Posts - My Ovacome | HealthUnlocked

My Ovacome

17,866 members • 20,097 posts

All posts for June 2024

Do you live in rural Scotland?

Good morning everyone, Ovacome are looking at improving the understanding of signs and symptoms of ovarian cancer in rural communities. We are looking at...

Good morning everyone, Ovacome are looking at improving the understanding of si...

OvacomeSupport

Partner•42 minutes ago

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Gemzar and Carboplatim

Hi ladies My wife is being treat for reoccurrence of her HGOC which has progressed to lymph in her neck and liver. She is being treat with Gemzar and...

Hi ladies My wife is being treat for reoccurrence of her HGOC which has progre...

Cardiff05

•18 hours ago

1 Reply

Dilemma

Dear ladies, I’m struggling with a decision when it comes to the best next step for me. My local gynecologist scheduled me for an exploratory laparoscopy next...

Dear ladies, I’m struggling with a decision when it comes to the best next step...

Lara1

•23 hours ago

24 Replies

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Worrying times, sick of waiting

Hi first post here. I'm 52 post menopausal (I went through menopause in my 20's) and have been suffering badly with post menopausal bleeding for over a year,...

Hi first post here. I'm 52 post menopausal (I went through menopause in my 20's)...

Tess74

•1 day ago

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Normal CA-125

I am going in for a total hysterectomy on the 25th They suspect a Granulosa Cell Tumour due the presence of a mass on my ovary and thickened womb lining...

I am going in for a total hysterectomy on the 25th They suspect a Granulosa Ce...

Starflower2946

•2 days ago

6 Replies

11and1/2 years

Aren’t I lucky I’m here 11 1/2 years on and doing loads with my life , paddle boarding, hot air balloon, dancing till 1am ( knees regretting that one a bit)...

Aren’t I lucky I’m here 11 1/2 years on and doing loads with my life , paddle ...

Kayp

•2 days ago

10 Replies

feeling abandoned

hello I have posted on here before, I was first diagnosing in 2020 Stage 3C. I had absolutely no idea on that day I was to be told this devastating news....

hello I have posted on here before, I was first diagnosing in 2020 Stage 3C. ...

Peewe

•3 days ago

19 Replies

Living with Ovarian Cancer

I’m so pleased to say that Episode 32 of “Living with Ovarian Cancer Podcast” is available to listen to. I hope you enjoy listening to Doris sharing her...

I’m so pleased to say that Episode 32 of “Living with Ovarian Cancer Podcast” is...

Levanah

•3 days ago

1 Reply

Not sure how to help/plan

Hi all, I'm not really sure what I'm looking for, but felt like typing this might somehow make something better. I'm late 30s, single, only child, single...

Hi all, I'm not really sure what I'm looking for, but felt like typing this mi...

sasissad

•4 days ago

7 Replies

Feeling worried

I've been on this journey for over 4 years now. I was diagnosed in 2020 with stage 4 OC. Had chemo then radical debulking more chemo. Then olaparib for just 2...

I've been on this journey for over 4 years now. I was diagnosed in 2020 with sta...

Casamimosa

•4 days ago

7 Replies

Datar Cancer Test

Has anyone gone ahead with any genomic testing, specifically the datar blood or tissue test? Thank you :)

Has anyone gone ahead with any genomic testing, specifically the datar blood or ...

Worrieddaughter95

•4 days ago

2 Replies

Feeling lonely - first time posting

Hi all, Have been reading lots of helpful posts on here so thought I’d bite the bullet and share something also. My mum (71) was diagnosed with stage 3b...

Hi all, Have been reading lots of helpful posts on here so thought I’d bite th...

Fourbytwo93

•5 days ago

12 Replies

Working and OC - Freelancers

Hello wonderful women I'm wondering if anyone is on here who is totally freelance? As in, not running their own business as such but hire themselves out to...

Hello wonderful women I'm wondering if anyone is on here who is totally freelanc...

Emcee71

•5 days ago

13 Replies

What's on at Ovacome next week? (week starting Monday 17 June 2024)

Good morning everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next week....

Good morning everyone, This is our weekly post to let you know about the diff...

OvacomeSupport

Partner•5 days ago

Be the first to reply

Secondary surgery

Hello I just had my CT scan and it shows some disease progression in the liver area where a small bit of tumour couldn’t be removed at initial surgery. My...

Hello I just had my CT scan and it shows some disease progression in the liver ...

Kamloops

•5 days ago

6 Replies

chemo nausea/vomiting

hi all! I seem to have posted a lot this week - apologies! mum starts frontline chemo on Monday and is really worried about vomiting while she’s still so...

hi all! I seem to have posted a lot this week - apologies! mum starts frontlin...

georgiageorgia182

•6 days ago

12 Replies

CA125

Has anyone had a rising CA 125 but no recurrence?

Survivor-thank

•6 days ago

7 Replies

A survey of your experiences of one-piece closed stoma bags

Hello everyone, I am posting about the submission we are making to the National Institute for Health and Care Excellence (NICE ) for their Late-Stage...

