Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for August 2021

Co vid booster shots

Has anyone been advised to get a Covid booster shot . I was told to sign up for one by my chemo nurse . Wondered if anyone else has been told the same thing ....

Has anyone been advised to get a Covid booster shot . I was told to sign up for ...

MOOKIE-FOX1234

•3 years ago

20 Replies

How to improve the quality of my sleep post surgery

Hello, feeling brave, second post of the evening...... I am 7 weeks in from my surgery and finding I am still not sleeping pain free and would appreciate any...

Hello, feeling brave, second post of the evening...... I am 7 weeks in from my s...

Catfeeder

•3 years ago

7 Replies

Increased hair growth, cancer or surgery symptom?

Hello all I’m 7 weeks into my surgery for ovarian cancer, removing my womb, ovaries, omentum and some lymph glands etc, I’m sure many of you can articulate it...

Hello all I’m 7 weeks into my surgery for ovarian cancer, removing my womb, ovar...

Catfeeder

•3 years ago

23 Replies

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Carbo/caelyx and hair loss

Simple question…did you loose or keep your hair on this combination of drugs? I have heard either can happen….including thinning of hair…. Thank you

Simple question…did you loose or keep your hair on this combination of drugs? I ...

Smileeveryday2021

•3 years ago

24 Replies

Vitamin C

My oncologist said we can't have antioxidant during chemo. Pharmacist said we cannot have Vitamin C supplements during chemo. I heard in Germany they alternate...

My oncologist said we can't have antioxidant during chemo. Pharmacist said we ca...

Comedy123

•3 years ago

16 Replies

Rucaparib Club

Hi ladies I’ve been on Rucaparib for 18 months with very few problems but now I have 4 weird symptoms: My chin comes up with what looks like a carpet burn or...

Hi ladies I’ve been on Rucaparib for 18 months with very few problems but now I ...

JustKBO

•3 years ago

7 Replies

Carboplatin/Gemcitabine

Hi lovely ladies. I have not left a post regarding myself for some time but I have just a simple question really. A bit of pre-amble: Last week I started day...

Hi lovely ladies. I have not left a post regarding myself for some time but I ha...

Mumsie13

•3 years ago

8 Replies

Phase 1 trials

Hi, I have advanced ovarian cancer and have became platinum resistant. I was given Niraparib but it didn’t work. I am now facing Paclitaxel and dread the...

Hi, I have advanced ovarian cancer and have became platinum resistant. I was giv...

Pippasandy

•3 years ago

23 Replies

Blood draw clotted unable to use.

Hello Ladies, I had my monthly blood draw an they couldn’t use due to blood clotted. Having blood draw again tomorrow. Have any of you Ladies had this issue?...

Hello Ladies, I had my monthly blood draw an they couldn’t use due to blood clot...

Tabor

•3 years ago

12 Replies

Research at Cardiff University

Hi everyone We have been asked by researchers at Cardiff University for your assistance with the following study, this is what they have said: "Ovarian cancer...

Hi everyone We have been asked by researchers at Cardiff University for your ass...

OvacomeSupport

Partner•3 years ago

2 Replies

Trying to save posts

I cant find posts that I saved. Im not that computer savvy either.

Panther17

•3 years ago

1 Reply

New mucinous OC diagnosis

This is my first post on here. I've recently been diagnosed as Stage 2a Grade 1 mucinous OC following optimum debulking surgery. I'm struggling to find much...

This is my first post on here. I've recently been diagnosed as Stage 2a Grade 1 ...

Gardeningartist

•3 years ago

18 Replies

Positive warrior

Hi new here. Little bit about me, diagnosed sept 2018 3c, had the normal rounds of chemo before complete hysterectomy, I consider myself lucky with the surgery...

Hi new here. Little bit about me, diagnosed sept 2018 3c, had the normal rounds ...

Mubblins

•3 years ago

26 Replies

Ca125 raised on niraparib

I spoke to the oncologist and my ca125 has had a spike it's gone up to 111 from 34. Otherwise bloods ok. Oncologist wants to see me in clinic soon and do...

I spoke to the oncologist and my ca125 has had a spike it's gone up to 111 from ...

ritabon

•3 years ago

10 Replies

Decision to make

Hello everyone, first time posting, newly diagnosed with stage1c endometriod low grade ovarian cancer and treated with surgery 6 weeks ago. I now have a...

Hello everyone, first time posting, newly diagnosed with stage1c endometriod low...

Catfeeder

•3 years ago

27 Replies

Exhaustion weeks after chemo

Hi guys this is the 1st time I have posted my mum was diagnosed in 2020 with stage 4 she's had 6 rounds of chemo and then the big op then only managed another...

Hi guys this is the 1st time I have posted my mum was diagnosed in 2020 with sta...

