Posts - My Ovacome | HealthUnlocked

My Ovacome

17,686 members • 19,953 posts

All posts for April 2021

Recent cancer news - blindsided

Hi It's recent news for me. Enjoying the sea walks and sunshine but going quietly crazy. Would like to share...

Hi It's recent news for me. Enjoying the sea walks and sunshine but going quie...

TurquoiseKate

•3 years ago

15 Replies

Olaparib

Well after 7 weeks on olaparib it has been stopped completely,been in hospital for 3 days,liver is showing very high levels ,back up to cancer centre next...

Well after 7 weeks on olaparib it has been stopped completely,been in hospital f...

patricia54053

•3 years ago

3 Replies

When is tired too tired?!?

Hello Lovely Ladies, I hope wherever you are the sun is shining on you...anyway my question when is tired too tired? I had my second chemo carbo/caelyx last...

Hello Lovely Ladies, I hope wherever you are the sun is shining on you...anyway ...

SASSY196

•3 years ago

15 Replies

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Research participants needed for Gynae Cancer Narratives Project on experiences of radiotherapy

Hello We have been contacted by a researcher from Lancaster University called Hilary Stewart about a project called the Gynae Cancer Narratives Project. They...

Hello We have been contacted by a researcher from Lancaster University called Hi...

OvacomeSupport

Partner•3 years ago

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Post surgery symptoms

Hi guys 10 weeks out since surgery heading in to last week of chemo I have a pain in my left side a little up from navel and pain like nerve pain on out side...

Hi guys 10 weeks out since surgery heading in to last week of chemo I have a pai...

Clifden1

•3 years ago

4 Replies

No hair growth!

I finished Carbo/Caely x early January, and started Rucaparib about right weeks after. My hair was extremely thin after the chemo and I have been hoping that...

I finished Carbo/Caely x early January, and started Rucaparib about right weeks ...

27-359

•3 years ago

10 Replies

Avastin not working?

Have a question for ladies out there. My bloods have fairly normal except this last time How strange is this Doc said my sodium levels tanked and I need more...

Have a question for ladies out there. My bloods have fairly normal except this l...

Summergold2

•3 years ago

4 Replies

Recordings of previous Ovacome online events

Hello, everyone For anyone who wasn't able to attend one of our online sessions, or if you were there and would like to watch it again, we have recordings of...

Hello, everyone For anyone who wasn't able to attend one of our online sessions,...

OvacomeSupport

Partner•3 years ago

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Clinical Trial

Anyone have any experience of the PROMPT clinical trial using pembrolizumab? I have been put forward to apply for it at Barts. Gilly x

Anyone have any experience of the PROMPT clinical trial using pembrolizumab? I h...

Lockygill

•3 years ago

10 Replies

Cancer with no rise in CA 125?

Hello collective hearts, While looking for something completely unrelated to cancer it was found on a CT that i have a new 3 cm ( not mm) spot on my lung where...

Hello collective hearts, While looking for something completely unrelated to can...

FlowerRose

•3 years ago

10 Replies

Health in Focus: Screening for other cancers

Hello All This month in our ‘Health in Focus’ posts, we’re looking at ways to promote earlier diagnosis of ovarian cancer. In the last three weeks, we’ve...

Hello All This month in our ‘Health in Focus’ posts, we’re looking at ways to p...

OvacomeSupport

Partner•3 years ago

3 Replies

Intermittent fasting in ovarian cancer

Hey everyone.. I had a question. My mother's ca125 has been increased a bit. She was diagnosed with ovarian cancer and was on bevacizumab ever since 2nd time...

Hey everyone.. I had a question. My mother's ca125 has been increased a bit. She...

Tanvi1

•3 years ago

14 Replies

CA125 Post operation have increased and treatment options

Hi all My wife was diagnosed with Stage 3 ovarian cancer back in September 2020. Due to the extent of the tumours an operation pre chemo wasn’t an option and...

Hi all My wife was diagnosed with Stage 3 ovarian cancer back in September 2020....

Lamets

•3 years ago

18 Replies

No emotions on new diagnosis.

So was gearing up at the beginning of this month to return to work after the CEV were allowed to do so, woke up the week before the 1st April with a sharpish...

So was gearing up at the beginning of this month to return to work after the CEV...

MarleyZ

•3 years ago

8 Replies

Raised liver function.

Started Rucaparib nearly four weeks ago, despite three different anti sickness tablets I'm still feeling sickly and tired,got call from chemotherapy unit to...

Started Rucaparib nearly four weeks ago, despite three different anti sickness t...

fendweller

•3 years ago

38 Replies

Still clear

Hello ladies, It’s been a while since I last posted and to be honest I have not been logging on too often. My darling husband passed away last month, his...

Hello ladies, It’s been a while since I last posted and to be honest I have not ...

JayGeeCee

•3 years ago

18 Replies

Do you know someone who might benefit from this forum?

Hello We can see from the conversations on the forum that it is a valuable source of information and support and that our members benefit from sharing...

