Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,951 posts

All posts for February 2021

Side effects of Olaparib, exhaustion and weakness.

Hi, I started Olaparib 300mgs twice daily in October 2020. About 6 weeks later I became very weak and exhausted and spoke to my Onc team about it. The Olaparib...

Hi, I started Olaparib 300mgs twice daily in October 2020. About 6 weeks later I...

Rhonddalady

•3 years ago

9 Replies

How long can you live with inoperable OV cancer?

How do you get a prognosis when ovarian cancer is inoperable? Diagnosed ovarian cancer stage four high grade. Started treatment September, carbo/taxol, in hope...

How do you get a prognosis when ovarian cancer is inoperable? Diagnosed ovarian ...

Cumbrianlass5

•3 years ago

32 Replies

Short of breath again

I was recently in hospital for 5 days, very short of breath on admission. For the last few days, I've been short of breath again. One of our GPs came out to...

I was recently in hospital for 5 days, very short of breath on admission. For t...

Di16

•3 years ago

7 Replies

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Regarding Olaparib

I have been on Olaparib for last two months and I feel nauseated most of the time and there’s some weird taste in my mouth. Is it normal ? I am also gaining...

I have been on Olaparib for last two months and I feel nauseated most of the ti...

Laikaa

•3 years ago

5 Replies

Possible Ovarian cancer.

Hi I’m 30 years old. For serval years I’ve had excruciating pelvic pain to the right and various trips to a&e to be given pain relief and sent on my way....

Hi I’m 30 years old. For serval years I’ve had excruciating pelvic pain to the ...

PB22

•3 years ago

8 Replies

Looking for advice

Hello. I don’t have a diagnosis as of yet, but I thought someone here might be able to let me know if I’m on the right track with the tests that are being done...

Hello. I don’t have a diagnosis as of yet, but I thought someone here might be a...

BB721

•3 years ago

22 Replies

Biopsy

Biopsy’s Monday nerves are gone as they have said oc and extensive disease I just pry treatment can be had thanks for listening xx

Biopsy’s Monday nerves are gone as they have said oc and extensive disease I ju...

polo2014

•3 years ago

4 Replies

If you are a hospital in patient

do you have to wear a mask while you are in ?

rosebine

•3 years ago

8 Replies

Had my first chemo ❤️

Hiya lovely ladies I had my first chemo yesterday for OC a Taxol Carboplatin one. With the great advice from this great community it went really well so many...

Hiya lovely ladies I had my first chemo yesterday for OC a Taxol Carboplatin one...

Heart12345

•3 years ago

21 Replies

Chemo

Morning ladies feel a bit thick asking this but how do they administer chemo and are you at hospital all day

Morning ladies feel a bit thick asking this but how do they administer chemo and...

polo2014

•3 years ago

12 Replies

Outcome

Hi guys I went in and had surgery mon I am high grade serous stage 3c I was very nervous especially about having a stoma bag my gynecologist oncologist came...

Hi guys I went in and had surgery mon I am high grade serous stage 3c I was ver...

Clifden1

•3 years ago

7 Replies

Picc line

Sorry to ask again but can anyone tell me where I can get a waterproof sleeve for covering my newly installed picc line please?

Sorry to ask again but can anyone tell me where I can get a waterproof sleeve fo...

Lockygill

•3 years ago

10 Replies

Recordings of previous Ovacome online events

Hello, everyone You can watch the recordings of some of our previous webinars at https://www.ovacome.org.uk/webinar-recordings The available recordings are:...

Hello, everyone You can watch the recordings of some of our previous webinars at...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Rubraca

Well, today's the day I start rubraca! After the fuss I made, everything had to be done in a rudh, but we got here. I have got appointments for blood tests,...

Well, today's the day I start rubraca! After the fuss I made, everything had to ...

27-359

•3 years ago

12 Replies

Mummawoodsy

Hi everyone - I have just joined today as this was recommended to me by a stranger and I’m in need of finding fellow souls who can relate to my situation ....

Hi everyone - I have just joined today as this was recommended to me by a strang...

Mummawoodsy

•3 years ago

16 Replies

Caelyx experiences of it. Covid vaccine question too.

Hi, my Mum was diagnosed with OC May 2019, After Carbo taxol (which left her poorly and hospitalized a couple of times). Her CA125 levels have steadily risen,...

Hi, my Mum was diagnosed with OC May 2019, After Carbo taxol (which left her poo...

