Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for October 2023

Surrey and Sussex Cancer Alliance - patient forum

Hello All We have been contacted by Surrey and Sussex Cancer Alliance to ask if any patients would be interested in joining their forum? They said:...

Hello All We have been contacted by Surrey and Sussex Cancer Alliance to ask if...

OvacomeSupport

Partner•1 year ago

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suspected blocked bowel

I’ve had oc hysterectomy debunking chemo Now on a maintence drug Taken into hospital last week due to pain and been sick Took scans said it was due to scar...

I’ve had oc hysterectomy debunking chemo Now on a maintence drug Taken into hosp...

Curry55

•1 year ago

11 Replies

2nd time hair loss

Hi ladies, I have had 6 chemo and op now. Lost my hair after 1st chemo. Now they have all grown back but had another chemo last week and one more in two weeks...

Hi ladies, I have had 6 chemo and op now. Lost my hair after 1st chemo. Now the...

Gonewith

•1 year ago

12 Replies

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debulking op

Hi all. Further update (I have posted this on my earlier thread, so please forgive duplicate. I wasn’t sure if it could be seen, so I’ve started agsin) I...

Hi all. Further update (I have posted this on my earlier thread, so please forg...

Beaver54

•1 year ago

16 Replies

Ovacome's Festive Raffle - Now Live ✨🎁

🎁✨ Get ready to win big and make a real difference ✨🎁 Ovacome’s Festive Raffle is now LIVE 🎅🎉 Lean into the spirit of giving and add a little extra...

🎁✨ Get ready to win big and make a real difference ✨🎁 Ovacome’s Festive Ra...

TheOvacomeTeam

Partner•1 year ago

1 Reply

Hair Thinning on Lynparza

Hi lovely ladies, I’m due to stop taking Lynparza in 3 months, I’ll have completed two years. These last six months or so my hair has thinned considerably,...

Hi lovely ladies, I’m due to stop taking Lynparza in 3 months, I’ll have comple...

Whybirdie

•1 year ago

12 Replies

Question about possible bone mets in spine - so worried

I wrote here in June about having a recurrence after being 6 years in remission. My CA-125 was close to 6000 and I had extensive disease to the peritoneum....

I wrote here in June about having a recurrence after being 6 years in remission....

Chanterelle

•1 year ago

21 Replies

Gem / Carbo

Hi Ladies I hope you are all as well as can be. I had my day 1 cycle 2 of gem carbo yesterday after missing 3 lots because of pneumonia. My bloods had read...

Hi Ladies I hope you are all as well as can be. I had my day 1 cycle 2 of gem ...

Barmycharm

•1 year ago

13 Replies

Ovacome season's greeting cards

Hello All It's the time of year when you may want to consider ordering in your Season’s Greetings cards. Ovacome has nine gorgeous designs available at...

Hello All It's the time of year when you may want to consider ordering in you...

TheOvacomeTeam

Partner•1 year ago

1 Reply

deflated

Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was...

Hi all, I posted on here little while ago about my mum having total abdo hyster...

Kerri1402

•1 year ago

7 Replies

Coming off Olaparib

Hi all. I'm in a bit of a tailspin as I may need to stop taking Olaparib due to breathlessness side effect. It's taken me back to all those worries about...

Hi all. I'm in a bit of a tailspin as I may need to stop taking Olaparib due to...

Demelzatheseagull

•1 year ago

8 Replies

Ovacare Patient Day Belfast 2 December 2023

Hello All Ovacare ovarian cancer community have asked us to share details of a meet-up they are running. The details are as follows: Saturday 2nd December,...

Hello All Ovacare ovarian cancer community have asked us to share details of a ...

OvacomeSupport

Partner•1 year ago

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eye brow micro blading

I’ve had surgery chemo now on a maintenance. drug I want to get my eyebrows done what’s your thoughts

I’ve had surgery chemo now on a maintenance. drug I want to get my eyebrows done...

Curry55

•1 year ago

6 Replies

What's on at Ovacome next week? (week commencing 31 October 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•1 year ago

2 Replies

Elahere (mirvetuximab soravtansine What's happening re trial UK?

Ovacome team please can you advise where the U K are are re the elahere trials for platinum resistant patients. It appears to be approved in the U S this year...

Ovacome team please can you advise where the U K are are re the elahere trials f...

win_56

•1 year ago

8 Replies

NEW workshops - Live Music for Relaxation

Good morning all, You are warmly invited to join Ovacome and Black Train Music for a session of Alpha Music for relaxation. Alpha Music is using music to...

Good morning all, You are warmly invited to join Ovacome and Black Train Music ...

OvacomeSupport

Partner•1 year ago

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Anyone somatic BRCA mutation in tumour?

