Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for September 2019

Low Grade OC hope- Trametanib

This is at last something we can look forward to. The results of the LOGS trial is now being reported on. Around about 8th October we should see a written...

This is at last something we can look forward to. The results of the LOGS trial ...

Levanah

•5 years ago

13 Replies

Metastatic cervical carcinoma

Has anyone cured of metastatic cervical carcinoma? My mom has this and too afraid now!

Has anyone cured of metastatic cervical carcinoma? My mom has this and too afrai...

Madhusudhan07

•5 years ago

4 Replies

Laura and the DICE Trial - Be Careful What You Wish For!

Well, I have been sick as a dog since Thursday afternoon. Basically the same side effects I suffered with first line, except, thank goodness, no bone pain!...

Well, I have been sick as a dog since Thursday afternoon. Basically the same sid...

Lindaura

•5 years ago

74 Replies

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First chemo

Help had first chemo yesterday after postponing due to infection couldn’t have it as soon as carbo went in body had a severe reaction. Felt like I was on fire...

Help had first chemo yesterday after postponing due to infection couldn’t have i...

Lavender2016

•5 years ago

12 Replies

Off to the Ovacome Health and Wellbeing Day

Hello everyone! Mum and I are off to this fab planned day! I'm in red flowery trousers, pink shirt & bright orange shoes! Say hello if you see me. Take care,...

Hello everyone! Mum and I are off to this fab planned day! I'm in red flowery tr...

Brom42

•5 years ago

5 Replies

No phase one trial for me at the moment

A little gutted that I can’t get on a phase one trial at the moment. The one I had hoped to get on required a new biopsy, after having an ultrasound to try and...

A little gutted that I can’t get on a phase one trial at the moment. The one I h...

Lucidalil

•5 years ago

7 Replies

All clear after first-line treatment :)

Hello again, This is an update to my first post. I am now 4 months post first-line chemo, and have just been given the all-clear :) :) I also found out I have...

Hello again, This is an update to my first post. I am now 4 months post first-li...

JackyYorke

•5 years ago

13 Replies

Younger Women's support group dial-in/videocall 2 October

Dear All We are changing our Younger Women's support group to include the opportunity to dial in on videocall. This is to allow more women the chance to access...

Dear All We are changing our Younger Women's support group to include the opport...

OvacomeSupport

Partner•5 years ago

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It’s back!

Well the little bugger is back. Niraparib has slowed it down and got ride of most of it, I had a feeling it was back due to aches and pains in tummy/back and...

Well the little bugger is back. Niraparib has slowed it down and got ride of mos...

Samjane

•5 years ago

17 Replies

Just to say hi

Still going strong. Don’t post much-perhaps the nature of ‘doing well’ bug of course, I know u newly diagnosed ladies need to know that treatment WORKS in so...

Still going strong. Don’t post much-perhaps the nature of ‘doing well’ bug of co...

Sherrym

•5 years ago

10 Replies

CA125 doesn't work for me

Hi, my oncologists ignore my CA125 results (to a point) as I've has a level of 65 and been clean on a PET. They have explained that this is why a diffinitve...

Hi, my oncologists ignore my CA125 results (to a point) as I've has a level of 6...

Myf_Maggy

•5 years ago

2 Replies

Surgical menopause

Hello All We've been asked to write a blog post about surgical menopause for the PositivePause website https://www.positivepause.co.uk/ . It will be a really...

Hello All We've been asked to write a blog post about surgical menopause for the...

OvacomeSupport

Partner•5 years ago

4 Replies

The Marsden

Good morning ladies. I’m interested in seeing Dr Banerjee at The Marsden. I’m very happy with the treatment I’m getting at my local hospital but just want to...

Good morning ladies. I’m interested in seeing Dr Banerjee at The Marsden. I’m ve...

sticky3006

•5 years ago

4 Replies

Port fitting tomorrow

I’m having my port fitted tomorrow and have been told that it will be sited on [my] left of chest. However is there a “best” place to have it sited-presume you...

I’m having my port fitted tomorrow and have been told that it will be sited on [...

MrsRound

•5 years ago

5 Replies

UTI question

Am dealing with third bladder infection since June. Wondering if anyone has experienced this. The pain is intense....am on cipro once again.

Am dealing with third bladder infection since June. Wondering if anyone has expe...

Husbandteal

•5 years ago

5 Replies

Chemo side affects still 3 months after finishing chemo?

Hope you ladies are doing well. My mom is roughly 2.5 months after finishing front line treatment. She brought to our attention in passing that she still has...

Hope you ladies are doing well. My mom is roughly 2.5 months after finishing fro...

Lind58

•5 years ago

5 Replies

Current Treatments

Hello everyone....for anyone interested the following is a wonderful presentation by Dr Susana Banerjee medical oncologist at the Royal Marsden. Dr Banerjee is...

