Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for April 2023

First post!

Hello. Not posted before and feeling nervous! I was diagnosed in 10/22 with HGSOC stage 3 after only a couple of weeks of symptoms. I am being cared for by an...

Hello. Not posted before and feeling nervous! I was diagnosed in 10/22 with HGSO...

Kamloops

•2 years ago

16 Replies

Pain at base of abdomen with stage 4 HGSOC.

I’ve had HGSOC stage 4 since April 2021. I was never offered surgery and I’ve just begun 6/8 sessions of Caelyx as third line chemo. I have a pain/ache at the...

I’ve had HGSOC stage 4 since April 2021. I was never offered surgery and I’ve ju...

Guilane

•2 years ago

9 Replies

Managing menopause without HRT webinar 5 May 2023

Hello All This is to let you know about a webinar we are hosting on Friday 5 May 2023, 11am-noon, with Andreia Fernandes, Lead nurse for gynae-oncology at The...

Hello All This is to let you know about a webinar we are hosting on Friday 5 Ma...

OvacomeSupport

Partner•2 years ago

4 Replies

Want to take advantage of all our features? Just log in!

Hi ladies, quick question

Does anyone know what a HRD test is?

Jacquiemoo

•2 years ago

5 Replies

Recurrence

Having a rant really bear with me. long story short. Have survived stage 4 ovarian cancer so far had 6 chemos then ultra radical surgery then 3 more chemos...

Having a rant really bear with me. long story short. Have survived stage 4 ova...

Casamimosa

•2 years ago

7 Replies

Mucinous Ovarian Tumour

Hi. I recently had a total hysterectomy following a scan showing an ovarian cyst. The report showed stage 1a mucinous ovarian tumour on my left ovary. I had...

Hi. I recently had a total hysterectomy following a scan showing an ovarian cys...

Nanyuki

•2 years ago

17 Replies

Clear Cell Reoccurrence Update

Hi Everyone, I just wanted to update you all with my latest development: I saw my oncologist today, she said there is nothing more they can offer me so she...

Hi Everyone, I just wanted to update you all with my latest development: I saw...

Hidden

•2 years ago

8 Replies

Need advice ladies.

Hi all, OK so I had my full debulking in September, last chemo Nov 1st with avastin and now on avastin and lynpraza 400mg. I saw oncologist October and over...

Hi all, OK so I had my full debulking in September, last chemo Nov 1st with avas...

Newbery3

•2 years ago

6 Replies

walking problems on Olaparib

Does anyone have any suggestions to help walking problems on Olaparib, please? My legs are stiff and are sort As if I have slight cerebral palsy in that I...

Does anyone have any suggestions to help walking problems on Olaparib, please? M...

Trickysite

•2 years ago

11 Replies

Mammograms

diagnosed HGSOC December 2019. BRCA 2 somatic only. Have had standard chemo, debulking + 2 years of Olaparib and doing well to date. My question is around...

diagnosed HGSOC December 2019. BRCA 2 somatic only. Have had standard chemo, de...

RoseMS

•2 years ago

19 Replies

Breathlessness and headaches update!!

Thank you to everyone who shared their thoughts and experience on my last post. Just to let you know that I saw my oncologist today and he has booked me a CT...

Thank you to everyone who shared their thoughts and experience on my last post. ...

Purplepansies54

•2 years ago

4 Replies

Finished chemo

Finished chemo yesterday on a week break before starting Niraparib. My last scans showed a positive result to chemo and my CA125 results are normal.

Finished chemo yesterday on a week break before starting Niraparib. My last sca...

Ova-whelmed

•2 years ago

17 Replies

Update on chemo

Saw my consultant today over the start of chemo , he said as mine was at an early stage I am only having Carboplatin for an hour every session and as he told...

Saw my consultant today over the start of chemo , he said as mine was at an earl...

Cazy1010

•2 years ago

15 Replies

Breast cancer - mastectomy or not

Hi allI was diagnosed with Stage 4a high grade serous OC in September 2022 and I've just had my last post-surgery chemo (for the time being at least)😊. I'm...

Hi allI was diagnosed with Stage 4a high grade serous OC in September 2022 and I...

Demelzatheseagull

•2 years ago

8 Replies

What a week !

Wound up in emergency room. Then surgery following a blockage . For four days I could eat only ice chips . I am home now but struggling with eating . Told only...

Wound up in emergency room. Then surgery following a blockage . For four days I ...

MOOKIE-FOX1234

•2 years ago

18 Replies

Niraparib

Hello ladies. I'm new to this page. I'm very sorry we all have this. I'm from New Zealand. STAGE 3C Serous High Grade. Been in niraparib 3 months, ca125...

Hello ladies. I'm new to this page. I'm very sorry we all have this. I'm from N...

