Posts - My Ovacome | HealthUnlocked

My Ovacome

18,388 members•20,445 posts

All posts for October 2019

Niraparib and alcohol

Hi All, I start Niraparib next week and I have to say for first time on this journey I am really nervous 're the potential side effects of the drug. It is...

Hi All, I start Niraparib next week and I have to say for first time on this jou...

dryden1

•5 years ago

16 Replies

Off to London

Finally organized a trip to London with an appointment on Tuesday at the COC and then a trip to the Royal Marsden - not easy coming from Cornwall. I was all...

Finally organized a trip to London with an appointment on Tuesday at the COC and...

Shorty864

•5 years ago

26 Replies

In focus: managing the effects of chemotherapy - skincare

Hello Continuing our series of posts on managing the effects of chemotherapy, this week we're focusing on looking after your skin. Skin is our largest organ....

Hello Continuing our series of posts on managing the effects of chemotherapy, th...

OvacomeSupport

Partner•5 years ago

2 Replies

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Veganism

Morning ladies , thanks for all your responses about my bowel issue following surgery. They are still ongoing but just getting on with it now . Was wondering...

Morning ladies , thanks for all your responses about my bowel issue following su...

Ethano22

•5 years ago

7 Replies

Brain lesion

Hi Anyone survived having ovarian cancer to brain. Had multiple recurrences over past 9 years but always got through them fine. This one has gone to brain...

Hi Anyone survived having ovarian cancer to brain. Had multiple recurrences ove...

michelle2

•5 years ago

8 Replies

Scared

Hello special people. I'm scared. My OC returned despite being on maintenance Avastin after major debulking surgery and total hysterectomy. It's in my stomach...

Hello special people. I'm scared. My OC returned despite being on maintenance Av...

TudorPurr68

•5 years ago

11 Replies

Ovarian cancer stage four

Diagnosed today with the above how long have people lived after diagnosis even with chemo and op Madmolly

Diagnosed today with the above how long have people lived after diagnosis even w...

Madmolly

•5 years ago

30 Replies

Low Grade OC -Trametanib update!

I have been in touch with Prof Charlie Gourley regarding where we are at with Using Trametanib in Low Grade OC. He has very kindly updated me and said this -...

I have been in touch with Prof Charlie Gourley regarding where we are at with Us...

Levanah

•5 years ago

15 Replies

Ca125 suddenly dropped

Hello. I don’t post much by I read all of your posts everyday. Wondering is anyone had a similar experience. I am in 2nd line treatment after being NED for 18...

Hello. I don’t post much by I read all of your posts everyday. Wondering is anyo...

Kmastro

•5 years ago

6 Replies

Only caelyx/ success rate for ascites

Hello everyone, I have a question about the side effect of caelyx? Does anybody do experience having swelling after 1st infusion ? My mom was a bit bloated...

Hello everyone, I have a question about the side effect of caelyx? Does anybody...

sara_mamani96

•5 years ago

1 Reply

Update post - let people know how you are doing (Autumn 2019)

Hello It's that time of year again in the UK when the clocks change, which means its time for an update post which I will pin to the side bar. If you haven't...

Hello It's that time of year again in the UK when the clocks change, which means...

OvacomeSupport

Partner•5 years ago

4 Replies

Abraxane/Carbaplatin

Hi ladies Anyone on here have this chemo combo and if so any advice? I’m starting Nov 21 and I’ve had chemo twice before and Taxotere gave me horrible reaction...

Hi ladies Anyone on here have this chemo combo and if so any advice? I’m startin...

Stage4Gir

•5 years ago

13 Replies

Trying to cope.

Sooooo tired as of late. And decidedly disappointed with my stupid body and it's stupid reactions to the avastin. It's been over a year since I've been on it...

Sooooo tired as of late. And decidedly disappointed with my stupid body and it'...

Natsmb

•5 years ago

23 Replies

Surgery

Hello to all and a BIG thank you for responding to my post. You are all great! I will be having surgery on Nov. 4th four of the Doctors including my pcp say...

Hello to all and a BIG thank you for responding to my post. You are all great! ...

Unlockes

•5 years ago

6 Replies

Update

Hi Ladies an update On feeling deflated, I went in for my gem last Friday 18th and spoken with my nurses regarding my oncology meeting was a little happier as...

Hi Ladies an update On feeling deflated, I went in for my gem last Friday 18th a...

Lorent

•5 years ago

9 Replies

Ive been to the doctor

Ok so the doctors surgery didn’t call back yesterday and I was miffed but the receptionist was mortified and apologised profusely saying it was all her fault....

Ok so the doctors surgery didn’t call back yesterday and I was miffed but the re...

JustKBO

•5 years ago

3 Replies

Any advice on antidepressants ? Thank you

Hi lovely ladies, Thank you so much for the kind words and advice after my last post. I am wondering if anyone takes antidepressants and how this has impacted...

