Posts - My Ovacome | HealthUnlocked

My Ovacome

18,349 members•20,424 posts

All posts for June 2019

Hot Weather

Hi lovelies, The sun is shining (to make a change) please keep yourselves cool and hydrated as its meant to be up to 30 today and over the weekend xxx

Hi lovelies, The sun is shining (to make a change) please keep yourselves cool ...

CallmeMum

•5 years ago

6 Replies

Still Carpe Diem(ing)

Hi all. Just to say I’m still attempting to ‘live it large’ as my son would say. I have just got to the milestone of two years since finishing chemo and thank...

Hi all. Just to say I’m still attempting to ‘live it large’ as my son would say....

Emsymits

•5 years ago

40 Replies

Elevated ca125 levels/ possible liver problems?

I could use a little feedback. My ca125 levels have been going down steadily for the past five or six treatments. Unfortunately, I seem to have had issues with...

I could use a little feedback. My ca125 levels have been going down steadily for...

Natsmb

•6 years ago

4 Replies

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Run free, lovely ScardyCat

I'm so very sad to hear of Lorraine's passing. She was a true supporter of all the women in the Ovarian Cancer community. I first (cyber)met Lorraine when she...

I'm so very sad to hear of Lorraine's passing. She was a true supporter of all t...

wendydee

•6 years ago

45 Replies

Research study on partners worrying about recurrence

Dear All We have been approached to help with recruitment into a study at the University of Liverpool to improve understanding about partners worrying that...

Dear All We have been approached to help with recruitment into a study at the Un...

OvacomeSupport

Partner•6 years ago

5 Replies

Letrozole

I have been told I need to go on Letrozole for post op treatment of low grade serous ovarian cancer. All I can find online is scary reviews which seem to...

I have been told I need to go on Letrozole for post op treatment of low grade se...

Bella12345678

•6 years ago

21 Replies

Most amazing news

I’m all clear - NED, after my scan on Tuesday- I’m so relieved- I was stage 3/4 at diagnosis including a bit on my liver which was cut off in surgery with full...

I’m all clear - NED, after my scan on Tuesday- I’m so relieved- I was stage 3/4 ...

Flower2011

•6 years ago

48 Replies

PELVIC PAIN - CAUSES?

Hi everyone - for the last couple of weeks I have started to experience chronic pelvic pain when I need to open my bowels. Once I have been the pain eases and...

Hi everyone - for the last couple of weeks I have started to experience chronic ...

Hidden

•6 years ago

27 Replies

Here we go again

Just got the CA125 results and I was right. I will be going back on treatment soon. Although it only jumped up four points (12 to 16) I can feel it growing in...

Just got the CA125 results and I was right. I will be going back on treatment so...

yo207

•6 years ago

33 Replies

Ova to You..Cambridge

Dear All This is to let you know we will be holding an event in Cambridge on Wednesday 10 July, from 2pm to 6 pm. It's an opportunity to meet others with a...

Dear All This is to let you know we will be holding an event in Cambridge on Wed...

OvacomeSupport

Partner•6 years ago

2 Replies

Hair colouring during chemo

I'm in the middle of chemo, carboplatin, my roots are horrendous so I thinking of having my hair coloured. Anyone gone against the advice and had their hair...

I'm in the middle of chemo, carboplatin, my roots are horrendous so I thinking o...

n377y

•6 years ago

11 Replies

In remembrance of all us Teal sisters

Just saw this today and brought it .. a beautiful Teal Sunflower wind chime in rememberance of those Sisters that have already flown and for the rest of us...

Just saw this today and brought it .. a beautiful Teal Sunflower wind chime in r...

SuziTench1

•6 years ago

14 Replies

Crazy emotions

Hi I'm new to page and dont even know where to start. As of March 14 I was dignosed with a rare ovarian cancer, in the process of this i lost my grandma the...

Hi I'm new to page and dont even know where to start. As of March 14 I was digno...

Super-kay

•6 years ago

11 Replies

Kryssy ???

Anyone heard from Kryssy?

SuziTench1

•6 years ago

10 Replies

Small bowel obstruction

Hi ladies my mum has recurrence ovarian cancer on chemo carbo/Caelyx only second cycle and she had small bowel obstruction. She has NG tube now 6 days she’s...

Hi ladies my mum has recurrence ovarian cancer on chemo carbo/Caelyx only second...

Ghazarian

•6 years ago

9 Replies

How I wish some were still here....

Hi lovelies, I hope you're all as well as can be? My special person is back in hospital she very likely has a bowel blockage as she can't wee or poo so will...

Hi lovelies, I hope you're all as well as can be? My special person is back in...

CallmeMum

•6 years ago

29 Replies

Unusual neuropathy

Did anyone on Carboplatin & Taxol chemo have the following symptoms (which developed following the 2nd course): some sensory loss on epidermis and loss of...

Did anyone on Carboplatin & Taxol chemo have the following symptoms (which devel...

