Posts - My Ovacome | HealthUnlocked

Partner•6 months ago

I’ve had oc hysterectomy debunking chemo Now on a maintence drug Taken into hospital last week due to pain and been sick Took scans said it was due to scar...

suspected blocked bowel

I’ve had oc hysterectomy debunking chemo Now on a maintence drug Taken into hosp...

Curry55

•6 months ago

11 Replies

2nd time hair loss

Hi ladies, I have had 6 chemo and op now. Lost my hair after 1st chemo. Now they have all grown back but had another chemo last week and one more in two weeks...

Hi ladies, I have had 6 chemo and op now. Lost my hair after 1st chemo. Now the...

Gonewith

•6 months ago

12 Replies

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debulking op

Hi all. Further update (I have posted this on my earlier thread, so please forgive duplicate. I wasn’t sure if it could be seen, so I’ve started agsin) I...

Hi all. Further update (I have posted this on my earlier thread, so please forg...

Beaver54

•6 months ago

16 Replies

Ovacome's Festive Raffle - Now Live ✨🎁

🎁✨ Get ready to win big and make a real difference ✨🎁 Ovacome’s Festive Raffle is now LIVE 🎅🎉 Lean into the spirit of giving and add a little extra...

🎁✨ Get ready to win big and make a real difference ✨🎁 Ovacome’s Festive Ra...

Hi lovely ladies, I’m due to stop taking Lynparza in 3 months, I’ll have completed two years. These last six months or so my hair has thinned considerably,...

Partner•6 months ago

1 Reply

Hair Thinning on Lynparza

Hi lovely ladies, I’m due to stop taking Lynparza in 3 months, I’ll have comple...

Whybirdie

•6 months ago

11 Replies

Question about possible bone mets in spine - so worried

I wrote here in June about having a recurrence after being 6 years in remission. My CA-125 was close to 6000 and I had extensive disease to the peritoneum....

I wrote here in June about having a recurrence after being 6 years in remission....

Chanterelle

•6 months ago

21 Replies

Gem / Carbo

Hi Ladies I hope you are all as well as can be. I had my day 1 cycle 2 of gem carbo yesterday after missing 3 lots because of pneumonia. My bloods had read...

Hi Ladies I hope you are all as well as can be. I had my day 1 cycle 2 of gem ...

Barmycharm

•6 months ago

13 Replies

Ovacome season's greeting cards

Hello All It's the time of year when you may want to consider ordering in your Season’s Greetings cards. Ovacome has nine gorgeous designs available at...

Hello All It's the time of year when you may want to consider ordering in you...

Hi all, I posted on here little while ago about my mum having total abdo hysterectomy for ovarian cancer. We are now 3 weeks on from surgery. a 10cm cyst was...

Partner•6 months ago

1 Reply

deflated

Hi all, I posted on here little while ago about my mum having total abdo hyster...

Kerri1402

•6 months ago

7 Replies

Coming off Olaparib

Hi all. I'm in a bit of a tailspin as I may need to stop taking Olaparib due to breathlessness side effect. It's taken me back to all those worries about...

Hi all. I'm in a bit of a tailspin as I may need to stop taking Olaparib due to...

Demelzatheseagull

•6 months ago

8 Replies

Ovacare Patient Day Belfast 2 December 2023

Hello All Ovacare ovarian cancer community have asked us to share details of a meet-up they are running. The details are as follows: Saturday 2nd December,...

Hello All Ovacare ovarian cancer community have asked us to share details of a ...

Partner•6 months ago

I’ve had surgery chemo now on a maintenance. drug I want to get my eyebrows done what’s your thoughts

eye brow micro blading

I’ve had surgery chemo now on a maintenance. drug I want to get my eyebrows done...

Curry55

•6 months ago

6 Replies

What's on at Ovacome next week? (week commencing 31 October 2023)

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good afternoon everyone This is our weekly post to let you know about the diffe...

Ovacome team please can you advise where the U K are are re the elahere trials for platinum resistant patients. It appears to be approved in the U S this year...

Partner•6 months ago

2 Replies

Elahere (mirvetuximab soravtansine What's happening re trial UK?