Hello We can see from the conversations on the forum that it is a valuable sourc...

TheOvacomeTeam

Partner•3 years ago

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Ridiculous

Two years on from treatment including various drains for ascites, chemo,blood tests,scans,major surgery, ... and Im bricking it because I need to see a...

Two years on from treatment including various drains for ascites, chemo,blood te...

rosebine

•3 years ago

9 Replies

Why do I continue to have day and night sweats after op, chemo, taxol and avastin

Sweats

Madmolly

•3 years ago

5 Replies

Living with Ovarian Cancer Podcast

My latest Podcast is now available to listen to. I’d be grateful if you could subscribe to hear future episodes and leave a review. It helps to get the podcast...

My latest Podcast is now available to listen to. I’d be grateful if you could su...

Levanah

•3 years ago

4 Replies

Help Entia develop the world’s first home monitoring solution for cancer patients

Hello Please see below request from Entia for research participants. "Help us transform the future of cancer care We are inviting people undergoing cancer...

Hello Please see below request from Entia for research participants. "Help us tr...

OvacomeSupport

Partner•3 years ago

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Online groups, talks and workshops with Ovacome this week

Hello All, This is to let you know about the Ovacome online events taking place this week. Gentle home exercise class - Tuesday 27 April, 2-3pm...

Hello All, This is to let you know about the Ovacome online events taking place ...

OvacomeSupport

Partner•3 years ago

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Niraparib 'chemo brain'

Hello! Is anyone else taking Niraparib experiencing 'chemo brain' ? I don't know if it is a side effect or not. I have mentioned this to my medical team but...

Hello! Is anyone else taking Niraparib experiencing 'chemo brain' ? I don't know...

Kaitlinsmum

•3 years ago

9 Replies

Second chemo

Got my second carboplatin today was fine after first one hope I’m the same this time .

Got my second carboplatin today was fine after first one hope I’m the same this ...

polo2014

•3 years ago

3 Replies

Good Heavens. I did it!

Well ladies. I refused to have lung biopsy or another CA125 until I went parasailing 🪂 with my daughter for my 70th. I’ve had a great week in the US Virgin...

Well ladies. I refused to have lung biopsy or another CA125 until I went parasai...

Sashay2020

•3 years ago

28 Replies

Anyone here have ascites at diagnosis and gone into long remission/no recurrence?

I had a small amount of ascites at diagnosis (stage 4 HGSOC). It came back much worse a month after debulking surgery, one month into chemo. I had over 1000ml...

I had a small amount of ascites at diagnosis (stage 4 HGSOC). It came back much...

Ella1717

•3 years ago

16 Replies

How many lines of Carboplatin

Wondering how many lines generally before you become resistant. I have had two so far, partial response both times, 7 months between line 1 and 2,which is...

Wondering how many lines generally before you become resistant. I have had two s...

rosebine

•3 years ago

8 Replies

Borderline ovarian cells

Hi I am new to posting. In Nov 2020 I had a routine scan for hip and back ache I am 63 and was sent for ultrasound and found to have 2 cysts one on each ovary....

Hi I am new to posting. In Nov 2020 I had a routine scan for hip and back ache I...

Gakaxy57

•3 years ago

23 Replies

CA125 on the Increase

Hi everyone, went for my usual 4 monthly checkup yesterday and after 4 years of remission my CA125 has gone up for the 3rd time in a row. It usually hovers...

Hi everyone, went for my usual 4 monthly checkup yesterday and after 4 years of ...

Kouyate

•3 years ago

3 Replies

Low white blood cells

Hi ladies, I have just recently started chemo again for first recurrence high grade serous OC & am on carboplatin /Gemcitabine one week & two weeks later just...

Hi ladies, I have just recently started chemo again for first recurrence high gr...

Tulips66

•3 years ago

19 Replies

Posts - My Ovacome | HealthUnlocked

My Ovacome

All posts for April 2021

Recent cancer news - blindsided

Olaparib

When is tired too tired?!?

Research participants needed for Gynae Cancer Narratives Project on experiences of radiotherapy

Post surgery symptoms

No hair growth!

Avastin not working?

Recordings of previous Ovacome online events

Clinical Trial

Cancer with no rise in CA 125?

Health in Focus: Screening for other cancers

Intermittent fasting in ovarian cancer

CA125 Post operation have increased and treatment options

No emotions on new diagnosis.

Raised liver function.

Still clear

Do you know someone who might benefit from this forum?

Ridiculous

Why do I continue to have day and night sweats after op, chemo, taxol and avastin

Living with Ovarian Cancer Podcast

Help Entia develop the world’s first home monitoring solution for cancer patients

Online groups, talks and workshops with Ovacome this week

Niraparib 'chemo brain'

Second chemo

Good Heavens. I did it!

Anyone here have ascites at diagnosis and gone into long remission/no recurrence?

How many lines of Carboplatin

Borderline ovarian cells

CA125 on the Increase

Low white blood cells

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