Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for June 2024

Avastin V Niraparib-clear cell cancer

Morning all Still got my head in the clouds after finding out I have no evidence of disease this week after 1st line treatment for stage 4 clear cell! 😊 Had a...

Morning all Still got my head in the clouds after finding out I have no evidence...

Kazzh

•6 months ago

22 Replies

cisplatin

Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from Carboplatin. My oncologist told me he will replace Carboplatin with Cisplarin...

Hi, I was on Carboplatin, Avastin and Zem, but I got an allergic reaction from...

Green999

•6 months ago

6 Replies

MRI results came back. Do you think I will need surgery?

So my MRI results came back today. This is after a CT and ultrasound couldnt really tell what it was. The results came back as the pedunculated fibroid, which...

So my MRI results came back today. This is after a CT and ultrasound couldnt rea...

starrynight5626

•6 months ago

3 Replies

Want to take advantage of all our features? Just log in!

has anyone done laparoscopic for removing tumor partly in the pancreas tail and stomach?

I was told that I needed a surgery instead of laparoscopic because of the sensitive location of my 3.1 cm tumor. It’s actually in my pancreas tail and part of...

I was told that I needed a surgery instead of laparoscopic because of the sensi...

marmay88o

•6 months ago

3 Replies

Wondering what to do

Hello I have not posted for a while but I wondered if any had any thoughts to help me with my dilemma. I have had 18 rounds of chemo and rucaparib all of which...

Hello I have not posted for a while but I wondered if any had any thoughts to he...

BadgerBright

•6 months ago

14 Replies

What's on at Ovacome next week? (week starting Monday 1 July 2024)

Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next......

Good afternoon everyone, This is our weekly post to let you know about the di...

OvacomeSupport

Partner•6 months ago

1 Reply

laparoscopy

Anyone have experience laparoscopy to remove mass on one ovary, removal of one ovary and Fallopian tube. Would like to know if you had this surgery and how you...

Anyone have experience laparoscopy to remove mass on one ovary, removal of one o...

Ova104

•6 months ago

36 Replies

Low platelets advice

Hi all, Mum has just had her 4th cycle of chemo but her platelets have been at their lowest so far and a little concerned. Chemo was delayed by almost a week...

Hi all, Mum has just had her 4th cycle of chemo but her platelets have been at...

Fourbytwo93

•6 months ago

11 Replies

Tomorrow is finally the day of my MRI after waiting 3 1/2 months since the ultrasound and CT scan couldn't be sure of a mass or not.

After having to postpone my original MRI appt last month due to the death of my mother, I am finally getting it done tomorrow. Those who haven't read my...

After having to postpone my original MRI appt last month due to the death of my ...

starrynight5626

•6 months ago

6 Replies

Best news today!......🙌

So happy & relieved to hear the news I've been waiting for today - I'm NED, no evidence of disease 👏 This stage 4 clear cell cancer, often resistant to chemo,...

So happy & relieved to hear the news I've been waiting for today - I'm NED, no e...

Kazzh

•6 months ago

62 Replies

Consider the options?

Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate paclitaxel) and now on Avastin i/v and Olaparib. CA 9, which is fantastic. Side...

Post total hysterectomy, etc., one cycle of carboplatin (couldn't tolerate pacli...

Pawpaw22

•6 months ago

11 Replies

Gynaecological cancers support service - Hereford

Dear all, We have been in touch with a local support service for anyone affected by gynaecological cancers, which takes place in Hereford. Yeleni Support and...

Dear all, We have been in touch with a local support service for anyone affecte...

OvacomeSupport

Partner•6 months ago

Be the first to reply

Travel insurance

I am finally in a position to go abroad after 18 since my diagnosis. I’m halfway through my chemo after a reoccurrence. Can anyone recommend a good insurance...

I am finally in a position to go abroad after 18 since my diagnosis. I’m halfway...

Tallulah55

•6 months ago

18 Replies

not sure what’s going on

hi. I’m Jennie. Hope it’s ok to post here as I’ve not been diagnosed yet. I’ve been to my GP about 12 times over the last 5 months. Also been to aA&E several...

hi. I’m Jennie. Hope it’s ok to post here as I’ve not been diagnosed yet. I’ve ...

MillieEllie

•6 months ago

46 Replies

Last chance to sign up! Birmingham Health and Wellbeing Day - 29th June

Good morning all, Please sign up as soon as possible if you would like to join our Health and Wellbeing Day next Saturday 29th June at The Genting Hotel,...

Good morning all, Please sign up as soon as possible if you would like to join ...

OvacomeSupport

Partner•6 months ago

Be the first to reply

Hernia surgery

Hi lovely ladies hope you're enjoying the sun ☀️. I'm having hernia surgery soon and just wondered If anyone has any experience of this. Recovery time etc. I...

Hi lovely ladies hope you're enjoying the sun ☀️. I'm having hernia surgery soon...

verityann

•6 months ago

9 Replies

raise ca125

hey , I had the ca125 blood tests and results came back at 57. Have my scan tomorrow. I am a mum of 3 young children and I’m terrified that it will be...

hey , I had the ca125 blood tests and results came back at 57. Have my scan to...