Ovacome team please can you advise where the U K are are re the elahere trials f...

win_56

•6 months ago

8 Replies

NEW workshops - Live Music for Relaxation

Good morning all, You are warmly invited to join Ovacome and Black Train Music for a session of Alpha Music for relaxation. Alpha Music is using music to...

Good morning all, You are warmly invited to join Ovacome and Black Train Music ...

Partner•6 months ago

Hi all, I’m wondering if anyone had their tumour tested positive for BRCA1/2 mutation, but your genetic test (via blood/saliva) tested negative? And if so,...

Anyone somatic BRCA mutation in tumour?

Hi all, I’m wondering if anyone had their tumour tested positive for BRCA1/2 mu...

ruthg55

•6 months ago

21 Replies

hair product

Hi all, I read on here some time ago a product recommendation to help with hair re growth, but I can’t remember or find it now. Anyone help me out please?...

Hi all, I read on here some time ago a product recommendation to help with hai...

Beaver54

•6 months ago

12 Replies

2nd Recurrence - treatment options

Hi everyone I am afraid it is back....4 months after second line treatment which means I am now platinum resistant. CA marker tripped (mine very sensitive)....

Hi everyone I am afraid it is back....4 months after second line treatment whic...

Itha

•6 months ago

17 Replies

ZENTALIS

Has anyone heard of this company and the trials they have held for stage 4 platinum resistant Ovarian cancer When I looked them up it seemed promising but...

Has anyone heard of this company and the trials they have held for stage 4 plati...

Summergold2

•6 months ago

11 Replies

Gynae Appointment

Hello Ladies, Met with my Gynae this morning. Next step on my awful journey. I am booked in to get a full hysterectomy & omentem removed. A week in hospital....

Hello Ladies, Met with my Gynae this morning. Next step on my awful journey. I a...

Pixiepurple

•6 months ago

30 Replies

Autumn message from Ovacome 🍂 🍁 🧡

Good morning everyone It’s the fundraising of our wonderful community that makes Ovacome's life-changing services and events available to anyone affected by...

Good morning everyone It’s the fundraising of our wonderful community that make...

Partner•6 months ago

Hello all, I recently had a test that showed elevated C125 in the womb area. I believe it is raised to 76. I was told that this could be an indicator of...

Elevated C125

Hello all, I recently had a test that showed elevated C125 in the womb area. I...

Tajinder1

•6 months ago

14 Replies

parp for hrd positive?

hi ladies, I hope you all are doing well and as always I would like to thank everyone in this group for their great continued support throughout the years....

hi ladies, I hope you all are doing well and as always I would like to thank e...

Lind58

•6 months ago

9 Replies

Survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K.

Good morning everyone This post is to let you know about a survey to understand experiences of inhibin testing for granulosa cell tumours in the U.K. ...

Good morning everyone This post is to let you know about a survey to understand...

Partner•6 months ago

Good afternoon everyone This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

What's on at Ovacome next week? (week commencing 23 October 2023)

Good afternoon everyone This is our weekly post to let you know about the diffe...

Partner•6 months ago

Had my last chemo last Wednesday afternoon, no 5 I had bad bowel cramps that lasted a few days but this 6th chemo has floored me , out of hours doctors on...

coping with bowel spasms after chemo

Had my last chemo last Wednesday afternoon, no 5 I had bad bowel cramps that las...

Cazy1010

•6 months ago

7 Replies

Recap and update

hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was not attempted due to significant disease remaining in mesentry. I’ve had 6 rounds...

hi, Well today I had my scan results. Just to recap, I’m stage 4 snd IDS was no...

Beaver54

•6 months ago

36 Replies

You are an inspiration!

Congratulations! My journey was nowhere near as challenging but I recently celebrated 35 years free from ovarian mucinous cystadenocarcinoma. So, so grateful...

Congratulations! My journey was nowhere near as challenging but I recently celeb...

Marieloiuse

•6 months ago

10 Replies

Ovacome Season's Greetings Cards now on sale

Good morning everyone Now that autumn’s underway, you may want to consider ordering in your Season’s Greetings cards! Ovacome has 9 gorgeous designs available...

Good morning everyone Now that autumn’s underway, you may want to consider orde...

Partner•6 months ago