Violet2023

•6 years ago

5 Replies

Inappropriate post over the weekend

Dear All Thank you to everyone who took the time to report an inappropriate post on the forum over the weekend. The post has been removed. We are very sorry...

Dear All Thank you to everyone who took the time to report an inappropriate post...

TheOvacomeTeam

Partner•6 years ago

2 Replies

Mesonephric-like ovarian cancer - anyone else?

This is one rare diagnosis that doctors are very confused by. Please let me know if you have been diagnosed with this. It is so rare in the PubMed literature...

This is one rare diagnosis that doctors are very confused by. Please let me know...

Sceptical1

•6 years ago

2 Replies

Just on Avastin now

I’ve done Chemo, and will just be on avastin now for 12 months- does anyone know if avastin affects your blood count so you can’t have it. Twice I had my chemo...

I’ve done Chemo, and will just be on avastin now for 12 months- does anyone know...

Flower2011

•6 years ago

36 Replies

Parps and Caelyx/Carbo???

Hope all you wonderful ladies are going as well as can be😊 A question??...I have been wondering why some ladies are prescribed a Parp Inhibitor and some...

Hope all you wonderful ladies are going as well as can be😊 A question??...I ...

rossnbren

•6 years ago

15 Replies

&*^% Ovarian Cancer

I genuinely thought I could not possible hate ovarian cancer any more than when I lost my mom just a month ago. Turns out I can because my maternal great aunt...

I genuinely thought I could not possible hate ovarian cancer any more than when ...

kristinaapril

•6 years ago

17 Replies

Home at last

Thank you ladies for your support. I am home from hospital after 9 days and have spent my first night in my own bed. I feel battered and bruised and a little...

Thank you ladies for your support. I am home from hospital after 9 days and have...

Lockygill

•6 years ago

16 Replies

Ovarian cancer support group with guest speaker on bladder care

Hello All This is to invite you along on Wednesday 3 July for an opportunity to speak with uro-gynaecology CNS Ellie Stewart about bladder care after treatment...

Hello All This is to invite you along on Wednesday 3 July for an opportunity to ...

OvacomeSupport

Partner•6 years ago

7 Replies

2nd Month in Niraparib/Zejula Report from Laura

Hi ladies, Hope this finds you in fighting spirits and in the best of health. As you know, I have been feeling as close to 100% as I ever expected to be again,...

Hi ladies, Hope this finds you in fighting spirits and in the best of health. As...

Lindaura

•6 years ago

14 Replies

Tamoxifen

Hello laydies, I was wondering if anyone has experience with Tamoxifen with Ovarian cancer? If so, can you please share your story. Many thanks

Hello laydies, I was wondering if anyone has experience with Tamoxifen with Ovar...

sara_mamani96

•6 years ago

11 Replies

Ca125 question

Hi all, don't post often but read all posts and send good wishes to all with this crappy disease. A question, I'm on niraparib for past 4 months and doing...

Hi all, don't post often but read all posts and send good wishes to all with thi...

Joanie12

•6 years ago

8 Replies

Latest update

Hi Ladies Bad weekend. Headache from Hell and numb tingling left arm and scalp. Really heavy swollen eyelids and struggle to keep them open. Rang helpline...

Hi Ladies Bad weekend. Headache from Hell and numb tingling left arm and scalp. ...

Hidden

•6 years ago

4 Replies

Perplexed abt Avastin & BP

I am in 3rd OC recurrence. First diagnosis 2006, w/9 yr remission after surgery & Carbo /Taxol. During this 3rd recurrence, I had Doxyl/Avastin. I had had...

I am in 3rd OC recurrence. First diagnosis 2006, w/9 yr remission after surgery ...

Kygrl

•6 years ago

5 Replies

ICON 9 phase 111 Trial

Hello ladies, l will get my final chemo Carbo/Gem this week, it's been ok after the initial few problems. Consultant is then allowing me to go on holiday-...

Hello ladies, l will get my final chemo Carbo/Gem this week, it's been ok after ...

Birdsong222

•6 years ago

5 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for June 2019

Hot Weather

Still Carpe Diem(ing)

Elevated ca125 levels/ possible liver problems?

Run free, lovely ScardyCat

Research study on partners worrying about recurrence

Letrozole

Most amazing news

PELVIC PAIN - CAUSES?

Here we go again

Ova to You..Cambridge

Hair colouring during chemo

In remembrance of all us Teal sisters

Crazy emotions

Kryssy ???

Small bowel obstruction

How I wish some were still here....

Unusual neuropathy

Inappropriate post over the weekend

Mesonephric-like ovarian cancer - anyone else?

Just on Avastin now

Parps and Caelyx/Carbo???

&*^% Ovarian Cancer

Home at last

Ovarian cancer support group with guest speaker on bladder care

2nd Month in Niraparib/Zejula Report from Laura

Tamoxifen

Ca125 question

Latest update

Perplexed abt Avastin & BP

ICON 9 phase 111 Trial

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