Posts - My Ovacome | HealthUnlocked

My Ovacome

17,729 members • 19,972 posts

All posts for September 2023

First recurrence

Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, Mullerian primary, Ovarian cancer. Had 6 chemo treatments and debulking surgery....

Hello everyone, In May 2022 I was diagnosed with high-grade serous carcinoma, M...

Driebergen

•7 months ago

12 Replies

Avastin following taxol/carbo

Hi , I have 1 more session of taxol/carbo left and my oncologist wants to discuss going onto avastin however, I'm not sure whether that is needed at this...

Hi , I have 1 more session of taxol/carbo left and my oncologist wants to discus...

Bendywendy1

•7 months ago

28 Replies

options after Caelyx

Hello! My mum (58) has inoperable stage IV ovarian cancer. This has been the case since she was diagnosed (they thought a hysterectomy was possible but it had...

Hello! My mum (58) has inoperable stage IV ovarian cancer. This has been the cas...

Lookingout

•7 months ago

5 Replies

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PICC line

Does anyone know how long a PICC line can safely be left in? I've had mine in since January. It irritates me every day. My treatment is hopefully going to...

Does anyone know how long a PICC line can safely be left in? I've had mine in si...

Kaitlinsmum

•7 months ago

18 Replies

Has anyone experience of weekly rather than 3 weekly chemo sessions?

I have been diagnosed with Stage 3C ovarian cancer, after finding a smallish lump in my tum in July, which is now considerably larger (20cm). A ct scan showed...

I have been diagnosed with Stage 3C ovarian cancer, after finding a smallish lum...

LovemyJackRussell

•7 months ago

11 Replies

Newly diagnosed seeking advice on surgical options

Hi, Recently diagnosed with S3 Ovarian Cancer and have been given a choice of primary debulking surgery followed by 6 rounds of chemo or interval debulking...

Hi, Recently diagnosed with S3 Ovarian Cancer and have been given a choice of ...

Bookclublover

•7 months ago

13 Replies

excited to share update...

I had the debulking surgery March end of last year and hence was asked to do PET CT scan full body by my surgical oncologist this month (since it will be 1.5...

I had the debulking surgery March end of last year and hence was asked to do PET...

Goodgirl98

•7 months ago

35 Replies

Advice for Chemo Treatment

Hey everyone, this is my first post here! I am posting in relation to my mum (who is grateful for the support and guidance on this forum and is finding it very...

Hey everyone, this is my first post here! I am posting in relation to my mum (wh...

Ripley9696

•7 months ago

15 Replies

What's happening at Ovacome next week? (week commencing 2 October 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•7 months ago

Be the first to reply

NICE draft guideline on ovarian cancer: identifying and managing familial and genetic risk - opportunity to comment

Hello All The National Institute for Health and Care Excellence (NICE) are developing guidelines for ovarian cancer: identifying and managing familial and...

Hello All The National Institute for Health and Care Excellence (NICE) are deve...

OvacomeSupport

Partner•7 months ago

7 Replies

Increasing CA125 on carbo caelyx chemo

Hi I was diagnosed Jan 2018 with HG serous ovarian CA had ultra radical debulking and carbo taxol chemo. Re-occurrence 4 years later had carbo taxol again...

Hi I was diagnosed Jan 2018 with HG serous ovarian CA had ultra radical debulkin...

Fizzgirl

•7 months ago

7 Replies

things get worse !!

feeling a bit low today , do you really feel this bad when coming up to your last chemo !! Blood clots , tummy cramps , tummy injections no energy what’s so...

feeling a bit low today , do you really feel this bad when coming up to your las...

Cazy1010

•7 months ago

15 Replies

Update

Hi Ladies, l hope you are as well as you can be! I haven't posted for some time as things have not been to great.After the chemo last July l had to have...

Hi Ladies, l hope you are as well as you can be! I haven't posted for some time ...

Lewisriley47

•7 months ago

13 Replies

3rd recurrence

Hi ladies, need advice on my mother's current situation. She's 3c high grade carcinoma ovarian cancer patient. She was diagnosed first in 2016 then 2019 then...

Hi ladies, need advice on my mother's current situation. She's 3c high grade car...

HealthyBeing

•7 months ago

4 Replies

caelyx side effects

Hello everyone, Any of you lovely ladies had side effects from caelyx? I am due to begin my 3rd line of chemo mid October which will be caelyx and wondered...

Hello everyone, Any of you lovely ladies had side effects from caelyx? I am due...

PlantPower

•7 months ago

18 Replies

Niraparib and vaccinations

Hello everyone. I’m on Niraparib 200mg a day. I’ve got a flu vaccination booked for this Saturday and a Covid vaccination booked for Monday. I’m now a bit...

Hello everyone. I’m on Niraparib 200mg a day. I’ve got a flu vaccination booked...

Hannah54

•7 months ago

6 Replies

1st Recurrence

Hello I know some chemo regimes are similar to ours in the states for the most part I have another appointment with my Onc this Friday with my concerns...

