Posts - My Ovacome | HealthUnlocked

My Ovacome

17,711 members • 19,964 posts

All posts for August 2017

Stegharts Daughter

Hi all, I wanted to post to inform everyone on here that unfortunately my mum "Steghart" passed away two months ago. Sitting on my bed and missing her I...

Hi all, I wanted to post to inform everyone on here that unfortunately my mum "S...

Sere

•7 years ago

35 Replies

Is it my imagination?

Hi there brave soldiers. Hope you are all feeling positive and happy today. I was having a rummage around in my nightshirt, checking my underarm lymphs,...

Hi there brave soldiers. Hope you are all feeling positive and happy today. I...

Kryssy

•7 years ago

35 Replies

Hi lovely ladies just a update on my tumor testing and Caelyx as maintenance

Hi all, I've had a very interesting week yesterday had a meeting with a research coordinator for genetic testing on my tumor very informative. She said their...

Hi all, I've had a very interesting week yesterday had a meeting with a researc...

lorraine71-Australia

•7 years ago

19 Replies

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How to save an updated Profile on an iPad?

Hello Friends. I know this a silly question but every time I've tried to update my profile lately it's disappeared. 🤔 I think it's due to accepting an update...

Hello Friends. I know this a silly question but every time I've tried to update ...

Solange

•7 years ago

6 Replies

Taxol never worked

In hospital with another bowel obstruction as taxol didn't work they going to try cisplatin anybody else been on this with good results ocoligist said it was a...

In hospital with another bowel obstruction as taxol didn't work they going to tr...

Friscok12

•7 years ago

11 Replies

I'm new here and I have a question about CA-125 normal

Any reason to be concerned if the Dr tells you CA-125 was in the normal range but there is a mass on my ovary that needs to have a CT - Scan.

Any reason to be concerned if the Dr tells you CA-125 was in the normal range bu...

kejones

•7 years ago

6 Replies

Nintedanib trial

This is not an easy post to write but here goes: I am 10 weeks past last of frontline carbo/taxyl after optimium debulking in December. I have clear cell stage...

This is not an easy post to write but here goes: I am 10 weeks past last of fron...

Neona57

•7 years ago

22 Replies

Ascites is back after 1st chemo 😩😩

I hope that I don't have to live with this too. Feeling very huge.

Zena41

•7 years ago

27 Replies

A little update...

I don't know if you remember us, but my wife was diagnosed with a rare form of ovarian cancer late last year (germ cell). Just popped on as I occasionally do...

I don't know if you remember us, but my wife was diagnosed with a rare form of o...

lesrouge

•7 years ago

18 Replies

Troubled

Extreme crippling anxiety jumpy shakie can't sleep eat drink or focus muscle aches scared of ridiculous things can't breathe heart feels like it's coming out...

Extreme crippling anxiety jumpy shakie can't sleep eat drink or focus muscle ach...

Rkwjkjgcagjw

•7 years ago

10 Replies

Anti inflammatories

Good morning. In bed post op long lies, just googling as you do. News today on canakinumab very interesting. Thought it might be of interest to some of you...

Good morning. In bed post op long lies, just googling as you do. News today on ...

Sh-x

•7 years ago

34 Replies

Alternative treatments

i was diagnosed with ovarian cancer April 3, 2017. I had a total hysterectomy and chemotherapy with carboplatin and Taxol. I had my last treatment August 9....

i was diagnosed with ovarian cancer April 3, 2017. I had a total hysterectomy a...

Dancnthyme

•7 years ago

41 Replies

Clare - update

Some of you have been asking about Clare recently. I have been to visit her today in the hospice. Unfortunately she is too poorly to use this site , but I have...

Some of you have been asking about Clare recently. I have been to visit her toda...

Sharon101

•7 years ago

49 Replies

Clear cell

Clear cell stage 2A, anyone with same stage and how are things

Cathy90

•7 years ago

6 Replies

Info sheet on Niraparib

Hi lovelies Hope you're all well just an info sheet for you to read xxx

CallmeMum

•7 years ago

14 Replies

The article again hopefully you can now read it

Hi everyone the article again hopefully you can read it

85live4ever

•7 years ago

2 Replies

I think they are going to stop the treatment

Hi there, I am on weekly taxol and avastin, and last week I suddenly lost all feeling down my left buttock and the back of my left thigh. It has not come...

Hi there, I am on weekly taxol and avastin, and last week I suddenly lost all f...

Hectoria

•7 years ago

13 Replies

Hmmm. Cast adrift.