Hello everyone, I am posting about the submission we are making to the Nation...

OvacomeSupport

Partner•6 days ago

2 Replies

CA125 rising

Just got results back for CA125. It has been rising monthly. My oncologist was taking a wait and see approach as it was normal in April then rose to 70 in May...

Just got results back for CA125. It has been rising monthly. My oncologist was t...

Hockeymom52

•7 days ago

8 Replies

MH500- Marian Harding

It is with a heavy heart I would like to announce the passing of my wife Marian Harding (MH500), she battled with this disease for 8 years and 4 recurrances,...

It is with a heavy heart I would like to announce the passing of my wife Marian ...

KH501

•8 days ago

40 Replies

peewee

I had surgery in 2020 I have never been right since. I feel ok in the morning but as soon as I try to do stuff my stomach starts to feel sore and tight does...

I had surgery in 2020 I have never been right since. I feel ok in the morning b...

Peewe

•8 days ago

4 Replies

Terratoma with a neuroendocrine tumour stage 1 3c, anybody

I think I might be clutching at straws here, anybody have anything similar. Apparently it's rare as hens teeth.I had a 5 kilo terratoma removed, it was on my...

I think I might be clutching at straws here, anybody have anything similar. App...

Dottieparton22

•8 days ago

10 Replies

pains 10 weeks after hysterectomy

hi I’m just wondering as anyone suffered pains in left side under ribs and upper back pain since having hysterectomy I’m still waiting on my 3 month scan so...

hi I’m just wondering as anyone suffered pains in left side under ribs and upper...

Marketlover

•10 days ago

9 Replies

Stomach cramps

Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel resection and is still having some bowel issues. She's had pretty bad stomach...

Hi lovely ladies! My mum is 6 weeks post primary debulking surgery, and bowel re...

georgiageorgia182

•11 days ago

3 Replies

Rucaparib

hello, I was on Rucaparib until today. My ovarian cancer has reoccurred three times in three years. I was taking this for three months my CA125 was 27 after...

hello, I was on Rucaparib until today. My ovarian cancer has reoccurred three ...

Peewe

•11 days ago

16 Replies

Could ovarian cancer and high TIBC (Total Iron Binding Capacity) be linked?

I was just looking back on my medical records and both last year and in 2022 and my TIBC was high both times but my iron was normal. The doctor said she didn't...

I was just looking back on my medical records and both last year and in 2022 and...

starrynight5626

•12 days ago

2 Replies

niraparib

Hi everyone. I have sought your wonderful advices before so I hope you can help me again. My daughter is having trouble tolerating niraparib. Her...

Hi everyone. I have sought your wonderful advices before so I hope you can help...

BrandyHorse

•12 days ago

18 Replies

What's on at Ovacome next week? (week commencing Monday 10 June 2024)

Good afternoon everyone, This is our weekly post to let you know about the different support groups, workshops and events taking place at Ovacome next......

Good afternoon everyone, This is our weekly post to let you know about the di...

OvacomeSupport

Partner•12 days ago

Be the first to reply

Why would a doctor ask for an MRI both with and without contrast to see if I have just a fibroid or if there is an ovarian mass as well?

I had both a CT and ultrasound and they couldn't be 100% sure if I had a mass on my ovary or if it is a pedunculated fibroid. My doctor wrote to the OB/GYN and...

I had both a CT and ultrasound and they couldn't be 100% sure if I had a mass on...

starrynight5626

•13 days ago

5 Replies

3 months since ovarian mass was an incidental find on CT scan and still waiting for my MRI.

I've posted on here before about this but I'm getting antsy. A fibroid and possible ovarian mass were found on a CT when I went in for stomach pains (which...

I've posted on here before about this but I'm getting antsy. A fibroid and poss...

starrynight5626

•13 days ago

18 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2024

Do you live in rural Scotland?

Gemzar and Carboplatim

Dilemma

Worrying times, sick of waiting

Normal CA-125

11and1/2 years

feeling abandoned

Living with Ovarian Cancer

Not sure how to help/plan

Feeling worried

Datar Cancer Test

Feeling lonely - first time posting

Working and OC - Freelancers

What's on at Ovacome next week? (week starting Monday 17 June 2024)

Secondary surgery

chemo nausea/vomiting

CA125

A survey of your experiences of one-piece closed stoma bags

CA125 rising

MH500- Marian Harding

peewee

Terratoma with a neuroendocrine tumour stage 1 3c, anybody

pains 10 weeks after hysterectomy

Stomach cramps

Rucaparib

Could ovarian cancer and high TIBC (Total Iron Binding Capacity) be linked?

niraparib

What's on at Ovacome next week? (week commencing Monday 10 June 2024)

Why would a doctor ask for an MRI both with and without contrast to see if I have just a fibroid or if there is an ovarian mass as well?

3 months since ovarian mass was an incidental find on CT scan and still waiting for my MRI.

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