the oncology nurses Monday. I’m 4...

TeenyT

•11 months ago

18 Replies

What's on at Ovacome next week (week commencing Monday 29 January 2024)?

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•11 months ago

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Please send me some positivity.

I have just had the results of my CT scan and I have been told I have a recurrance in one para-aortic lymph node. I will either need surgery (if they can),...

I have just had the results of my CT scan and I have been told I have a recurran...

Nectirlawone

•11 months ago

24 Replies

Abnormalities on the CT 6 months after Chemo (while on Niraparib) CA125 at 4.9, anyone same experience?

Dear ladies, Background : IVB HSOC Jan 2023, Debulking April 23, last chemo June 23, on Niraparib since Aug 23, diagnosed at 40 yo (now 41). Now CT shows...

Dear ladies, Background : IVB HSOC Jan 2023, Debulking April 23, last chemo Jun...

Beatyourself

•11 months ago

4 Replies

💙 You're warmly welcomed to Ovacome's Health and Wellbeing Day in Croydon on Saturday 2nd March 2024 💙

Good morning everyone We would like to warmly invite you to Ovacome’s upcoming Health and Wellbeing Day in Croydon, taking place on Saturday 2nd March 2024....

Good morning everyone We would like to warmly invite you to Ovacome’s upcoming ...

OvacomeSupport

Partner•11 months ago

Be the first to reply

Chronic diarrhea after chemo; any suggestions?

Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 cm of my small intestines had to be removed with surgery. 6 cycle of chemo is...

Hello lovely ladies; unfortunately my disease came back after 2.5 years and 70 c...

Sybil71

•11 months ago

8 Replies

life after treatment

Hi I was diagnosed with stage 3 high grade cancer in March at the age of 54. I am wondering if others have been diagnosed at a similar age as I sometimes feel...

Hi I was diagnosed with stage 3 high grade cancer in March at the age of 54. I ...

Mintybiscuit

•11 months ago

30 Replies

Is anyone living in Kent?

Hello This is possibly the worse time to be asking as I am about to start 1st line chemo* this week, but is anybody based in Kent (UK)? I'm being treated at...

Hello This is possibly the worse time to be asking as I am about to start 1st l...

Emcee71

•11 months ago

27 Replies

Update and advice needed x

Thank you all for your lovely comments. CT scan result shows a small area on the outside of the bowel which needs further investigation. Really shocked to hear...

Thank you all for your lovely comments. CT scan result shows a small area on the...

ORGM

•11 months ago

7 Replies

Leo 2327

Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a...

Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8...

Leo2327

•11 months ago

15 Replies

Second Recurrence

I was originally diagnosed in December 2018 with stage 3 high-grade primary peritoneal carcinoma. It recurred in December 2022. I had the same chemo both...

I was originally diagnosed in December 2018 with stage 3 high-grade primary peri...

purfekt10

•11 months ago

12 Replies

2nd recurrence

hi ladies. As you know I am going through my second recurrence. My team have not been able to biopsy my offending lymph node as it is to dangerous to biopsy....

hi ladies. As you know I am going through my second recurrence. My team have not...

Hota

•11 months ago

4 Replies

Clear Cell Trial Update

Hi everyone, hope you’ve all had better start to the new year than me. In November I completed the first leg of a trial. Beginning of December I developed a...

Hi everyone, hope you’ve all had better start to the new year than me. In Novemb...

Hidden

•11 months ago

8 Replies

IBS. Stress

so I’ve posted before. My ca 125 was 36.8 not back. But I’ve had chronic stomach aches for over 2 months. I definitely know it’s stressed related. But based on...

so I’ve posted before. My ca 125 was 36.8 not back. But I’ve had chronic stomach...

Coffeeandwinelover

•11 months ago

5 Replies

New monthly meet-up for those diagnosed in Leicestershire - Sunday 18 February at 11am

Good morning everyone An Ovacome member has been in touch with us to let us know about a new informal coffee and chat meet up once a month for people...

Good morning everyone An Ovacome member has been in touch with us to let us kno...

OvacomeSupport

Partner•11 months ago

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HGSC 3B

Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin and now my ca125 has been low right through now its increased from. 12 to 24 and...

Ive been on Lynparza for 2years after finishing chemo taxol/carbo and Avastin a...

0151tmac69

•11 months ago

2 Replies

Advice

Hello I have high grade serious carcidoma ovarian cancer stage 4 6 sessions chemo 18months ago recently spread on ovary and spleen madbe bowel they...

Hello I have high grade serious carcidoma ovarian cancer stage 4 6 sessions ch...

PaumicB123

•11 months ago

7 Replies

Magical Mystery Tour ...

Seems like there are some issues viewing the blog/vlog (it's a video). Trying to sort these out. So sorry. 🤒 Meanwhile here's episode 3. Trying to decide on...

Seems like there are some issues viewing the blog/vlog (it's a video). Trying to...

candyapplegrey

•11 months ago

3 Replies

Breathlessness

Hi I am currently on a cycle which involves two sessions at two weeks apart called TETP. So I am having etoposide and paclitaxel then cisplatin and paclitaxel...

Hi I am currently on a cycle which involves two sessions at two weeks apart call...

Swimbuddy

•11 months ago

10 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for January 2024

Ovarian cancer metastases to spine, hips and ribs

Anyone else?

Hi, new oncologist says its fine to stop my PARP inhibitor, niraparib. Been on it for over 3 years with no problems. Is it best to stay on ?

Lump in pelvic area & elevated CA125 - but non urgent referral - should I be pushing this?

Quick Question re parp

any advice bile vomit

Bowel Symptoms, Post Surgery 10 weeks, started pre-chemo and continuing/evolving

taking collagen

Ovacome consultation

Radiotherapy for OC in lymph nodes

Maintenance Chemo

Newly diagnosed

What's on at Ovacome next week (week commencing Monday 29 January 2024)?

Please send me some positivity.

Abnormalities on the CT 6 months after Chemo (while on Niraparib) CA125 at 4.9, anyone same experience?

💙 You're warmly welcomed to Ovacome's Health and Wellbeing Day in Croydon on Saturday 2nd March 2024 💙

Chronic diarrhea after chemo; any suggestions?

life after treatment

Is anyone living in Kent?

Update and advice needed x

Leo 2327

Second Recurrence

2nd recurrence

Clear Cell Trial Update

IBS. Stress

New monthly meet-up for those diagnosed in Leicestershire - Sunday 18 February at 11am

HGSC 3B

Advice

Magical Mystery Tour ...

Breathlessness

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