Dancing6060

•3 years ago

17 Replies

CT results and vacation

Hey! I am regarding news on 10.08 my mom had CT scan and results is good, some points left and some are smaller, so chemo is working! And ca 125 goes from 220...

Hey! I am regarding news on 10.08 my mom had CT scan and results is good, some p...

Inguc_is

•3 years ago

17 Replies

MY journey

SinceI was diagnosed with ovarian cancer at the age of 73 , I consider myself extremely lucky . I was in good physical shape at the time and although I was...

SinceI was diagnosed with ovarian cancer at the age of 73 , I consider myself ex...

MOOKIE-FOX1234

•3 years ago

4 Replies

New treatment after PROMT Trial

Hi everyone. After the trial was unsuccessful, I have had a few weeks of normality with no chemo. My oncologist has agreed an Oral chemo which is preferable to...

Hi everyone. After the trial was unsuccessful, I have had a few weeks of normali...

Lockygill

•3 years ago

5 Replies

Ct results show no growth on my nodules but some ascities.

Hi ladies :-) I was diagnosed stage 3b in September 2015, I have nodules in stomach and pelvis in 2018 and was put on letrozole, everything has been fine until...

Hi ladies :-) I was diagnosed stage 3b in September 2015, I have nodules in stom...

wnicola31

•3 years ago

8 Replies

Opportunity to help design future research into prehabilitation

Hi everyone This post is to share some information with you about a study between the Biomedical Research Centre at Imperial College Healthcare NHS Trust and...

Hi everyone This post is to share some information with you about a study betwee...

TheOvacomeTeam

Partner•3 years ago

2 Replies

My podcast is back!

At last I’ve managed to get back to podcasting after two months away. My beautiful cat went missing on the 29th May and has not been found. This was followed...

At last I’ve managed to get back to podcasting after two months away. My beautif...

Levanah

•3 years ago

9 Replies

Reoccurrence in Omentum

Did anybody get their partial omentum removed and then have reoccurrence in the remaining omentum? If so, what was the treatment? Was it high grade serous?...

Did anybody get their partial omentum removed and then have reoccurrence in the ...

Comedy123

•3 years ago

10 Replies

Upcoming Online Events with Ovacome

Hello all This post is to let you know about our upcoming online events. There are a variety of support groups and activities throughout next couple of weeks,...

Hello all This post is to let you know about our upcoming online events. There a...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Rucaparib

Hello ladies, I hope that you are all keeping as well as possible,and still enjoying the summer warmth. Is there anyone on here taking Rucaparib that does not...

Hello ladies, I hope that you are all keeping as well as possible,and still enjo...

Caleda4

•3 years ago

19 Replies

Milestone reached!!!

I went for bloodwork yesterday…and guess what??? I have officially met the “normal” range on my CA125!! It is now down to 32! YAY ME!! Honestly, I AM ANYTHING...

I went for bloodwork yesterday…and guess what??? I have officially met the “norm...

Rai_Nakoa

•3 years ago

38 Replies

My mother Irina

Hi all, My name is Roman and I'm from Melbourne Australia. I haven't posted much but have followed the forum since my mum being diagnosed with stage 3 high...

Hi all, My name is Roman and I'm from Melbourne Australia. I haven't posted muc...

RomanZ

•3 years ago

26 Replies

Ovarian cancer fluid around lung

Hi does anybody know if you can have tablets to get rid of fluid on lung due to ovarian cancer, mum had them drained but she thinks some fluid may be back and...

Hi does anybody know if you can have tablets to get rid of fluid on lung due to ...

Aliollie

•3 years ago

7 Replies

HRD

HRD is mentioned a lot on this forum and Im wondering if its automatically tested for or if its different at different hospitals. Its never been mentioned to...

HRD is mentioned a lot on this forum and Im wondering if its automatically teste...

rosebine

•3 years ago

14 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2021

Co vid booster shots

How to improve the quality of my sleep post surgery

Increased hair growth, cancer or surgery symptom?

Carbo/caelyx and hair loss

Vitamin C

Rucaparib Club

Carboplatin/Gemcitabine

Phase 1 trials

Blood draw clotted unable to use.

Research at Cardiff University

Trying to save posts

New mucinous OC diagnosis

Positive warrior

Ca125 raised on niraparib

Decision to make

Exhaustion weeks after chemo

CT results and vacation

MY journey

New treatment after PROMT Trial

Ct results show no growth on my nodules but some ascities.

Opportunity to help design future research into prehabilitation

My podcast is back!

Reoccurrence in Omentum

Upcoming Online Events with Ovacome

Rucaparib

Milestone reached!!!

My mother Irina

More HRD questions

Ovarian cancer fluid around lung

HRD

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