Ok ladies well I've finally had the NED following end of chemo and scan. 🎉 Obviously I'm very happy but am now feeling a bit cast adrift. I'm not due back for...

Ok ladies well I've finally had the NED following end of chemo and scan. 🎉 Obvi...

Emsymits

•7 years ago

15 Replies

LOC Appointment

Good morning ladies and I hope you are enjoying the fine Bank Holiday weather. With an alarmingly rising CA125 my husband and I went to see my second opinion...

Good morning ladies and I hope you are enjoying the fine Bank Holiday weather. ...

SCWI

•7 years ago

38 Replies

CIPN and losing all feelings day 4 after first chemo

Saturday morning, day 4 after chemo and the CIPN is raging. Can hardly walk and my right arm feels dead. Barely type with one finger. No feeling in...

Saturday morning, day 4 after chemo and the CIPN is raging. Can hardly walk and...

Kryssy

•7 years ago

49 Replies

Weird skin changes

Has anyone experienced changes to their skin after chemo has finished? I wake up to find my skin has stuck together with another area, my deodorant won't dry...

Has anyone experienced changes to their skin after chemo has finished? I wake up...

Neona57

•7 years ago

8 Replies

Need positivity back

Hi I wrote earlier about my appt today, I'm stage 4 with liver lesions which they say can't be operated non because too near arteries (or blood vessels) can't...

Hi I wrote earlier about my appt today, I'm stage 4 with liver lesions which the...

Joanie12

•7 years ago

26 Replies

Good news

Apologies if variations of this have popped up , I keep losing my messages . Taken off trial , Immunotherapy ( Pembrolizumab ) in May , but CT scan shows now ,...

Apologies if variations of this have popped up , I keep losing my messages . Tak...

angeladale

•7 years ago

14 Replies

Fluid in abdomen but CA125 is alright... Help?

Hi. I went through chemo when I was 11 (ovarian cancer) and now I am 24 feeling the same type of symptoms. I refuse to get a chemo again :/ .. So my CA125...

Hi. I went through chemo when I was 11 (ovarian cancer) and now I am 24 feelin...

gina752

•7 years ago

8 Replies

All you amazing people that keep it going .

🌈🌈🌈

Zena41

•7 years ago

4 Replies

Feeling deflated!!

Hi ladies, been for appt with oncologist following first chemo 3 weeks ago, I dread seeing them. Anyhow he explained that they wouldn't do debulking as lesions...

Hi ladies, been for appt with oncologist following first chemo 3 weeks ago, I dr...

Joanie12

•7 years ago

7 Replies

Feeling quite low today. 9 days on from 1st chemo.

Maybe it is leaving my body? Feel like baby blues today and worried about the future .... Doesn't help my 2 year old isn't sleeping and I need too luckily my...

Maybe it is leaving my body? Feel like baby blues today and worried about the f...

Zena41

•7 years ago

30 Replies

Scan results

Today's the day I get my scan results :(. I find out if it's back or not. I'm so worried just needed to say it xx

Today's the day I get my scan results :(. I find out if it's back or not. I'm so...

Leianne7

•7 years ago

15 Replies

Just came across this inspiration

http://people.com/human-interest/pregnant-woman-diagnosed-ovarian-cancer-refuses-termination-delivers-healthy-baby-after-chemo/?utm_campaign=peoplemag&utm_sourc

http://people.com/human-interest/pregnant-woman-diagnosed-ovarian-cancer-refuses...

Zena41

•7 years ago

4 Replies

Another 6 months

Been to Christies today, usual bloods ok, no CA125 result until tomorrow but the last one was 6 so there's no reason to think this latest one should be any...

Been to Christies today, usual bloods ok, no CA125 result until tomorrow but the...

Cropcrop

•7 years ago

19 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for August 2017

Stegharts Daughter

Is it my imagination?

Hi lovely ladies just a update on my tumor testing and Caelyx as maintenance

How to save an updated Profile on an iPad?

Taxol never worked

I'm new here and I have a question about CA-125 normal

Nintedanib trial

Ascites is back after 1st chemo 😩😩

A little update...

Troubled

Anti inflammatories

Alternative treatments

Clare - update

Clear cell

Info sheet on Niraparib

The article again hopefully you can now read it

I think they are going to stop the treatment

Hmmm. Cast adrift.

LOC Appointment

CIPN and losing all feelings day 4 after first chemo

Weird skin changes

Need positivity back

Good news

Fluid in abdomen but CA125 is alright... Help?

All you amazing people that keep it going .

Feeling deflated!!

Feeling quite low today. 9 days on from 1st chemo.

Scan results

Just came across this inspiration

Another 6 months

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