Hi lovely ladies, Thank you so much for the kind words and advice after my last ...

SASSY196

•5 years ago

13 Replies

Ruptured ovarian cyst removal

Discovered my septated cyst ruptured when I had left ovary and 2 tubes removed. Good chance might be alignment and have appointment few days for results of...

Discovered my septated cyst ruptured when I had left ovary and 2 tubes removed. ...

Jacqui1737

•5 years ago

8 Replies

How to gain appetite and desire to eat after colorectal cancer surgery?

Hi need a help and suggestion! In August my dad had his colorectal cancer removed. He is 65. He lost his appetite and unable to eat anything. Dur to his...

Hi need a help and suggestion! In August my dad had his colorectal cancer remov...

Rubyyyyy

•5 years ago

4 Replies

Low Grade anastrozole trial

Hi Ladies for those of you who haven't seen this here is a link to article Lesley xx...

Hi Ladies for those of you who haven't seen this here is a link to article Lesl...

Spirit22

•5 years ago

1 Reply

Chemo again.

Feeling low today ,not sure if I've made the right decision , so far I've had three cycles of carbo and taxol ,taxol killed my legs ,couldn't walk around the...

Feeling low today ,not sure if I've made the right decision , so far I've had th...

fendweller

•5 years ago

47 Replies

Do I don’t I - advice needed xx

Hi Ladies. I am 42 and had my right ovary removed a little over 2 months ago. It was 22cms in size. The biopsy came back at a Mucinous borderline Ovarian...

Hi Ladies. I am 42 and had my right ovary removed a little over 2 months ago. It...

Emm77

•5 years ago

14 Replies

Ca 125

I notice people's ca 125 are low in comparison to mine having a reading of 6000 still to receive chemo

I notice people's ca 125 are low in comparison to mine having a reading of 6000 ...

Madmolly

•5 years ago

23 Replies

In focus: managing the effects of chemotherapy - neuropathy

Hello For October, we're looking at some of the effects of chemotherapy and how they can be managed. We're continuing today with a post about neuropathy. In...

Hello For October, we're looking at some of the effects of chemotherapy and how ...

OvacomeSupport

Partner•5 years ago

2 Replies

Radio 4 Poetry Pharmacy - guests needed

Dear All We have been contacted by a radio producer who is working on a new radio series for BBC Radio 4 called The Poetry Pharmacy which explores the...

Dear All We have been contacted by a radio producer who is working on a new radi...

OvacomeSupport

Partner•5 years ago

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ONX-0801

Hi ladies Has anyone heard of or had any experience of the above trial Thanks Sue

Hi ladies Has anyone heard of or had any experience of the above trial Thanks Su...

SuSue

•5 years ago

2 Replies

Ascites drain shutting bowel down and green bile sick.

Hey lovely ladies, some advice please. I have primary peritoneal cancer, on third line weekly taxol. Back in February I started being sick large amounts of...

Hey lovely ladies, some advice please. I have primary peritoneal cancer, on thir...

Lileth

•5 years ago

5 Replies

Just diagnosed

I have just been diagnosed with stage 3 ovarian cancer and am going for biopsy tomorrow I am then led to believe I will have three bouts of chemo followed by...

I have just been diagnosed with stage 3 ovarian cancer and am going for biopsy t...

Madmolly

•5 years ago

12 Replies

WHAT CAN I DO ??

Finished 3rd line chemo on Aug 15th with good response. At app with oncologist in Sept was suggested I would be suitable for parp inhibitor ruca parib and...

Finished 3rd line chemo on Aug 15th with good response. At app with oncologist...

dryden1

•5 years ago

16 Replies

Anastrozole

Evening Everyone I have been on Anastozole one per day for about seven wks, the last wke by the afternoon I feel completely awful so tired and a bit...

Evening Everyone I have been on Anastozole one per day for about seven wks, the...

1916

•5 years ago

7 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for October 2019

Niraparib and alcohol

Off to London

In focus: managing the effects of chemotherapy - skincare

Veganism

Brain lesion

Scared

Ovarian cancer stage four

Low Grade OC -Trametanib update!

Ca125 suddenly dropped

Only caelyx/ success rate for ascites

Update post - let people know how you are doing (Autumn 2019)

Abraxane/Carbaplatin

Trying to cope.

Surgery

Update

Ive been to the doctor

Any advice on antidepressants ? Thank you

Ruptured ovarian cyst removal

How to gain appetite and desire to eat after colorectal cancer surgery?

Low Grade anastrozole trial

Chemo again.

Do I don’t I - advice needed xx

Ca 125

In focus: managing the effects of chemotherapy - neuropathy

Radio 4 Poetry Pharmacy - guests needed

ONX-0801

Ascites drain shutting bowel down and green bile sick.

Just diagnosed

WHAT CAN I DO ??

Anastrozole

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