OCFighterNewZealand

•2 years ago

4 Replies

starting chemo

Hi ladies just about to start chemo , as usual my thoughts are going mad !!!! Did you find you stayed in a lot and did not mix outside , I really still want...

Hi ladies just about to start chemo , as usual my thoughts are going mad !!!! ...

Cazy1010

•2 years ago

20 Replies

avastin wearing off symptoms

hi Ladies, hope everyone is enjoying their Sunday! Can anyone share their experience of how their body reacted after coming off avastin after about 2 years....

hi Ladies, hope everyone is enjoying their Sunday! Can anyone share their exper...

Lind58

•2 years ago

4 Replies

cancer has invaded the bowel

Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has...

Hello everyone, I wonder if anyone can help me. For months now I have been havi...

Pippasandy

•2 years ago

14 Replies

Chemo and Flying short haul

I need some advice. I have advanced OC and was diagnosed with recurrence in April 2023 starting carboplatin and calyx last week. I have a city break planned...

I need some advice. I have advanced OC and was diagnosed with recurrence in Apri...

Fizzgirl

•2 years ago

10 Replies

Breathlessness and headaches

Hello everyone Just wondering what your thoughts are on my current situation. I have been on Niraparib since July 2022 with no major side effects and for...

Hello everyone Just wondering what your thoughts are on my current situation. ...

Purplepansies54

•2 years ago

14 Replies

Seromucinous borderline ovarian tumour

Hi everyone, thanks for the nice support here in this forum. It has helped me so much. Following my laparotomy surgery last month (total hysterectomy,...

Hi everyone, thanks for the nice support here in this forum. It has helped me so...

Mothbag

•2 years ago

6 Replies

Gemzar was tough

I spent many years on Avastin since 2008 diagnosis. When I came out of remission from it. I was put on carbo/Gemzar. I had a bad reaction to the Carbo, so I...

I spent many years on Avastin since 2008 diagnosis. When I came out of remissi...

Leniko

•2 years ago

4 Replies

Epigastric Hernia

Hi everyone I hope you are all doing okay and looking forward to the better weather. I am just seeking people's experiences of an epigastric hernia on the...

Hi everyone I hope you are all doing okay and looking forward to the better wea...

LesleyGB

•2 years ago

6 Replies

Reoccurrence Clear Cell OC

Hi, I was diagnosed with CCOC in December 2021. I was told after surgery that I was clear of cancer and had nothing to worry about. I had 6 sessions of chemo...

Hi, I was diagnosed with CCOC in December 2021. I was told after surgery that I ...

Hidden

•2 years ago

31 Replies

LGSOC located in pleura

HiIs there anyone whose lgsoc is located in the pleura? I was diagnosed in June 2020. My ovaries were removed as part of a hysterectomy in 2008 hence the...

HiIs there anyone whose lgsoc is located in the pleura? I was diagnosed in June ...

Pinks2020

•2 years ago

9 Replies

update

so today I had ct scan of course I got to the hospital and cried from start to Finish I think I have white coat syndrome where just the thought of hospital...

so today I had ct scan of course I got to the hospital and cried from start to F...

Mickie1409

•2 years ago

25 Replies

5 years

Today is a milestone for me. 5 years ago today I had my last round of chemo-Avastin continued until January 2019. As I was diagnosed stage 4b I am well aware...

Today is a milestone for me. 5 years ago today I had my last round of chemo-Avas...

JayGeeCee

•2 years ago

48 Replies

Worrying and fed up

Hey lovely ladies, just need some cheering up and support. Had my third chemo last week and it has absolutely ruined me! I am so tired, dizzy, thrush all in my...

Hey lovely ladies, just need some cheering up and support. Had my third chemo la...

Hidden

•2 years ago

42 Replies

ca125 up from last reading

I’m 49 and in 2019 was diagnosed with stage 1c2. It was found in pathology after having ovaries removed prophylactically due to finding out I was BRCA1...

I’m 49 and in 2019 was diagnosed with stage 1c2. It was found in pathology after...

Southernsas

•2 years ago

4 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2023

First post!

Pain at base of abdomen with stage 4 HGSOC.

Managing menopause without HRT webinar 5 May 2023

Hi ladies, quick question

Recurrence

Mucinous Ovarian Tumour

Clear Cell Reoccurrence Update

Need advice ladies.

walking problems on Olaparib

Mammograms

Breathlessness and headaches update!!

Finished chemo

Update on chemo

Breast cancer - mastectomy or not

What a week !

Niraparib

starting chemo

avastin wearing off symptoms

cancer has invaded the bowel

Chemo and Flying short haul

Breathlessness and headaches

Seromucinous borderline ovarian tumour

Gemzar was tough

Epigastric Hernia

Reoccurrence Clear Cell OC

LGSOC located in pleura

update

5 years

Worrying and fed up

ca125 up from last reading

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