LittleMissMerit

•3 years ago

7 Replies

In focus: approaches to symptom management - sleep

This month in our Health in Focus posts, we’re looking at some of the different approaches to management of cancer symptoms and side effects of treatment....

This month in our Health in Focus posts, we’re looking at some of the different ...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Disease progression & anaemia

I posted last week that I had been in hospital for treatment of severe shortness of breath. I feel better now than I did then, though I still easily get short...

I posted last week that I had been in hospital for treatment of severe shortness...

Di16

•3 years ago

6 Replies

How can I buy Olaparib? There is none in Turkey

Hi, please help. My friend needs to use Olaparib in Turkey for her secondary ovarian cancer and she is BRAC positive.

Hi, please help. My friend needs to use Olaparib in Turkey for her secondary ova...

Ranayap

•3 years ago

7 Replies

Ca125

Morning everyone can someone tell me what this blood test ca125 is plz x

polo2014

•3 years ago

4 Replies

Parastomal hernia

Im doing a lot of reading about stomas and hernias comes up a lot. Ive not seen it mentioned in any posts on here. Is this another thing to be very aware of...

Im doing a lot of reading about stomas and hernias comes up a lot. Ive not see...

rosebine

•3 years ago

8 Replies

Ovarian Cancer Awareness Month 2021

Hello As you may know, March is ovarian cancer awareness month. Are you able to help us ensure that no one needs to face ovarian cancer alone, and raise vital...

Hello As you may know, March is ovarian cancer awareness month. Are you able to ...

TheOvacomeTeam

Partner•3 years ago

Be the first to reply

ca125

Good morning ❤️ My mum had ppc grade 3c diagnosed jan 2019... her ca125 was 5 after hysterectomy... on monday it was “4” relief... feel we go from every 12...

Good morning ❤️ My mum had ppc grade 3c diagnosed jan 2019... her ca125 was 5 af...

claireRoberts76

•3 years ago

9 Replies

Skin and haircare following full hysterectomy

Anyone have any suggestions for products to use for good hair and skin following full hysterectomy?

Anyone have any suggestions for products to use for good hair and skin following...

Piglet19

•3 years ago

4 Replies

Getting Rubraca

After a bit of a tussle, it looks like I will be getting Rubraca later this week, just within the eight week limit! I am really concerned that the side effects...

After a bit of a tussle, it looks like I will be getting Rubraca later this week...

27-359

•3 years ago

21 Replies

Covid Vaccine & CA125

Hello ladies - just wondering if anyone had any experience of how or if the Covid vaccine might affect CA125 readings? I had my first jab 2 weeks ago and my...

Hello ladies - just wondering if anyone had any experience of how or if the Covi...

YDLSmyth

•3 years ago

9 Replies

Online groups, talks and workshops with Ovacome this week

Hello All This is to let you know about the Ovacome online events taking place this week. Gentle home exercise class - Tuesday 23 February, 2-3pm...

Hello All This is to let you know about the Ovacome online events taking place ...

OvacomeSupport

Partner•3 years ago

Be the first to reply

Big thanks

Thank you all for your reasuring and up beat replies. Looking forward to connecting with this group as my treatment progresses. X

Thank you all for your reasuring and up beat replies. Looking forward to connect...

suzannebirch

•3 years ago

1 Reply

Swollen stomach

My stomach is very swollen is there anything I should do

polo2014

•3 years ago

4 Replies

Anyone had ileostomy

Thank this may be the one I will end up with rather than colonoscopy. Am reading that its more difficult to live with, anyone any experience?

Thank this may be the one I will end up with rather than colonoscopy. Am reading...

rosebine

•3 years ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for February 2021

Side effects of Olaparib, exhaustion and weakness.

How long can you live with inoperable OV cancer?

Short of breath again

Regarding Olaparib

Possible Ovarian cancer.

Looking for advice

Biopsy

If you are a hospital in patient

Had my first chemo ❤️

Chemo

Outcome

Picc line

Recordings of previous Ovacome online events

Rubraca

Mummawoodsy

Caelyx experiences of it. Covid vaccine question too.

In focus: approaches to symptom management - sleep

Disease progression & anaemia

How can I buy Olaparib? There is none in Turkey

Ca125

Parastomal hernia

Ovarian Cancer Awareness Month 2021

ca125

Skin and haircare following full hysterectomy

Getting Rubraca

Covid Vaccine & CA125

Online groups, talks and workshops with Ovacome this week

Big thanks

Swollen stomach

Anyone had ileostomy

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