Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,953 posts

All posts for March 2023

Ovacome meet-up Glasgow 25 April 2023

Hello All, For those of you with easy access to Glasgow, we’ll be hosting a free friendly social event for Ovacome members on Tuesday 25 April between 10am...

Hello All, For those of you with easy access to Glasgow, we’ll be hosting a f...

OvacomeSupport

Partner•1 year ago

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Sabre Treatment

So once again my cancer is starting to grow near my pelvis and pancreas, but consultant is referring me for Sabre treatment which will hopefully be successful...

So once again my cancer is starting to grow near my pelvis and pancreas, but con...

Kouyate

•1 year ago

2 Replies

melt down

having a melt down sat here crying asking why am I waiting so long for my results it’s been 3 and half weeks , it must be bad how am I going to cope what ifs

having a melt down sat here crying asking why am I waiting so long for my result...

Cazy1010

•1 year ago

10 Replies

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Surgery, treatment & ptsd

Hi everyone, Just wondering if anyone on this forum has ptsd in addition to ovarian cancer? It’s ok if I get no replies. I’m having my debulking surgery next...

Hi everyone, Just wondering if anyone on this forum has ptsd in addition to ova...

Hailun

•1 year ago

9 Replies

Help, what happens now?

Hi everyone, I hope you are as well as you can be. I have a question please. My mum was diagnosed Jan 2019 with stage 3A hgs. Full debulking and 6 round...

Hi everyone, I hope you are as well as you can be. I have a question please....

N-A-58

•1 year ago

14 Replies

What's on at Ovacome next week (week commencing 3 April 2023)?

Good afternoon everyone This is a post to let you all know about what's happening in Ovacome's Staying Connected programme next week - and to remind you all...

Good afternoon everyone This is a post to let you all know about what's happe...

OvacomeSupport

Partner•1 year ago

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Caelyx and stomach cramp

Two weeks post first treatment of Caelyx and I am very tired and suffering from stomach cramps Stopping me eating. Its very painful. Going to phone oncology...

Two weeks post first treatment of Caelyx and I am very tired and suffering from ...

Clipper15

•1 year ago

5 Replies

Small Increase NODE

Hi beautiful ladies, My mom was diagnosed in 2018 with Stage 4 High Grade. She has since had Taxol/Carbo and major debulking surgery. She was NED for 2 years....

Hi beautiful ladies, My mom was diagnosed in 2018 with Stage 4 High Grade. She ...

Lind58

•1 year ago

1 Reply

waterproof PICC covers

hello. I’m new on here. I’ve just finished my chemo and am hoping to go swimming again. I still have a PICC line in for my regular Avastin and would like a...

hello. I’m new on here. I’ve just finished my chemo and am hoping to go swimming...

Wirralian

•1 year ago

7 Replies

📢It’s your last chance to enter Ovacome’s OCAM raffle, closing at 11pm on Friday 31 March 🎟️🏆

Good morning everyone 📢 It’s your last chance to enter Ovacome’s fabulous OCAM (Ovarian Cancer Awareness Month) raffle, closing at 11pm on Friday 31 March!...

Good morning everyone 📢 It’s your last chance to enter Ovacome’s fabulous OC...

TheOvacomeTeam

Partner•1 year ago

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Anyone recently finished chemo/radiotherapy?

Hello everyone, hope everyone is okay. I’ve just got a question about ongoing vulnerability after treatment and wondered if anyone else is feeling the same...

Hello everyone, hope everyone is okay. I’ve just got a question about ongoing...

OrdinarySoul

•1 year ago

9 Replies

Incorrect scan result

Hi, I had an updated CT scan on 11th March and the result was given to me over the phone on 16th March. A doctor I didn’t know phoned me after 5pm on the...

Hi, I had an updated CT scan on 11th March and the result was given to me over t...

2016Mags

•1 year ago

3 Replies

BRCA breast screening protocol

Hi All I was diagnosed with OC in Oct 2021 and told I was BRCA in Feb 2022. I had a mammogram and ultrasound a year ago and an MRI 6 months ago but no...

Hi All I was diagnosed with OC in Oct 2021 and told I was BRCA in Feb 2022. I...

Carpediem68

•1 year ago

18 Replies

More decisions - Avastin, Niraparib or Letrozole

My Mum, who has done 6 rounds of chemo, 2 with Avastin, has just been told she still doesn't present as suitable for surgery. We have mixed emotions about...

My Mum, who has done 6 rounds of chemo, 2 with Avastin, has just been told she s...

Vinney52

•1 year ago

4 Replies

anyone on a uk trial for 2nd line relapse maintenance?

hello this is my first post though I have been given hope by reading other ladies brave stories. My journey started in 2017 age 69 . My OC is HGS. After...

hello this is my first post though I have been given hope by reading other ladie...

Towergirl

•1 year ago

5 Replies

If you’re in the Essex area and want a bit of support……

Hi! I had ovarian cancer in 2002 and when I retired I decided to volunteer with helping to raise awareness of the signs and symptoms, and I volunteer,...

Hi! I had ovarian cancer in 2002 and when I retired I decided to volunteer wit...

wendydee

•1 year ago

14 Replies

Hernia help please

Hi. I am 72 and have Primary peritoneal cancer. I had ultra radical cytoreduction surgery about 18 months ago and have recently developed a large hernia...