Hi all, I’m wondering if anyone had their tumour tested positive for BRCA1/2 mutation, but your genetic test (via blood/saliva) tested negative? And if so,...

Hi all, I’m wondering if anyone had their tumour tested positive for BRCA1/2 mu...

ruthg55

•1 year ago

21 Replies

hair product

Hi all, I read on here some time ago a product recommendation to help with hair re growth, but I can’t remember or find it now. Anyone help me out please?...

Hi all, I read on here some time ago a product recommendation to help with hai...

Beaver54

•1 year ago

12 Replies

2nd Recurrence - treatment options

Hi everyone I am afraid it is back....4 months after second line treatment which means I am now platinum resistant. CA marker tripped (mine very sensitive)....

Hi everyone I am afraid it is back....4 months after second line treatment whic...

Itha

•1 year ago

17 Replies

ZENTALIS

Has anyone heard of this company and the trials they have held for stage 4 platinum resistant Ovarian cancer When I looked them up it seemed promising but...

Has anyone heard of this company and the trials they have held for stage 4 plati...

Summergold2

•1 year ago

11 Replies

Gynae Appointment

Hello Ladies, Met with my Gynae this morning. Next step on my awful journey. I am booked in to get a full hysterectomy & omentem removed. A week in hospital....

Hello Ladies, Met with my Gynae this morning. Next step on my awful journey. I a...

Pixiepurple

•1 year ago

30 Replies

Autumn message from Ovacome 🍂 🍁 🧡

Good morning everyone It’s the fundraising of our wonderful community that makes Ovacome's life-changing services and events available to anyone affected by...

Good morning everyone It’s the fundraising of our wonderful community that make...

TheOvacomeTeam

Partner•1 year ago

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Elevated C125

Hello all, I recently had a test that showed elevated C125 in the womb area. I believe it is raised to 76. I was told that this could be an indicator of...

Hello all, I recently had a test that showed elevated C125 in the womb area. I...

Tajinder1

•1 year ago

14 Replies

parp for hrd positive?

hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years....

hi ladies, I hope you all are doing well and as always I would like to thank e...

Lind58

•1 year ago

9 Replies

Survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K.

Good morning everyone This post is to let you know about a survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K. ...

Good morning everyone This post is to let you know about a survey to understand...

OvacomeSupport

Partner•1 year ago

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What's on at Ovacome next week? (week commencing 23 October 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

OvacomeSupport

Partner•1 year ago

Be the first to reply

coping with bowel spasms after chemo

Had my last chemo last Wednesday afternoon, no 5 I had bad bowel cramps that lasted a few days but this 6th chemo has floored me , out of hours doctors on...

Had my last chemo last Wednesday afternoon, no 5 I had bad bowel cramps that las...

Cazy1010

•1 year ago

7 Replies

Recap and update

hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was not attempted due to significant disease remaining in mesentry. I’ve had 6 rounds...

hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was no...

Beaver54

•1 year ago

36 Replies

You are an inspiration!

Congratulations! My journey was nowhere near as challenging but I recently celebrated 35 years free from ovarian mucinous cystadenocarcinoma. So, so grateful...

Congratulations! My journey was nowhere near as challenging but I recently celeb...

Marieloiuse

•1 year ago

10 Replies

Ovacome Season's Greetings Cards now on sale

Good morning everyone Now that autumn’s underway, you may want to consider ordering in your Season’s Greetings cards! Ovacome has 9 gorgeous designs available...

Good morning everyone Now that autumn’s underway, you may want to consider orde...

TheOvacomeTeam

Partner•1 year ago

Be the first to reply

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2023

Surrey and Sussex Cancer Alliance - patient forum

suspected blocked bowel

2nd time hair loss

debulking op

Ovacome's Festive Raffle - Now Live ✨🎁

Hair Thinning on Lynparza

Question about possible bone mets in spine - so worried

Gem / Carbo

Ovacome season's greeting cards

deflated

Coming off Olaparib

Ovacare Patient Day Belfast 2 December 2023

eye brow micro blading

What's on at Ovacome next week? (week commencing 31 October 2023)

Elahere (mirvetuximab soravtansine What's happening re trial UK?

NEW workshops - Live Music for Relaxation

Anyone somatic BRCA mutation in tumour?

hair product

2nd Recurrence - treatment options

ZENTALIS

Gynae Appointment

Autumn message from Ovacome 🍂 🍁 🧡

Elevated C125

parp for hrd positive?

Survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K.

What's on at Ovacome next week? (week commencing 23 October 2023)

coping with bowel spasms after chemo

Recap and update

You are an inspiration!

Ovacome Season's Greetings Cards now on sale

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