Hello I know some chemo regimes are similar to ours in the states for the most p...

Saintgermain

•7 months ago

15 Replies

What's on at Ovacome next week? (week commencing 25 September 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•7 months ago

Be the first to reply

Wound Management

Hello. I posted a while ago re my laparotomy wound breakdown and got a lot of good advice. After minimal progress I got a PICO vacuum dressing - a lot of...

Hello. I posted a while ago re my laparotomy wound breakdown and got a lot of ...

Motiva

•7 months ago

8 Replies

Blood Transfusion day after Chemo

Hi allI've had many units of blood over the years during my chemo, but I'm having a unit of blood today and my chemo was only yesterday. I know this might...

Hi allI've had many units of blood over the years during my chemo, but I'm havin...

Kouyate

•7 months ago

5 Replies

simple ovarian cyst and cystic echotecture of the endometrium

hi had a ultrasound on my abdomen in November 22 as had a a lot of pain in belly and low pelvic area, also blood wiped from bowel end, also had bloating &...

hi had a ultrasound on my abdomen in November 22 as had a a lot of pain in bell...

Nat107

•7 months ago

10 Replies

Change in low grade diagnosis -to high grade ovarian carcino sarcoma?

Hi everyone, I am hoping for some advice. I am 47 years old and am nearly 4 weeks post cyto-reductive surgery for stage 3C ovarian cancer - biopsy prior to...

Hi everyone, I am hoping for some advice. I am 47 years old and am nearly 4 we...

Happyhome24

•7 months ago

32 Replies

Hot flushes help

Hi teal ladies, struggling with hot flushes keeping me awake most of the night. Has anyone found a useful supplement not contraindicated for us teal ladies? I...

Hi teal ladies, struggling with hot flushes keeping me awake most of the night. ...

Jholly4

•7 months ago

8 Replies

ERX-41

Hi, You may have read of heard about this new treatment for solid cancerous tumors? Well if not, it's well worth while having a read about it. There are at...

Hi, You may have read of heard about this new treatment for solid cancerous tumo...

Hidden

•7 months ago

3 Replies

Recurrence Treatment Experience

Hello Teal Sisters, I was 22 months NED Endometroid 3B luckily the CA125 is a good indicator for me after several tests and biopsies my Oncologist determined...

Hello Teal Sisters, I was 22 months NED Endometroid 3B luckily the CA125 is a g...

Saintgermain

•7 months ago

37 Replies

South Bucks Hospice Concert

Morning All - I am posting details of a concert I am organising for South Bucks Hospice UK which does incredible work for anyone with a cancer diagnosis and...

Morning All - I am posting details of a concert I am organising for South Bucks ...

Shan67

•7 months ago

3 Replies

one step forward 2 back

Had my CT scan before my 6th chemo , getting ready to go home and had to go to another ward for blood test ?? Turns out I have a small blood clot on my lung ,...

Had my CT scan before my 6th chemo , getting ready to go home and had to go to a...

Cazy1010

•7 months ago

8 Replies

Cancer Vaccine

Hi, Always on the lookout for cancer vaccine updates any comments? Thanks. Rita44

Hi, Always on the lookout for cancer vaccine updates any comments? Thanks. Rita...

Hidden

•7 months ago

7 Replies

Radiotherapy for pelvic lymph node

Hi all hope you're doing as well s can be! Just wanted to know if anyone has had radiotherapy for pelvic lymph node. I've just had radiotherapy for...

Hi all hope you're doing as well s can be! Just wanted to know if anyone has had...

win_56

•7 months ago

10 Replies

Niraparib - More than once ?

Morning everyone I was given Niraparib in 2020 when first diagnosed and lucky enough to achieve 11 months before 1st reoccurrence, I’ve since had further...

Morning everyone I was given Niraparib in 2020 when first diagnosed and lucky ...

Flute_7

•8 months ago

18 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for September 2023

First recurrence

Avastin following taxol/carbo

options after Caelyx

PICC line

Has anyone experience of weekly rather than 3 weekly chemo sessions?

Newly diagnosed seeking advice on surgical options

excited to share update...

Advice for Chemo Treatment

What's happening at Ovacome next week? (week commencing 2 October 2023)

NICE draft guideline on ovarian cancer: identifying and managing familial and genetic risk - opportunity to comment

Increasing CA125 on carbo caelyx chemo

things get worse !!

Update

3rd recurrence

caelyx side effects

Niraparib and vaccinations

1st Recurrence

What's on at Ovacome next week? (week commencing 25 September 2023)

Wound Management

Blood Transfusion day after Chemo

simple ovarian cyst and cystic echotecture of the endometrium

Change in low grade diagnosis -to high grade ovarian carcino sarcoma?

Hot flushes help

ERX-41

Recurrence Treatment Experience

South Bucks Hospice Concert

one step forward 2 back

Cancer Vaccine

Radiotherapy for pelvic lymph node

Niraparib - More than once ?

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