Hello everyone....for anyone interested the following is a wonderful presentatio...

Hidden

•5 years ago

7 Replies

Laura and the DICE Trial - I’m In!!!

I just hope this is a good thing. The melodious voice of Melody, my research nurse, caught me in Sainsbury’s to let me know that I qualified and would be in...

I just hope this is a good thing. The melodious voice of Melody, my research nur...

Lindaura

•5 years ago

88 Replies

Caelyx and Avastin

Has anyone on this site been tread with the above combinations and how did it go? Thanks in advance. Anne

Has anyone on this site been tread with the above combinations and how did it go...

Shorty864

•5 years ago

1 Reply

DREADFUL FATIGUE

Hello all. I hope you're all doing as well as can be expected. I am suffering terribly with chemotherapy fatigue, I'm on carbo and Caelyx this time for...

Hello all. I hope you're all doing as well as can be expected. I am suffering te...

TudorJayne1509

•5 years ago

22 Replies

Celebrating

Hi Ladies Thank you all so much for all the lovely messages. This photo is of the three of us last night ( Brian myself and The Wig?!!) We had a lovely...

Hi Ladies Thank you all so much for all the lovely messages. This photo is of th...

Barmycharm

•5 years ago

38 Replies

Happy Day

Hi Lovely Ladies What a beautiful day! We are celebrating our 35th Wedding anniversary today! Going for dinner at Fenchurch 37 at the Sky Gardens. Very apt as...

Hi Lovely Ladies What a beautiful day! We are celebrating our 35th Wedding anni...

Barmycharm

•5 years ago

20 Replies

Good News!!

My CA125 has dropped 400 points after my 2nd infusion of Caelyx/Carbo. I worried when it rose after the 1st infusion and panicked it wasn't going to work for...

My CA125 has dropped 400 points after my 2nd infusion of Caelyx/Carbo. I worried...

Hidden

•5 years ago

34 Replies

DICE TRIAL

Hi everyone, I’m starting on the Dice trial in 2 weeks, so far haven’t found hardly anyone in it. If there are any of you lovely ladies on it, anyone got any...

Hi everyone, I’m starting on the Dice trial in 2 weeks, so far haven’t found har...

Elfed

•5 years ago

18 Replies

Five years on.

Hi. I was diagnosed with stage 3c ovarian cancer just over 5 years ago. I’m still undergoing chemotherapy. I just want to say how amazing the past 5 years have...

Hi. I was diagnosed with stage 3c ovarian cancer just over 5 years ago. I’m stil...

Crazycat13

•5 years ago

28 Replies

Update on PetCT scan.

My wife's PET CT scan report shows well defined soft tissue Thickening along left lateral pelvic wall abutting sigmoid colon measuring 2.6x1.6 cm. The earlier...

My wife's PET CT scan report shows well defined soft tissue Thickening along lef...

amolngp

•5 years ago

6 Replies

Carboplatin and side effects

I've recently been told, after removal of some cancerous lymph nodes, that they've finally been able to identify my cancer as high grade serous epithelial - I...

I've recently been told, after removal of some cancerous lymph nodes, that they'...

bamboo89

•5 years ago

20 Replies

Looking for groups to join

Hi I am in Ireland and I want to join a group here and help raise awareness and help other people in Ireland there isnt too much awareness so I would like to...

Hi I am in Ireland and I want to join a group here and help raise awareness and ...

Jambons

•5 years ago

2 Replies

Post surgery .........update

Well 28 months after my initial diagnosis, 26 months after my stoma creation for a bowel perforation and 2 years since my tah , I had surgery to reverse my...

Well 28 months after my initial diagnosis, 26 months after my stoma creation for...

Eriksendi

•5 years ago

28 Replies

Decisions and advice

Hi everyone, I hope you are as good as you can be.I finished by 3rd line of Chemo 5 weeks ago saw oncologist yesterday to get post Chemo scan and the...

Hi everyone, I hope you are as good as you can be.I finished by 3rd line of Ch...

dryden1

•5 years ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2019

Low Grade OC hope- Trametanib

Metastatic cervical carcinoma

Laura and the DICE Trial - Be Careful What You Wish For!

First chemo

Off to the Ovacome Health and Wellbeing Day

No phase one trial for me at the moment

All clear after first-line treatment :)

Younger Women's support group dial-in/videocall 2 October

It’s back!

Just to say hi

CA125 doesn't work for me

Surgical menopause

The Marsden

Port fitting tomorrow

UTI question

Chemo side affects still 3 months after finishing chemo?

Current Treatments

Laura and the DICE Trial - I’m In!!!

Caelyx and Avastin

DREADFUL FATIGUE

Celebrating

Happy Day

Good News!!

DICE TRIAL

Five years on.

Update on PetCT scan.

Carboplatin and side effects

Looking for groups to join

Post surgery .........update

Decisions and advice

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