Hidden

•6 months ago

6 Replies

ovarian cysts

Hi everyone. I’m new here and hope it’s ok to post my particular circumstances to see if anyone here has any advice or insights they can share? I am 54...

Hi everyone. I’m new here and hope it’s ok to post my particular circumstances t...

daintees

•6 months ago

3 Replies

Bone Marrow

Hi everyone. I am seeking your helpful advice once again. My daughter was diagnosed with High Serous Grade 3 Ovarian Cancer in June 2023 with full...

Hi everyone. I am seeking your helpful advice once again. My daughter was diag...

BrandyHorse

•6 months ago

5 Replies

What's on at Ovacome next week? (week starting Monday 24 June 2024)

Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next......

Good afternoon everyone, This is our weekly post to let you know about the di...

OvacomeSupport

Partner•6 months ago

Be the first to reply

Ascites issues

I have recently been diagnosed with stage 4b womb cancer spread to ovaries and abdomen. My worst symptoms have come from ascites. I have had 2 chemo cycles...

I have recently been diagnosed with stage 4b womb cancer spread to ovaries and a...

Pinkranger1

•6 months ago

4 Replies

Anyone used tamoxifen for recurrence of ovarian cancer?

Hi dear ladies, I had CA125 check after 2,5 months and it jumped from 12 to 88 (since debulking surgery in April 2023, it was max 8). I had some minor...

Hi dear ladies, I had CA125 check after 2,5 months and it jumped from 12 to 8...

Beatyourself

•6 months ago

22 Replies

Hello Lyndy. How are you ?

just wondering how you are getting on Lyndy. I haven’t seen a post for a while.

just wondering how you are getting on Lyndy. I haven’t seen a post for a while. ...

JustKBO

•6 months ago

27 Replies

Do you live in rural Scotland?

Good morning everyone, Ovacome are looking at improving the understanding of signs and symptoms of ovarian cancer in rural communities. We are looking at...

Good morning everyone, Ovacome are looking at improving the understanding of si...

OvacomeSupport

Partner•6 months ago

Be the first to reply

Gemzar and Carboplatim

Hi ladies My wife is being treat for reoccurrence of her HGOC which has progressed to lymph in her neck and liver. She is being treat with Gemzar and...

Hi ladies My wife is being treat for reoccurrence of her HGOC which has progre...

Cardiff05

•6 months ago

4 Replies

Dilemma

Dear ladies, I’m struggling with a decision when it comes to the best next step for me. My local gynecologist scheduled me for an exploratory laparoscopy next...

Dear ladies, I’m struggling with a decision when it comes to the best next step...

Lara1

•6 months ago

42 Replies

Worrying times, sick of waiting

Hi first post here. I'm 52 post menopausal (I went through menopause in my 20's) and have been suffering badly with post menopausal bleeding for over a year,...

Hi first post here. I'm 52 post menopausal (I went through menopause in my 20's)...

Tess74

•6 months ago

3 Replies

Normal CA-125

I am going in for a total hysterectomy on the 25th They suspect a Granulosa Cell Tumour due the presence of a mass on my ovary and thickened womb lining...

I am going in for a total hysterectomy on the 25th They suspect a Granulosa Ce...

Starflower2946

•6 months ago

8 Replies

11and1/2 years

Aren’t I lucky I’m here 11 1/2 years on and doing loads with my life , paddle boarding, hot air balloon, dancing till 1am ( knees regretting that one a bit)...

Aren’t I lucky I’m here 11 1/2 years on and doing loads with my life , paddle ...

Kayp

•6 months ago

11 Replies

feeling abandoned

hello I have posted on here before, I was first diagnosing in 2020 Stage 3C. I had absolutely no idea on that day I was to be told this devastating news....

hello I have posted on here before, I was first diagnosing in 2020 Stage 3C. ...

Hidden

•6 months ago

19 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2024

Avastin V Niraparib-clear cell cancer

cisplatin

MRI results came back. Do you think I will need surgery?

has anyone done laparoscopic for removing tumor partly in the pancreas tail and stomach?

Wondering what to do

What's on at Ovacome next week? (week starting Monday 1 July 2024)

laparoscopy

Low platelets advice

Tomorrow is finally the day of my MRI after waiting 3 1/2 months since the ultrasound and CT scan couldn't be sure of a mass or not.

Best news today!......🙌

Consider the options?

Gynaecological cancers support service - Hereford

Travel insurance

not sure what’s going on

Last chance to sign up! Birmingham Health and Wellbeing Day - 29th June

Hernia surgery

raise ca125

ovarian cysts

Bone Marrow

What's on at Ovacome next week? (week starting Monday 24 June 2024)

Ascites issues

Anyone used tamoxifen for recurrence of ovarian cancer?

Hello Lyndy. How are you ?

Do you live in rural Scotland?

Gemzar and Carboplatim

Dilemma

Worrying times, sick of waiting

Normal CA-125

11and1/2 years

feeling abandoned

Search posts

Pinned Posts

Latest poll

Which of these have you found helpful or would have liked to have been offered as part of your ovarian cancer care? (Please comment below)

Topics

Archive