Hi. I am 72 and have Primary peritoneal cancer. I had ultra radical cytoreduct...

Alice77

•1 year ago

14 Replies

All in this together

You can read my bio but basically, diagnosed 29 years ago when I was 34 years old with OC. I have been very fortunate not to have had any recurrence but...

You can read my bio but basically, diagnosed 29 years ago when I was 34 years ol...

bogeygolfer

•1 year ago

12 Replies

well I tell you what !!!

This operation has knocked me for 6 !!! Never felt so “ carnt do anything “ feel old and look awful lol!!! Aches and pains I never knew I could have or want...

This operation has knocked me for 6 !!! Never felt so “ carnt do anything “ feel...

Cazy1010

•1 year ago

9 Replies

My mother's good news

Hello ladies, Once again, I wanted to share the good news with you because I know how important it is to see positive stories and examples. Today we got my...

Hello ladies, Once again, I wanted to share the good news with you because I kno...

Uniquem

•1 year ago

21 Replies

micropapillary serous borderline tumours

Hello I’m hoping to get some advice about borderline ovarian tumours. My surgeon rang to say that my histology results show I have borderline tumours on...

Hello I’m hoping to get some advice about borderline ovarian tumours. My surge...

Farfromthemaddingcow

•1 year ago

4 Replies

urinary Frequency

Hi lovely ladies I was diagnosed with 2b ovarian Cancer in May 22 I consequently had a hysterectomy, salpingo-oophrectomy laprascopically. NED after my...

Hi lovely ladies I was diagnosed with 2b ovarian Cancer in May 22 I consequentl...

Hota

•1 year ago

10 Replies

Parts, which one?

Hi, Jacki here from the U S. I have needed a group and so happy to have each and everyone of you. Have been so blessed to be reading everything I have been...

Hi, Jacki here from the U S. I have needed a group and so happy to have each an...

Jacquiemoo

•1 year ago

19 Replies

Just after some advice or reassurance.

Iv been having wierd pains and a few symptoms for a while , I managed to get the doctors to send me for a us pelvic scan . The scan came back abnormal...

Iv been having wierd pains and a few symptoms for a while , I managed to get the...

Sophali31

•1 year ago

19 Replies

Should I change jobs?

Hello everyone I would really appreciate some advice regarding my job situation. I was diagnosed HGSOC stage 4a in September 2021 and had 6 rounds of chemo...

Hello everyone I would really appreciate some advice regarding my job situatio...

Purplepansies54

•1 year ago

21 Replies

new here

hi, I’ve been reading your posts with interest as I’m in between diagnosis at moment and trying to gain as much information as possible. I was diagnosed with...

hi, I’ve been reading your posts with interest as I’m in between diagnosis at ...

BHPM

•1 year ago

10 Replies

Recurrence in Peritoneum

Hi ladies! Just had an update on my 53 year old Mum. For context, she was diagnosed HGS stage 3c/4a in Jan 2022, had three rounds of chemo, optimal debulking...

Hi ladies! Just had an update on my 53 year old Mum. For context, she was diagn...

georgialocksss

•1 year ago

15 Replies

Ovacome Health and Wellbeing Day - Croydon 25 March 2023

Good morning everyone This is to let you know about our upcoming Health and Wellbeing Day in Croydon, taking place this Saturday 25 March from 11am to...

Good morning everyone This is to let you know about our upcoming Health and W...

TheOvacomeTeam

Partner•1 year ago

Be the first to reply

Bit of a blow, advice needed

A couple of weeks ago, I ended up having an urgent CTscan because my GP had sent me for an ultrasound, then called my to say I had cancer in my stomach and...

A couple of weeks ago, I ended up having an urgent CTscan because my GP had sent...

Skyeplus

•1 year ago

5 Replies

get CT results today- very nervous!

Well, the gift that keeps giving….I ended up at my local hospital Monday afternoon ! After the morning CT , I went home… had a call an hour or so later,...

Well, the gift that keeps giving….I ended up at my local hospital Monday afterno...

Atai

•1 year ago

12 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for March 2023

Ovacome meet-up Glasgow 25 April 2023

Sabre Treatment

melt down

Surgery, treatment & ptsd

Help, what happens now?

What's on at Ovacome next week (week commencing 3 April 2023)?

Caelyx and stomach cramp

Small Increase NODE

waterproof PICC covers

📢It’s your last chance to enter Ovacome’s OCAM raffle, closing at 11pm on Friday 31 March 🎟️🏆

Anyone recently finished chemo/radiotherapy?

Incorrect scan result

BRCA breast screening protocol

More decisions - Avastin, Niraparib or Letrozole

anyone on a uk trial for 2nd line relapse maintenance?

If you’re in the Essex area and want a bit of support……

Hernia help please

All in this together

well I tell you what !!!

My mother's good news

micropapillary serous borderline tumours

urinary Frequency

Parts, which one?

Just after some advice or reassurance.

Should I change jobs?

new here

Recurrence in Peritoneum

Ovacome Health and Wellbeing Day - Croydon 25 March 2023

Bit of a blow, advice needed

get CT results today- very nervous!

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